Re: New Member multiple illnesses

[Guest guest]

Hi Katrina

I assume the medications you're referring to include

corticosteroids. When you wean off of them, does the ulcerative

colitis flare up immediately, and if so, is the flare worse than

what prompted the use of the corticosteroid?

Do you think the disorders that you collected after the UC onset

were coincidental, a consequence of steroid use (for UC) that

promoted (via the immunosuppressive aspect of steroids) the growth

of opportunistic pathogens, or something else?

Have you used antibiotics, even for run-of-the-mill kinds of reasons

(e.g., UTI, acne, etc.) and found that they influenced your UC or

other chronic conditions?

Matt

>

> My name is Katrina. I have a number of the illnesses listed here

and

> I think some sort of infectious agent may contribute to some of

the

> symptoms. These illnesses have disabled me. I am trying to have

some

> work at home businesses to help my husband and get through and so

far

> that is going well.

>

>

> Lately I have been having some new symptoms and I saw a urogyn

about

> them yesterday. Today I am worse than before. The good part of

the

> doctor I saw is that he is trying to look at the big picture and

how

> things interact.

>

> Anyway...my first one was Ulcerative Colitis at age 10. It is 19

> years later.

> I find that most disabling symptom is fatigue. I seem to repond

> pretty well to medicaations over all but they take a big toll on

my

> body and general health and when you add that up with the

illnesses

> you equal some bad fatigue.

>

[Guest guest]

I was diagnosed with UC at age 10....treated for 2 years and had my

colon removed. I have no idea what my treatments were but I know I

didn't respond well enough! I am certain that the abdominal

surgeries had a lot to do with my other illnesses....as well as the

illnesses...it is pelvic floor interaction of making problems worse

if not causing them. My pouchitis (I have a pouch made out of a

portion of my small intestines) has been inflammed pretty much this

whole time but wasn't ulcerative until recently. Since I have had a

hysterectomy at age 27 or so for endo and am on anticonvulsants and

antibiotics we have done everything we can to avoid steroids as an

adult. I am already being treated for possible future ostioporosis

and have been told...it is inevitable if we don't find a cure or

something.

My antiobiotics are normally for the pouch...in combination wit

VSL#3. Pretty sure my Mayo Docs started me on them. Don't have

much experience with comparing to what other antibiotic treatment

for something else is like to my pouch since I have been on

antibiotic treatment for my pouch for a very very very very long

time. What I am certain of though is that the VSL helps as much as

the antibiotics...if not more so. Infact too much antibiotics has

gotten problem causing.

> >

> > My name is Katrina. I have a number of the illnesses listed

here

> and

> > I think some sort of infectious agent may contribute to some of

> the

> > symptoms. These illnesses have disabled me. I am trying to

have

> some

> > work at home businesses to help my husband and get through and

so

> far

> > that is going well.

> >

> >

> > Lately I have been having some new symptoms and I saw a urogyn

> about

> > them yesterday. Today I am worse than before. The good part of

> the

> > doctor I saw is that he is trying to look at the big picture and

> how

> > things interact.

> >

> > Anyway...my first one was Ulcerative Colitis at age 10. It is

19

> > years later.

> > I find that most disabling symptom is fatigue. I seem to repond

> > pretty well to medicaations over all but they take a big toll on

> my

> > body and general health and when you add that up with the

> illnesses

> > you equal some bad fatigue.

> >

>