RE:

[Guest guest]

" proud to be an American "

nationalism is mystifying to me. wtf is an american. from charles manson all

the way to sparrow rose cross (who to my knowledge is quite a different kind of

person) is " american "

also, why be proud of where you were born. its not an achievment as someone

else said. and if you have not experienced the alternatives, how can you

possibly equate your birthplace with superiority.

its quite a stretch to go from having a good birth place, to being a worthy

person. anyway, i dont get it.

__________________________________________________________________

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[Guest guest]

gprobertson@... wrote:

> also, why be proud of where you were born. its not an achievment as someone

else said. and if you have not experienced the alternatives, how can you

possibly equate your birthplace with superiority.

I have written to this effect on several occasions as well. Two days ago, I saw

a bumper

sticker that said " Proud to be an Apache. " I commented that since this person

had done

nothing to earn being an Apache, but rather was born into it, I fail to see how

that is

anything of which to be proud.

[Guest guest]

Dillons treatment is just going to do Flagyl for 10 days! I think our gastro doc is strictly main stream. I have not heard any suggestions of natural, etc. We are going to nuero in a week and Im praying he is more open. I just need a doc who is willing to understand about toxins and the gut. I have come accross alot of DAN doctor talk on the net, but have know clue on how to find one, and does medical insurance even cover them? My Dillon needs to have the vaccine toxins removed.

They asked if Dillon can blow hard and quick? Apparently this is some kind of test that takes about 3 hours. Something to do with detecting bacteria overgrowth. Dillon is unable to even blow at all. So they are going to treat him for bacteria overgrowth anyways. I thought surely this could be tested through stool. I guess gastro thinks this could be his stomach issues. Still doesnt explain the violent pain episodes he was haveing. They have slowly disapeared. I feel like we well never know what happened, now just trying to fix the consequences of them. Gastro kept saying if this (test)doesnt show anything he was going to do the camera test down through throat, stomach, etc.(cant think of test name at moment) But instead gastro just keeps trying other things. Now after flagyl, if doesnt work, then he well do scope!!! I wish he would have done it in the early stages, probably would have seen what was causing pain and then my Dillon wouldnt have suffered for over

2months!!!!!!!! He got so ill, it was frightening!!!! We thought the worst! He has had the best 3 days in 3 mths. We cant beleive this nightmare might finally be ending!! He is actually smiling again!!!!! The only thing I have been nervous about is a head jerking and hand spasm that came out of know where!! But we are going to stay positive and treasure these 3 days of having our boy back again.

Jennie wrote:

my paul is sugar happy(though its saccarin)-tonight was third night-i am going to do it again tomorrow.tell your gastro that he needs to treat with an antifungal and an antibacterial at same time.also two hours after you take antibiotic take a good probiotic to replace the good flora.i do not understand the blowing. is he looking for h pylori?we do poop sample and culture it.we are going to do one at doctor's data and stanford and compare the two. after he starts pooping normal. most DAN doc do flagyl(to kill clostridia) and diflucan(to kill yeast)at the same time. usually 21-to 30 day of diflcan and two weeks of flagyl.if you only do one-you make room for other to get out of control.i really feel like a stick of dynamite might be necessary.my dan told me he has another kid-same problem-he is going to stanford

to have it taken care of-he din't explain how.HOW ABOUT COLONICS. anyone doing this?roz-- In miralax , "Jennie" <mykidshisgift@y...> wrote:> Hi Roz, Dillons pooh looked normal after mag citrate. Maybe the sandy > look is from something he ate. Is it a dark black looking sand? If so > maybe mention to doc. After Dillons mag treatment he still has stomach > symptons. So now gastro is gonna treat him for bacteria overgrowth. > Dillon was unable to do the test to confirm the bacteria,(has to blow > quick and hard, and he cant blow) but they are gonna still treat for > it. With ANTIBIOTICS (I feel this is what started this whole mess to > begin with) antibiotics kills the natural good bacteria in intestines > to be able to funtion properly! So when he got his vaccines he was > unable to secrete the toxins from them, that is why he had an alergic

> reaction to them. But this is just a moms theory.(obssesive crash > coarsing for 3months)> Also, we had to do the mag for 3 days!! How long does your son have > to? Dillon hated it, gagged and faught it. We had to do little at a > time through out the day. If your son seems happier, maybe this means > the mag citrate is working!!!> Take care, Jennie> > > I NEED HELP> > i posted yesterday -no response-he has poop in asecnding and > > descending colon.> > but when you clean out your kids-do you eventually see solids and > > stool like matter-or is it all liquid with sandy dissolved looking > > poop???????> > sorry for graphics.> > we did mag citrate and enema again last night.> > doctor is telling me to do it again

tonight.> > his belly feels very soft to me-is it possible to be full of poop > and > > still have a soft belly????> > thanks for putting up with me> > i just don't know what to expect> > he seems happier(he loves the mag citrate-i think his yeast like it > > too)> > roz__________________________________________________

[Guest guest]

The "blow" test is to test for h pylori and other bacteria that are now believed to cause ulcers. That would actually make sense since he had so much pain above the belly button level. I don't believe you can effectively test for stomach via stool because of intestinal flora and so on.

The scope is probably the best bet in its place. Has Dillon taken the "camera capsule"? Jennie wrote:

Dillons treatment is just going to do Flagyl for 10 days! I think our gastro doc is strictly main stream. I have not heard any suggestions of natural, etc. We are going to nuero in a week and Im praying he is more open. I just need a doc who is willing to understand about toxins and the gut. I have come accross alot of DAN doctor talk on the net, but have know clue on how to find one, and does medical insurance even cover them? My Dillon needs to have the vaccine toxins removed.

They asked if Dillon can blow hard and quick? Apparently this is some kind of test that takes about 3 hours. Something to do with detecting bacteria overgrowth. Dillon is unable to even blow at all. So they are going to treat him for bacteria overgrowth anyways. I thought surely this could be tested through stool. I guess gastro thinks this could be his stomach issues. Still doesnt explain the violent pain episodes he was haveing. They have slowly disapeared. I feel like we well never know what happened, now just trying to fix the consequences of them. Gastro kept saying if this (test)doesnt show anything he was going to do the camera test down through throat, stomach, etc.(cant think of test name at moment) But instead gastro just keeps trying other things. Now after flagyl, if doesnt work, then he well do scope!!! I wish he would have done it in the early stages, probably would have seen what was causing pain and then my Dillon wouldnt have suffered for over

2months!!!!!!!! He got so ill, it was frightening!!!! We thought the worst! He has had the best 3 days in 3 mths. We cant beleive this nightmare might finally be ending!! He is actually smiling again!!!!! The only thing I have been nervous about is a head jerking and hand spasm that came out of know where!! But we are going to stay positive and treasure these 3 days of having our boy back again.

Jennie wrote:

my paul is sugar happy(though its saccarin)-tonight was third night-i am going to do it again tomorrow.tell your gastro that he needs to treat with an antifungal and an antibacterial at same time.also two hours after you take antibiotic take a good probiotic to replace the good flora.i do not understand the blowing. is he looking for h pylori?we do poop sample and culture it.we are going to do one at doctor's data and stanford and compare the two. after he starts pooping normal. most DAN doc do flagyl(to kill clostridia) and diflucan(to kill yeast)at the same time. usually 21-to 30 day of diflcan and two weeks of flagyl.if you only do one-you make room for other to get out of control.i really feel like a stick of dynamite might be necessary.my dan told me he has another kid-same problem-he is going to stanford

to have it taken care of-he din't explain how.HOW ABOUT COLONICS. anyone doing this?roz-- In miralax , "Jennie" <mykidshisgift@y...> wrote:> Hi Roz, Dillons pooh looked normal after mag citrate. Maybe the sandy > look is from something he ate. Is it a dark black looking sand? If so > maybe mention to doc. After Dillons mag treatment he still has stomach > symptons. So now gastro is gonna treat him for bacteria overgrowth. > Dillon was unable to do the test to confirm the bacteria,(has to blow > quick and hard, and he cant blow) but they are gonna still treat for > it. With ANTIBIOTICS (I feel this is what started this whole mess to > begin with) antibiotics kills the natural good bacteria in intestines > to be able to funtion properly! So when he got his vaccines he was > unable to secrete the toxins from them, that is why he had an alergic

> reaction to them. But this is just a moms theory.(obssesive crash > coarsing for 3months)> Also, we had to do the mag for 3 days!! How long does your son have > to? Dillon hated it, gagged and faught it. We had to do little at a > time through out the day. If your son seems happier, maybe this means > the mag citrate is working!!!> Take care, Jennie> > > I NEED HELP> > i posted yesterday -no response-he has poop in asecnding and > > descending colon.> > but when you clean out your kids-do you eventually see solids and > > stool like matter-or is it all liquid with sandy dissolved looking > > poop???????> > sorry for graphics.> > we did mag citrate and enema again last night.> > doctor is telling me to do it again

tonight.> > his belly feels very soft to me-is it possible to be full of poop > and > > still have a soft belly????> > thanks for putting up with me> > i just don't know what to expect> > he seems happier(he loves the mag citrate-i think his yeast like it > > too)> > roz

__________________________________________________

[Guest guest]

Hi

,

Thanks

for the warm welcome.

So we don’t

take up the board with off topic issues like reflux & not chewing, feel

free to email me off list at yvette.yta@...

I would

love to talk to you about reflux, not chewing, etc. I am just starting the long

process of trying to figure this Miralax situation out too, but have been trying

to get answers for the GI, slight SID for years. Alyssa will start OT very soon

as well as feeding therapy & speech therapy hopefully as soon as the

waiting list opens up a bit.

Hope to

hear from you soon.

Yvette

Hi Yvette!! Welcome to

the group!! They are great here with plenty of info on how to help with the

constipation. Sorry to stray from your main question, but the thing that caught

my attention the most about your post was when you mentioned the reflux and the

inability to chew. My son is also 6yrs and does not chew/has reflux!! He is on

pureed also!! My question is, has anyone been able to tell you why your

daughter does not chew? We are still in the dark on this one with our son!! He

has a brain birth defect and this seems to be a typical issue with some of the

children, is eating/drinking issues. I honestly am nervous to think he would

have to be on puree for the rest of his life!! At this point, I have always

just continued buying the baby jar food. I have to admit this has just been the

easiest way for me and I feel they dont have to many additives in them. Now at

almost 7yrs, I am getting self contious/embarresed that I still go through the

grocery line with all the baby jar food. We got a mini proccessor and am going

to start pureeing his food(have started this already with prunes for his

constipation issues). I have to admit we are not the best healthy eaters and

dont want all the junk in him. I guess it is time for our family to learn how

to eat better:). Anyways, my main question is on the chewing!? Also is she

sensory? My son is high sensory and gags befor the food even comes near his

mouth. I can say it is improving with age. We also are still working on getting

him off the miralax. We was having success with this until he had a reaction to

vacs and had gi damage. With your daughter being allergic to milk and eggs, has

it been suggested that the allergic reactions have affected her muscle/nerves

in her gi tract? After months of research on allergic reactions I discovered

that it can cause muscle and nerve damage in the intestinal tract. I believe

this is what happened to our son. I mention this due to the allergic issues

with your daughter. Some allergies also seem to have the same response as

allergic reactions. Our gastro said it is possible this is what happened to our

son. Sounds like your little one is quite the miracle!!! Jennie<><

[Guest guest]

Both my daughters (the non sufferers) just met girls at school who are also interested in joining the group. I think there are a lot more sufferers out there than anyone fathoms.

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of Pia LevensteinsSent: Wednesday, October 24, 2007 12:00 PMTo: jporis@...; Soundsensitivity Subject:

Marsha, a co-worker commented on my headphones and I explained why I needed them and he told me his son hates mouth noises and now he wants to join the group!!I am sending the email address to him.ThanksPia

Peek-a-boo FREE Tricks Treats for You! Get 'em!

[Guest guest]

Absolutely!! This guy was amazed when he read some posts! As usual!!

I feel happy that I was able to point at least one person to this group

so far!!

To: Soundsensitivity From: k.howe@...Date: Wed, 24 Oct 2007 14:07:36 -0400Subject: RE:

Both my daughters (the non sufferers) just met girls at school who are also interested in joining the group. I think there are a lot more sufferers out there than anyone fathoms.

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of Pia LevensteinsSent: Wednesday, October 24, 2007 12:00 PMTo: jporismshanken; Soundsensitivity Subject:

Marsha, a co-worker commented on my headphones and I explained why I needed them and he told me his son hates mouth noises and now he wants to join the group!!I am sending the email address to him.ThanksPia

Peek-a-boo FREE Tricks Treats for You! Get 'em!

Peek-a-boo FREE Tricks Treats for You! Get 'em!

[Guest guest]

Hi Dianne, It looks like I'll be in London from March 24th through the 28th. Let me know if this works for you. keetch wrote: Hi , thanks I too have just joined a company that sends DVDs in the post, but now we have a postal strike in the UK so I have been thwarted. I have had a problem with people dragging their feet

for a long time, it seems to be a fashion for younger folk. I want to shout 'pick you feet up.' Flip flops drive me mad too, it's the repetitiveness of the sound! Let me know when you will be in London and I will see if I can meet you there. I live 200 miles further north, near Manchester, I know we have a different concept of distance here, being a very small country, but I do go to London to work sometimes. Dianne So, it took everything in me to take my husband to see The Lion King last night!!He has been wanting to see this for a long time.(he is originally from Riga, Latvia) and a broadway show is new to him....Well, we left in the middle of it and I was so happy that we did!!Big woman sitting behind me was eating

popcorn out of a plastic bag which looks like she brought it with her from home.I turned around and just looked at her and said, are you kidding me??????????????? Do you have to eat now???????????? $80.00 tickets!!YUCK!! In europe people have some class when they go to shows but here, NO!! No such thing!The main goal for last night was for me and my husband to do something together because he is a very busy guy on call to do massages so we had fun not liking the show together!!But let me tell you, I was getting very unhappy knowing that I have to go to this show....it is getting worse for me!!Most people get excited and I was dreading it all day!!So, no more shows for us!!!Give me Cirque du Soleil in Vegas anytime!! That's it!!pia Help yourself to FREE treats served up daily at the Messenger Café. Stop by

today! Pinpoint customers who are looking for what you sell. __________________________________________________

[Guest guest]

oh please, yes, you have missed a few years of posts!!

THEY ALL KNOW!!

I am having a bad day today. I know what you mean but believe

me they all know!> To: soundsensitivity > Date: Fri, 11 Apr 2008 21:05:51 +0000> Subject: RE: > > > Well I probably won't be popular for saying this, but I would argue that - given what we have been told there - he is not harrssing you.> So he is pally with the noisy girl - does that necessarily mean that she has told him about your problems with the noise?> Even if she has - or you have (I may have missed other emails recently) - this doesn't mean that he did this deliberately to provoke you.> My brother has a tendency to keep his keys on a keyring hanging from his belt hook, resulting in a clinking noise whenever he walks.> He does know that it causes problems, but keeps forgetting until I remind him.> > I actually agree that eating in an office is a pretty bad habit anyway (although I usually have a chocolate bar at one point in the morning), > but one of our biggest problems is getting people to really understand how difficult this issue is for us. Maybe he still just doesn't understand.> > I apologise if I have misrepresented this in any way, but I think we have to be very careful before we start thrwoign around accusations of> harrassment.> > > > > > > ________________________________> > To: soundsensitivity > Date: Fri, 11 Apr 2008 15:42:51 -0400> Subject: > > > > > UGH, hi people. You know me by now....well today I am noticing that my boss (pig eater) and the noisy girl are very chummy. > Have no clue why....anyway....this means I really cannot say anything to him about her anymore....which I was told to do....> so he comes over to me eating a cookie like a pig and hands me a paper and I simply turned my back on him and gave a short > answer and I hope he heard me say, "HOW RUDE"!!! Now you tell me, is he or is he not harassing me!!> I need a new life!! They probably sit around talking about how weird I am and say things like, watch this!!!> A friend asked me yesterday to help him produce a movie about> Estonia......of course I have no idea what is involved but I need to get out of the office setting before I ......I don't know....do something!!!!> ARGH!!!> > > _________________________________________________________________> Win 100’s of Virgin Experience days with BigSnapSearch.com> http://www.bigsnapsearch.com> > ------------------------------------> > PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. > > ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.> Thank you. MJ

[Guest guest]

I am starting to become much bolder when there is an offender in the room. I figure if I snear in disgust at that person they think I am nuts but not sure why so why not give them a concrete reason to think I am nuts? So I was taking my mom to her postop appointment and as we are checking in there are two nurses having a competition cracking their gum by sucking in a huge bubble! So I just said to this older woman at the desk that I was a very nervous person and that gum popping gives me an anxiety attack and could they please stop? So this woman leans over behind the desk with a really annoyed voice " who the heck is cracking their gum? Knock it off! " I wanted to kiss her. So now I just think I am going to tell people and see how it goes.

[Guest guest]

Bless you my child, and all those who have the courage to speak up!

>

> I am starting to become much bolder when there is an offender in the

room. I figure if I snear in disgust at that person they think I am

nuts but not sure why so why not give them a concrete reason to think I

am nuts? So I was taking my mom to her postop appointment and as we are

checking in there are two nurses having a competition cracking their

gum by sucking in a huge bubble! So I just said to this older woman at

the desk that I was a very nervous person and that gum popping gives me

an anxiety attack and could they please stop? So this woman leans over

behind the desk with a really annoyed voice " who the heck is cracking

their gum? Knock it off! " I wanted to kiss her. So now I just think I

am going to tell people and see how it goes.

>

[Guest guest]

,How did you get your support group or chapter started. You are such an inspiration!! I saw on the national autism society of america where there is a link to start a chapter. I just wondered if this is what you did. I am interested in doing one here in !!Thanks, BohacSent via BlackBerry by AT&TFrom: kristi armstrong Date: Tue, 20 Jan 2009 11:34:35 -0800 (PST)To: <Texas-Autism-Advocacy >Subject: Re: Support groups in Ennis, tx??? My son is 7 years old and in 1st grade. From: Sndyaol (DOT) com <Sndyaol (DOT) com>Subject: Re: [Texas-Autism- Advocacy] Support groups in Ennis, tx???To: Texas-Autism- Advocacy@ yahoogroups. comDate: Tuesday, January 20, 2009, 12:13 PMI live in Kaufman 22 miles from Ennis and I would be interested in a group also. ThanksSandyNoahs MomA Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

Please contact me off-line about this --- at MGuppy@.......

Sincerely

M. GuppyMy autism journey isn't about waiting for the storm to pass, it's about learning to dance in the rain.... Texas Autism Advocacy: www.TexasAutismAdvocacy.org

"The Greatest single cause of atheism in the world today is Christians. These are people who acknowledge Christianity with their lips, walk out the door, and deny it by their lifestyle. This is what an unbelieving world simply finds unbelieveable." -Brennan Manning

From: Sndyaol (DOT) com <Sndyaol (DOT) com>Subject: Re: [Texas-Autism- Advocacy] Support groups in Ennis, tx???To: Texas-Autism- Advocacy@ yahoogroups. comDate: Tuesday, January 20, 2009, 12:13 PM

I live in Kaufman 22 miles from Ennis and I would be interested in a group also.

Thanks

Sandy

Noahs Mom

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!