Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 Hi Mache,I've never posted here, but I've been a member for a few months now, following the posts. I have a 3 1/2 y/o ds with autism. Anyway, I just wanted to jump in here and say that 50 mg/day seems like way too much to me unless your son has a heroin addiction . I'm familiar with Low Dose Naltrexone (LDN) for autoimmune thyroiditis - I haven't taken it but know others who have - and they are adults on not more than 4 mg/day. Thus the "Low Dose". Here's a link on LDN you may want to look at: http://www.lowdosenaltrexone.org/My guess is that your neurologist may not be familiar with how to dose it.HTH's!Bonnie J. To: Texas-Autism-Advocacy Sent: Friday, February 27, 2009 10:35:00 PMSubject: Revia (naltrexone) My neurologist just prescribed naltrexone to my 11 year old son. I have heard some positive results from this particular drug, but my biggest concern is the dosage that was prescribed to my son. The Dosage is 25mg 2x a day. So 50mg a day! I have spoken to other parents who have said that their children are only on 1.5mg a day. that's a huge difference! Is anyone on this list familiar with this drug? If so, does 50 mg. seem to be way too much? Thanks, Mache Villalobos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 Here is the info from Drugs.comhttp://www.drugs.com/ppa/naltrexone-hydrochloride.html Sounds like the adult dose, is he a large kid? I would definitely question the pharmacist and the doctor. Could be a decimal point omission, so 2.5mg/dose and 5mg/day total Bonnie, mom to 11/27/04, Autism, Albinism My neurologist just prescribed naltrexone to my 11 year old son. I have heard some positive results from this particular drug, but my biggest concern is the dosage that was prescribed to my son. The Dosage is 25mg 2x a day. So 50mg a day! I have spoken to other parents who have said that their children are only on 1.5mg a day. that's a huge difference! Is anyone on this list familiar with this drug? If so, does 50 mg. seem to be way too much? Thanks, Mache Villalobos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 Actually you have it in reverse. Revia is the brand name of the generic naltrexone (I'm a medical transcriptionist). The brand name is also written as ReVia. Hilda I think Revia is just the generic name for naltrexone. I am so glad I did my own research before putting my son on the dose that his doctor prescribed to him! A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 And also, according to my drug index, naltrexone comes in a 50 mg tablet, there is no decimal error there. I'm thinking the physician probably doesn't know that it is the smaller dose (the very, very, very smaller dose) is what the trials on people with autism have benefitted with. Not quite sure how they get that smaller dose unless the pharmacies you all are getting the smaller dose is compounding the medication? Hilda I think Revia is just the generic name for naltrexone. I am so glad I did my own research before putting my son on the dose that his doctor prescribed to him! A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 I think Revia is just the generic name for naltrexone. I am so glad I did my own research before putting my son on the dose that his doctor prescribed to him! Hi, You name a substance called " revia. " Is this naltrexone? About three years ago our son's doctor gave us a trial of naltrexone and the dose was very low. Reading the bottle I see it was 4 mg. I believe we gave it at night. It seemed to be a miracle drug - for a couple of days, which we kept on thinking we could stretch out. It did not happen, and naltrexone turned out to be like so many other drug miracles -- a " flash in the pan. " But What is Revia? Is it another form which then would have perhaps another dose? Good Luck. Cornelia Revia (naltrexone) My neurologist just prescribed naltrexone to my 11 year old son. I have heard some positive results from this particular drug, but my biggest concern is the dosage that was prescribed to my son. The Dosage is 25mg 2x a day. So 50mg a day! I have spoken to other parents who have said that their children are only on 1.5mg a day. that's a huge difference! Is anyone on this list familiar with this drug? If so, does 50 mg. seem to be way too much? Thanks, Mache Villalobos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 Hi, Also you can call a pharmacist and ask him if the dosage sounds appropriate. They will know. Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2009 Report Share Posted March 1, 2009 HOW TO GET THE SMALLER DOSE: Hi, yes, we got the RX filled by a compounding pharmacy. The physician was very particular about the dose. Later I will check my notes to see if we had permission to increase it... Cornelia Re: Revia (naltrexone) And also, according to my drug index, naltrexone comes in a 50 mg tablet, there is no decimal error there. I'm thinking the physician probably doesn't know that it is the smaller dose (the very, very, very smaller dose) is what the trials on people with autism have benefitted with. Not quite sure how they get that smaller dose unless the pharmacies you all are getting the smaller dose is compounding the medication? Hilda In a message dated 2/28/2009 10:10:22 P.M. Central Standard Time, msmachegmail writes: I think Revia is just the generic name for naltrexone. I am so glad I did my own research before putting my son on the dose that his doctor prescribed to him! A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 50 mg. or more is the dose for substance abusers. A side-effect of higher-dose Naltrexone / Revia is anxiety, so it's important not to overdose. My daughter has done well with 4.5 mg. (she's adult-sized now). It is compounded for her. In recent years Dr. McCandless, author of Children With Starving Brains, put low-dose naltrexone on the map for autism, though success had previously been reported by the Autism Research Institute. Her web site is http://www.starvingbrains.com/. The Yahoo group associated with her and this therapy is http://groups.yahoo.com/group/Autism_LDN. > > My neurologist just prescribed naltrexone to my 11 year old son. I have > heard some positive results from this particular drug, but my biggest > concern is the dosage that was prescribed to my son. The Dosage is 25mg 2x a > day. So 50mg a day! I have spoken to other parents who have said that their > children are only on 1.5mg a day. that's a huge difference! Is anyone on > this list familiar with this drug? If so, does 50 mg. seem to be way too > much? > Thanks, > Mache Villalobos > Quote Link to comment Share on other sites More sharing options...
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