Re: New to the group

March 25, 2006

Also.....I used green tea. What color should the kombucha be?

Thanks!!!

kay edge wrote:

Hi

I received a scoby and started fermenting it Sunday. We use to use Kefir but

my son became allergic to every medium we grew it in (milk, pear juice.....).

I will be a full week tomorrow. I followed the instructions from only using a

glass container, cheese paper, closed vented area, careful not to contaminate

it, wooden utensils and so on. Is there anything else I should know before I

give this to my son (6yr old....needing a good source of probiotic).

Many of the websites I have read try to scare you about using Kombucha. I am

not scared about using it....just want to it right.

Marilyn

---------------------------------

New Yahoo! Messenger with Voice. Call regular phones from your PC for low, low

rates.

March 25, 2006

Hi Marilyn and Welcome:-))

Sounds like you are doing just fine. In future it would be best to

switch the cheese cloth for a more finely wonven cloth so

tha " critter " such as ants and fruit flies can't get through.

When you introduce KT to your son or anyone they should start with

just a small amount, if he is sensitive I would just put a tablespoon

of KT in water or juice and slowly increase the amount over days or

weeks, even months.

It is also important for everyone who drinks Kombucha to also drink

lots of plain water.

Happy Brewing:-))

Peace, Love and Harmony,

Bev

KOMBUCHA MANNA DROPS - Safe, Convenient, Effective and Easy to use.

Great for travel, work, and everyday along with your KT:-))

http://KMI.mannainternational.com

MANNA GREEN AND WHITE TEA EXTRACT

Liquid Drops of Green & White Tea Extract

http://GTE.mannainternational.com

All products made with 100% Certified Organic Ingredients

Made and packaged in glass, not plastic!

-- In original_kombucha , kay edge

wrote:

>

> Hi

>

> I received a scoby and started fermenting it Sunday. We use to

use Kefir but my son became allergic to every medium we grew it in

(milk, pear juice.....).

>

> I will be a full week tomorrow. I followed the instructions from

only using a glass container, cheese paper, closed vented area,

careful not to contaminate it, wooden utensils and so on. Is there

anything else I should know before I give this to my son (6yr

old....needing a good source of probiotic).

>

> Many of the websites I have read try to scare you about using

Kombucha. I am not scared about using it....just want to it right.

>

> Marilyn

>

> ---------------------------------

> New Yahoo! Messenger with Voice. Call regular phones from your PC

for low, low rates.

>

June 29, 2009

There is a lot of hope for your baby. Your son is young and not a high degree of curvature. You are in the right place the people here are so great and so helpful. First thing I would do is go to the database at the CAST website and find the doctor closest to you that does the Mehta Casting. Call and talk to the care coordinator there and that person will be a huge help to you. You have to pull at their heart and let them know that you know they are one of the only doctors that does the procedure and you need their help to help your baby. Listen to all of the thinks that people on this site tell you, but most important listen to what has to say. She is such a nice person and you can call her any time you need to. Her number is posted on here somewhere, she is great and very helpful. Your son is going to be

fine but you must act quickly. You have to be confindent and "Politely Pushy". You have to speak for him and get him the care he needs. I hope I have helped and if you have any questions I will answer them to the best of my ability.Beth Rettinger

Mother Of Rettinger

15 Months 60+ degrees, just got accepted to SLCWaiting on Appointment DateSubject: New to the groupTo: infantile_scoliosis Date: Monday, June 29, 2009, 9:47 AM

I just joined this group with the hopes of learning as much as I can from personal stories about infantile scoliosis and Mehta casting or other methods of treatment. My son, Camden, is six months old. I brought him to his pediatrician when he was two months old because I thought his spine seemed crooked. She referred us to a pediatric orthopedic specialist who diagnosed Camden with Torticollis and scheduled us to followup with xrays at six months. Camden had PT for his Torticollis, which is mild, but has not improved. Around four months his left side of his back began to bulge out. The therapist thought it might be something muscular. Camden just had his first xrays last Monday and was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees. Of course were are scared and very overwhelmed. We live in NM and right now are trying to get a second opinion on what should be done next. He is supposed to have an MRI toward

the end of July. I look forward to learning more about your journeys and to finding support in getting the right care for our son.

June 29, 2009

Welcome to the group! So glad you found us.I would suggest you going to the FILES section and reading the article written by Dr. Mehta. ****Growth as a corrective force in the early treatment of progressive infantile scoliosis***Very important you understand this treatment. I think Beth also suggested checking out the DATABASE for a list of doctors. These are all doctors treating babies/children who have been trained on the Mehta way of casting.Also make sure you call the hospitals to make sure they are indeed still using this method. And Texas ish Rite Hospital for Children also has 2 doctors that do this casting method. They are not on that list.Please let us know how we can help. Ask any and all questions that may come to mind. TashaMommy of 4 year old

twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html--- Subject: New to the groupTo: infantile_scoliosis Date: Monday, June 29, 2009, 8:47 AM

I just joined this group with the hopes of learning as much as I can from personal stories about infantile scoliosis and Mehta casting or other methods of treatment. My son, Camden, is six months old. I brought him to his pediatrician when he was two months old because I thought his spine seemed crooked. She referred us to a pediatric orthopedic specialist who diagnosed Camden with Torticollis and scheduled us to followup with xrays at six months. Camden had PT for his Torticollis, which is mild, but has not improved. Around four months his left side of his back began to bulge out. The therapist thought it might be something muscular. Camden just had his first xrays last Monday and was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees. Of course were are scared and very overwhelmed. We live in NM and right now are trying to get a second opinion on what should be done next. He is supposed to have an MRI toward

the end of July. I look forward to learning more about your journeys and to finding support in getting the right care for our son.

June 29, 2009

Hi, , welcome to CAST!

Beth gave you great advice. The best news is that if your child does have progressive infantile scoliosis, you caught it young- that is a major, major advantage.

The human spine grows 50 percent before the age of 2, and the casting harnesses the child's natural growth, like the redirection of a vine growing up a wall.

Do get in touch with a Mehta trained doctor near you or get into the Shriners system at one of the hospitals that does Mehta method EDF casting. Send them a copy of your X-rays. It's great that you have an MRI scheduled to rule out anything else. If you can, move any appointments up or take cancellation slots- ask to be put on a list- only because the curve can progress rapidly.

The lower the curve number when you begin casting, generally the less casts you have to do. For example, had we gotten our son into a cast about 2 months sooner, we would likely have had a year or less of casting, now we will most likely have 2 years, so time is a very big factor. In our case, we also had a 2nd MRI ordered after the first one, both of which were booked 2 months in the future (so four months of waiting). Had we waited for all of that before contacting Shriners in Salt Lake City, our son would've had a much worse outlook for his future. Thank goodness we pushed for cancellations slots and got them.

There is a lot of information to take in, but you are being so proactive already, which is wonderful. Ask any and all questions of myself and the group!

Heidi, Bexon's Mama, (23 months old, in 2nd cast from Salt Lake City Shriners, currently down from 61 degrees to 29)

From: michelle.board <michelle.board@ yahoo.com>Subject: [infantile_scoliosi s] New to the groupTo: infantile_scoliosis @yahoogroups. comDate: Monday, June 29, 2009, 9:47 AM

I just joined this group with the hopes of learning as much as I can from personal stories about infantile scoliosis and Mehta casting or other methods of treatment. My son, Camden, is six months old. I brought him to his pediatrician when he was two months old because I thought his spine seemed crooked. She referred us to a pediatric orthopedic specialist who diagnosed Camden with Torticollis and scheduled us to followup with xrays at six months. Camden had PT for his Torticollis, which is mild, but has not improved. Around four months his left side of his back began to bulge out. The therapist thought it might be something muscular. Camden just had his first xrays last Monday and was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees. Of course were are scared and very overwhelmed. We live in NM and right now are trying to get a second opinion on what should be done next. He is supposed to have an MRI toward the end of July.

I look forward to learning more about your journeys and to finding support in getting the right care for our son.

June 29, 2009

Hi ,

My son also has torticollis and everyone told us his "muscles" were developing abnormally because of it. Around 5-6 months old I knew something else was going on but his Ped and PT therapist all assured me it was fine. By the time he was diagnosed he was 11 months old with a 42 degree curve . By the time I found out about casting he was in the 60's and by the time he got a cast he was in the 90's. My son has benefited from the casting but it will never fully straighten him like the younger children with less curve. He will have surgeries for his entire childhood.

I do not mean to scare you at all I just wish I would have been told about casting. I don't want anyone to be in the same situation as we are in today if possible. There is still a lot to find out and testing to be done but you are in the right place and you have found it at the right time. Please let me know if I can help you in any way.

mother to Finn, three years old, in 7th cast from Chicago

Subject: New to the groupTo: infantile_scoliosis Date: Monday, June 29, 2009, 9:47 AM

I just joined this group with the hopes of learning as much as I can from personal stories about infantile scoliosis and Mehta casting or other methods of treatment. My son, Camden, is six months old. I brought him to his pediatrician when he was two months old because I thought his spine seemed crooked. She referred us to a pediatric orthopedic specialist who diagnosed Camden with Torticollis and scheduled us to followup with xrays at six months. Camden had PT for his Torticollis, which is mild, but has not improved. Around four months his left side of his back began to bulge out. The therapist thought it might be something muscular. Camden just had his first xrays last Monday and was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees. Of course were are scared and very overwhelmed. We live in NM and right now are trying to get a second opinion on what should be done next. He is supposed to have an MRI toward the end of July.

I look forward to learning more about your journeys and to finding support in getting the right care for our son.

June 29, 2009

Welcome to the group. There are a lot of parents in this group that really know what they are talking about and can really answer your questions. Sometimes better than your dr. I am fairly new here as well and have learned so much from these great moms and dads.

To: infantile_scoliosis Sent: Monday, June 29, 2009 8:47:53 AMSubject: New to the group

I just joined this group with the hopes of learning as much as I can from personal stories about infantile scoliosis and Mehta casting or other methods of treatment. My son, Camden, is six months old. I brought him to his pediatrician when he was two months old because I thought his spine seemed crooked. She referred us to a pediatric orthopedic specialist who diagnosed Camden with Torticollis and scheduled us to followup with xrays at six months. Camden had PT for his Torticollis, which is mild, but has not improved. Around four months his left side of his back began to bulge out. The therapist thought it might be something muscular. Camden just had his first xrays last Monday and was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees. Of course were are scared and very overwhelmed. We live in NM and right now are trying to get a second opinion on what should be done next. He is supposed to have an MRI toward the end of July.. I

look forward to learning more about your journeys and to finding support in getting the right care for our son.

June 29, 2009

Tasha

Does our Dr (Dr R) do the Mehta at TSRHC??? Thanks, joan

To: infantile_scoliosis Sent: Monday, June 29, 2009 10:01:33 AMSubject: Re: New to the group

Welcome to the group! So glad you found us.I would suggest you going to the FILES section and reading the article written by Dr. Mehta. ****Growth as a corrective force in the early treatment of progressive infantile scoliosis***Very important you understand this treatment.. I think Beth also suggested checking out the DATABASE for a list of doctors. These are all doctors treating babies/children who have been trained on the Mehta way of casting.Also make sure you call the hospitals to make sure they are indeed still using this method. And Texas ish Rite Hospital for Children also has 2 doctors that do this casting method. They are not on that list.Please let us know how we can help. Ask any and all questions that may come to mind. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14

months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html

From: michelle.board <michelle.board@ yahoo.com>Subject: [infantile_scoliosi s] New to the groupTo: infantile_scoliosis @yahoogroups. comDate: Monday, June 29, 2009, 8:47 AM

I just joined this group with the hopes of learning as much as I can from personal stories about infantile scoliosis and Mehta casting or other methods of treatment. My son, Camden, is six months old. I brought him to his pediatrician when he was two months old because I thought his spine seemed crooked. She referred us to a pediatric orthopedic specialist who diagnosed Camden with Torticollis and scheduled us to followup with xrays at six months. Camden had PT for his Torticollis, which is mild, but has not improved. Around four months his left side of his back began to bulge out. The therapist thought it might be something muscular. Camden just had his first xrays last Monday and was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees. Of course were are scared and very overwhelmed. We live in NM and right now are trying to get a second opinion on what should be done next. He is supposed to have an MRI toward the end of July. I

look forward to learning more about your journeys and to finding support in getting the right care for our son.

June 29, 2009

Yes he does. I will work on getting him and another doctor added to the DATABASE section.TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html--- Subject: Re: New to the groupTo: infantile_scoliosis Date: Monday, June 29, 2009, 1:10 PM

Tasha

Does our Dr (Dr R) do the Mehta at TSRHC??? Thanks, joan

From: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Monday, June 29, 2009 10:01:33 AMSubject: Re: [infantile_scoliosi s] New to the group

Welcome to the group! So glad you found us.I would suggest you going to the FILES section and reading the article written by Dr. Mehta. ****Growth as a corrective force in the early treatment of progressive infantile scoliosis***Very important you understand this treatment.. I think Beth also suggested checking out the DATABASE for a list of doctors. These are all doctors treating babies/children who have been trained on the Mehta way of casting.Also make sure you call the hospitals to make sure they are indeed still using this method. And Texas ish Rite Hospital for Children also has 2 doctors that do this casting method. They are not on that list.Please let us know how we can help. Ask any and all questions that may come to mind. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14

months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html

From: michelle.board <michelle.board@ yahoo.com>Subject: [infantile_scoliosi s] New to the groupTo: infantile_scoliosis @yahoogroups. comDate: Monday, June 29, 2009, 8:47 AM

I just joined this group with the hopes of learning as much as I can from personal stories about infantile scoliosis and Mehta casting or other methods of treatment. My son, Camden, is six months old. I brought him to his pediatrician when he was two months old because I thought his spine seemed crooked. She referred us to a pediatric orthopedic specialist who diagnosed Camden with Torticollis and scheduled us to followup with xrays at six months. Camden had PT for his Torticollis, which is mild, but has not improved. Around four months his left side of his back began to bulge out. The therapist thought it might be something muscular. Camden just had his first xrays last Monday and was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees. Of course were are scared and very overwhelmed. We live in NM and right now are trying to get a second opinion on what should be done next. He is supposed to have an MRI toward the end of July. I

look forward to learning more about your journeys and to finding support in getting the right care for our son.

June 29, 2009

You probably have already told me that he does, but I forgot. Have a lot going on. We have been fighting our insurance company. My son's Neurosurgey he had in Feb was a substancial amount and our Insurance has only paid less than half of it.

To: infantile_scoliosis Sent: Monday, June 29, 2009 1:27:29 PMSubject: Re: New to the group

Yes he does. I will work on getting him and another doctor added to the DATABASE section.TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html

From: michelle.board <michelle.board@ yahoo.com>Subject: [infantile_scoliosi s] New to the groupTo: infantile_scoliosis @yahoogroups. comDate: Monday, June 29, 2009, 8:47 AM

I just joined this group with the hopes of learning as much as I can from personal stories about infantile scoliosis and Mehta casting or other methods of treatment. My son, Camden, is six months old. I brought him to his pediatrician when he was two months old because I thought his spine seemed crooked. She referred us to a pediatric orthopedic specialist who diagnosed Camden with Torticollis and scheduled us to followup with xrays at six months. Camden had PT for his Torticollis, which is mild, but has not improved. Around four months his left side of his back began to bulge out. The therapist thought it might be something muscular. Camden just had his first xrays last Monday and was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees. Of course were are scared and very overwhelmed. We live in NM and right now are trying to get a second opinion on what should be done next. He is supposed to have an MRI toward the end of July. I

look forward to learning more about your journeys and to finding support in getting the right care for our son.

June 29, 2009

I just recently joined also and everyone here has great and given tons of

advice!

>

> I just joined this group with the hopes of learning as much as I can from

personal stories about infantile scoliosis and Mehta casting or other methods of

treatment. My son, Camden, is six months old. I brought him to his

pediatrician when he was two months old because I thought his spine seemed

crooked. She referred us to a pediatric orthopedic specialist who diagnosed

Camden with Torticollis and scheduled us to followup with xrays at six months.

Camden had PT for his Torticollis,which is mild, but has not improved. Around

four months his left side of his back began to bulge out. The therapist thought

it might be something muscular. Camden just had his first xrays last Monday and

was diagnosed with infantile (idiopathic) scoliosis. His curve is 24 degrees.

Of course were are scared and very overwhelmed. We live in NM and right now are

trying to get a second opinion on what should be done next. He is supposed to

have an MRI toward the end of July. I look forward to learning more about your

journeys and to finding support in getting the right care for our son.

>

June 29, 2009

Hi ,

welcome to the group! I am relatively new myself and have gotten so much peace

of mind and great guidance from the group. I must tell you that speaking

directly to when I found ISOP was a blessing because I was LOST. I

literally knew nothing about IS and was just told by 2 spceialist that there was

nothing they could do for my daughter. I know is busy and dealing a lot

with her own daughter right now but if you can, try to call her--she'll give you

a step-by-step of what you should be doing. Everyone here on the site will help

you too. They are so wonderful and forthcoming, you are in good hand(: let me

know if you need anything.

Dianna (mommy to Marcela 13 months)