Schardt's Lyme treatment

[Guest guest]

I saw my regular doctor today. My blood pressure measured 170 over

110 - not sure what significance that is as it goes up and down -

sometimes normal.

Anyway, she decided it was worth trying the diflucan and penicillin.

You take 200 mg of diflucan a day for 25 days, then 10 days of

penicillin.

Since all the vertigo and headaches started with a severe case of

thrust this seemed like a good thing to do. We don't have the spinal

fluid lyme PCR back from IgeneX yet, so we don't know if this is

borrelia or something else.

Several tests from the spinal tap were negative but they are culturing

some things, and those are not back yet. Meanwhile I am pleased to be

starting the diflucan.

Any ideas?

a Carnes

[Guest guest]

Hi a,

I responded about my experience with this protocol on another list

that we both are on. But this is probably a more appropriate place to

discuss this treatment.

I was used to taking Diflucan because of yeast issues, so I started

right on the 200mg dosage. For my son who had never been on it and

who is/was fairly fragile, I started him on 50mg and ramped it up as

tolerated. The first round I kept him on 50mg every other day for a

few days, then daily, then for a week kept him on 100mg so that by the

time he hit 200mg he was on it for a week. That way the herxing was

tolerable and did not cause him to be bedridden. The next round I

started him right on 200mg and he did ok with that. He experienced a

surge of energy on the Diflucan, but then he hit his 3 week herx cycle

and I had to pulse it at a lower dose after that.

Diflucan has a long half life. So it is safe to skip a dose if the

herxing is too much and still have bug killing going on.

I found the epsom salt baths particularly helpful with the muscle

aches that were part of the herxing with Diflucan.

After the initial 2-3 day herx I actually experienced an increase in

energy. It was very nice.

Schardt has since changed the dosing days to 45 days of Diflucan and

14 days of Penicillin. But I can't point you to any medical

literature that states this. There is a woman on Lymenet who

corresponded with Schardt via email and that was what he told her. My

NP is prescribing it that way now. But I think for the first round

you are probably going to be ok. You will get to know how your body

reacts to these meds.

Will be intersted to see how you do on this protocol. I pray for your

success. I think it is a very tolerable one with a good response by many.

Best,

[Guest guest]

This is so weird. I'm on penicillin and an antifungal at all times. (right now it's diflucan, because my lamisil prescription has been denied by my insurance, and v-fend is waiting re-approval). If I go off either one or both of these drugs, the abx or the antifungal, for more than a day, I experience a huge increase in mucous production and my health and energy levels deterioriate. I can't live without either of these drugs, basically. No off-and-on stuff for me. Fortunately, so far my liver's fine. Also, I never herx. I feel the positive effects of both penicillin and antifungals almost immediately after taking them (mucuos reduction). If I've been off the antifungals for a week or so, rather than just missing a day, then it takes a couple of days for it to kick back in. But I can truly feel the effects of these drugs when they hit my system, or when they're cleared from my system. Sad, but I need these drugs to function at all.

Turns out penicillin is the drug that keeps on keeping on. Diflucan, on the other hand, seems to lose its effectiveness, and I have to switch. But if I go back to the drug after a few months, it works again. I've talked to others who experience the same thing. penny kgg12003 <kgenest@...> wrote: Hi a,I responded about my experience with this protocol on another listthat we both are on.

But this is probably a more appropriate place todiscuss this treatment.I was used to taking Diflucan because of yeast issues, so I startedright on the 200mg dosage. For my son who had never been on it andwho is/was fairly fragile, I started him on 50mg and ramped it up astolerated. The first round I kept him on 50mg every other day for afew days, then daily, then for a week kept him on 100mg so that by thetime he hit 200mg he was on it for a week. That way the herxing wastolerable and did not cause him to be bedridden. The next round Istarted him right on 200mg and he did ok with that. He experienced asurge of energy on the Diflucan, but then he hit his 3 week herx cycleand I had to pulse it at a lower dose after that.Diflucan has a long half life. So it is safe to skip a dose if theherxing is too much and still have bug killing going on.I found the epsom salt baths particularly helpful with the

muscleaches that were part of the herxing with Diflucan. After the initial 2-3 day herx I actually experienced an increase inenergy. It was very nice.Schardt has since changed the dosing days to 45 days of Diflucan and14 days of Penicillin. But I can't point you to any medicalliterature that states this. There is a woman on Lymenet whocorresponded with Schardt via email and that was what he told her. MyNP is prescribing it that way now. But I think for the first roundyou are probably going to be ok. You will get to know how your bodyreacts to these meds.Will be intersted to see how you do on this protocol. I pray for yoursuccess. I think it is a very tolerable one with a good response by many.Best,

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[Guest guest]

Day 4 of diflucan:

Interesting what is happening. I am running about a one degree fever

during the afternoon which seems to break around 9 pm. The stiff neck

and pressure headache seems to relate to the degree of fever. I

wasn't running any fever before taking diflucan - just felt horrible.

a Carnes

>

> This is so weird. I'm on penicillin and an antifungal at all times.

(right now it's diflucan, because my lamisil prescription has been

denied by my insurance, and v-fend is waiting re-approval). If I go

off either one or both of these drugs, the abx or the antifungal, for

more than a day, I experience a huge increase in mucous production

and my health and energy levels deterioriate. I can't live without

either of these drugs, basically. No off-and-on stuff for me.

Fortunately, so far my liver's fine. Also, I never herx. I feel the

positive effects of both penicillin and antifungals almost

immediately after taking them (mucuos reduction). If I've been off

the antifungals for a week or so, rather than just missing a day,

then it takes a couple of days for it to kick back in. But I can

truly feel the effects of these drugs when they hit my system, or

when they're cleared from my system. Sad, but I need these drugs to

function at all.

>

> Turns out penicillin is the drug that keeps on keeping on.

Diflucan, on the other hand, seems to lose its effectiveness, and I

have to switch. But if I go back to the drug after a few months, it

works again. I've talked to others who experience the same thing.

>

> penny

>

>

>

> kgg12003 <kgenest@...> wrote:

> Hi a,

> I responded about my experience with this protocol on another list

> that we both are on. But this is probably a more appropriate place

to

> discuss this treatment.

>

> I was used to taking Diflucan because of yeast issues, so I started

> right on the 200mg dosage. For my son who had never been on it and

> who is/was fairly fragile, I started him on 50mg and ramped it up as

> tolerated. The first round I kept him on 50mg every other day for a

> few days, then daily, then for a week kept him on 100mg so that by

the

> time he hit 200mg he was on it for a week. That way the herxing was

> tolerable and did not cause him to be bedridden. The next round I

> started him right on 200mg and he did ok with that. He experienced a

> surge of energy on the Diflucan, but then he hit his 3 week herx

cycle

> and I had to pulse it at a lower dose after that.

>

> Diflucan has a long half life. So it is safe to skip a dose if the

> herxing is too much and still have bug killing going on.

>

> I found the epsom salt baths particularly helpful with the muscle

> aches that were part of the herxing with Diflucan.

>

> After the initial 2-3 day herx I actually experienced an increase in

> energy. It was very nice.

>

> Schardt has since changed the dosing days to 45 days of Diflucan and

> 14 days of Penicillin. But I can't point you to any medical

> literature that states this. There is a woman on Lymenet who

> corresponded with Schardt via email and that was what he told her.

My

> NP is prescribing it that way now. But I think for the first round

> you are probably going to be ok. You will get to know how your body

> reacts to these meds.

>

> Will be intersted to see how you do on this protocol. I pray for

your

> success. I think it is a very tolerable one with a good response by

many.

>

> Best,

>

>

>

>

>

>

>

> ---------------------------------

> Access over 1 million songs - Music Unlimited.

>

[Guest guest]

a wrote: The stiff neck and pressure headache seems to relate to

the degree of fever. I wasn't running any fever before taking diflucan

- just felt horrible.

a, I would say you have found a new layer of pathogens to kill.

Mark also has a headache and stiff neck when he herxes with Diflucan.

Initially, Aleve took care of the pain. But more recently he has

required Hydrocodone also. He also uses a body wrap that we microwave

to help with the stiff neck.

That is also when I consider skipping a dose to lighten the herx.

Best,

[Guest guest]

a,

I too had a high temp (not very high but much higher than normal 1°C, when I am normally 1°C below normal) after a few days on diflucan. Very unusual for me, I hardly ever have an incr in temp, even with colds and only a slight increase with 'flu.

I took diflucan for nearly 3 months, didn't help, unless it did something I could not ascertain

Good luck.

Nelly

[infections] Re: Schardt's Lyme treatment

Day 4 of diflucan:Interesting what is happening. I am running about a one degree fever during the afternoon which seems to break around 9 pm. The stiff neck and pressure headache seems to relate to the degree of fever. I wasn't running any fever before taking diflucan - just felt horrible.a Carnes__

[Guest guest]

Yup,I definitely believe a stiff neck is a symptom of pathogens in the area. I've had a stiff neck for years and years, and it was one of the things I loved about Benicar. It took that stiffness away, along with the pressure in the back of my head. Now, finally, after 2+ years on Benicar, the stiffness is pretty much gone and is staying gone, even after coming off the Benicar. I really hope that lasts because living with a stiff neck is a major drag. Unfortunately, I think the bugs may have moved on to my hip because I'm having a lot of problems with hip pain now. Most of my problems are concentrated on the right side of my body, moving from my head downwards. First my shoulder & elbow, now my hip and leg. My migraines are for the most part on the right side as well. pennykgg12003 <kgenest@...> wrote: a wrote: The stiff neck and pressure headache seems to relate tothe degree of fever. I wasn't running any fever before taking diflucan- just felt horrible.a, I would say you have found a new layer of pathogens to kill. Mark also has a headache and stiff neck when he herxes with Diflucan.Initially, Aleve took care of the pain. But more recently he hasrequired Hydrocodone also. He also uses a body wrap that we microwaveto help with the stiff neck.That is also when I consider skipping a dose to lighten the

herx.Best,

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[Guest guest]

I'm currently taking diflucan as a precaution against systemic yeast,

since I have been on abx quite a bit for the last 2-3 years. Unless

it's a coincidence, it's making me very achy. So I guess I could be

killing off yeast or lyme. I have no overt yeast symptoms at present,

nor has it ever been a terribly obvious problem. Yesterday my finger

joints were very sore, a symptom I haven't had in years. Today

better, except for my left index finger, which has been bothering me

ever since I started the diflucan. I'm only on 100 mg but will be

increasing to 200 tomorrow, so it should be interesting to see

whether I get a reaction. My principal symptoms are arthralgia

(mainly large joints and back) plus sleeping too much. I do have a

chronic Lyme diagnosis and I have been told by a specialist that I

don't have CFS or FM, although most doctors put me in that category

anyway.

- Kate D

[Guest guest]

Hi Kate. Yes, that achiness is a Diflucan herx symptom for me. That

is when the epsom salt baths really help me. That is if you can

tolerate hot water. Some people can't. For me the hotter the better.

If I take one of those baths, the aches go away for most of the day.

Best,

[Guest guest]

,

I don't think this is a new layer, but a totally new infection I got

6 months ago. Also, it could be nerve inflammation from the local

anesthetics at the time.

I'm using a heat wrap for my neck and head also. Right now I am only

taking diflucan, as I don't want to over tax my liver.

Keep me posted on how your husband is doing. I'm at day 5 and

gradually doing better, but still not right.

a

>

> a wrote: The stiff neck and pressure headache seems to relate

to

> the degree of fever. I wasn't running any fever before taking

diflucan

> - just felt horrible.

>

>

> a, I would say you have found a new layer of pathogens to kill.

> Mark also has a headache and stiff neck when he herxes with

Diflucan.

> Initially, Aleve took care of the pain. But more recently he has

> required Hydrocodone also. He also uses a body wrap that we

microwave

> to help with the stiff neck.

>

> That is also when I consider skipping a dose to lighten the herx.

>

> Best,

>

>

[Guest guest]

Nelly, did you follow it with the penicillin as Schardt suggests?

Also, I hear that now he is having patients take it up to 50 days,

not just 25 and then cycling through the protocol three times. I

respect your experience so much. Do you have any thoughts on this?

Thanks,

a

>

> a,

>

> I too had a high temp (not very high but much higher than normal 1°

C, when I am normally 1°C below normal) after a few days on diflucan.

Very unusual for me, I hardly ever have an incr in temp, even with

colds and only a slight increase with 'flu.

>

> I took diflucan for nearly 3 months, didn't help, unless it did

something I could not ascertain

>

> Good luck.

>

> Nelly

> [infections] Re: Schardt's Lyme treatment

>

>

> Day 4 of diflucan:

> Interesting what is happening. I am running about a one degree

fever

> during the afternoon which seems to break around 9 pm. The stiff

neck

> and pressure headache seems to relate to the degree of fever. I

> wasn't running any fever before taking diflucan - just felt

horrible.

>

> a Carnes

> __

>

[Guest guest]

Hi KateD,

Please keep posting. I will too. It is so helpful to compare notes.

Penny, thanks also for your input.

a

>

> I'm currently taking diflucan as a precaution against systemic

yeast,

> since I have been on abx quite a bit for the last 2-3 years.

Unless

> it's a coincidence, it's making me very achy. So I guess I could

be

> killing off yeast or lyme. I have no overt yeast symptoms at

present,

> nor has it ever been a terribly obvious problem. Yesterday my

finger

> joints were very sore, a symptom I haven't had in years. Today

> better, except for my left index finger, which has been bothering

me

> ever since I started the diflucan. I'm only on 100 mg but will be

> increasing to 200 tomorrow, so it should be interesting to see

> whether I get a reaction. My principal symptoms are arthralgia

> (mainly large joints and back) plus sleeping too much. I do have a

> chronic Lyme diagnosis and I have been told by a specialist that I

> don't have CFS or FM, although most doctors put me in that

category

> anyway.

>

> - Kate D

>