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Hi Lee,

Welcome to the list! I hope all goes well with your son.

Although I'm another adult (oh boy am I - just turned 56!), I know that

toddlers recover lots faster from TC surgery than folks my age do. You

may have trouble keeping him flat that long. But the staff at the

hospital will help you with that.

Is the surgery going to be in the thoracic level or lumbar? Different

diapering techniques are needed for the lower incisions. I can put you

in touch with some others who may have info about that, if you want.

--

Life shrinks or expands

In proportion to one’s courage.

Anais Nin

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  • 7 years later...

Hello! It is so fascinating to know there are others who suffer from

this same thing.

I first noticed my own sound sensitivity when I as 12...it has gone and

and unfortunately gotten worse (in terms of the triggering sounds) ever

since. I am now 45. I try to resist using certain devices such as

earplugs or my ipod just because once I start using that, I cannot stop.

I haven't been to a movie theater in years (no way I can listen to the

chewing, esp of popcorn and gum). If my kids are in a show at school I

can't sit in the audience without ear plugs to keep out sniffing and

chewing sounds. I always have to sit so that no one is behind

me....sounds from behind are the worst. It's hard to find a restaurant

I can comfortably eat it. I thought I was just intolerant and/or crazy

all these years.

My question is, if there is no actual " pain " involved, only a high

level of irritation, is it misophonia? I " fear " the sounds and thus

get anxiety, but the fear is just of knowing how irritible I will

become and how my mood will change. That's as far as it goes though, I

wouldn't say I become enraged, mostly because I understand the problem

is " me " and not the person making the sound.

The more repetetive and long-lasting, the worse my reaction. I've

noticed my family always agrees the sounds are annoying, but they are

able to shrug and move on. I zoom in, focus on the sound and then

that's it, I cannot let go and I frantically look for an escape.

What's this about Vitamin B6??

Thanks for reading! I'm so glad I found this group. Happy New Year to

all.

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Hi trishmcallister44! Welcome to the group. You have described

Misophonia/4S perfectly. I was also about 12 when I noticed it,

thought I was crazy, etc... It's interesting that you say noise from

" behind " you is the worst. I'm the same way and I've heard that here

before. When I go to a movie I always sit in the back so nobody is

behind me. I also zoom in on the offending sound and latch on like a

leech to a nice juicy leg. LOL You are very smart to avoid earplugs

and ipods if you are able to do that. I found earplugs only made my

situation worse and I also started to feel normal noises were " loud "

to my ears which is not good. I do use my ipod though when I

ultimately feel like I may go postal if I don't. LOL.

As far as the Vitamin B6 goes... just look back a page or so and you

will see the beginning of the discussion. Some have been trying zinc

and vitamin B6 and are seeing a little improvement.

Best wishes, Darlene

>

> Hello! It is so fascinating to know there are others who suffer from

> this same thing.

>

> I first noticed my own sound sensitivity when I as 12...it has gone and

> and unfortunately gotten worse (in terms of the triggering sounds) ever

> since. I am now 45. I try to resist using certain devices such as

> earplugs or my ipod just because once I start using that, I cannot stop.

>

> I haven't been to a movie theater in years (no way I can listen to the

> chewing, esp of popcorn and gum). If my kids are in a show at school I

> can't sit in the audience without ear plugs to keep out sniffing and

> chewing sounds. I always have to sit so that no one is behind

> me....sounds from behind are the worst. It's hard to find a restaurant

> I can comfortably eat it. I thought I was just intolerant and/or crazy

> all these years.

>

> My question is, if there is no actual " pain " involved, only a high

> level of irritation, is it misophonia? I " fear " the sounds and thus

> get anxiety, but the fear is just of knowing how irritible I will

> become and how my mood will change. That's as far as it goes though, I

> wouldn't say I become enraged, mostly because I understand the problem

> is " me " and not the person making the sound.

>

> The more repetetive and long-lasting, the worse my reaction. I've

> noticed my family always agrees the sounds are annoying, but they are

> able to shrug and move on. I zoom in, focus on the sound and then

> that's it, I cannot let go and I frantically look for an escape.

>

> What's this about Vitamin B6??

>

> Thanks for reading! I'm so glad I found this group. Happy New Year to

> all.

>

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  • 10 months later...

Hello Neela and welcome, sorry to hear about your issue with sounds.Do you have any issues with the sound of people eating, crunching, clicking pens? Slurping knives and forkes on plates etc?Or is it mainly the sound of electrical hums?Sent from my BlackBerry® smartphone on 3Date: Mon, 30 Nov 2009 03:14:11 -0000To: <Soundsensitivity >Subject: new here I'm trying to determine if this is the right group for me.Here are some of my symptoms:1. Electrical hums or drones drive me up the wall, especially if I feel that I cannot control how long they are on for. In fact, what prompted me to start seeking a group is my neighbor's swimming pool motor - it has a certain frequency that is making me unable to focus on my work. I can hear it even with windows and doors closed. Have informed him of the problem, and if he doesn't respond in a week I am thinking of moving!! Otherwise my neighborhood is great, so you can imagine the agony. My folks do not seem to quite understand, because just a few weeks back I had convinced my husband that we should remain in this house for a while and he cannot appreciate that this trigger would cause me to change my mind.2. I am afraid the world is getting noisier by the minute, and spend some of my time worrying about huge noises everywhere - more worried about the continuity than the hugeness of the sound.3. Cannot stand echoes, or even my own voice if it is being recorded (have done voice-overs) with a reverb sound. Cannot stand most sounds that go on and on...4. Cannot STAND fluorescent bulbs and their hum. Am also disturbed by certain types of visual inputs, quick movements, etc.This is a gist; want to spare you of greater details. Do feel free to let me know if this is an appropriate forum. I have never been diagnosed and it is only now that I am even considering getting help (after decades of suffering from my childhood). Thanks!- Neela.

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