Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 , Here is some information I found and the link where I found it. My daughter is also missing some of her permanent teeth. Out dentist told us that it could be related to her having DS or it could be something that she inherited since our older daughter also was missing two of her adult teeth. My daughter has a very small mouth so missing teeth might not be as much of a problem because she is most likely going to be crowded. We did have all of her back baby teeth capped to hopefully keep them in good shape so that she will keep them as long as possible. She did not get her first tooth until she was 18 months old so her adult teeth may take longer to errupt also and she will need to have her baby teeth until that happens. I don't know if you see a pediatric dentist, but we were going to our family dentist and then switched to a pediactric dentist. I feel like that was good for us because our family dentist was a little passive and I feel like our pediatric dentist is willing to be more proactive. Hope this helps you a little ~ Lorra http://altonweb.cust.he.net/cs/downsyndrome/index.htm?page=desai.html Partial anodontia. Congenitally missing teeth are more common among individuals with Down syndrome (50%) when compared to the general population (2%), though the distribution of missing teeth is similar in both populations.22 Genetic modes of transmission are responsible for this condition. A relationship between partial anodontia and other ectodermal defects (mucous membrane, hair, skin) has been suggested.19 Further research indicated that this "Trisomic insult" will greatly increase the susceptibility of the host to partial anodontia, while not affecting specific tooth buds.22 The most frequently missing teeth in descending order are third molars, second bicuspids, lateral incisors, and mandibular incisors. The only teeth not missing are first molars.22 Sometimes the primary tooth will not be resorbed or will be resorbed so slowly that it can be retained well into adulthood.24 Treatment decisions should be made after reviewing the radiographs with concern for space maintenance. In the general population, the incidence of supernumerary primary teeth is approximately 0.3% while in the Down syndrome population the incidence is increased but the frequency is less than congenitally absent teeth.24 Crowding is not uncommon and seen more in the maxillary arch than the mandibular arch.24 Spacing is often seen.9 Subject: [DownSyndromeInfoExchange] Missing permanent teethTo: DownSyndromeInfoExchange Date: Saturday, January 10, 2009, 12:35 AM Ian went to his dentist for a regular check up. Dentist did xrays for thefirst time and noticed that some of Ian's permanent teeth are missing.Dentist told us that Ian has a congenital teeth disorder in which some ofhis permanent teeth are missing and will never come in.He didn't give me a name of the disorder (i was kind of shocked) so willcall next week and find out.My question is this:Has anybody else had this? The dentist said he didn't think it was DSrelated but when I researched it I found a disorder. Called EpidermalDysphasia which has lots of skin, teeth and hair problems. I think Ian'sis called Hypodontia but not sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Hi , has the same issues and we found out at the orthodontist. Our ortho does a lot of kids with all kinds of issues and has a dd with ASD. He said it's pretty common in DS and that we need to do everything to protect her baby teeth as many keep them all their lives. So we had some of them sealed, which is contraversial with some people due to the sealent. I figure it's a toss up if you are going to deal with lots of teethpulling and the missing teeth down the road.Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/ http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace.com/vennamusicFrom: "hrw@..." To: DownSyndromeInfoExchange Sent: Saturday, January 10, 2009 12:35:02 AMSubject: [DownSyndromeInfoExchange] Missing permanent teeth Ian went to his dentist for a regular check up. Dentist did xrays for the first time and noticed that some of Ian's permanent teeth are missing. Dentist told us that Ian has a congenital teeth disorder in which some of his permanent teeth are missing and will never come in. He didn't give me a name of the disorder (i was kind of shocked) so will call next week and find out. My question is this: Has anybody else had this? The dentist said he didn't think it was DS related but when I researched it I found a disorder. Called Epidermal Dysphasia which has lots of skin, teeth and hair problems. I think Ian's is called Hypodontia but not sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 My mother and I each have a missing permanent tooth. It's even the same one. We do not have DS. My 2 older children have all their teeth. I'm not sure about my youngest 2 as they have not had x-rays yet. It seems it might run in our family but has nothing to do with DS. [DownSyndromeInfoExchange] Missing permanent teeth Ian went to his dentist for a regular check up. Dentist did xrays for thefirst time and noticed that some of Ian's permanent teeth are missing.Dentist told us that Ian has a congenital teeth disorder in which some ofhis permanent teeth are missing and will never come in.He didn't give me a name of the disorder (i was kind of shocked) so willcall next week and find out.My question is this:Has anybody else had this? The dentist said he didn't think it was DSrelated but when I researched it I found a disorder. Called EpidermalDysphasia which has lots of skin, teeth and hair problems. I think Ian'sis called Hypodontia but not sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Faith is missing 4 permanant teeth, fortunately one in each quadrant. The baby teeth will probably stay in. If not, her mouth is small so it won't be noticable. The orthodontist examined her teeth 6 months ago and said they are not as bad as many typical kids, so that was good news indeed! ette mom to Faith (11)Ds -------------- Original message from hrw@...: -------------- Ian went to his dentist for a regular check up. Dentist did xrays for thefirst time and noticed that some of Ian's permanent teeth are missing.Dentist told us that Ian has a congenital teeth disorder in which some ofhis permanent teeth are missing and will never come in.He didn't give me a name of the disorder (i was kind of shocked) so willcall next week and find out.My question is this:Has anybody else had this? The dentist said he didn't think it was DSrelated but when I researched it I found a disorder. Called EpidermalDysphasia which has lots of skin, teeth and hair problems. I think Ian'sis called Hypodontia but not sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Here's a little something for your dentist. You may have already come across this? The site is hosted by a pediatrician who had a young son with DS. Lot of other great articles. http://www.ds-health.com/dental.htm nnaMommy to Freddie 7yrsFull Inclusion 1st Grade"We can change the world one classroom at a time" - Gail on Subject: [DownSyndromeInfoExchange] Missing permanent teethTo: DownSyndromeInfoExchange Date: Friday, January 9, 2009, 10:35 PM Ian went to his dentist for a regular check up. Dentist did xrays for thefirst time and noticed that some of Ian's permanent teeth are missing.Dentist told us that Ian has a congenital teeth disorder in which some ofhis permanent teeth are missing and will never come in.He didn't give me a name of the disorder (i was kind of shocked) so willcall next week and find out.My question is this:Has anybody else had this? The dentist said he didn't think it was DSrelated but when I researched it I found a disorder. Called EpidermalDysphasia which has lots of skin, teeth and hair problems. I think Ian'sis called Hypodontia but not sure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Wow you all are the greatest~~~ I appreciate all the feedback~ Thanks Here's a little something for your dentist. You may have already come > across this? The site is hosted by a pediatrician who had a young son with > DS. Lot of other great articles. > Â > http://www.ds-health.com/dental.htm > > > nna > Mommy to Freddie 7yrs > Full Inclusion 1st Grade > > " We can change the world one classroom at a time " - Gail on > > > > > Subject: [DownSyndromeInfoExchange] Missing permanent teeth > To: DownSyndromeInfoExchange > Date: Friday, January 9, 2009, 10:35 PM > > > > > > > Ian went to his dentist for a regular check up. Dentist did xrays for the > first time and noticed that some of Ian's permanent teeth are missing. > Dentist told us that Ian has a congenital teeth disorder in which some of > his permanent teeth are missing and will never come in. > He didn't give me a name of the disorder (i was kind of shocked) so will > call next week and find out. > > My question is this: > Has anybody else had this? The dentist said he didn't think it was DS > related but when I researched it I found a disorder. Called Epidermal > Dysphasia which has lots of skin, teeth and hair problems. I think Ian's > is called Hypodontia but not sure. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Lorra, Oh my... You are a life saver! Ian is scheduled for a T & T on Jan 27 as a day surgery. I was reading the website you sent me to on the teeth issue. I looked up Sleep apnea and it states that : " One final note about adenotonsillectomies in children with DS: this should not be considered day surgery. Studies have shown that after T & As, children with DS have longer periods of decreased oxygenation and a slower time to recovery " I may call the clinic next week and see if they cant keep Ian overnight just in case > , > Here is some information I found and the link where I found it. My > daughter is also missing some of her permanent teeth. Out dentist told us > that it could be related to her having DS or it could be something that > she inherited since our older daughter also was missing two of her adult > teeth. My daughter has a very small mouth so missing teeth might not be > as much of a problem because she is most likely going to be crowded. We > did have all of her back baby teeth capped to hopefully keep them in good > shape so that she will keep them as long as possible. She did not get her > first tooth until she was 18 months old so her adult teeth may take longer > to errupt also and she will need to have her baby teeth until that > happens. I don't know if you see a pediatric dentist, but we were going > to our family dentist and then switched to a pediactric dentist. I feel > like that was good for us because our family dentist was a little passive > and I feel like > our pediatric dentist is willing to be more proactive. Hope this helps > you a little ~ Lorra >  > http://altonweb.cust.he.net/cs/downsyndrome/index.htm?page=desai.html >  > Partial anodontia. Congenitally missing teeth are more common among > individuals with Down syndrome (50%) when compared to the general > population (2%), though the distribution of missing teeth is similar in > both populations.22 Genetic modes of transmission are responsible for this > condition. A relationship between partial anodontia and other ectodermal > defects (mucous membrane, hair, skin) has been suggested.19 Further > research indicated that this " Trisomic insult " will greatly increase the > susceptibility of the host to partial anodontia, while not affecting > specific tooth buds.22 The most frequently missing teeth in descending > order are third molars, second bicuspids, lateral incisors, and mandibular > incisors. The only teeth not missing are first molars.22 Sometimes the > primary tooth will not be resorbed or will be resorbed so slowly that it > can be retained well into adulthood.24 Treatment decisions should be made > after reviewing the radiographs with > concern for space maintenance. In the general population, the incidence > of supernumerary primary teeth is approximately 0.3% while in the Down > syndrome population the incidence is increased but the frequency is less > than congenitally absent teeth.24 Crowding is not uncommon and seen more > in the maxillary arch than the mandibular arch.24 Spacing is often seen.9 > > > > > > Subject: [DownSyndromeInfoExchange] Missing permanent teeth > To: DownSyndromeInfoExchange > Date: Saturday, January 10, 2009, 12:35 AM > > > > > > > Ian went to his dentist for a regular check up. Dentist did xrays for the > first time and noticed that some of Ian's permanent teeth are missing. > Dentist told us that Ian has a congenital teeth disorder in which some of > his permanent teeth are missing and will never come in. > He didn't give me a name of the disorder (i was kind of shocked) so will > call next week and find out. > > My question is this: > Has anybody else had this? The dentist said he didn't think it was DS > related but when I researched it I found a disorder. Called Epidermal > Dysphasia which has lots of skin, teeth and hair problems. I think Ian's > is called Hypodontia but not sure. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 , We did have to stay over night when we had our surgery. They made that decision the day of surgery. She was much harder to calm down after the anesthesia. They came to get me as soon as she was settled into the recovery unit so that I was there to help console her. She was fine by the next morning. Hopefully you will be one of the first scheduled in that morning. It was very hard to not give her anything to eat or drink and she didn't understand why she couldn't have anything while we waited for surgery. Good Luck ~ Lorra>> > Subject: [DownSyndromeInfoEx change] Missing permanent teeth> To: DownSyndromeInfoExc hange@yahoogroup s.com> Date: Saturday, January 10, 2009, 12:35 AM>>>>>>> Ian went to his dentist for a regular check up. Dentist did xrays for the> first time and noticed that some of Ian's permanent teeth are missing.> Dentist told us that Ian has a congenital teeth disorder in which some of> his permanent teeth are missing and will never come in.> He didn't give me a name of the disorder (i was kind of shocked) so will> call next week and find out.>> My question is this:> Has anybody else had this? The dentist said he didn't think it was DS> related but when I researched it I found a disorder. Called Epidermal> Dysphasia which has lots of skin, teeth and hair problems. I think Ian's> is called Hypodontia but not sure.>> >>>>>>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Both of my kids had T & A surgery in 2007. Kit, due to her prior heart defect/repair, had hers done at a larger hospital an hour away from us and had an overnight stay. Mac had his done at our local surgery center. He did not stay overnight...but we did stay ALL day. Surgery was scheduled for 7:30 and we didn't leave till 5:30 pm. Kit had a very easy recovery and I don't even think we would have needed to stay in the hospital (of course, that is hindsight, I wouldn't have NOT stayed not knowing). She was fine within 12 hrs. of the surgery. Mac seemed okay for a day or two, but by the third or fourth day, he was in bad shape. Would barely eat or drink anything and very cranky, couldn't sleep, etc... I couldn't get him to take the antibiotic and in the middle of the night I ended up taking him to the ER where they gave him a 10 day antibiotic and fluids via IV. It made me wonder if there is a 10 day antibiotic that can be given in one dose via shot or IV, why don't they just do that with kids who may refuse to eat/drink/take meds?? It would have been SO much easier. About 7-8 days after surgery he was doing much better, but he definitely needed the trip to the ER to make it happen. Good luck! Jill Mom to Mac & Kit [DownSyndromeInfoEx change] Missing permanent teeth> To: DownSyndromeInfoExc hange@yahoogroup s.com> Date: Saturday, January 10, 2009, 12:35 AM>>>>>>> Ian went to his dentist for a regular check up. Dentist did xrays for the> first time and noticed that some of Ian's permanent teeth are missing.> Dentist told us that Ian has a congenital teeth disorder in which some of> his permanent teeth are missing and will never come in.> He didn't give me a name of the disorder (i was kind of shocked) so will> call next week and find out.>> My question is this:> Has anybody else had this? The dentist said he didn't think it was DS> related but when I researched it I found a disorder. Called Epidermal> Dysphasia which has lots of skin, teeth and hair problems. I think Ian's> is called Hypodontia but not sure.>> >>>>>>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
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