Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 I'm currently on a break from that prorocol and undecided as to whether I'll go back on. There has been some deeply disturbing things happening along the way but I've chosen to give it a fair (lenghty) go anyway. It obviously helps a lot of people but I'm not convinced (anymore) it reaches what ails me in particular. I was on high dose Benicar for nearly two years and have felt no difference what so ever since stopping (and little improvement whilst on it, definitely some, though, but that is more than a year ago). That might be because my real illness is not TH1 inflammation (Lyme found by Bowen, consultants so far have all said it can't be Lyme but was viral cerebellitis and nothing can be done but there will be some - maybe slight - degree of spontaneous improvement). Or there might be more inflammation and I just don't feel it. I really don't know. I just know that I feel nothing without Benicar. Sorry I can't answer your question about how long you need to take it for. nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 I've been on benicar for almost 2 years, and I can't really answer your question other than to say that testing shows no indication of damage from the benicar. If there's hidden damage, I wouldn't be able to tell you. Regarding dependency, I don't know either, because I don't like the way I feel if I go off of it so I don't. Does that mean I'm dependent? Or that I just don't want the return of the symptoms it relieves? As for the low dose abx portion of the protocol. It doesn't add up to me, and it definitely didn't work for my infection. If it did work, it seems like those people on the protocol would eventually be able to go off the benicar, but as far as I know, they haven't. I have been able to reduce my benicar from 4 x a day, to 2 x a day and get the same benefits. One thing I'd do differently if I could, despite admonitions to the contrary, is I'd ramp up the dose in the beginning, rather than start the protocol with the full out amount of Benicar. That was a really horrible couple of weeks adjusting. And now that I've been on the drug for over 2 years, I can see no justification whatsoever for the claim that ramping up could do harm. I've also taken Benicar with very high dose abx, and I can assure you, Benicar did nothing to increase the effect of those drugs. So as far as I'm concerned, the protocol itself is surrounded by a lot of misinformation. But I still benefit from the benicar. I used to have 5 to 7 migraines a month. I now have one & sometimes none. I used to grind & chatter my teeth constantly, have to get up to go to the bathroom in the middle of the night along with a bunch of other symptoms, some neurological, but they stay away while I'm on the Benicar. However, the pain relief is not as effective as it used to be. I do believe that I still have a lot of inflammation going on. I now take tramadol for pain, which manages it well. But when I go off the Benicar, the first thing I notice is muscle cramping and teeth chattering and neck tightness. If the Benicar stopped relieving those and other symptoms like the migraines, I'd definitely stop taking it, but so far, it hasn't happened, even after 2 years. > > I'm thinking about trying that Benicar+PulsedLowDoseAbx+VitDAvoidance > therapy but am a bit concerned about the long-term effects of Benicar, > particularly dependence. > > Many biological systems are governed by feedback loops and blocking > something might cause the body to adapt to that blockage over time. So > when the blocking agent is finally removed, its absence might provoke > the opposite effect. > > What is the experience of people here who have taken high-dose Benicar > for some time ? Is there increased inflammation if one discontinues it > - and for how long ? > > I don't like the don't-question-this-we-know-it-better attitude on > that other website. However, there seem to be some sensible people as > well. And there are many reports of patients who actually get better > although I think most of them still take the Benicar and it remains to > be seen what happens if they get off it. > > I read reports here that some doctors are using Benicar only for a > limited time. If I understood that correctly, Benicar is stopped at > some point in the protocol, while the patient still uses pulsed Abx to > get rid of the last remaining bacteria (not needing Benicar any more > because of reduced bacterial load and reduced inflammation). How long > would it be necessary to take Benicar ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 I followed this protocol for 18 months, but the last 3 months I stopped the Benicar completely. I was getting muscle weakness that SEEMED to be related to the high dose Benicar. Here is my take, for what it is worth. IF you need to reduce D levels because of inflammation then do the protocol with the understanding that as you kill off bacteria your immune system and hormone system will return to normal. At that point or as you reach that point you probably need to increase D to normal exposure (sun and fish oils) and you need to reduce Benicar or discontinue it entirely. I am not the only one who thinks this makes sense. Indeed, some MDs using the protocol entirely agree with me, to their credit! Hee, hee. a Carnes > > I'm thinking about trying that Benicar+PulsedLowDoseAbx+VitDAvoidance > therapy but am a bit concerned about the long-term effects of Benicar, > particularly dependence. > > Many biological systems are governed by feedback loops and blocking > something might cause the body to adapt to that blockage over time. So > when the blocking agent is finally removed, its absence might provoke > the opposite effect. > > What is the experience of people here who have taken high-dose Benicar > for some time ? Is there increased inflammation if one discontinues it > - and for how long ? > > I don't like the don't-question-this-we-know-it-better attitude on > that other website. However, there seem to be some sensible people as > well. And there are many reports of patients who actually get better > although I think most of them still take the Benicar and it remains to > be seen what happens if they get off it. > > I read reports here that some doctors are using Benicar only for a > limited time. If I understood that correctly, Benicar is stopped at > some point in the protocol, while the patient still uses pulsed Abx to > get rid of the last remaining bacteria (not needing Benicar any more > because of reduced bacterial load and reduced inflammation). How long > would it be necessary to take Benicar ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Then there's also all the research that shows that D is actually a good anti-inflammatory. penny pjeanneus <pj7@...> wrote: I followed this protocol for 18 months, but the last 3 months I stopped the Benicar completely. I was getting muscle weakness that SEEMED to be related to the high dose Benicar.Here is my take, for what it is worth. IF you need to reduce D levels because of inflammation then do the protocol with the understanding that as you kill off bacteria your immune system and hormone system will return to normal. At that point or as you reach that point you probably need to increase D to normal exposure (sun and fish oils) and you need to reduce Benicar or discontinue it entirely.I am not the only one who thinks this makes sense. Indeed, some MDs using the protocol entirely agree with me, to their credit! Hee, hee.a Carnes>> I'm thinking about trying that Benicar+PulsedLowDoseAbx+VitDAvoidance> therapy but am a bit concerned about the long-term effects of Benicar,> particularly dependence.> > Many biological systems are governed by feedback loops and blocking> something might cause the body to adapt to that blockage over time. So> when the blocking agent is finally removed, its absence might provoke> the opposite effect.> > What is the experience of people here who have taken high-dose Benicar> for some time ? Is there increased inflammation if one discontinues it> - and for how long ?> > I don't like the don't-question-this-we-know-it-better attitude on> that other website. However, there seem to be some sensible people as> well. And there are many reports of patients who actually get better> although I think most of them still take the Benicar and it remains to> be seen what happens if they get off it.> > I read reports here that some doctors are using Benicar only for a> limited time. If I understood that correctly, Benicar is stopped at> some point in the protocol, while the patient still uses pulsed Abx to> get rid of the last remaining bacteria (not needing Benicar any more> because of reduced bacterial load and reduced inflammation). How long> would it be necessary to take Benicar ?> Quote Link to comment Share on other sites More sharing options...
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