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Syrinx

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I'm somewhat new to the group and am glad to be able to read other's

experiences. It is helping me learn so much. I posted about a month

ago about my daughter having an MRI last month. We have found out the

results and she does have a Syrinx taking up a large part of her spine

(I wasn't surprised with all of her medical issues). When I have time

with a 7 month old, I try to research about it. I know it is extra

fluid in the spinal canal that can grow and press on nerves affecting

function.

My questions:

Can anyone tell me a good link to do more research and also what have

been other experiences with a Syrinx?

Thanks

Marie

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