Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 KLS, I understand your point on chiari. I don't mean to discredit it for you. I used to live near Charlotte, NC. There was a doc there who became quite famous in the cfs/fms community for doing chiari surgery on EVERYONE. He lost his surgery privileges in Charlotte and then moved to Asheville where he continued the same malpractice. Thanks. Oh boy, I think I heard about him too. Thinking that the Chiari surgery would cure CFS/FMS?But I also have been on these email lists a long time. The reports I heard on chiari cases were often that they did well for a few months and then gradually the swelling returned or filled up the new brain space. I also heard this from a doctor, but alas I have forgotten which one. It depends on where they got the surgery done. I got mine done at The Chiari Institute in New York. It's the best surgeon in the world for Chiari. Oh OK.I do know of one patient who was helped, and you are now another. Yes. If you were on the Chiari list you'd know of more. :)Of course we must state that you are still on this list, so chiari must not have fixed everything that you have??? I'm on this list because I have MS, asthma, phlebitis, sinusitis, bronchitis, etc. All these inflammation problems. KLS Quote Link to comment Share on other sites More sharing options...
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