Re: Re: Update on vertigo, brain, thrush

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I know, Tony, but IF she's got ICH, treating that will help her symptoms not to mention her life span. I believe the ICH is a result of a bacterial infection which she'd have to pursue seperately, but reducing brain pressure would make a big difference in how she feels. The spinal tap is just to determine if ICH is a problem. Since they offered it, I'd take it. I've been wanting to get one myself, but I'd have to go off the Benicar, etc, which I know reduces inflammation on my brain. a, we've told you numerous times that an MRI will not show you anything if you've got a bone infection. A dentist will not tell you. A neurologist will not tell you. I've known dozens of people who've sufferred with so called "nerve damage" just like you're describing for years before finally getting dx'd correctly with osteomyeltis of the jaw. You need to start researching this, get really good CT scans, and a doctor who understands what's

going on in your head. It is a most important region of your body, not to mention, your jaw bone & teeth are sitting on the largest nerve in your body, the trigeminal nerve, which goes directly to the brain and affects just about everything in your body, including your hpa axis and your autonomic nervous system! You've also got your thyroid and other important glands in the area which can be affected negatively. If your tooth is infected, as it seems to be, but you continue to ignore it, you could be looking at years of increasing illness. pennydumbaussie2000 <dumbaussie2000@...> wrote: PennyEven these are not geared towards locating bacteria(frequently dismissed as contamination) they are more prone to read into the number of white cells and a few other microscopical evaluations, which is depressing especially when you feel your undertaking what you'd consider informative to your health.My cousin with MS has had many of these taps and believe me noone was interested in what bugs where in there..> Hello all,> I tend to think this group has the smartest people on it, so I am > posting my confusion here.> > I saw the neurologist yesterday. My MRI shows a completely normal > brain, no matter what my husband thinks. No bright spots etc - just a > brain.> > I questioned whether I had a low grade fungal infection in my brain > since I had serious thrush when the vertigo began. I was only ever > given 4 days of diflucan which cleared up the thrush except for the > sort throat and vertigo and nystagmus. I can't even reach my general > practitioner on the phone, so no clue as to what was in the throat > culture back then. > > Meanwhile according to the neuro I don't have enough symptoms to have > menigitis - no excruciating headache, just and ache for six months,

> no stiff neck, no fever, no blurred vision.> > I can't get any more diflucan unless I can see my regular doc and beg > her for some.> > The neuro gave me samples of Lyria saying maybe if I cut the pain > cycle in the nerves the pain would go away. He won't prescribe > anything like diflucan or antibiotics unless I have a spinal tap and > something shows up. I figure what is going to show up with a > completely normal MRI???? It's not like I have visible lyme damage.> > I'm scared to take the Lyrica. I have problems with Actos, Benicar > and SSRIs - I know, I know Lyrica is not an SSRI, but I just don't > trust these types of medicine. Are they worth the risk? > > Penny, I still need to look in the closet to see if I have any > Benicar left, but I am rather nervous about that too. > > Okay, I am rambling. Maybe someone here will give

me some clues. > Tony???> > Best at my worst,> a>

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In a message dated 10/27/2006 1:54:02 PM Eastern Standard Time, pj7@... writes:

It is extremely unlikely that I have chiari formation. I have NEVER had this symptom in 11 years of illness until the present. It began at a time that I was the healthiest I have been in years. I absolutely do not have a chiari formation from birth. What I may have is brain swelling due to inflammation. My study on cases where this was the cause of brain swelling the chiari surgery only fixed the problem briefly. The infected brain is perfectly capable of swelling to fill up the extra space created by the surgery and then you will have the same old brain symptoms. DO NOT HAVE CHIARI SURGERY UNLESS YOU CAN BE COMPLETEY ASSURED YOU ONLY HAVE A SMALL SPACE AT THE BASE OF YOUR BRAIN SINCE BIRTH AND HAVE HAD A PRESSURE HEADACHE SINCE BIRTH.

I'm glad that you don't think you have it. Sorry that it's prob'ly due to inflammation. I had it from birth (I was delivered by forceps and my skull was "dented") but I didn't get symptoms until I had a car accident, that exacerbated it. That's a whole other problem. The neurosurgeons should be able to determine if you have inflammation and swelling before hand. A good neurosurgeon anyway. The neurosurgeons I went to are the best doctors in the world for Chiari. I know there are a lot of un-educated neurosurgeons who think that they are actually educated. So what you're saying makes sense, that it could happen. Obviously, surgery isn't for every Chiari patient and the neurosurgeons should know the difference. Although, I should say, that you don't have to have pressure headaches since birth. That's a common misconception.

I hope that you are able to find out what's wrong with you.

Take care,

KLS

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In a message dated 10/27/2006 2:44:06 PM Eastern Standard Time, pj7@... writes:

Kate,This clarifies a lot. I would still ask what is causing the extra fluid? YOu were not born with this. Yes, the surgery saved you life, but you still have the underlying cause going on. God forbid, your symptoms should return, but, in any case, I would be frantically looking for an infectious cause of this excess fluid.a Carnes

Actually I'm not Kate. I quoted what Kate asked. - I *was* born with it. Even after Chiari surgery you can have the excess fluid. I'm not a doctor and I can't explain everything you're asking/saying, but I just know that you can have excess fluid after surgery.

KLS

[Guest guest]

I believe that a thrush/fungi ingection go hand in hand with a bacterial infection. so yeah, it could well be a factor. I know that my jaw hurts when I go off abx and it can sometimes hurt when I go off anti-fungals. It's all one big infection mess but the players sometimes change. pennypjeanneus <pj7@...> wrote: I must add that the MRI being clear is very good news. You see and MRI would have shown that my Lyme disease was still there. My son's MRI has bright

spots and holes - very abnormal. I was really expecting mine to show something. The fact that it is clear is good news indeed as far as Lyme. So I have ruled out one huge issue - whether this nerve damage was from borrelia. I think it is not.I've been to three dentists. No, I can't know if there is infection in the tooth or jaw, but the very good x-rays by both the oral surgeon and endodontist indicate NOTHING of inflammation. The tests done on the tooth that had all the work done clearly indicate an inflammed nerve. I am giving that time to heal before I take further action of any invasive sort.Does anyone think that the coincidence of having severe thrush at the time the vertigo started is not a KEY??? I mean I don't think I have ever had thrush in my life.a> I know, Tony, but IF she's got ICH, treating that will help her symptoms not to mention her life span. I believe the ICH is a result

of a bacterial infection which she'd have to pursue seperately, but reducing brain pressure would make a big difference in how she feels. The spinal tap is just to determine if ICH is a problem. Since they offered it, I'd take it. I've been wanting to get one myself, but I'd have to go off the Benicar, etc, which I know reduces inflammation on my brain.> > a, we've told you numerous times that an MRI will not show you anything if you've got a bone infection. A dentist will not tell you. A neurologist will not tell you. I've known dozens of people who've sufferred with so called "nerve damage" just like you're describing for years before finally getting dx'd correctly with osteomyeltis of the jaw. You need to start researching this, get really good CT scans, and a doctor who understands what's going on in your head. It is a most important region of your body, not to mention, your jaw bone & teeth

are sitting on the largest nerve in your body, the trigeminal nerve, which goes directly to the brain and affects just about everything in your body, including your hpa axis and your autonomic nervous system! You've also got your thyroid and other important glands in the area which can be affected negatively. If your tooth is infected, as it seems to be, but you continue to ignore it, you could be looking at years of increasing> illness.> > penny> > dumbaussie2000 <dumbaussie2000@...> wrote:> Penny> Even these are not geared towards locating bacteria(frequently > dismissed as contamination) they are more prone to read into the > number of white cells and a few other microscopical evaluations, > which is depressing especially when you feel your undertaking what > you'd consider informative to your health.My cousin with MS has had > many of these taps and

believe me noone was interested in what bugs > where in there..> > > > Hello all,> > I tend to think this group has the smartest people on it, so I am > > posting my confusion here.> > > > I saw the neurologist yesterday. My MRI shows a completely normal > > brain, no matter what my husband thinks. No bright spots etc - just > a > > brain.> > > > I questioned whether I had a

low grade fungal infection in my brain > > since I had serious thrush when the vertigo began. I was only ever > > given 4 days of diflucan which cleared up the thrush except for the > > sort throat and vertigo and nystagmus. I can't even reach my > general > > practitioner on the phone, so no clue as to what was in the throat > > culture back then. > > > > Meanwhile according to the neuro I don't have enough symptoms to > have > > menigitis - no excruciating headache, just and ache for six months, > > no stiff neck, no fever, no blurred vision.> > > > I can't get any more diflucan unless I can see my regular doc and > beg > > her for some.> > > > The neuro gave me samples of Lyria saying maybe if I cut the pain > > cycle in the nerves the pain would go away. He won't prescribe >

> anything like diflucan or antibiotics unless I have a spinal tap > and > > something shows up. I figure what is going to show up with a > > completely normal MRI???? It's not like I have visible lyme damage.> > > > I'm scared to take the Lyrica. I have problems with Actos, Benicar > > and SSRIs - I know, I know Lyrica is not an SSRI, but I just don't > > trust these types of medicine. Are they worth the risk? > > > > Penny, I still need to look in the closet to see if I have any > > Benicar left, but I am rather nervous about that too. > > > > Okay, I am rambling. Maybe someone here will give me some clues. > > Tony???> > > > Best at my worst,> > a> >>

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In a message dated 10/27/2006 9:40:07 PM Eastern Standard Time, dumbaussie2000@... writes:

aThat is a very good post! I have read many people's experiences with that surgery and you hit it on the head.Like many you may have a small period of improvement and then whammo back to normal.

Yes, Chiari can come back, for various reasons. Also the surgery isn't a cure all. You need a lot of self-care, so that you don't re-injure or aggravate your injury. Let me just irriterate that Chiari has successfully helped many many people, myself included and shouldn't be something to be focused on with negativity. I always feel like I have to defend myself/Chiari.

KLS

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In a message dated 10/28/2006 1:50:03 AM Eastern Standard Time, dumbaussie2000@... writes:

KlsIt's definately helped you and that's great. I just feel that the true test of time and many people's testimonies leaves this highly controversial.. and I just tried to reflect that. Another egs. of a disaster for me is the many colonoscopy reports that lead nowhere- other than a diagnosis for cancer. I read one report claiming inflammation at levels never witnessed before by the dr/colonoscopist and NO TREATMENT STRATEGY offered.It seems all they care about is cutting a few polyps if any and testing for cancer, the high levels of inflammation IGNORED.We just have to warn and get people to push the system past the usual you can have any color you want as long as it's black approach.

Thank you. I suppose for some it is. I'm sorry that your inflammation was ignored. Yeah.

KLS