Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 hi a, I think that you were the one that said DR henna is also your DR at duke. If so, does he always call you after you have your blood work done. I find it very hard to get to speak to him on the phone. do you have any suggestions for this. rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 We were SUPPOSED to see the sun today. It never appeared. I did hear of a sun sighting in PA, but the Jersey Shore didn't see it. I don¹t ever remember a spring like this. Our grass is loving it too, but many of my plants stopped growing. They will probably get root rot. Sigh. Soon my friend. We'll be basking soon. Hugs, a > Thanks so much for your thoughts and prayers, a. Sure know what you > mean about this rotten weather. We are all getting so very tired of it. > I forgot what sunshine looks like. :-) I won't know how to behave when > we get some sun. Joe and Tim just get the lawn done, and it is time to > do it again. > > Hugs, > Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 That's what I thought too. I was approved the first time I applied ~ in 10 weeks!!! I get my first check for July in Aug. I nearly had a heart attack when I saw I was approved. > > > I wish this article appeared in the headlines of every major newspaper. > > The SS administration should be ashamed of what they do to disabled > > people. > > They should tell of how many people have lost their homes waiting to be > > approved. > > a > > > > > > > An article appeared on the front page of the Milwaukee Journal > > > Sentinal exposing severe mismanagement of disability claims in the > > > Social Security Office. > > > > > > This piece exposes difficulty in obtaining SS disability and > > > arbitrary selection of cases/files and talks about the consequences > > > for the people waiting for claims to be processed or for appeal > > > hearings. > > > > > > " Office 'mess' delays aid for disabled " > > > > > > click: > > > > > > http://www.jsonline.com/news/metro/jun03/148677.asp > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 <<<<<< I know you have lived all over. Don't take this the wrong way, but do you like where you are at? It seems even harder than here where at least there are laws governing the schools. They get broken, but it's still easier than what you go through. I guess I'm curious if the option of moving was open and if it might help?> Dear paula, life here is indeed a lot harder than in the US, at least economically and also beaurocratically speaking. However, terrorism is now getting everywhere, and economy is going downt eh tubes world wide following this... and there is one thing here that I have not seen or sensed anywhere else DESPITE all the hardship I mentioned here and there: paradoxically, the children here are very free, and live a very healthy life. they can go outdoors anytime by themselves (can you imagine not having to plan play dates ????), the country is generally children-oriented. the community in general is very close knit and helpful. we feel the hardship perhaps more because of the special needs of our children, but overall we are happy here. F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 Thanks for sharing. I was afraid I'd offend you. I was curious. And I appreciate the new perspective. I now remember you posting something on this topic. I had forgotten. And I was zeroing on the negative. I guess that truly is easy to do. I think everything has it's positives and negatives. If you ever get the chance, post pictures. I'd love to see some of your country. I have had little opportunity to travel. I love the part of children being top priority. I just hope your schol situation gets better. Hugs, a > > <<<<<< > I know you have lived all over. Don't take this the wrong way, but do > you like where you are at? It seems even harder than here where > at least there are laws governing the schools. They get broken, but > it's still easier than what you go through. I guess I'm curious if > the option of moving was open and if it might help?> > > Dear paula, > life here is indeed a lot harder than in the US, at least economically and > also beaurocratically speaking. However, terrorism is now getting > everywhere, and economy is going downt eh tubes world wide following this... > > and there is one thing here that I have not seen or sensed anywhere else > DESPITE all the hardship I mentioned here and there: paradoxically, the > children here are very free, and live a very healthy life. they can go > outdoors anytime by themselves (can you imagine not having to plan play > dates ????), the country is generally children-oriented. the community in > general is very close knit and helpful. > we feel the hardship perhaps more because of the special needs of our > children, but overall we are happy here. > F > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 rybabysmom <rybabysmom@...> wrote: I was tempted. Not because I could not make it another day, but because I know they'd EAT their words. My mil in a nicer way has also asked if Hunter could spend part of the summer w/ her. She is just sure she can make a difference. ***LOL!!! Well meaning folks, but yeah I think they may actually be enlightened if you did. Though that would be hard for me. My mom watched our kids while we were looking for housing in San Diego....at the time she said everything went fine...all was well, etc. As I talk to her now the truth is coming out and I'm getting a kick out of it. Apparently, my NT 2 yr old is the strongest willed child she has ever been around and she keeps saying how fast he is and how quickly he can get into trouble. She also said she had no idea how " busy " he was. Now Joe, she said was easier (at this point, yes, but not earlier) though he did melt several times. It's so nice to know everyone thinks I'm such a great mother! It hurts alot. I love my boys more than anything. ***Too many times in the past I have based who I am (in my mind) on what people think of me. No longer the case. You can't control what they think and frankly their opinions are only that....they are not living it everyday. Hang in there! I'm sure they mean well, but try your best to ignore their negative comments and go on taking great care of the boys! Johanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Mel, You can also read and reply from the website: /messages I find the digests hard to read as well as reply to but many members prefer them. It's nice to have 3 different options. a On Sep 19, 2005, at 6:32 PM, P Wheeler wrote: > hi paula > i see what you mean lol > i might go to individual messages, easier to read and to reply to > cheers > mel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Mel, You can also read and reply from the website: /messages I find the digests hard to read as well as reply to but many members prefer them. It's nice to have 3 different options. a On Sep 19, 2005, at 6:32 PM, P Wheeler wrote: > hi paula > i see what you mean lol > i might go to individual messages, easier to read and to reply to > cheers > mel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 thanks paula i find i can reply easiest when i get individual emails but i need to see how many i'll be getting. i belong to an avon group too who averages over 100 messages a day! mel > hi paula > i see what you mean lol > i might go to individual messages, easier to read and to reply to > cheers > mel > --- End forwarded message --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 thanks paula i find i can reply easiest when i get individual emails but i need to see how many i'll be getting. i belong to an avon group too who averages over 100 messages a day! mel > hi paula > i see what you mean lol > i might go to individual messages, easier to read and to reply to > cheers > mel > --- End forwarded message --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 You're welcome Marina. I hope you can get in to see someone asap. Maybe someone will have a cancellation. Hopefully it isn't vasculitis. a On Oct 8, 2005, at 9:08 PM, marina_troi wrote: > Thank you for finding that info for me. Oh how I hope it's not > vasculitis!! My family doc's office made an appointment with a > dermatologist, but I can't get in until Decemer 13th!! Seems to me > that waiting that long isn't the smartest thing to do. I tried > calling around to other dermatologists in the area, but, IF they are > taking new patients, i can't get in to see most of them until the end > of January!! > > I'm gonna talk with one of the plastic surgeons I work with and see if > he could get me into his office for the biopsy. I think it needs to > be done sooner than later!! If I wait until December, I may not have > any skin left!! LOl > > Thanks again!!!....Marina > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 You're welcome Marina. I hope you can get in to see someone asap. Maybe someone will have a cancellation. Hopefully it isn't vasculitis. a On Oct 8, 2005, at 9:08 PM, marina_troi wrote: > Thank you for finding that info for me. Oh how I hope it's not > vasculitis!! My family doc's office made an appointment with a > dermatologist, but I can't get in until Decemer 13th!! Seems to me > that waiting that long isn't the smartest thing to do. I tried > calling around to other dermatologists in the area, but, IF they are > taking new patients, i can't get in to see most of them until the end > of January!! > > I'm gonna talk with one of the plastic surgeons I work with and see if > he could get me into his office for the biopsy. I think it needs to > be done sooner than later!! If I wait until December, I may not have > any skin left!! LOl > > Thanks again!!!....Marina > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 I spoke with one of the general surgeons I work with and told him my situation. He said he would take of me and get a biopsy and he was willing to care for me. If it is vasculitis I'm guessing he may want to perform a laporascope of my abdomen to make sure all my insides are ok. Thank you again. I really hope that it isn't vasculitis, but I think it is ridiculous that I have to wait until December to see a dermatologist!! My skin could rot and fall off by then!! Thank God this doctor is gonna help me out. He is a wonderful person and an excellent surgeon. He has taken care of me before, so he is familiar with my situation. I go see him on Tuesday for the biopsy. I go in on Monday to OSU to talk with the oral surgeon and oral pathologist to discuss the biopsy they did yesterday. I'll keep ya up to date on what I find out. Thank you again. It kind of scared me to see what all is involved, but it also helped to light the fire under my butt to get in to see someone a lot faster!!.......Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 I spoke with one of the general surgeons I work with and told him my situation. He said he would take of me and get a biopsy and he was willing to care for me. If it is vasculitis I'm guessing he may want to perform a laporascope of my abdomen to make sure all my insides are ok. Thank you again. I really hope that it isn't vasculitis, but I think it is ridiculous that I have to wait until December to see a dermatologist!! My skin could rot and fall off by then!! Thank God this doctor is gonna help me out. He is a wonderful person and an excellent surgeon. He has taken care of me before, so he is familiar with my situation. I go see him on Tuesday for the biopsy. I go in on Monday to OSU to talk with the oral surgeon and oral pathologist to discuss the biopsy they did yesterday. I'll keep ya up to date on what I find out. Thank you again. It kind of scared me to see what all is involved, but it also helped to light the fire under my butt to get in to see someone a lot faster!!.......Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 So glad you have a doctor willing to help you. I'm praying it isn't vasculitis or anything else serious. a On Oct 11, 2005, at 11:07 PM, marina_troi wrote: > I spoke with one of the general surgeons I work with and told him my > situation. He said he would take of me and get a biopsy and he was > willing to care for me. If it is vasculitis I'm guessing he may want > to perform a laporascope of my abdomen to make sure all my insides are > ok. Thank you again. I really hope that it isn't vasculitis, but I > think it is ridiculous that I have to wait until December to see a > dermatologist!! My skin could rot and fall off by then!! Thank God > this doctor is gonna help me out. He is a wonderful person and an > excellent surgeon. He has taken care of me before, so he is familiar > with my situation. I go see him on Tuesday for the biopsy. I go in > on Monday to OSU to talk with the oral surgeon and oral pathologist to > discuss the biopsy they did yesterday. I'll keep ya up to date on > what I find out. Thank you again. It kind of scared me to see what > all is involved, but it also helped to light the fire under my butt to > get in to see someone a lot faster!!.......Marina > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 So glad you have a doctor willing to help you. I'm praying it isn't vasculitis or anything else serious. a On Oct 11, 2005, at 11:07 PM, marina_troi wrote: > I spoke with one of the general surgeons I work with and told him my > situation. He said he would take of me and get a biopsy and he was > willing to care for me. If it is vasculitis I'm guessing he may want > to perform a laporascope of my abdomen to make sure all my insides are > ok. Thank you again. I really hope that it isn't vasculitis, but I > think it is ridiculous that I have to wait until December to see a > dermatologist!! My skin could rot and fall off by then!! Thank God > this doctor is gonna help me out. He is a wonderful person and an > excellent surgeon. He has taken care of me before, so he is familiar > with my situation. I go see him on Tuesday for the biopsy. I go in > on Monday to OSU to talk with the oral surgeon and oral pathologist to > discuss the biopsy they did yesterday. I'll keep ya up to date on > what I find out. Thank you again. It kind of scared me to see what > all is involved, but it also helped to light the fire under my butt to > get in to see someone a lot faster!!.......Marina > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Thank you, a. I will take all the prayers I can get at this point. It seemed like I was getting a handle on the RA and then it turns around and kicks me in the butt!! LOL Thanks again. I will keep you guys posted. I go in on Monday to see the Oral Pathologist to get the results of that biopsy and Tuesday I get the skin lesions biopsied. I appreciate your support......Marina > > So glad you have a doctor willing to help you. I'm praying it isn't > vasculitis or anything else serious. > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Thank you, a. I will take all the prayers I can get at this point. It seemed like I was getting a handle on the RA and then it turns around and kicks me in the butt!! LOL Thanks again. I will keep you guys posted. I go in on Monday to see the Oral Pathologist to get the results of that biopsy and Tuesday I get the skin lesions biopsied. I appreciate your support......Marina > > So glad you have a doctor willing to help you. I'm praying it isn't > vasculitis or anything else serious. > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Hi a thanks for getting back to me. My knee isnt red but it does feel hot.. As I told I will get in touch with the nurse on Wednesday when I know the consultant has a clinic on. thanks again Love Joyce in the Uk xxxxxxxxxxxxxxxxxxxxxxxxx a Papola <a54@...> wrote: Hi Joyce, I can't say that my knees are painful when I flare, they just feel a little swollen and are stiffer. If your are paining you so much that you can't sleep, I'd think a call to the doctor may be wise. Is it hot? Is it red? If so, I'd definitely see a doctor. a On Mar 20, 2006, at 10:45 AM, joyce madine wrote: > Hi a > Thanks for getting back to me. No I didnt want to bother the doc > in case it was nothing to fuss about.When you are in the flare does > your knees pain as well.. I am not really in a flare just now. > Love Joyce in the Uk > xxxxxxxxxxxxxxxxxxx > > a Papola <a54@...> wrote: > Hi Joyce. I had both of mine replaced 9 years ago. Occasionally > during flares, my knees still swell. > Have you called your doctor? You should get it checked out. > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 hi paual, I am largely unable to follow peoples stories, so do not know yours totally, but the main way I describe my symptoms is it feels like brain swelling and is a heada che from hell, constantly. I dont think mols show up on any CAt /scans etc but not sure maybe they show up in infections. I have been diagnosed wiht many molds not from a building but from my root canal. I had prior mold testing that was the wrong kind of test and showed nothiing. but blood antigen tests show many molds. try dr marinkovich in redwood city CA for blood antigen test and mold nasal spray. his theory, take it or leave it is if you ahve molds then they must get treated first or else the antibiotics will never work. amy _________________________________________________________________ Get today's hot entertainment gossip http://movies.msn.com/movies/hotgossip?icid=T002MSN03A07001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Hi Amy, I got sick with rapid onset cfs in 1995. I stayed ill that entire year but was diagnosed with mycoplasma and placed on antibiotics - doxycycline, minocycline and then Zithromax. On Zithromax I began to recover after about 3 months. I always relapsed if I went off the Zithromax in about 3 months. I stayed at this level for several years while adding in supplements and ImmunoPro. Finally in 2003 I had tests run at IgeneX and found I had borrelia or Lyme disease. In the next year we discovered that my husband and one son also are infected. My son had a symptom onset of severe headache and vertigo. He took antibiotics for a few months and then went on garlic and Chinese herbs. He is stable and seemingly healthy, but his CD 57 level is low - I suspect he will relapse at some point. My husband is well and, like me, responds to Zithromax. This is not surprising as we probably have shared whatever infections we have. I did quinolone antibiotics for the Lyme and developed severe tendon issues that lasted 3 years. I am only now recovering taking magnesium taurinate and Recuperation. Six months ago I developed the vertigo at the same time as I had a throat exam and a tooth worked on and got severe thrush in my throat. I do not think the thrush was ever treated adequately, nor do I think the possible co-infection was ever diagnosed. This is what Tony is talking about. Meanwhile the vertigo and feeling like my brain is a balloon has continued for months. It isn't exactly a headache, although some days it is. That swollen brain sensation is the ONLY common symptom that I ever had before. I'm just taking massive doses of garlic for now and waiting to see what the neurologist thinks of my brain. Needless to say, my husband is not happy with the garlic fumes. Oh well, the price of health. a > > hi paual, I am largely unable to follow peoples stories, so do not know > yours totally, but the main way I describe my symptoms is it feels like > brain swelling and is a heada che from hell, constantly. I dont think mols > show up on any CAt /scans etc but not sure maybe they show up in > infections. > I have been diagnosed wiht many molds not from a building but from my root > canal. > I had prior mold testing that was the wrong kind of test and showed > nothiing. but blood antigen tests show many molds. > try dr marinkovich in redwood city CA for blood antigen test and mold nasal > spray. > his theory, take it or leave it is if you ahve molds then they must get > treated first or else the antibiotics will never work. > amy Quote Link to comment Share on other sites More sharing options...
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