Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Hi, My 4 year old daughter has ACM 1 and many other problems. I was wondering if there were any other parents of Chiari kids living in Delaware or even land? I would love to meet with someone or just even talk on the phone. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Hi, My 4 year old daughter has ACM 1 and many other problems. I was wondering if there were any other parents of Chiari kids living in Delaware or even land? I would love to meet with someone or just even talk on the phone. Thanks [Kathleen] response: I've had enough parents and kids contact me in the last few days asking if I could set up a parents and kids group. I will do that before the end of the week. Thanks so much for all that have joined. Another member asked me if I could like us to a map, that way we can put where we are from and make it easier for other members to locate people near them. Does anyone have a link for a map site? Kathleen CM I, hydrocephalus,cervical instability, EDS. suboccipital craniectomy and VA shunt 1990, suprasinus decompression 1998, craniocervical fusion 1999, shunt revisions, LP shunt 2003, C5-6 fusion 2004, Lumbar reservoir., Craniocervical fusion redo 2006. Diagnosed with TCS 2006. . Quote Link to comment Share on other sites More sharing options...
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