Re: Re: Yasko, infection, antibiotics attn Bob

[Guest guest]

a,

Thanks for the thoughts and ideas.

My wife takes Recuperation. Hasn't helped the tendons in her case but

has been marginally helpful for some of the neurological symptoms.

Interestingly a different electrolyte formula with a different balance

of components (in particular, considerable phosphorus) was quite bad

for her.

As for the balancing trick, thanks, but there's no balance to work

with. She can't stand up on both feet with her eyes closed for more

than about 5 seconds without falling over. That however is pretty

typical of CFIDS patients. Deep brain injuries impacting balance

develop fairly early.

Regarding books ... the quality of paper on which they are printed has

steadily declined over the years. They seem to go "musty" more rapidly

than they used to. At first we though it was just cross-contamination

from books we brought with us from the damper climate of Michigan years

ago, but after eliminating those we've become convinced that any book

more than a couple of years old just sops up even the modest ambient

moisture, and in time, gets questionable. The ones that smell "pulpy"

even when new are the worst. In addition, they cross-contaminate

easily with perfumes and other ambient VOCs, so due to the MCS we have

learned to avoid books that have sat in warehouses and bookstores for

years. If the copyright is prior to about 2002 it is unlikely to be

something she wants to open and sit with. Lastly, many inks are

problematic for MCS.

After awhile it's hard to tell if you're dealing with mold, toxic inks

or coatings, cottonseed oil, binding glues, or what ... who cares, it's

just not worth the trouble.

We are both avid readers but have cut down our "population" of books

75% or better. There are very few books I'd read more than once, at

least not frequently enough that I couldn't just buy another copy if I

ever wanted to re-read. And thanks to e-books, there are more and more

titles I can read electronically. We now regularly resell paper books

we're done with on Amazon. It's easy and generally you get a

significant percentage of the original cost recovered. And some lucky

soul who doesn't have MCS concerns can enjoy the savings of a used book.

Best,

--Bob

pjeanneus wrote:

Hey Bob,

I took Levaquin and Avalox over 3 years ago and had knee tendon

problems ever since. However, this past year I started two things

that have helped. One is Recuperation which I buy from Spain. I have

no idea why it has finally helped my tendons.

The other is that I got balance therapy for a separate problem. The

balance therapy just happened to help my tendons in my knees. I think

I know why. It was exercise that involved doing nothing but standing

still on one foot or doing a tandem stance with my eyes closed for 3

hours a week. The standing still didn't strain the tendon but enabled

it to finally rebuild. This may help your wife, but start for short

times frames. She can eventually balance on a foam rubber pad which

makes it harder.

No, it doesn't sound like you have a mold problem in your house. I

also live in the desert - Las Vegas - but I am thinking now that I

need to get some of the books out of my house.

Keep us posted on how things go for you.

a Carnes

[Guest guest]

a,

Pools = chlorine for the most part. Certainly that's true of our

community pool. She does do Epsom salt foot baths though. Maybe

someday she will be able to get in and out of the tub again. We have a

whole-house water filter that does a fair job of getting chlorine and

other crud out of the tap water, plus a final KDF filter on the bath.

Thanks to the BH4 she is starting to hobble a little further past the

mailbox each day now. That will probably help too.

Glad you found the book info useful.

Best,

--Bob

pjeanneus wrote:

Bob,

Can she get in a warm swimming pool? Is there one available? That

would be my only other thought of safe gradual rebuilding of the

tendons. I HATE QUINOLONES.

Your report on the books seems to fit my house. I have my theology

text books that are 30 years old, and they do not seem to bother me.

But all the newer stuff, especially books checked out of the library

seem to be awful. I have cleared all the books and magazines out of

our bedroom area.

a C.

>

> a,

>

> Thanks for the thoughts and ideas.

>

> My wife takes Recuperation. Hasn't helped the tendons in her case

but

> has been marginally helpful for some of the neurological symptoms.

> Interestingly a different electrolyte formula with a different

balance

> of components (in particular, considerable phosphorus) was quite

bad for

> her.

>

> As for the balancing trick, thanks, but there's no balance to work

> with. She can't stand up on both feet with her eyes closed for

more

> than about 5 seconds without falling over. That however is pretty

> typical of CFIDS patients. Deep brain injuries impacting balance

> develop fairly early.

>

> Regarding books ... the quality of paper on which they are printed

has

> steadily declined over the years. They seem to go "musty" more

rapidly

> than they used to. At first we though it was just cross-

contamination

> from books we brought with us from the damper climate of Michigan

years

> ago, but after eliminating those we've become convinced that any

book

> more than a couple of years old just sops up even the modest

ambient

> moisture, and in time, gets questionable. The ones that

smell "pulpy"

> even when new are the worst. In addition, they cross-contaminate

easily

> with perfumes and other ambient VOCs, so due to the MCS we have

learned

> to avoid books that have sat in warehouses and bookstores for

years. If

> the copyright is prior to about 2002 it is unlikely to be

something

she

> wants to open and sit with. Lastly, many inks are problematic for

MCS.

>

> After awhile it's hard to tell if you're dealing with mold, toxic

inks

> or coatings, cottonseed oil, binding glues, or what ... who cares,

it's

> just not worth the trouble.

>

> We are both avid readers but have cut down our "population" of

books 75%

> or better. There are very few books I'd read more than once, at

least

> not frequently enough that I couldn't just buy another copy if I

ever

> wanted to re-read. And thanks to e-books, there are more and more

> titles I can read electronically. We now regularly resell paper

books

> we're done with on Amazon. It's easy and generally you get a

> significant percentage of the original cost recovered. And some

lucky

> soul who doesn't have MCS concerns can enjoy the savings of a used

book.

>

> Best,

>

> --Bob

>

> pjeanneus wrote:

> >

> > Hey Bob,

> > I took Levaquin and Avalox over 3 years ago and had knee

tendon

> > problems ever since. However, this past year I started two

things

> > that have helped. One is Recuperation which I buy from Spain.

I

have

> > no idea why it has finally helped my tendons.

> >

> > The other is that I got balance therapy for a separate

problem.

The

> > balance therapy just happened to help my tendons in my knees.

I

think

> > I know why. It was exercise that involved doing nothing but

standing

> > still on one foot or doing a tandem stance with my eyes

closed

for 3

> > hours a week. The standing still didn't strain the tendon but

enabled

> > it to finally rebuild. This may help your wife, but start for

short

> > times frames. She can eventually balance on a foam rubber pad

which

> > makes it harder.

> >

> > No, it doesn't sound like you have a mold problem in your

house. I

> > also live in the desert - Las Vegas - but I am thinking now

that I

> > need to get some of the books out of my house.

> >

> > Keep us posted on how things go for you.

> >

> > a Carnes

> >

>

[Guest guest]

For your sake I hope *you're*

not ever reduced to foot baths. Unfortunately that may be the only way

you would ever be moved to acknowledge something outside your personal

experience could have any conceivable legitimacy. In your world (and

the mental landscape of far, far too many in this world) only what

happens to you and only the way you respond to things matters. Nothing

else can possibly exist. It's no different than "tickwit" doctors for

whom, if it doesn't show up on a test in some expected manner,

infection doesn't exist. Patient experience? Nothing but unlearned

ramblings.

I thought maybe for all your take-no-prisoners bluster, you might have

been above that. I'm disappointed in you.

We don't need a head

scan to

tell us what we already know. We don't need to be sold on abx. You're

preaching to the choir. Our problem isn't a desire to piddle with foot

baths, it's THE. INABILITY. TO. D E T O X. Many abx (and many other

useful drugs) follow the P-450 detox pathway, which in my wife, happens

to be broken and ineffectual. The result of ignoring this fact and

administering such drugs anyway, is something akin to inducing

porphyria. You have to fix the pathway and/or reduce the toxic burden

before you can proceed. If you don't, you risk toxic shock and

possibly death. Actually that would be the *merciful* outcome.

Tony, you know a lot

of facts about infections and abx and tests and pathogen burdens.

Whether you've clearly integrated those facts into something coherent,

sometimes I wonder. But I credit you for being knowledgeable. However

you don't know jack shit about MCS and detox pathways and should not

open your mouth about things you know nothing about.

--Bob

dumbaussie2000 wrote:

Bob

I know PAula means well but you really want to get some serious

scans of your wifes head and with a bit of luck you may be able to

observe the massive infection that makes her life so miserable.You

really need something concrete to actually focus on in her condition,

as opposed to focusing on pool sessions, or foot baths.

I think the effort to understand the brain-spine-sinus-thyroid

inflammation angel may be the only sensible approach..THIS as opposed

to the opposite view of going to a seminar with a bunch of doo gooder

fuckwits that don't have the slightest idea what this ilness really

is and listening to a whole lot of crap..Even a needs a slap on

the wrist in these issues because she is so tickwitted that she wrote

a book and suffers something that doesn't fit her strongest beliefs.

tony

> > > >

> > > > Hey Bob,

> > > > I took Levaquin and Avalox over 3 years ago and had

knee

tendon

> > > > problems ever since. However, this past year I

started two

things

> > > > that have helped. One is Recuperation which I buy

from Spain.

I

> > have

> > > > no idea why it has finally helped my tendons.

> > > >

> > > > The other is that I got balance therapy for a

separate

problem.

> > The

> > > > balance therapy just happened to help my tendons in

my knees.

I

> > think

> > > > I know why. It was exercise that involved doing

nothing but

> > standing

> > > > still on one foot or doing a tandem stance with my

eyes closed

> > for 3

> > > > hours a week. The standing still didn't strain the

tendon but

> > enabled

> > > > it to finally rebuild. This may help your wife, but

start for

> > short

> > > > times frames. She can eventually balance on a foam

rubber pad

> > which

> > > > makes it harder.

> > > >

> > > > No, it doesn't sound like you have a mold problem

in your

house. I

> > > > also live in the desert - Las Vegas - but I am

thinking now

that I

> > > > need to get some of the books out of my house.

> > > >

> > > > Keep us posted on how things go for you.

> > > >

> > > > a Carnes

> > > >

> > >

> >

> >

>

[Guest guest]

Tony, I don't understand the

question. If you're asking if her mold sensitivity became evident

after Cipro, no ... it was the other way around.

Neither we, nor my wife's doctor, need to be convinced she needs abx.

What we are looking for are ways to take abx without killing her with

the resulting die-off. Ideas to help detox will be most welcome.

Best,

--Bob

dumbaussie2000 wrote:

The mold avoidance group

supercharged?Did this occur after her cipro experience...That

drug

will change your bugs around and once they develop cipro resistance

they get extra jumpy..

[Guest guest]

No, yes and no. Actually she has soaking sweats and/or hot flashes

more or less hourly all by herself and so does plenty of sweating.

That's about the only detox mechanism that works. Her own clothes

become toxic to her after a time because of this. Until we figured

that out her clothes closet was actually getting to be a place she

couldn't go. Then we ditched the older stuff and it was fine. Our

washer just wasn't able to completely remove the toxic byproducts of

her own sweat and over time it builds up in the fabric.

Problem is, it's not easy to buy new clothes if you're chemically

sensitive, either. But that's a whole other story. Let's just say she

gets really tired of un-dyed hemp shirts!

Barb Peck wrote:

Bob- is your wife over weight? Can she at least tolerate a sauna (to

sweat?) Can she get around at all