Re: deaths related to PEG

[Guest guest]

Christiana, It's on the FOIA sheets from the fda. There are many. I'd have to look through all of them again, but just guessing there are maybe 5 children and many adults. Also did you read my article from the BMJ British medical journal, titled fatal disnatremia caused by elective colonoscopy? I posted it a couple weeks ago. My doc found it for me. 2 out of 3 died just drinking the solution. One had grand mal seizures and cardiac arrest and the other woke up in a coma and servived and the 3rd one died of cardiaac arrest as well. I looked up bmj on line to be able to post it for the group and ran into another article, written by some doc, disagreeing that this caused there deaths unless they had etchemia or c-difficle. I new I saw the word c-difficle somewhere and I started going through all my dd's paperwork and I had a stool sample done shortly after this happened and C-difficle was present. So if he's correct, it would explain why she absorbed it.

(etchemia, I don't know if I spelled it right has something to do with the blood flow to the gut and C-diff is a bad bacteria in the gut) However if what this man says is true, this scould explain why some kids are absorbing this. But nowhere in the literature does anyone warn us, just like in the literature it states not to give to people with irritable bowel syndrom, how many doc's prescribed it without knowing if they had IBS. So I tried to e-mail the man that wrote the article. He had his computor on automatic response saying he was on vacation. I'll look him up again and let you know what he says. Thank you for reminding me. I'll repost the article. Also, I contacted Ayus the one who wrote the article for Fatal disnatremia caused by elective colonoscopy, I spoke to him on the phone regarding this matter and I asked him if he could research this and he said he only did the article on colonoscopy. and didn't offer me much help. I was inquiring about someone

to research this. As far as your question, yes and no. The fda has it in their data, and supposively they know what comes in, but this is why we can petition them, to red flag it per say, to bring it to their attention if it's overlooked. I've been submitting for seven years for these fda reports and this week I got a corrospondence letter stating they couldn't find anything on what I requested for so I called Koningstein and he's getting it for me. Come to find out Hal Steppar usually signs my correspondence letter and it was from Glover, she's new! They hired her because of the increase in submissions, probably because these drugs companies are presenting so many new drugs, they had to expand! For the last 7 years, it's always been Hal and he even admitted to me why they hired her. I told him about the website and all the people I have now and he said to re-petition them. Now with all the people I have, we might have a chance. JeanieCHRISTOPHER LOY wrote: Jeanie, If I'm not mistaken, in one of the messages you said there were reported deaths, including children, due to PEG. Is that from the FDA reports you received for the Miralax? So, I'm wondering, does the FDA admit that there are deaths

related to Miralax being prescribed to children as well as adults? Thanks, __,_._,__

[Guest guest]

Thanks Jeanie.

I'm troubled because I had contacted the FDA a while back and asked them about Miralax and my concern about it not being safe and they did not say that anyone had died from it and I'm pretty sure I had asked them flat out if there had been any deaths. I did tell them that I felt like my daughter was being used as a guinea pig and how it's not fair to her and he said that it was one of several ways to look at the situation and he wasn't going to try to change my mind. I think I will call them again this week. I stress so much over the fact that she'd had this med for two years. Very frustrating... Also, my doctor said it was safe and I'm wondering if the doctors who are prescribing this know about the information on the deaths and other issues related to this. Do they know and still prescribe this anyway or do you think the doctors just aren't aware of the problems and deaths associated with miralax because there are so many drugs and so many patients that they deal with (not that that's in any way an excuse)?

I did read about the fetuses dying with the colonoscopy. How horrible and it would seem they would not give it to someone else after the first death. I tried to open the article you just re-posted when I tried it was blank for me.

Oh. The fruit juice smoothie I thought I could make to get the magnesium in her was a flop. I guess I will return the magnesium to Healthway today... I don't know how else to get it in her. She certainly will not drink it. I wish there were an easier way. We're doing another suppository tonight, which is always extremely stressful. I will not put her back on the miralax though... I'll try to make some of those brownies. I kept meaning to. I'm getting her doctor switched monday so I will call and see if I can put her on MOM. Will that cause dependence? I want something that will not cause dependence. I think I read somewhere that PEG could cause dependence? Am I mistaken?

Also, I never posted when someone asked about burning urination because I wasn't sure it was due to miralax but she for a short time would complain that it hurt and burned to pee. I wasn't sure it was actually peeing that hurt her or if it was because she had a bm which may have caused some tears which could be why it burned when she peed.

Thanks,

Re: deaths related to PEG

Christiana,

It's on the FOIA sheets from the fda. There are many. I'd have to look through all of them again, but just guessing there are maybe 5 children and many adults. Also did you read my article from the BMJ British medical journal, titled fatal disnatremia caused by elective colonoscopy? I posted it a couple weeks ago. My doc found it for me. 2 out of 3 died just drinking the solution. One had grand mal seizures and cardiac arrest and the other woke up in a coma and servived and the 3rd one died of cardiaac arrest as well. I looked up bmj on line to be able to post it for the group and ran into another article, written by some doc, disagreeing that this caused there deaths unless they had etchemia or c-difficle. I new I saw the word c-difficle somewhere and I started going through all my dd's paperwork and I had a stool sample done shortly after this happened and C-difficle was present. So if he's correct, it would explain why she absorbed it. (etchemia, I don't know if I spelled it right has something to do with the blood flow to the gut and C-diff is a bad bacteria in the gut) However if what this man says is true, this scould explain why some kids are absorbing this. But nowhere in the literature does anyone warn us, just like in the literature it states not to give to people with irritable bowel syndrom, how many doc's prescribed it without knowing if they had IBS. So I tried to e-mail the man that wrote the article. He had his computor on automatic response saying he was on vacation. I'll look him up again and let you know what he says. Thank you for reminding me. I'll repost the article. Also, I contacted Ayus the one who wrote the article for Fatal disnatremia caused by elective colonoscopy, I spoke to him on the phone regarding this matter and I asked him if he could research this and he said he only did the article on colonoscopy. and didn't offer me much help. I was inquiring about someone to research this.

As far as your question, yes and no. The fda has it in their data, and supposively they know what comes in, but this is why we can petition them, to red flag it per say, to bring it to their attention if it's overlooked. I've been submitting for seven years for these fda reports and this week I got a corrospondence letter stating they couldn't find anything on what I requested for so I called Koningstein and he's getting it for me. Come to find out Hal Steppar usually signs my correspondence letter and it was from Glover, she's new! They hired her because of the increase in submissions, probably because these drugs companies are presenting so many new drugs, they had to expand! For the last 7 years, it's always been Hal and he even admitted to me why they hired her. I told him about the website and all the people I have now and he said to re-petition them. Now with all the people I have, we might have a chance.

JeanieCHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote:

Jeanie,

If I'm not mistaken, in one of the messages you said there were reported deaths, including children, due to PEG. Is that from the FDA reports you received for the Miralax?

So, I'm wondering, does the FDA admit that there are deaths related to Miralax being prescribed to children as well as adults?

Thanks,

__,_._,__

[Guest guest]

Dear , I'll be glad to send them to you. I misplaced your address so if you want to email me @ dreamjeanie@... I'll be sending them today. I have Kathy M Melody A Maureen K Carol M The fda doesn't even tell me how many people they have, they make you submit for the FOIA sheets. Otherwise they couldn't pay the employees that do the searches and their phones would be in use all the time. I would however like to re-petition them soon. It takes months for them to respond. It would really help, if all of you could send my a short summary of your story. JeanieCHRISTOPHER LOY wrote: Thanks Jeanie. I'm troubled because I had contacted the FDA a while back and asked them about Miralax and my concern about it not being safe and they did not say that anyone had died from it and I'm pretty sure I had asked them flat out if there had been any deaths. I did tell them that I felt like my daughter was being used as a guinea pig and how it's not fair to her and he said that it was one of several ways to look at the situation and he wasn't going to try to change my mind. I think I will call them again this week. I stress so much over the fact that she'd had this med for two years. Very frustrating...

Also, my doctor said it was safe and I'm wondering if the doctors who are prescribing this know about the information on the deaths and other issues related to this. Do they know and still prescribe this anyway or do you think the doctors just aren't aware of the problems and deaths associated with miralax because there are so many drugs and so many patients that they deal with (not that that's in any way an excuse)? I did read about the fetuses dying with the colonoscopy. How horrible and it would seem they would not give it to someone else after the first death. I tried to open the article you just re-posted when I tried it was blank for me. Oh. The fruit juice smoothie I thought I could make to get the magnesium in her was a

flop. I guess I will return the magnesium to Healthway today... I don't know how else to get it in her. She certainly will not drink it. I wish there were an easier way. We're doing another suppository tonight, which is always extremely stressful. I will not put her back on the miralax though... I'll try to make some of those brownies. I kept meaning to. I'm getting her doctor switched monday so I will call and see if I can put her on MOM. Will that cause dependence? I want something that will not cause dependence. I think I read somewhere that PEG could cause dependence? Am I mistaken? Also, I never posted when someone asked about burning urination because I wasn't sure it was due to miralax but she for a short time would complain that it hurt and burned to pee. I wasn't sure it was actually

peeing that hurt her or if it was because she had a bm which may have caused some tears which could be why it burned when she peed. Thanks, Re: deaths

related to PEG Christiana, It's on the FOIA sheets from the fda. There are many. I'd have to look through all of them again, but just guessing there are maybe 5 children and many adults. Also did you read my article from the BMJ British medical journal, titled fatal disnatremia caused by elective colonoscopy? I posted it a couple weeks ago. My doc found it for me. 2 out of 3 died just drinking the solution. One had grand mal seizures and cardiac arrest and the other woke up in a coma and servived and the 3rd one died of cardiaac arrest as well. I looked up bmj on line to be able to post it for the group and ran into another article, written by some doc, disagreeing that this caused there deaths unless they had etchemia or c-difficle. I new I saw the word c-difficle somewhere and I

started going through all my dd's paperwork and I had a stool sample done shortly after this happened and C-difficle was present. So if he's correct, it would explain why she absorbed it. (etchemia, I don't know if I spelled it right has something to do with the blood flow to the gut and C-diff is a bad bacteria in the gut) However if what this man says is true, this scould explain why some kids are absorbing this. But nowhere in the literature does anyone warn us, just like in the literature it states not to give to people with irritable bowel syndrom, how many doc's prescribed it without knowing if they had IBS. So I tried to e-mail the man that wrote the article. He had his computor on automatic response saying he was on vacation. I'll look him up again and let you know what he says. Thank you for reminding me. I'll repost the article. Also, I contacted Ayus the one who wrote the article for Fatal disnatremia caused by elective colonoscopy, I spoke to him

on the phone regarding this matter and I asked him if he could research this and he said he only did the article on colonoscopy. and didn't offer me much help. I was inquiring about someone to research this. As far as your question, yes and no. The fda has it in their data, and supposively they know what comes in, but this is why we can petition them, to red flag it per say, to bring it to their attention if it's overlooked. I've been submitting for seven years for these fda reports and this week I got a corrospondence letter stating they couldn't find anything on what I requested for so I called Koningstein and he's getting it for me. Come to find out Hal Steppar usually signs my correspondence letter and it was from Glover, she's new! They hired her because of the increase in submissions, probably because these drugs companies are presenting so many new drugs, they had to expand! For the last 7 years, it's always been Hal and he even admitted to

me why they hired her. I told him about the website and all the people I have now and he said to re-petition them. Now with all the people I have, we might have a chance. JeanieCHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote: Jeanie, If I'm not mistaken, in one of the messages you said there were reported deaths, including children, due to PEG. Is that from the FDA reports you received for the Miralax? So, I'm wondering, does the FDA admit that there are deaths related to Miralax being prescribed to children as well as adults? Thanks, __,_._,__

[Guest guest]

Can I ask you, what caused the constipation in your daughter? I am tring to find what is causeing it and the doc just wants to fix it wih med. Am I doing the right thing? I am scheduling a colonoscopy for her because that is the final test that they can run. He thinks she is just with holding because it hurts. But I think it is more then that. Also is lactalos (spelling?) ok because now my 3 1/2 month old is constipated and juice is not working. She won't drink the plumsmart only apple but it is not working her stool is very hard and dark in color and I don't know what else to do. Tell me if they ever found a cause. My grandmother died of colon cancer 3 bouts of it, my mom they founf 9 palups when they did her colonoscopy, everyoneon my grandmas side the women died of GI problems. So this is important for me to find out what is going on and I think I should. I wish that site

would come back up about the dtap shot and constipation. I have made a decision to stop all vacs. MelodyJeanie Ward wrote: Christiana, It's on the FOIA sheets from the fda. There are many. I'd have to look through all of them again, but just guessing there are maybe 5 children and many adults. Also did you read my article from the BMJ British medical journal, titled fatal disnatremia caused by elective colonoscopy? I posted it a couple weeks

ago. My doc found it for me. 2 out of 3 died just drinking the solution. One had grand mal seizures and cardiac arrest and the other woke up in a coma and servived and the 3rd one died of cardiaac arrest as well. I looked up bmj on line to be able to post it for the group and ran into another article, written by some doc, disagreeing that this caused there deaths unless they had etchemia or c-difficle. I new I saw the word c-difficle somewhere and I started going through all my dd's paperwork and I had a stool sample done shortly after this happened and C-difficle was present. So if he's correct, it would explain why she absorbed it. (etchemia, I don't know if I spelled it right has something to do with the blood flow to the gut and C-diff is a bad bacteria in the gut) However if what this man says is true, this scould explain why some kids are absorbing this. But nowhere in the literature does anyone warn us, just like in the literature it states not to give to people

with irritable bowel syndrom, how many doc's prescribed it without knowing if they had IBS. So I tried to e-mail the man that wrote the article. He had his computor on automatic response saying he was on vacation. I'll look him up again and let you know what he says. Thank you for reminding me. I'll repost the article. Also, I contacted Ayus the one who wrote the article for Fatal disnatremia caused by elective colonoscopy, I spoke to him on the phone regarding this matter and I asked him if he could research this and he said he only did the article on colonoscopy. and didn't offer me much help. I was inquiring about someone to research this. As far as your question, yes and no. The fda has it in their data, and supposively they know what comes in, but this is why we can petition them, to red flag it per say, to bring it to their attention if it's overlooked. I've been submitting for seven years for these fda reports and this week I got a

corrospondence letter stating they couldn't find anything on what I requested for so I called Koningstein and he's getting it for me. Come to find out Hal Steppar usually signs my correspondence letter and it was from Glover, she's new! They hired her because of the increase in submissions, probably because these drugs companies are presenting so many new drugs, they had to expand! For the last 7 years, it's always been Hal and he even admitted to me why they hired her. I told him about the website and all the people I have now and he said to re-petition them. Now with all the people I have, we might have a chance. JeanieCHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote: Jeanie, If I'm not mistaken, in

one of the messages you said there were reported deaths, including children, due to PEG. Is that from the FDA reports you received for the Miralax? So, I'm wondering, does the FDA admit that there are deaths related to Miralax being prescribed to children as well as adults? Thanks, __,_._,__ May the Lord continue to bless you, more abundantly!

Love ya,

Melody

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

I really wish I knew. I too keep feeling like the doctor is only treating the symptom and not interested in resolving the actual problem. We lived in another state until was two - so she had a different ped then. The problem began when she was around four months old - before solid food. My current ped. said if she ate healthy then she wouldn't have this issue - he's soooo wrong because she does eat very healthy and besides the problem started before she was on solids so how could it be related to not eating healthy. I have been so frustrated with them not getting to the root of the problem so we can fix it once and for all. Even her old pediatrician when she was an infant didn't seem concerned when I would take her in and tell them it's not normal for an infant to be so constipated and have so much trouble and pain going. They just said to start giving juice and suppositories.

Re: deaths related to PEG

Can I ask you, what caused the constipation in your daughter? I am tring to find what is causeing it and the doc just wants to fix it wih med. Am I doing the right thing? I am scheduling a colonoscopy for her because that is the final test that they can run. He thinks she is just with holding because it hurts. But I think it is more then that.

Also is lactalos (spelling?) ok because now my 3 1/2 month old is constipated and juice is not working. She won't drink the plumsmart only apple but it is not working her stool is very hard and dark in color and I don't know what else to do.

Tell me if they ever found a cause. My grandmother died of colon cancer 3 bouts of it, my mom they founf 9 palups when they did her colonoscopy, everyoneon my grandmas side the women died of GI problems. So this is important for me to find out what is going on and I think I should.

I wish that site would come back up about the dtap shot and constipation. I have made a decision to stop all vacs.

MelodyJeanie Ward <dreamjeaniesbcglobal (DOT) net> wrote:

Christiana,

It's on the FOIA sheets from the fda. There are many. I'd have to look through all of them again, but just guessing there are maybe 5 children and many adults. Also did you read my article from the BMJ British medical journal, titled fatal disnatremia caused by elective colonoscopy? I posted it a couple weeks ago. My doc found it for me. 2 out of 3 died just drinking the solution. One had grand mal seizures and cardiac arrest and the other woke up in a coma and servived and the 3rd one died of cardiaac arrest as well. I looked up bmj on line to be able to post it for the group and ran into another article, written by some doc, disagreeing that this caused there deaths unless they had etchemia or c-difficle. I new I saw the word c-difficle somewhere and I started going through all my dd's paperwork and I had a stool sample done shortly after this happened and C-difficle was present. So if he's correct, it would explain why she absorbed it. (etchemia, I don't know if I spelled it right has something to do with the blood flow to the gut and C-diff is a bad bacteria in the gut) However if what this man says is true, this scould explain why some kids are absorbing this. But nowhere in the literature does anyone warn us, just like in the literature it states not to give to people with irritable bowel syndrom, how many doc's prescribed it without knowing if they had IBS. So I tried to e-mail the man that wrote the article. He had his computor on automatic response saying he was on vacation. I'll look him up again and let you know what he says. Thank you for reminding me. I'll repost the article. Also, I contacted Ayus the one who wrote the article for Fatal disnatremia caused by elective colonoscopy, I spoke to him on the phone regarding this matter and I asked him if he could research this and he said he only did the article on colonoscopy. and didn't offer me much help. I was inquiring about someone to research this.

As far as your question, yes and no. The fda has it in their data, and supposively they know what comes in, but this is why we can petition them, to red flag it per say, to bring it to their attention if it's overlooked. I've been submitting for seven years for these fda reports and this week I got a corrospondence letter stating they couldn't find anything on what I requested for so I called Koningstein and he's getting it for me. Come to find out Hal Steppar usually signs my correspondence letter and it was from Glover, she's new! They hired her because of the increase in submissions, probably because these drugs companies are presenting so many new drugs, they had to expand! For the last 7 years, it's always been Hal and he even admitted to me why they hired her. I told him about the website and all the people I have now and he said to re-petition them. Now with all the people I have, we might have a chance.

JeanieCHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote:

Jeanie,

If I'm not mistaken, in one of the messages you said there were reported deaths, including children, due to PEG. Is that from the FDA reports you received for the Miralax?

So, I'm wondering, does the FDA admit that there are deaths related to Miralax being prescribed to children as well as adults?

Thanks,

__,_._,__

May the Lord continue to bless you, more abundantly!

Love ya,

Melody

Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

[Guest guest]

Melody, I'm not sure what caused the constipation. I was nursing and had a gallstone so I vaccinated her because I wanted to up to date on her shot's because of the recovery time I'd be having. The shot at four months is the DTAP shot, when I went in, it was the last time I could nurse because of the anesthesia. when I came home is when it all began, so was it the shot? Seems there are numerous people who's child became constipated after the DTAP shot. Shame on me and everyone who didn't contact the FDA over it but I'm one of them. I never really had any proof. Now that I've been researching this, I guess I should. See, it's people that contact the FDA, that get the regimen's changed for the ages of the shots and if we don't let them know, they can't be aware of it. My dd had antibiotics at 2 weeks of age as well. We thought it was yeast but I didn't want to give antifungles because of the side affects. One doctor gave her a very strong antifungle and it should have

never been given to children, so I said forget it. I had a stool sample done by the Great Smokies that showed NO, good bacteria in her stomach. which would explain why she could be, I'm trying a pro-biotic from Kirkman Labs. I figure it's always been beat up and broken down, so I'm trying to build it back up, but she doesn't want to take the chewable. Kirkman Lab is very helpful they have wafers, chewable, liquid any way you want it, for finicky kids. Look them up, it's worth a try. Here's something VERY interesting.............................. I ran the Pro-biotic thing past my doctor friend that's helping me research this, he's a retired OBGYN I explained to him about Pro-biotics and They never taught him this in Med school!!! I was floored, He was under the impresson that acidopholus was the good bacteria, but never knew there were 7 different strains, of the good bacteria, or that it is the opposite of Anti-biotic? My point is, the medical field pushes

drugs that break down the immune system, not build it up. They don't teach this in med school or didn't back then.This is how Summers, beat breast cancer. I looked up the proper dose for pro-biotics and it's about 2-4 million, the VSL#3 that everyone's talking about here, has 450 billion, In my opinion, that's too strong for a child, if your going with the recommended dose. The dose of 2-4 million was just for a individual and would probably be less if it were a child. Mommtic swears it helped her child though. She does have some good points. I always say start small to be safe. Also, your doc is treating a symptom, not a cause, he's not sure why, nor is any other doc, when it COULD be because of the DTAP shot but the only way to tell would be to scope them and do a biopsy, then hope they have an antiviral for it. I wonder if they have an antiviral for DTAP? Be careful with the bowel prep for the colonoscopy, did you read my

article? I would suggest Magnesium citrate. They offer one of the following; Mag citrate Phosphate soda Golytely-Polyethylene glycol Nulytely-Polyethylene glycol I had one done 10 years ago and I took mag citrate, but be careful there's peg in the cherry one. They come in lemon lime or cherry. She could be holding it, but if she is.......we need to keep her going with something non toxic, only sheer logic. Lactulose is fine but can forment in stomach and causes alot of gas, but it's made from milk sugar, that's why it forments. I wouldn't worry about stimuants or dependence, you want to fix what's broken now, overcomming the fear of going. Also try to give them the benefit of the doubt and try not to put emphasis on her going. Sometimes, reverse pshycology works well. Jeaniemelody andersen wrote: Can I ask you, what caused the constipation in your daughter? I am tring to find what is causeing it and the doc just wants to fix it wih med. Am I doing the right thing? I am scheduling a colonoscopy for her because that is the final test that they can run. He thinks she is just with holding because it hurts. But I think it is more then that. Also is lactalos (spelling?) ok because now my 3 1/2 month old is constipated and juice is not working. She won't drink the plumsmart only apple but it is not working her stool is very hard and dark in

color and I don't know what else to do. Tell me if they ever found a cause. My grandmother died of colon cancer 3 bouts of it, my mom they founf 9 palups when they did her colonoscopy, everyoneon my grandmas side the women died of GI problems. So this is important for me to find out what is going on and I think I should. I wish that site would come back up about the dtap shot and constipation. I have made a decision to stop all vacs. MelodyJeanie Ward <dreamjeaniesbcglobal (DOT) net> wrote: Christiana, It's on the FOIA sheets from the fda. There are many. I'd have to look through all of them again, but just guessing there are maybe 5 children and many adults. Also did you read my article from the BMJ British

medical journal, titled fatal disnatremia caused by elective colonoscopy? I posted it a couple weeks ago. My doc found it for me. 2 out of 3 died just drinking the solution. One had grand mal seizures and cardiac arrest and the other woke up in a coma and servived and the 3rd one died of cardiaac arrest as well. I looked up bmj on line to be able to post it for the group and ran into another article, written by some doc, disagreeing that this caused there deaths unless they had etchemia or c-difficle. I new I saw the word c-difficle somewhere and I started going through all my dd's paperwork and I had a stool sample done shortly after this happened and C-difficle was present. So if he's correct, it would explain why she absorbed it. (etchemia, I don't know if I spelled it right has something to do with the blood flow to the gut and C-diff is a bad bacteria in the gut) However if what this man says is true, this scould explain why some kids are absorbing this. But nowhere

in the literature does anyone warn us, just like in the literature it states not to give to people with irritable bowel syndrom, how many doc's prescribed it without knowing if they had IBS. So I tried to e-mail the man that wrote the article. He had his computor on automatic response saying he was on vacation. I'll look him up again and let you know what he says. Thank you for reminding me. I'll repost the article. Also, I contacted Ayus the one who wrote the article for Fatal disnatremia caused by elective colonoscopy, I spoke to him on the phone regarding this matter and I asked him if he could research this and he said he only did the article on colonoscopy. and didn't offer me much help. I was inquiring about someone to research this. As far as your question, yes and no. The fda has it in their data, and supposively they know what comes in, but this is why we can petition them, to red flag it per say, to bring it to their attention if it's

overlooked. I've been submitting for seven years for these fda reports and this week I got a corrospondence letter stating they couldn't find anything on what I requested for so I called Koningstein and he's getting it for me. Come to find out Hal Steppar usually signs my correspondence letter and it was from Glover, she's new! They hired her because of the increase in submissions, probably because these drugs companies are presenting so many new drugs, they had to expand! For the last 7 years, it's always been Hal and he even admitted to me why they hired her. I told him about the website and all the people I have now and he said to re-petition them. Now with all the people I have, we might have a chance. JeanieCHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote: Jeanie, If I'm not mistaken, in one of the messages you said there were reported deaths, including children, due to PEG. Is that from the FDA reports you received for the Miralax? So, I'm wondering, does the FDA admit that there are deaths related to Miralax being prescribed to children as well as adults? Thanks, __,_._,__ May the Lord continue to bless you, more

abundantly! Love ya, Melody Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

[Guest guest]

I feel you, that is what they said My DD started at about 3 1/2 months and they are not concerned at all about the cause. When I took my new DD (3 1/2 months now) they said oh just give her juice it is cause you started cereal. Um no I didn't You wait till 6 months to start food., She just said I am an over concerned parent and I should lighten up!CHRISTOPHER LOY wrote: I really wish I knew. I too keep feeling like the doctor is only treating the symptom and not

interested in resolving the actual problem. We lived in another state until was two - so she had a different ped then. The problem began when she was around four months old - before solid food. My current ped. said if she ate healthy then she wouldn't have this issue - he's soooo wrong because she does eat very healthy and besides the problem started before she was on solids so how could it be related to not eating healthy. I have been so frustrated with them not getting to the root of the problem so we can fix it once and for all. Even her old pediatrician when she was an infant didn't seem concerned when I would take her in and tell them it's not normal for an infant to be so constipated and have so much trouble and pain going. They just said to start giving juice and suppositories. Re: deaths related to PEG Can I ask you, what caused the constipation in your daughter? I am tring to find what is causeing it and the doc just wants to fix it wih med. Am I doing the right thing? I am scheduling a colonoscopy for her because that is the final test that they can run. He thinks she is just with holding because it hurts. But I think it is more then that.

Also is lactalos (spelling?) ok because now my 3 1/2 month old is constipated and juice is not working. She won't drink the plumsmart only apple but it is not working her stool is very hard and dark in color and I don't know what else to do. Tell me if they ever found a cause. My grandmother died of colon cancer 3 bouts of it, my mom they founf 9 palups when they did her colonoscopy, everyoneon my grandmas side the women died of GI problems. So this is important for me to find out what is going on and I think I should. I wish that site would come back up about the dtap shot and constipation. I have made a decision to stop all vacs. MelodyJeanie Ward <dreamjeaniesbcglobal (DOT) net> wrote: Christiana, It's on the FOIA sheets from the fda. There are many. I'd have to look through all of them again, but just guessing there are maybe 5 children and many adults. Also did you read my article from the BMJ British medical journal, titled fatal disnatremia caused by elective colonoscopy? I posted it a couple weeks ago. My doc found it for me. 2 out of 3 died just drinking the solution. One had grand mal seizures and cardiac arrest and the other woke up in a coma and servived and the 3rd one died of cardiaac arrest as well. I looked up bmj on line to be able to post it for the group and ran into another article, written by some doc, disagreeing that this caused there deaths unless they had etchemia or c-difficle. I new I saw the word c-difficle somewhere and I started going through all my dd's paperwork and I had a stool sample done shortly after this happened and C-difficle was present. So if he's correct, it would explain why she absorbed it.

(etchemia, I don't know if I spelled it right has something to do with the blood flow to the gut and C-diff is a bad bacteria in the gut) However if what this man says is true, this scould explain why some kids are absorbing this. But nowhere in the literature does anyone warn us, just like in the literature it states not to give to people with irritable bowel syndrom, how many doc's prescribed it without knowing if they had IBS. So I tried to e-mail the man that wrote the article. He had his computor on automatic response saying he was on vacation. I'll look him up again and let you know what he says. Thank you for reminding me. I'll repost the article. Also, I contacted Ayus the one who wrote the article for Fatal disnatremia caused by elective colonoscopy, I spoke to him on the phone regarding this matter and I asked him if he could research this and he said he only did the article on colonoscopy. and didn't offer me much help. I was inquiring about someone

to research this. As far as your question, yes and no. The fda has it in their data, and supposively they know what comes in, but this is why we can petition them, to red flag it per say, to bring it to their attention if it's overlooked. I've been submitting for seven years for these fda reports and this week I got a corrospondence letter stating they couldn't find anything on what I requested for so I called Koningstein and he's getting it for me. Come to find out Hal Steppar usually signs my correspondence letter and it was from Glover, she's new! They hired her because of the increase in submissions, probably because these drugs companies are presenting so many new drugs, they had to expand! For the last 7 years, it's always been Hal and he even admitted to me why they hired her. I told him about the website and all the people I have now and he said to re-petition them. Now with all the people I have, we might have a chance. JeanieCHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote: Jeanie, If I'm not mistaken, in one of the messages you said there were reported deaths, including children, due to PEG. Is that from the FDA reports you received for the Miralax? So, I'm wondering, does the FDA admit that there are deaths related to Miralax being prescribed to children as well as adults? Thanks, __,_._,__ May the Lord continue to bless you, more abundantly! Love ya, Melody Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. May the Lord continue to bless you, more abundantly!

Love ya,

Melody

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new cars at Yahoo! Autos.

[Guest guest]

Ok so I am gonna call the fda and tell them that my dd 3 1/2 months has been constuipated since she got her shots and that is when the older one started. What is the protacol?Jeanie Ward wrote: Melody, I'm not sure what caused the constipation. I was nursing and had a gallstone so I vaccinated her because I wanted to up to date on her shot's because of the recovery time I'd be having. The shot at four months is the DTAP shot, when I went in, it was the last time I could nurse because of the

anesthesia. when I came home is when it all began, so was it the shot? Seems there are numerous people who's child became constipated after the DTAP shot. Shame on me and everyone who didn't contact the FDA over it but I'm one of them. I never really had any proof. Now that I've been researching this, I guess I should. See, it's people that contact the FDA, that get the regimen's changed for the ages of the shots and if we don't let them know, they can't be aware of it. My dd had antibiotics at 2 weeks of age as well. We thought it was yeast but I didn't want to give antifungles because of the side affects. One doctor gave her a very strong antifungle and it should have never been given to children, so I said forget it. I had a stool sample done by the Great Smokies that showed NO, good bacteria in her stomach. which would explain why she could be, I'm trying a pro-biotic from Kirkman Labs. I figure it's always been beat up and broken down, so I'm trying to build it back

up, but she doesn't want to take the chewable. Kirkman Lab is very helpful they have wafers, chewable, liquid any way you want it, for finicky kids. Look them up, it's worth a try. Here's something VERY interesting.............................. I ran the Pro-biotic thing past my doctor friend that's helping me research this, he's a retired OBGYN I explained to him about Pro-biotics and They never taught him this in Med school!!! I was floored, He was under the impresson that acidopholus was the good bacteria, but never knew there were 7 different strains, of the good bacteria, or that it is the opposite of Anti-biotic? My point is, the medical field pushes drugs that break down the immune system, not build it up. They don't teach this in med school or didn't back then.This is how Summers, beat breast cancer. I looked up the proper dose for pro-biotics and it's about 2-4 million, the VSL#3 that everyone's talking about here, has 450

billion, In my opinion, that's too strong for a child, if your going with the recommended dose. The dose of 2-4 million was just for a individual and would probably be less if it were a child. Mommtic swears it helped her child though. She does have some good points. I always say start small to be safe. Also, your doc is treating a symptom, not a cause, he's not sure why, nor is any other doc, when it COULD be because of the DTAP shot but the only way to tell would be to scope them and do a biopsy, then hope they have an antiviral for it. I wonder if they have an antiviral for DTAP? Be careful with the bowel prep for the colonoscopy, did you read my article? I would suggest Magnesium citrate. They offer one of the following; Mag citrate Phosphate soda Golytely-Polyethylene glycol Nulytely-Polyethylene glycol I had one done 10 years ago and I took mag citrate, but be

careful there's peg in the cherry one. They come in lemon lime or cherry. She could be holding it, but if she is.......we need to keep her going with something non toxic, only sheer logic. Lactulose is fine but can forment in stomach and causes alot of gas, but it's made from milk sugar, that's why it forments. I wouldn't worry about stimuants or dependence, you want to fix what's broken now, overcomming the fear of going. Also try to give them the benefit of the doubt and try not to put emphasis on her going. Sometimes, reverse pshycology works well. Jeaniemelody andersen <melody_andy> wrote: Can I ask you, what caused the constipation in your daughter? I am tring to find what is causeing it and the doc just wants to fix it wih med. Am I doing the right thing? I am scheduling a

colonoscopy for her because that is the final test that they can run. He thinks she is just with holding because it hurts. But I think it is more then that. Also is lactalos (spelling?) ok because now my 3 1/2 month old is constipated and juice is not working. She won't drink the plumsmart only apple but it is not working her stool is very hard and dark in color and I don't know what else to do. Tell me if they ever found a cause. My grandmother died of colon cancer 3 bouts of it, my mom they founf 9 palups when they did her colonoscopy, everyoneon my grandmas side the women died of GI problems. So this is important for me to find out what is going on and I think I should. I wish that site would come back up about the dtap shot and constipation. I have made a decision to stop all vacs. MelodyJeanie Ward

<dreamjeaniesbcglobal (DOT) net> wrote: Christiana, It's on the FOIA sheets from the fda. There are many. I'd have to look through all of them again, but just guessing there are maybe 5 children and many adults. Also did you read my article from the BMJ British medical journal, titled fatal disnatremia caused by elective colonoscopy? I posted it a couple weeks ago. My doc found it for me. 2 out of 3 died just drinking the solution. One had grand mal seizures and cardiac arrest and the other woke up in a coma and servived and the 3rd one died of cardiaac arrest as well. I looked up bmj on line to be able to post it for the group and ran into another article, written by some doc, disagreeing that this caused there deaths unless they had etchemia or c-difficle. I new I saw the word c-difficle somewhere and I started

going through all my dd's paperwork and I had a stool sample done shortly after this happened and C-difficle was present. So if he's correct, it would explain why she absorbed it. (etchemia, I don't know if I spelled it right has something to do with the blood flow to the gut and C-diff is a bad bacteria in the gut) However if what this man says is true, this scould explain why some kids are absorbing this. But nowhere in the literature does anyone warn us, just like in the literature it states not to give to people with irritable bowel syndrom, how many doc's prescribed it without knowing if they had IBS. So I tried to e-mail the man that wrote the article. He had his computor on automatic response saying he was on vacation. I'll look him up again and let you know what he says. Thank you for reminding me. I'll repost the article. Also, I contacted Ayus the one who wrote the article for Fatal disnatremia caused by elective colonoscopy, I spoke to him on the

phone regarding this matter and I asked him if he could research this and he said he only did the article on colonoscopy. and didn't offer me much help. I was inquiring about someone to research this. As far as your question, yes and no. The fda has it in their data, and supposively they know what comes in, but this is why we can petition them, to red flag it per say, to bring it to their attention if it's overlooked. I've been submitting for seven years for these fda reports and this week I got a corrospondence letter stating they couldn't find anything on what I requested for so I called Koningstein and he's getting it for me. Come to find out Hal Steppar usually signs my correspondence letter and it was from Glover, she's new! They hired her because of the increase in submissions, probably because these drugs companies are presenting so many new drugs, they had to expand! For the last 7 years, it's always been Hal and he even admitted to me why

they hired her. I told him about the website and all the people I have now and he said to re-petition them. Now with all the people I have, we might have a chance. JeanieCHRISTOPHER LOY <cloyncloyfrontiernet (DOT) net> wrote: Jeanie, If I'm not mistaken, in one of the messages you said there were reported deaths, including children, due to PEG. Is that from the FDA reports you received for the Miralax? So, I'm wondering, does the FDA admit that there are deaths related to Miralax being prescribed to children as well as adults? Thanks, __,_._,__ May the Lord continue to bless you, more abundantly! Love ya, Melody Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. May the Lord continue to bless you, more abundantly!

Love ya,

Melody

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.