OT kinda-does liver have brain affect?

[Guest guest]

Can anyone in simple with a simple explination for my lyme brain

tell me if the liver enzymes have an affect on our brains?

I have googled everything with the word sleepiness and one thing

that does pop up is something about ammonia and protein making some

people sleepy.

I don't know if being excessive sleepy and feeling like my head is

in a high altitude is a bad symptom for anyone else but for me it

has gone on for over 20 years.

I have had some remissions and then it returns. I have gone through

times when I would feel better until I had a period then it would be

recurring during that time.

I always thought that getting through menapause I would be over that

drowsey feeling.

Not so.

Why does this happen to me worse than anyone I have ever read that

has lyme?

Lyme DX two years ago with IGENEX western blot.

Provigil used to help then it got to feeling like after I took it

the sleepiness would be worse then I started adderall and it helps

but I still take two provigil and on some days they do help then

other days I think the provigil makes me more sleepy.

All I can find is liver and enzyme stuff.

Tony, do you know anything about womens hormones and how any of

these things disscussed would affect them?

Thanks,

sandy

[Guest guest]

****** Tony, do you know anything about womens hormones and how any

of

> these things disscussed would affect them?********

Sandy

I really think it's jhard not to believe hormonal issues play a huge

role in infectiions. Women are 4 times as likeley to have

cfs/fibromyalgia, you may also notice that we have a PAula CArnes not

a PAUL CArnes and there's a Penny,NElly,Kate, BARb and then you get

an .There's also the ENDOMETREOSIS that goes hand in hand with

these conditions.

tony

>

>

> Can anyone in simple with a simple explination for my lyme brain

> tell me if the liver enzymes have an affect on our brains?

>

>

> I have googled everything with the word sleepiness and one thing

> that does pop up is something about ammonia and protein making some

> people sleepy.

>

> I don't know if being excessive sleepy and feeling like my head is

> in a high altitude is a bad symptom for anyone else but for me it

> has gone on for over 20 years.

>

> I have had some remissions and then it returns. I have gone

through

> times when I would feel better until I had a period then it would

be

> recurring during that time.

>

> I always thought that getting through menapause I would be over

that

> drowsey feeling.

>

> Not so.

> Why does this happen to me worse than anyone I have ever read that

> has lyme?

>

> Lyme DX two years ago with IGENEX western blot.

>

> Provigil used to help then it got to feeling like after I took it

> the sleepiness would be worse then I started adderall and it helps

> but I still take two provigil and on some days they do help then

> other days I think the provigil makes me more sleepy.

>

> All I can find is liver and enzyme stuff.

>

> Tony, do you know anything about womens hormones and how any of

> these things disscussed would affect them?

>

> Thanks,

> sandy

>

[Guest guest]

We have three of us sick in my family with Lyme disease. The two men

are not nearly as sick as I have been, but they clearly have Lyme. I

may have gotten sicker because of a particular tick bite or

combination of bacteria. I am the only one of us who got a bull's eye

rash after one tick bite. My son's symptoms have been neurological

while my husband's have been muscle pain and prostate problems.

In any case, the rate of illness for cfs is higher in women. I doubt

it is higher in women for Lyme but the symptoms may be more severe.

Any ideas?

a

>

> ****** Tony, do you know anything about womens hormones and how any

> of

> > these things disscussed would affect them?********

>

> Sandy

> I really think it's jhard not to believe hormonal issues play a huge

> role in infectiions. Women are 4 times as likeley to have

> cfs/fibromyalgia, you may also notice that we have a PAula CArnes

not

> a PAUL CArnes and there's a Penny,NElly,Kate, BARb and then you get

> an .There's also the ENDOMETREOSIS that goes hand in hand with

> these conditions.

> tony

> >

>

>

[Guest guest]

HORMONES!

There's a difference between functionable and cfs/fibromyalgia /lyme

non functionable.I wouldn't worry about general public ilness's

because there so widespread throughout the community... we are more

focused on the disability aspect of our ilness's.Most people can't do

too much? or am I missing something..

Anyways, back to experimental to keep the a Carnes back channel

dirt files going.. cheers tony

>

> We have three of us sick in my family with Lyme disease. The two

men

> are not nearly as sick as I have been, but they clearly have Lyme.

I

> may have gotten sicker because of a particular tick bite or

> combination of bacteria. I am the only one of us who got a bull's

eye

> rash after one tick bite. My son's symptoms have been neurological

> while my husband's have been muscle pain and prostate problems.

>

> In any case, the rate of illness for cfs is higher in women. I

doubt

> it is higher in women for Lyme but the symptoms may be more severe.

> Any ideas?

>

> a

>

>

> >

> > ****** Tony, do you know anything about womens hormones and how

any

> > of

> > > these things disscussed would affect them?********

> >

> > Sandy

> > I really think it's jhard not to believe hormonal issues play a

huge

> > role in infectiions. Women are 4 times as likeley to have

> > cfs/fibromyalgia, you may also notice that we have a PAula CArnes

> not

> > a PAUL CArnes and there's a Penny,NElly,Kate, BARb and then you

get

> > an .There's also the ENDOMETREOSIS that goes hand in hand

with

> > these conditions.

> > tony

> > >

> >

> >

>

[Guest guest]

There's also the ENDOMETREOSIS that goes hand in hand with

> these conditions.

> tony

having often read or lurked that you refer to endo on many occasions, I have

tried to research this, and in the UK, gyneas just don't know the link,

they like to treat every part of the body as one unit!

can you share any of your experiences or medical pointers to why endo goes

hand in hand?

been trying to educate my Gynea for about 18 months even as far as producing

too much Oestrogen and how a aromatase inhibitor may help, yet its all new

to them and out of off licence here

Tony could you share in layman's terms you're underlying of the endo

connection

I rarely post, but would appreciate some feedback on this one, if off topic,

feel free to email me privately

TIA

J

[Guest guest]

Sandy, please forgive me if you have posted this before, but what has

been done these two years to treat your Lyme? Yes, liver dysfunction

and amonia levels can create brain fog and even hallucinations, but

the underlying cause in your case is probably borrelia in the central

nervous system. Many cfs and Lyme patients have severe brain function

problems. If you talk to them they will start to say something and

then space out. Some even go into mini comas where they are

unconscious for two or three hours. So...what are the docs doing for

your Lyme?

a

>

> Can anyone in simple with a simple explination for my lyme brain

> tell me if the liver enzymes have an affect on our brains?

>

>

> I have googled everything with the word sleepiness and one thing

> that does pop up is something about ammonia and protein making some

> people sleepy.

>

> I don't know if being excessive sleepy and feeling like my head is

> in a high altitude is a bad symptom for anyone else but for me it

> has gone on for over 20 years.

>

> I have had some remissions and then it returns. I have gone

through

> times when I would feel better until I had a period then it would

be

> recurring during that time.

>

> I always thought that getting through menapause I would be over

that

> drowsey feeling.

>

> Not so.

> Why does this happen to me worse than anyone I have ever read that

> has lyme?

>

> Lyme DX two years ago with IGENEX western blot.

>

> Provigil used to help then it got to feeling like after I took it

> the sleepiness would be worse then I started adderall and it helps

> but I still take two provigil and on some days they do help then

> other days I think the provigil makes me more sleepy.

>

> All I can find is liver and enzyme stuff.

>

> Tony, do you know anything about womens hormones and how any of

> these things disscussed would affect them?

>

> Thanks,

> sandy

>

[Guest guest]

HA!!!! Tony, you made my day. Yep, I am becoming infamous, or maybe I

flatter myself.

Yes, there is a difference for now - some with these infections manage

to keep functioning, at least for awhile. But don't you wonder what

causes Alzheimer's????? I want my husband to still have a brain at age

80. All three of us are still treating Lyme disease.

a

>

> HORMONES!

> There's a difference between functionable and cfs/fibromyalgia /lyme

> non functionable.I wouldn't worry about general public ilness's

> because there so widespread throughout the community... we are more

> focused on the disability aspect of our ilness's.Most people can't

do

> too much? or am I missing something..

> Anyways, back to experimental to keep the a Carnes back channel

> dirt files going.. cheers tony

>

[Guest guest]

--I have been three time to MO to see a LLD and been on different

antibiotics.

Sometimes I feel like there is not anyone like me because this is

one of my major problems and has since the beginning.

I have had a lot of tests before I found out I had lyme and often

they would be abnormal.

Most of my natural killer cells and subsets of them are either real

high or real low.

I have been on heparin shots. I did b12 shots the glutatione atp

shots.

- In infections , " pjeanneus "

<pj7@...> wrote:

>

> Sandy, please forgive me if you have posted this before, but what

has

> been done these two years to treat your Lyme? Yes, liver

dysfunction

> and amonia levels can create brain fog and even hallucinations,

but

> the underlying cause in your case is probably borrelia in the

central

> nervous system. Many cfs and Lyme patients have severe brain

function

> problems. If you talk to them they will start to say something and

> then space out. Some even go into mini comas where they are

> unconscious for two or three hours. So...what are the docs doing

for

> your Lyme?

>

> a

>

>

> >

> > Can anyone in simple with a simple explination for my lyme brain

> > tell me if the liver enzymes have an affect on our brains?

> >

> >

> > I have googled everything with the word sleepiness and one thing

> > that does pop up is something about ammonia and protein making

some

> > people sleepy.

> >

> > I don't know if being excessive sleepy and feeling like my head

is

> > in a high altitude is a bad symptom for anyone else but for me

it

> > has gone on for over 20 years.

> >

> > I have had some remissions and then it returns. I have gone

> through

> > times when I would feel better until I had a period then it

would

> be

> > recurring during that time.

> >

> > I always thought that getting through menapause I would be over

> that

> > drowsey feeling.

> >

> > Not so.

> > Why does this happen to me worse than anyone I have ever read

that

> > has lyme?

> >

> > Lyme DX two years ago with IGENEX western blot.

> >

> > Provigil used to help then it got to feeling like after I took

it

> > the sleepiness would be worse then I started adderall and it

helps

> > but I still take two provigil and on some days they do help then

> > other days I think the provigil makes me more sleepy.

> >

> > All I can find is liver and enzyme stuff.

> >

> > Tony, do you know anything about womens hormones and how any of

> > these things disscussed would affect them?

> >

> > Thanks,

> > sandy

> >

>

[Guest guest]

<irishdrought1955@...> wrote:

>

> --I have been three time to MO to see a LLD and been on different

> antibiotics.

Which ones, what doses, and for what period?

[Guest guest]

****** Tony could you share in layman's terms you're underlying of

the endo

> connection***********

Tia

I watched a documentary on women giving there frank and honest

accounts of what life was like with endometreosis. It didn't sound

far different than what most females are going thru on our forums. I

told someone a few years earlier that all your pain and complaints

sound like PELVIC INFLAMMATORY DISEASE, get checked for

endometreosis. Anyways she ended up visiting her gyno and at 28 she

had everything so diseased, everything needed to be removed.Another

friend kept complaining about cycles of pelvic pain and discomfort

and she pushed and shoved for answers and sure enough she has endo.

Another person comes on cfs about.com and she swears that her

endometreosis surgery has completely cleared her fibromyalgia after

20 plus years of suffering.Me being the person I am corresponded a

question and answer campaign on the forum - I just basically felt it

needed more than just surgery(GUT FEELING).... where are the

antibiotics to clear some of the mess??? Sure enough over several

Question and answer requests on the forum, she described that she had

been given cipro which landed her some possable C difficile

infection, which was treated aggresively, that made her well.The C

difficile is treated with vancomycin and I think they threw a few

other drugs at her as well.She also sent me all her hospital records

and she drew a negative for C difficile, so the aggresive treatments

where in my opinion also capable of targeting staphyloccal infections.

>

> There's also the ENDOMETREOSIS that goes hand in hand with

> > these conditions.

> > tony

>

> having often read or lurked that you refer to endo on many

occasions, I have

> tried to research this, and in the UK, gyneas just don't know the

link,

> they like to treat every part of the body as one unit!

>

> can you share any of your experiences or medical pointers to why

endo goes

> hand in hand?

>

> been trying to educate my Gynea for about 18 months even as far as

producing

> too much Oestrogen and how a aromatase inhibitor may help, yet its

all new

> to them and out of off licence here

>

> Tony could you share in layman's terms you're underlying of the

endo

> connection

>

> I rarely post, but would appreciate some feedback on this one, if

off topic,

> feel free to email me privately

>

> TIA

>

> J

>

[Guest guest]

I've never had a problem with endometriosis or pain with menstrual

cycle. I just had joint pain for 20 years before coming down with

full blown Lyme disease.

a

>

>

> ****** Tony could you share in layman's terms you're underlying of

> the endo

> > connection***********

> Tia

> I watched a documentary on women giving there frank and honest

> accounts of what life was like with endometreosis. It didn't sound

> far different than what most females are going thru on our forums.

I

> told someone a few years earlier that all your pain and complaints

> sound like PELVIC INFLAMMATORY DISEASE, get checked for

> endometreosis. Anyways she ended up visiting her gyno and at 28 she

> had everything so diseased, everything needed to be removed.Another

> friend kept complaining about cycles of pelvic pain and discomfort

> and she pushed and shoved for answers and sure enough she has endo.

> Another person comes on cfs about.com and she swears that her

> endometreosis surgery has completely cleared her fibromyalgia after

> 20 plus years of suffering.Me being the person I am corresponded a

> question and answer campaign on the forum - I just basically felt

it

> needed more than just surgery(GUT FEELING).... where are the

> antibiotics to clear some of the mess??? Sure enough over several

> Question and answer requests on the forum, she described that she

had

> been given cipro which landed her some possable C difficile

> infection, which was treated aggresively, that made her well.The C

> difficile is treated with vancomycin and I think they threw a few

> other drugs at her as well.She also sent me all her hospital

records

> and she drew a negative for C difficile, so the aggresive

treatments

> where in my opinion also capable of targeting staphyloccal

infections.

>

>

>

>

>

>

>

>

>

>

> >

> > There's also the ENDOMETREOSIS that goes hand in hand with

> > > these conditions.

> > > tony

> >

> > having often read or lurked that you refer to endo on many

> occasions, I have

> > tried to research this, and in the UK, gyneas just don't know

the

> link,

> > they like to treat every part of the body as one unit!

> >

> > can you share any of your experiences or medical pointers to why

> endo goes

> > hand in hand?

> >

> > been trying to educate my Gynea for about 18 months even as far

as

> producing

> > too much Oestrogen and how a aromatase inhibitor may help, yet

its

> all new

> > to them and out of off licence here

> >

> > Tony could you share in layman's terms you're underlying of the

> endo

> > connection

> >

> > I rarely post, but would appreciate some feedback on this one, if

> off topic,

> > feel free to email me privately

> >

> > TIA

> >

> > J

> >

>

[Guest guest]

a

No problems in the hips joints?

> > >

> > > There's also the ENDOMETREOSIS that goes hand in hand with

> > > > these conditions.

> > > > tony

> > >

> > > having often read or lurked that you refer to endo on many

> > occasions, I have

> > > tried to research this, and in the UK, gyneas just don't know

> the

> > link,

> > > they like to treat every part of the body as one unit!

> > >

> > > can you share any of your experiences or medical pointers to

why

> > endo goes

> > > hand in hand?

> > >

> > > been trying to educate my Gynea for about 18 months even as far

> as

> > producing

> > > too much Oestrogen and how a aromatase inhibitor may help, yet

> its

> > all new

> > > to them and out of off licence here

> > >

> > > Tony could you share in layman's terms you're underlying of the

> > endo

> > > connection

> > >

> > > I rarely post, but would appreciate some feedback on this one,

if

> > off topic,

> > > feel free to email me privately

> > >

> > > TIA

> > >

> > > J

> > >

> >

>

[Guest guest]

Not that I can recall. I did have one bout of some severe pain in the

groin, but it just disappeared and only lasted a day. I had more knee

problems and small finger joint pain. Even there it was more in the

tendons around the small joints. I still have that but no knee pain

or swelling.

a

>

> a

> No problems in the hips joints?

>

>

>

>

>

> > > >

> > > > There's also the ENDOMETREOSIS that goes hand in hand with

> > > > > these conditions.

> > > > > tony

> > > >

> > > > having often read or lurked that you refer to endo on many

> > > occasions, I have

> > > > tried to research this, and in the UK, gyneas just don't

know

> > the

> > > link,

> > > > they like to treat every part of the body as one unit!

> > > >

> > > > can you share any of your experiences or medical pointers to

> why

> > > endo goes

> > > > hand in hand?

> > > >

> > > > been trying to educate my Gynea for about 18 months even as

far

> > as

> > > producing

> > > > too much Oestrogen and how a aromatase inhibitor may help,

yet

> > its

> > > all new

> > > > to them and out of off licence here

> > > >

> > > > Tony could you share in layman's terms you're underlying of

the

> > > endo

> > > > connection

> > > >

> > > > I rarely post, but would appreciate some feedback on this

one,

> if

> > > off topic,

> > > > feel free to email me privately

> > > >

> > > > TIA

> > > >

> > > > J

> > > >

> > >

> >

>

[Guest guest]

a

So how's your mobility? I think that when your knee is playing up the

surrounding tissue especially the microcirculation is going to be

hard pressed to do it's job. I found when I started playing soccer

recently that the tissue rips away from the bone when you haven't

pushed the envelope on an area that's been long term

inflammed.BAsiclly alot of what you also need to address with these

ilnesses is age related diseases..

By the way, what was this thread about?

Also the backchanneling that I've received from your foes on the

experimental site has you appearing in the next fifty cent video.

cheers tony.

> > > > >

> > > > > There's also the ENDOMETREOSIS that goes hand in hand with

> > > > > > these conditions.

> > > > > > tony

> > > > >

> > > > > having often read or lurked that you refer to endo on many

> > > > occasions, I have

> > > > > tried to research this, and in the UK, gyneas just don't

> know

> > > the

> > > > link,

> > > > > they like to treat every part of the body as one unit!

> > > > >

> > > > > can you share any of your experiences or medical pointers

to

> > why

> > > > endo goes

> > > > > hand in hand?

> > > > >

> > > > > been trying to educate my Gynea for about 18 months even as

> far

> > > as

> > > > producing

> > > > > too much Oestrogen and how a aromatase inhibitor may help,

> yet

> > > its

> > > > all new

> > > > > to them and out of off licence here

> > > > >

> > > > > Tony could you share in layman's terms you're underlying of

> the

> > > > endo

> > > > > connection

> > > > >

> > > > > I rarely post, but would appreciate some feedback on this

> one,

> > if

> > > > off topic,

> > > > > feel free to email me privately

> > > > >

> > > > > TIA

> > > > >

> > > > > J

> > > > >

> > > >

> > >

> >

>

[Guest guest]

thanks for the info Tony, about the endo

in the UK they haven't a clue or wish to fob us off with invasive

treatments, synthetic treatments to avoid casting a real observations to why

many females unnecessarily endure pelvic or gynea issues and there are many!

having researched this for some time now, cant make progress as no one will

treat the endo being associated with any other intracellular bacteria for

starters..........

thanks again

[Guest guest]

e, In my experience, I also think that bacteria may be a factor in endometriosis. If you can't get anyone to go there, do you have any other signs of infection that you could potentially get treatment for and see if some of your endo symptoms subside? This is how I and most of my friends have had to approach our illness (fortunately, I don't have endo problems, but a lot of my friends do). Even though I started becoming suspicious of a bacterial basis for my illness, I had no obvious signs of infection until I pursued a potentially infected crown, which led to seeing a dental specialist who upon a deep probe found pus around my wisdom teeth. I had them removed and the jaw underneath was black and green and full of necrosis. Basically my jaw was rotting. had a pretty large chunk of it removed, and got sicker than I've probably ever been in my life. But antibiotics finally helped me

get better than I had been in quite a while. If you can get someone to find some kind of infection brewing somewhere, and treat you for that, and you see improvements, you might get a doc on board to keep treating you in that direction. It's a very slow process and often takes several attempts, because docs simply have their heads buried in the sand when it comes to considering an infectious basis for many of our diseases. pennye Elliott <justine.elliott@...> wrote: thanks for the info Tony, about the endoin the UK they haven't a clue or wish to fob us off with invasive treatments, synthetic treatments to avoid casting a real observations to why many females unnecessarily endure pelvic or gynea issues and there are many!having researched this for some time now, cant make progress as no one will treat the endo being associated with any other intracellular bacteria for starters..........thanks again

[Guest guest]

Penny

pretty much exhausted my avenues, as have borreliosis and babs, treatment been great, yet no support at all, not much my end from a personal stance that has not been covered, but working to why the endo is now severe

the fact is, in the UK no one will treat us, or have a clue of the connections, even if you pull out the research they will not endorse any criteria other than the pointless and meaningless guidelines

all UK lit states babs and lyme is rare, of course it is if you don't allow for it to be a notifiable disease except for Scotland

1,000s have been mis dx - long story hey

coming across the pond soon

back to lurking again, funny enough its been such a long time since I have been a member I guess I am blushing to post after all this time

e

[Guest guest]

Don't be shy. :-) I guess my point is, can you find something more mainstream to treat, that isn't as controversial as the lyme/babesia stuff? Because in my experience the people who are fighting multiple infections, including lyme, seem to still benefit when treating the other infections because they are universally acknowledged. Of course, most of the people's experiences I know best, are treating osteomyelitis and are viewing Lyme as a side issue. The trick is finding an infection you can identify. Then get your docs on board, and as they watch you respond, they tend to become more open minded about the other issues, like lyme (of course, you've got to have a doctor who actually cares about his profession and his patients, for whatever motivation, or is just more interested in his bottom line). penny e Elliott

<justine.elliott@...> wrote: Penny pretty much exhausted my avenues, as have borreliosis and babs, treatment been great, yet no support at all, not much my end from a personal stance that has not been covered, but working to why the endo is now severe the fact is,

in the UK no one will treat us, or have a clue of the connections, even if you pull out the research they will not endorse any criteria other than the pointless and meaningless guidelines all UK lit states babs and lyme is rare, of course it is if you don't allow for it to be a notifiable disease except for Scotland 1,000s have been mis dx - long story hey coming across the pond soon back to lurking again, funny enough its been such a long time since I have been a member I guess I am blushing to post after all this time e

[Guest guest]

e

It's a shame that a real story like that, that still possably exists

at the cfs.about forum hasn't created a little enthusiasm and

questioning. Here's someone suffering 20 plus years of fibro that's

come out the front door of a hospital cured by removing a large part

of infection and doing a few drugs over a shorter period, and the

ovaries/endo really correlates with a high blood flow region of the

anatomy, that possably puts it at greater risk when you have

parasitic bacteria adhering to your red cells..

I try and make people take up on the idea that often these ilnesses

ain't so invisable..but it's like hitting a brick wall.

My opinion is with these ilnesses you need dialysis to clean up the

blood and a litre of red cells infused to allow the body to truck

around oxygen and nutrients to get the body healed, also most red

cells are not great- as it's also partly a red cell disease. You may

also have to realise that your body is actually burn''t out and

needs to have therapy that addresses adhesions/pleuresy and the

like.When flaring, something that feels like acid, is allowed to flow

thru your veins..

>

> thanks for the info Tony, about the endo

>

> in the UK they haven't a clue or wish to fob us off with invasive

> treatments, synthetic treatments to avoid casting a real

observations to why

> many females unnecessarily endure pelvic or gynea issues and there

are many!

>

> having researched this for some time now, cant make progress as no

one will

> treat the endo being associated with any other intracellular

bacteria for

> starters..........

>

> thanks again

>