Re: Potty Training

March 29, 2001

Re: potty training

> DOES SHE HAVE ANY INTREST IN IT AT ALL?

> HAVE YOU TRIED THE POTTY VIDEO AND BOOK IF SHE LIKES TV OR TO LOOK AT

BOOKS?

> a mom to chatter box

> >

> >Maribeth, My daughter Autumn is 41/2 years old and is still not

> >potty-trained. I am trying to by putting her on the toilet various times

> >throughout the day to try and catch her so I can reward her or that

> >behaviour and hopefully begin to get her to associate the toilet with

what

> >she does in her diaper.It is more difficult with pmg kids because for the

> >majority there is no speech(like my daughter) so they can't tell you they

> >need to pee. If you have any suggestions as to what to try next I would

> >appreciate any advice you may be able to give.

> Tare Care, mom to Autumn

> _________________________________________________________________________

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>

March 29, 2001

>

>Maribeth, My daughter Autumn is 41/2 years old and is still not

>potty-trained. I am trying to by putting her on the toilet various times

>throughout the day to try and catch her so I can reward her or that

>behaviour and hopefully begin to get her to associate the toilet with what

>she does in her diaper.It is more difficult with pmg kids because for the

>majority there is no speech(like my daughter) so they can't tell you they

>need to pee. If you have any suggestions as to what to try next I would

>appreciate any advice you may be able to give.

Tare Care, mom to Autumn

_________________________________________________________________________

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March 29, 2001

-

That's the same way we started with Sam. Once we were able to, we rewarded

him with matchbox cars (he's always been crazy about cars). Also, check out

this web site http://www.handspeak.com (or ask your speech therapist) for

the sign for toilet (it is also used for potty or bathroom). It's a simple

way that Autumn may be able to tell you she needs to go. For Sam, the sign

for BM was to difficult for him to do, so we made up our own.

Best of luck-

Christie, mom to Sam (9 yrs old, BPP, still crazy about cars!)

March 31, 2001

Hello Maribeth,

My son Teddy is 3 1/2 and we are attempting to potty train him, but honestly

I don't think he knows what it's for or why he urinates on the floor. He

just gives me this puzzled look. At 3 the state started paying for his

diapers so at least it's not quite that much of an expense to have him in

diapers. Good luck, I'll keep trying and sooner or later it might click.

Kim

potty training

> Hello group!

> Is there a delay in potty training with our kids? At what age did

> your kids potty train?

> Maribeth

>

March 31, 2001

potty training

>

> > Hello group!

> > Is there a delay in potty training with our kids? At what age did

> > your kids potty train?

> > Maribeth

> >

January 7, 2009

Most important thing is to throw away the diapers/pull ups and never look back. :-)You are not asking too much, you are not asking enough! He CAN do this, he's just taking the easier route, like everyone else does, including me. :-) Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/ http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace.com/vennamusicFrom: kerrrachell To: DownSyndromeInfoExchange Sent: Wednesday, January 7, 2009 10:56:59 AMSubject: [DownSyndromeInfoExchange] Potty Training

I was really surprised that there isn't a file at this group about

Potty Training. Maybe you can help me.

My son is 3 1/2 years old and we have been practicing potty training

for 1 1/2 years. He will use his diaper 95% of the time. The other 5%

he will ask to use the potty. We give him the choice of diaper changes

on the potty on on the changing table and he does choose the potty. He

uses the potty when he is on it.

I have been trying this for so long and I am at my wits end. I have no

idea what to do. Developmentally he is high functioning and I really

feel like he should be potty trained. Am I asking too much? I am

starting to get depressed about this issue and I feel I am having a

hard time making good decisions about it.

Please help.

Thanks,

l

January 7, 2009

I totally understand your frustration! I remember it well. Going to preschool helped train Faith as all the kids marched to the potty as part of their day. The routine was very valuable in training her.

Have you heard of "Potty Training in a Day"? While not aimed at Ds specifically it is a good technique. It probably won't work in a day, but after a few days he should have the idea. Also, I recommend going cold turkey on the diapers, cloth underwear. I used to put a pull up over the undies when going out, she hated that feeling!

Faith was fully daytime trained by 4. She was much more successful when she didn't have to ask for the toilet but could do it independently. She would rarely ask.

Good luck! We can all relate to your journey!

ette

mom to Faith (11)Ds

-------------- Original message from "kerrrachell" : --------------

I was really surprised that there isn't a file at this group about Potty Training. Maybe you can help me.My son is 3 1/2 years old and we have been practicing potty training for 1 1/2 years. He will use his diaper 95% of the time. The other 5% he will ask to use the potty. We give him the choice of diaper changes on the potty on on the changing table and he does choose the potty. He uses the potty when he is on it. I have been trying this for so long and I am at my wits end. I have no idea what to do. Developmentally he is high functioning and I really feel like he should be potty trained. Am I asking too much? I am starting to get depressed about this issue and I feel I am having a hard time making good decisions about it.Please help.Thanks,l

January 7, 2009

Something else that can buy you a little time is a pad, like a kotex pad. X-tra long super absorbency. I have used those for potty training when going out in public, and for the very early stages.These work well in diapers over night too for those babies that seem to soak through by morning. :-) Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/ http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace.com/vennamusicFrom: "pbeurrier@..." To: DownSyndromeInfoExchange Sent: Wednesday, January 7, 2009 11:41:09 AMSubject: Re: [DownSyndromeInfoExchange] Potty Training

I totally understand your frustration! I remember it well. Going to preschool helped train Faith as all the kids marched to the potty as part of their day. The routine was very valuable in training her.

Have you heard of "Potty Training in a Day"? While not aimed at Ds specifically it is a good technique. It probably won't work in a day, but after a few days he should have the idea. Also, I recommend going cold turkey on the diapers, cloth underwear. I used to put a pull up over the undies when going out, she hated that feeling!

Faith was fully daytime trained by 4. She was much more successful when she didn't have to ask for the toilet but could do it independently. She would rarely ask.

Good luck! We can all relate to your journey!

ette

mom to Faith (11)Ds

-------------- Original message from "kerrrachell" : --------------

I was really surprised that there isn't a file at this group about Potty Training. Maybe you can help me.My son is 3 1/2 years old and we have been practicing potty training for 1 1/2 years. He will use his diaper 95% of the time. The other 5% he will ask to use the potty. We give him the choice of diaper changes on the potty on on the changing table and he does choose the potty. He uses the potty when he is on it. I have been trying this for so long and I am at my wits end. I have no idea what to do. Developmentally he is high functioning and I really feel like he should be potty trained. Am I asking too much? I am starting to get depressed about this issue and I feel I am having a hard time making good decisions about it.Please help.Thanks,l

January 7, 2009

My little guy is 4 - we were trying pull-ups and the potty, however that wasn't working.

On Monday we went NO DIAPERS (except at night) he is doing amazing. only 1 accident so far.

We are asking often and taking often, but we're keeping our fingers crossed that he is on the right track.

Good Luck

Alison [DownSyndromeInfoExchange] Potty TrainingTo: DownSyndromeInfoExchange > I was really surprised that there isn't a file at this group > about > Potty Training. Maybe you can help me.> > My son is 3 1/2 years old and we have been practicing potty > training > for 1 1/2 years. He will use his diaper 95% of the time. The > other 5% > he will ask to use the potty. We give him the choice of diaper > changes > on the potty on on the changing table and he does choose the > potty. He > uses the potty when he is on it. > > I have been trying this for so long and I am at my wits end. I > have no > idea what to do. Developmentally he is high functioning and I > really > feel like he should be potty trained. Am I asking too much? I > am > starting to get depressed about this issue and I feel I am > having a > hard time making good decisions about it.> > Please help.> Thanks,> l> >

January 7, 2009

We are trying the Potty Boot Camp technique with ( we got it at the Mosaic DS blog) after almost 1 year unsuccessfully trying on and off). The drills are nerve wrecking (for both parts !). Hope it works soon... Pat mum to , 4 y 3 mo.cjalicj@... escreveu: My little guy is 4 - we were trying pull-ups and the potty, however that wasn't working. On Monday we went NO DIAPERS (except at night) he is doing amazing. only 1 accident so far. We

are asking often and taking often, but we're keeping our fingers crossed that he is on the right track. Good Luck Alison [DownSyndromeInfoExchange] Potty TrainingTo: DownSyndromeInfoExchange > I was really surprised that there isn't a file at this group > about > Potty Training. Maybe you can help me.> > My son is 3 1/2 years old and we have been practicing potty > training > for 1 1/2 years. He will use his diaper 95% of the time. The > other 5% > he will ask to use the potty. We give him the choice of diaper > changes > on the potty on on the changing table and he does choose the > potty. He > uses the potty when he is on it. > > I have been trying this for so long and I am at my

wits end. I > have no > idea what to do. Developmentally he is high functioning and I > really > feel like he should be potty trained. Am I asking too much? I > am > starting to get depressed about this issue and I feel I am > having a > hard time making good decisions about it.> > Please help.> Thanks,> l> >

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January 7, 2009

Thanks for your advice...and more is welcome.

When I have tried no diapers/pull ups, he has sat in pee until we

noticed he was wet. Does that mean anything? Could that not make a

difference to him? What were the reactions of your children when

they had an accident?

He does get taken to the potty at preschool; I have seen no effect at

home.

He is unable to pull down his own pants or underwear unassisted. He

is unable to sit on the potty unassisted. Does anyone have a

recommended potty for boys (good pee guard) that is easy for a small

child to sit on? He is not 3' tall yet and has poor motor planning.

I do believe him having independence will make a huge diffence.

I feel I am missing the key to his success. His expressive

communication is at the level of a 2 year old, and I am unable to get

info from him as to what he needs. If I ask him a direct question

(yes or no) we can communicate better. I just don't know what

questions to ask.

Thanks again,

I really need this help,

l

January 8, 2009

Here is some great information:http://einstein-syndrome.com/development/potty_training_description/

As for undressing, do you work with an OT? Simple elastic waist, a little too big, practice with him pulling pants up and down. It is time to do this! Teach him to say or sign "potty".

To help with motor planning use pictures. Many autism resources offer pictures for toileting. Seeing each step in the process should help him visualize what you want him to do.

Potty videos too will help as many kids with Ds are visual learners. Learn the potty songs (they will drive you crazy!) and sing them often.

All potty, all the time! It won't last forever! If nothing else besides Ds is going on he will be successful eventually.

ette

mom to Faith (11)Ds

-------------- Original message from "kerrrachell" : --------------

Thanks for your advice...and more is welcome.When I have tried no diapers/pull ups, he has sat in pee until we noticed he was wet. Does that mean anything? Could that not make a difference to him? What were the reactions of your children when they had an accident?He does get taken to the potty at preschool; I have seen no effect at home. He is unable to pull down his own pants or underwear unassisted. He is unable to sit on the potty unassisted. Does anyone have a recommended potty for boys (good pee guard) that is easy for a small child to sit on? He is not 3' tall yet and has poor motor planning. I do believe him having independence will make a huge diffence. I feel I am missing the key to his success. His expressive communication is at the level of a 2 year old, and I am unable to get info from him as to what he needs. If I ask him a direct question (yes or no) we can communicate better. I just don't know what questions to ask.Thanks again,I really need this help,l

January 8, 2009

I would suggest the Potty Training in Less Than a Day book as well.

We have used it with 3 of our boys (all typical). It was written for

developmentally delayed people, but is a very good program. It DOES

NOT TAKE less than a day, though!!! they work with a doll first --

one that can " pee " . Preferably, one that pees when you squeeze the

tummy, not one that water just runs through. YOu spend some time

working with the doll -- teaching the concepts of wet and dry,

practicing taking the doll to the potty -- letting the doll have

accidents, etc.

there is also a checklist that you can read to see if your child

is " ready " to potty train. When I trained my firstborn, he was 25

months old. He didn't talk yet, at all, so I was wondering if he

would get it without being able to say " wet " , " dry " , etc., but he did

it in a couple of days.

My son with DS will be 3 on Saturday. He isn't ready yet to start,

unfortunately! He doesn't process enough regular everyday commands

yet. Hopefully by the summer! But, we have the doll out, and the

potty out, so we are ready to get started!

Oh, and I also agree that it will be VERY difficult to train him if

you do not take him out of diapers/pull-ups. Since he sits in wet

pants, I would really work on the concept of wet and dry with him

(using a doll, feeling his own underwear at regular intervals and

telling you/signing that they are wet or dry). Hang in there! He

will get it!

Sharon

>

> Thanks for your advice...and more is welcome.

>

> When I have tried no diapers/pull ups, he has sat in pee until we

> noticed he was wet. Does that mean anything? Could that not make

a

> difference to him? What were the reactions of your children when

> they had an accident?

>

> He does get taken to the potty at preschool; I have seen no effect

at

> home.

>

> He is unable to pull down his own pants or underwear unassisted.

He

> is unable to sit on the potty unassisted. Does anyone have a

> recommended potty for boys (good pee guard) that is easy for a

small

> child to sit on? He is not 3' tall yet and has poor motor

planning.

> I do believe him having independence will make a huge diffence.

>

> I feel I am missing the key to his success. His expressive

> communication is at the level of a 2 year old, and I am unable to

get

> info from him as to what he needs. If I ask him a direct question

> (yes or no) we can communicate better. I just don't know what

> questions to ask.

>

> Thanks again,

> I really need this help,

> l

>

January 8, 2009

My daughter has a rare chromosome abnormality and does not have much strength. She's 6.5 years old so we have been working on building up her strength since she was born!!

And yes, I do help her all the time. I'm not like others who do not help their child. My daughter with DS who is 2.5 with great tone and strength can dress and undress herself. She will be able to do this herself which I'm not concerned at all about.

[DownSyndromeInfoEx change] Re: Potty Training

Thanks for your advice...and more is welcome.When I have tried no diapers/pull ups, he has sat in pee until we noticed he was wet. Does that mean anything? Could that not make a difference to him? What were the reactions of your children when they had an accident?He does get taken to the potty at preschool; I have seen no effect at home. He is unable to pull down his own pants or underwear unassisted. He is unable to sit on the potty unassisted. Does anyone have a recommended potty for boys (good pee guard) that is easy for a small child to sit on? He is not 3' tall yet and has poor motor planning. I do believe him having independence will make a huge diffence. I feel I am missing the key to his success. His expressive communication is at the level of a 2 year old, and I am unable to get info from him as to what he needs. If I ask him a direct question (yes or no) we can communicate better. I just don't know what questions to ask.Thanks again,I really need this help,l

January 8, 2009

Sounds as though you answered your own questions? Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/ http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace.com/vennamusicFrom: Bolduc To: DownSyndromeInfoExchange Sent: Thursday, January 8, 2009 11:01:38 AMSubject: Re: [DownSyndromeInfoExchange] Re: Potty Training

My daughter has a rare chromosome abnormality and does not have much strength. She's 6.5 years old so we have been working on building up her strength since she was born!!

And yes, I do help her all the time. I'm not like others who do not help their child. My daughter with DS who is 2.5 with great tone and strength can dress and undress herself. She will be able to do this herself which I'm not concerned at all about.

[DownSyndromeInfoEx change] Re: Potty Training

Thanks for your advice...and more is welcome.When I have tried no diapers/pull ups, he has sat in pee until we noticed he was wet. Does that mean anything? Could that not make a difference to him? What were the reactions of your children when they had an accident?He does get taken to the potty at preschool; I have seen no effect at home. He is unable to pull down his own pants or underwear unassisted. He is unable to sit on the potty unassisted. Does anyone have a recommended potty for boys (good pee guard) that is easy for a small child to sit on? He is not 3' tall yet and has poor motor planning. I do believe him having independence will make a huge diffence. I feel I am missing the key to his success. His expressive communication is at the level of a 2 year old, and I am unable to get info from him as to what he needs. If I ask him a direct question (yes or no) we can communicate better. I just don't know what questions to ask.Thanks again,I really need this help,l

January 8, 2009

Hi e,

Faith was also not concerned or bothered with messy underpants, so I had to make her concerned. It had to be a bigger bother for her to go in her pants than to go to the toilet. That meant she had to stop what she was doing, help me get her clean clothes, help me remove her wet clothes, help me clean her up, help me wash her dirty clothes, then listen to my explanation (AGAIN) of how it would be easier for her to just interupt her activity for a few minutes and go to the toilet. When she did go to the toilet I brought her a toy or book while she was there and made a huge big deal about her success, pointing out to her all the benefits she experienced.

Good luck!

ette

mom to Faith (11)Ds

-------------- Original message from Norlan & e Quinlan : --------------

Oh Man l I feel with you on this. Tehya is 4.5 and is doing the same thing. She tests right at her age developmentally, and Dr L said, at our last visit in Oct, that there is no reason she's not potty trained. I was thinking that she knew how to make herself go but just didn't recognize the needing to go feeling before it occurred, but Dr L doesn't think so. If he's right then that only leaves one reason, she just doesn't want to. She can go 24 hours w/out an accident (w/ pullups).She can go to the potty by herself when she's inclined to. She wears pullups to preschool and does fine there. But when she comes home it's a battle to get her to go potty OR EVEN COME GET HER DIAPER CHANGED! She's too busy doing her own thing to be bothered.If I put her in real panties then it's just a mess. She is COMPLETELY not bothered by being wet, or her pants being wet.I'm trying to not make a big deal of it and hope she'll decide to do it to be big like the other kids in her life.I appreciate all the advice/input you mom's who've been through this have to offer.e QuinlanFlorence, Co.Mom to Tanner 6 yr and Tehya 4 yr (t21)

January 8, 2009

Your point about processing commands is key, I think. I’m not sure if it was in the book you mentioned or not (I loaned mine out so I can’t check), but somewhere along the line I remember hearing that a typical child is ready when they can obey a 2-step command. I think that’s probably accurate with our kids w/Ds as well, but again, it is all individual. We are struggling right now with our 6.5 y.o. daughter. After reading everyone’s experiences, I’m now wishing I would have brought out the underwear over winter break! There’s always the weekend, though.

Colleen