Guest guest Posted January 20, 2000 Report Share Posted January 20, 2000 - I'm really sorry to hear that is sick. You must be very worried. Crystal also has a cough that won't quit. However, her doc makes light of it, since she's not running a fever. So, I give her cough medicine every day & wonder if I'm doing the right thing. I really like her doctor, but she's the only kid with a brain abnormality that he has....So, he doesn't even PRETEND to be an expert on her....Do alot of the Angels sound congested after they've taken in fluids or food orally ??? The doc keeps telling me that her lungs sound clear, but she sounds " junky " while & right after she eats...We're in the midst of a major winter storm over here. It's really cool, since I've been waiting for a decent snow storm to hit for the past 4 years at least...The snow usually hits all around us, leaving us high & dry.I got some great pics of Crys & her bro Paddy ( alias " the creature " ) in the snow. I'll scan them after they come back. Crystal is doing very well. The thing is, since she's not very delayed, I can try to pretend to myself that she's not that bad off. Then I see kids younger then her doing things that she can't do yet - & I'm brought up short. Her balance isn't the best & she falls down pretty often. Since she's small for her age & so darn cute, I can't seem to get worried about it. I guess, as a parent, you become used to your child's limitations & learn to enjoy them as they are....She's been making more sounds. I'd guess that she's at about the level of a 6 mos. old in the area of expressive speech. ly - I'll take what I can get < grin > ... I hope that baby gets better real soon. The same for all of the other sick Angels. Miss Crystal sends all of the sick Angels many hugs & kisses.... Take care dear, & remember, that we're all always here for you & your family... Stay strong & God bless, & Crystal Aquielle - BPP - 21 mos. old & adorable... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 - I heard that Early Intervention is a Federal Program & free... I think you need to look up Early Intervention in your new state & see what they say. I wish you all the best of luck in this endeavor. Give Olivia a big hug & kiss from me & mine.... Take care & God bless... - mommy of Crystal Aquielle - 26 mos. old - previously diagnosed with CBPS & changed by Dr. Dobyns to Bilateral Perisylvian PMG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 - thank you, dear. Your son is a little Angel, also. How is he ??? I hope he's recovering rapidly from his latest surgery. I wouldn't worry too much about his Polypachygyria. Our children all have their own personalities. My Crystal reached her milestones late, but she reached most of them. The latest one is running. She has recently started running everywhere. Since she has a rather wide gait, it's kind of funny to see. Our children may not be typical in their development, but they're all special in their own ways. It's good that is in the hospital, where he's receiving the best of care. It's best that he stays there until he's strong enough to come home.Your family remains in our thoughts & prayers. My children have all looked at 's photos & commented on how adorable he is !!! Take care, dear - stay strong & God bless you all... Give baby big kisses from me & mine... Luv to all, - mommy of Crystal Aquielle - 28 mos. old - Bilateral Perisylvian PMG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2000 Report Share Posted September 21, 2000 I've been watching Crystal. She's about the same age was when her eye started turning. It took over a year before I could get an eye doctor to believe me. They all kept saying that she was too young & we had to wait & see. I wanted to punch someone out, everytime my babies eye turned in & noone would DO anything about it !!! < grin> It really is a small world... Give the girls great big hugs & kisses for us... Luv to all, & Crystal Aquielle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 is such a doll baby !!! I love that get-up you have her in. I bet she came out of that one scott free < smile > !!!! Crystal is also famous for getting filthy when she eats. She still tries to put the bowls on her head !!! OY !!! Give the girls great big {{{ HUGS }}} & kisses for us... Luv to all... & her eversmiling Crystal Aquielle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Hi, dear...I just wanted to thank you for being so warm & sensitive to all of our feelings.You really are a very special person. I know that Cody is one very lucky child to have you for a dad !! Give your Angel boy a great big {{{ HUG }}} & kiss for us.... Lots of luv to you all... - mommy of Crystal Aquielle - 32 mos.old - BPP & adorable !!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 - thanks dear !!! I really appreciate the addys. Do you have the addy for the Lissencephaly Launchpad ??? I need it so that I can send to others who need help... Give Cody a great big {{{ HUG }}} & kiss for us.... & her everhappy Crystal Aquielle.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2001 Report Share Posted January 2, 2001 I've got it all, just having a hard time laying my hands on the paper copy. I'll get it to you as soon as I find it girl, promise! Give that girl a hug for me & mine. , Toni & Cody. Quote Link to comment Share on other sites More sharing options...
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