Re: lumbar puncture?

[Guest guest]

Hi and All

I hope to add a bit to this discussion. I am one of those rare chiarians with

PTC that actually feels much better after an LP. Take a peek at my post a while

back about it. It's pretty detailed.

http://health.groups.yahoo.com/group//message/1377

(it's message #1377)

My guess is, if the NSG was smart enough to suggest it, he is more than likely

very capable of doing the actual LP. Technique is EVERYTHING so only let him

(the NSG) do the actual tap. Not a resident or an assistant....insist on the

neurosurg ONLY!! Try to keep an open, calm mind. Take yourself somewhere else

while they are actually doing the tap and please don't get yourself frantically

worried about the possibility of a blood patch. I've had at least 30 LP's

(both before and after my decompression) and I've only ever needed a blood patch

twice. Once was at the hands of a nurse practitioner at the Mayo clinic BEFORE

I knew someone with little experience should never do an LP on a Chiarian.

There has also been no change whatsoever on my MRI's.

Be prepared, but try not to worry. And by the way, the caffeine helps to

normalize the intracranial pressure. Not too much though, or you can actually

cause a leak. The same with the fluids. Don't be too drastic. The best thing

is to take it easy for the rest of the day. Absolutely NO lifting AT ALL!! Not

even 5 pounds!!

The pressure measurement is very important, and , I am so sorry to hear you

went through an LP and never had the opening pressure measured. If you have any

questions after you read my previous post, please feel free to write!

All the best,

in Pittsburgh

[Guest guest]

My son has had LP's twice and each time has felt considerably better after

them. Why? Because draining of csf relieves the build up of high cranial

pressure. :-)

So, I'm not so sure that it's actually all that rare :-) At least not if

your one of those people dealing with high cranial pressure.

Re: lumbar puncture?

Hi and All

I hope to add a bit to this discussion. I am one of those rare chiarians

with PTC that actually feels much better after an LP. Take a peek at my

post a while back about it. It's pretty detailed.

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