Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Dear Connie, It is so nice to hear from you. I know how busy you are and I know that your not feeling well either. So you don't need to be sorry. I completely understand. Thanks for the info. How are you doing? I Know Your Busy, Busy. How is the bike shop and the bike shows going? I hope you will be able to make it work. I would love to have my own business, it must be nice. Although I know how much work it is. Just know your family our always in my thoughts and prayers. Just write when you can to let us know your alright. Love, jatw@... Re: Anxiety, Paxil, Etc... > > Sweety sorry i havent posted sooner to you as i know u have needed the > encouragement and support but i havent been feeling the greatese (still no > excuse) > and have been really busy trying to work at the shop and get these bike shows > a going (still no excuse) but when i get like this i cant even encourage > myself let alone anyone else. Iam always praying for you and so glad u came > back to us. > As for the paxil i dont take it but my hubby does. No adverse effects except > if he forgets to take it for a few days or lets himself run out and doesnt > get it filled. He gets real sick and fatigued. I have read and heard that > paxil is addicting and people have not been able to get off of it becasue > they feel flu ish or something i will have to look in my files i know Jenn > has sent something out about it. > Love Connie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 I know you do. The fear of the unknown is the hardest to deal with. I’m with you on the halo gravity traction. Absolutely, love it! Olivia has been through it twice and will go through it again, prior to any other procedure. Her doc is on board with traction, but we are hesitant to apply the halo until we have a solid plan of action. HRH From: infantile_scoliosis [mailto:infantile_scoliosis ] On Behalf Of tovi39@... Sent: Tuesday, May 12, 2009 6:22 PM To: infantile_scoliosis Subject: Re: Shellie ad I feel and share your pain and struggles. is currently rodless and begun his Pamidronate infusions to strengthen his bones. At this point his bones are way to soft for any type of rods. I am not sure what will be the next step either. Last year the doc mentioned fusion. I got so angry. Why would I ever make the decision to fuse when he is only 44 inches long? He said that we should think about quality of life... is a happy healthy child who has come along way. He made it through all of his surgeries with a smile and really has wonderful " quality " of life. I don " t think that halo traction is so bad..He made it through 10 months of it with no problems. Why didn't the doc offer that? In fact was the most comfortable he has ever been when he was in traction. He didn't have to fight his mortal enemy, GRAVITY. It is not often that I can relate to all the great parents on this sight. I read the successes in casting treatments and am so impressed with all the wonderful results that all these kiddos are getting and it is so great but our path was different. We fell through the cracks too. just venting...Thanks Connie RE: [infantile_scoliosi s] Re: Happy Mother's Day Thanks, Gail, Jill, Krista, Rochelle, Steph and everyone. I’ll try not to complain too much, but get ready for an earful. I just have to get it out. I started CAST so we all didn’t feel alone, but somewhere down the line, I stopped expressing how I felt. I believe my reasoning was that I wanted to provide support and didn’t want to burden members with our issues. This has not served me well. I have realized (the hard way, of course) that I also need an outlet and support from people that understand. Sometimes, family/friends just don’t get it. They try, but they have no idea and end up feeling helpless and unable to help. I mean really, what can they do anyway? They cant stop her spine from twisting….. Nor, can I. Having no control over the scoliosis is agony for a parent. But, I still have something inside that is telling me she will be okay. We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 I would be able to expand the rod myself at home. No more surgical expansions. The inventor of this system told me about it 10 years ago. He said that it would be ready when Olivia was 10. Back then she was 2, so it didn’t mean much at the time. It certainly means a lot now with all the recent issues she has been having with the current hardware. I can connect you with the appropriate parties, if you are interested. Let me know. HRH From: infantile_scoliosis [mailto:infantile_scoliosis ] On Behalf Of tovi39@... Sent: Thursday, May 14, 2009 12:34 PM To: infantile_scoliosis Subject: Re: Olivia That sounds interesting, I think I remember reading something about that...hmmm I wonder if it is something to look into for . Would you get the magnetic expansions done in the States or back to Paris every time? I wish you luck and love and prayers and good energy!! Connie RE: [infantile_scoliosi s] Re: Happy Mother's Day Thanks, Gail, Jill, Krista, Rochelle, Steph and everyone. I’ll try not to complain too much, but get ready for an earful. I just have to get it out. I started CAST so we all didn’t feel alone, but somewhere down the line, I stopped expressing how I felt. I believe my reasoning was that I wanted to provide support and didn’t want to burden members with our issues. This has not served me well. I have realized (the hard way, of course) that I also need an outlet and support from people that understand. Sometimes, family/friends just don’t get it. They try, but they have no idea and end up feeling help less and unable to help. I mean really, what can they do anyway? They cant stop her spine from twisting….. Nor, can I. Having no control over the scoliosis is agony for a parent. But, I still have something inside that is telling me she will be okay. We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com. We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com. Quote Link to comment Share on other sites More sharing options...
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