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penny

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Hi Penny

I have had the most supportive GP who has just retired!, and have done the rounds, and have tried just about every angle and approach to get support, cant tell you how many various ways of gaining ground and seed growing, but its too much of a hot potato here too, and the fact that no money has been put into research, and as the labs here are useless, the Cons play god and leave us with a dustbin dx

its no good trying to push something when those in know will not help, its a waste of resources to one so sick, I learnt the hard way, but still very much undeterred

yet I do have some medics on my side but again they just will not see the bigger picture, this is the missing link and the fact the NHS has such a huge financial deficit they will not offer a full study, so if you don't pay for your needs you are very much left to your own devices, like many throughout the US and UK

so I am a one man band using those who can be a useful gateway, but it does still leave the gynea problems very much untreated

thanks for your input on this issue :)

oh my ex GP sat on the fence about borrelia until I took over 3 years of drip feeding him and now he has other patients.........(all mis dx) I live in a hot spot area for ticks, and have been very pro active in awareness, but now I am so weak with anaemia its time to push this forward, and seek a receptive gynea and GP that can work together, as one is no good here without the other :(

my ex GP noted that I was damn good at convincing, sure, what about the EM and clinical dx and the Igenex and seeing the little critters swimming around via the dark field microscopy LOL, to name but a few reasons to why they are barking up the wrong tree, and its my damn tree that sits amongst a forest of others

those that do accept patients in the UK have a rough time and are rare as hens teeth, and the fact that they are treated as charlatans and quacks does not help the patients that are under them

I could talk for an age as like others mines a complicated journey, but pretty much the same path as those who have not been cared for

I'll be off line for a few weeks but hope to catch up during the fall

best wishes

e

p.s

most physicians know about lyme, yet choose to ignore it and not even accept chronic or late lyme, I have accepted their convenient label of ME

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  • 1 month later...

hi penny

is there anyway to rebill the huge bill?? sometimes submitting again wiht an

additional diagnosis etc can help get things paid.

I think they should be required to tell us all fees in advanced, like on a

menu, and then let us pick, as a informed consumer.

your bill is UNBELIEVABLE and yet so common it makes me want to scream.

Re your sinuses, have you changed your diet? if you take out sugar and

dairy and for some folks wheat, then your sinuses have a better chance. the

alternative/natural drs of several different traditions all say the same

thing on this one.

amy

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