Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Below are two sample letters, one for individuals with CFIDS-FMS and one for their familiy and friends. Add and remove text to customize your letter. To find the addresses of your government representatives go to this web page and put in your zip code and hit enter on your keyboard: http://action.citizen.org/pc/dbq/officials/ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Letter for individuals with CFIDS-FMS: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ _____________________________________ (Your Name) _____________________________________ (Street Address) _____________________________________ (Town, State and Zip code) _________________________ (Date) The Honorable _________________________ (Name of Congressperson or Representative) _____________________________________ (Street Address) Washington, DC _______________________ (Zip code) Re: Chronic Fatigue Syndrome and Fibromyalgia Syndrome Research Funding Dear ______________________________: (Name of Congressperson or Representative) I am a resident of _____________________ County, ___________ (write in your state). I have chronic fatigue immune dysfunction syndrome (CFIDS) and/or fibromyalgia syndrome (FMS). Every day I suffer from a variety of symptoms, which include: ~unrelenting fatigue, non-restorative sleep, insomnia, an inability to remain the deep stages of sleep where our bodies repair themselves and night sweats; ~severe muscle and joint pain that doesn't respond to traditional treatments, ~cognitive problems effecting short term memory, concentration, and our ability to think clearly; ~as well as a multitude of secondary health issues that often come with CFIDS/FMS including irritable bowel syndrome, interstitial cystitis, depression, headaches/migraines, and environmental sensitivities to medicines, inhalants, odors and foods. Chronic fatigue immune dysfunction syndrome effects over 800,000 people nationwide. Fibromyalgia is the second most common rheumatic condition, after osteoarthritis. Currently the cause of CFIDS and FMS is unknown and there is no cure; and the current treatments often don't work. Please support legislation that will increase attention to and the level of money spent on the study of CFIDS and FMS by our national public health agencies. The Social Security Administration also needs to more readily recognize these illnesses and the level of disability that they often produce. The barriers to disability benefits that exist for persons with CFIDS and FMS are devastating; we need your help. Please give this matter serious attention. Anything you do will be well appreciated. Thank You, _____________________________________ (Your signature) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Sample letter from family and friends: ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ _____________________________________ (Your Name) _____________________________________ (Street Address) _____________________________________ (Town, State and Zip code) _________________________ (Date) The Honorable _________________________ (Name of Congressperson or Representative) _____________________________________ (Street Address) Washington, DC _______________________ (Zip code) Re: Chronic Fatigue Syndrome and Fibromyalgia Syndrome Research Funding Dear ______________________________: (Name of Congressperson or Representative) I am a resident of _____________________ County, ___________ (write in your state). My __________________________ (write in your relation to the person with CFS or FMS, ex. son, friend, coworker, etc.) has chronic fatigue immune dysfunction syndrome (CFIDS) and/or fibromyalgia syndrome (FMS). Every day people with CFIDS-FMS suffer from a variety of symptoms, which include: ~unrelenting fatigue, non-restorative sleep, insomnia, an inability to remain the deep stages of sleep where our bodies repair themselves and night sweats; ~severe muscle and joint pain that doesn't respond to traditional treatments, cognitive problems effecting short term memory, concentration, and our ability to think clearly; ~as well as a multitude of secondary health issues that often come with CFIDS/FMS including irritable bowel syndrome, interstitial cystitis, depression, headaches/migraines, and environmental sensitivities to medicines, inhalants, odors and foods. Chronic fatigue immune dysfunction syndrome effects over 800,000 people nationwide. Fibromyalgia is the second most common rheumatic condition, after osteoarthritis. Currently the cause of CFIDS and FMS is unknown and there is no cure; and the current treatments often don't work. Please support legislation that will increase attention to and the level of money spent on the study of CFIDS and FMS by our national public health agencies. The Social Security Administration also needs to more readily recognize these illnesses and the level of disability that they often produce. The barriers to disability benefits that exist for persons with CFIDS and FMS are devastating; we need your help. Please give this matter serious attention. Anything you do will be well appreciated. Thank You, _____________________________________ (Your signature) Quote Link to comment Share on other sites More sharing options...
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