Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hi Heidi, My name is Sue. The confusion comes in because Jodi is my daughter and her name is on the account (she pays for the internet service, and I pay for a seperate phone line for the computer). SBO is Spina Bifida Occulta. Occulta means hidden or under the skin. I think that another name that is used for the same condition is Lipomylomenigocele (sp?). Correct me if I'm wrong guys. Heidi, forgive me if you already told us, but where do you live? Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Thanks for explaining, Sue. I live in Eugene, Oregon. Lipomyelomeningocele is a particular kind of disraphism, aka spina bifida occulta. It implies a fatty mass (the "lipo" part of the word) and tends to be indicated when there's a fatty lump externally (though that isn't a requirement). In such cases, the tethering is caused by the lipoma. My own case shows no such lipoma. I have a very deep dimple near the base of my spine - always seemed just kinda weird. Turned out that it points directly to the disraphism. How the tethering occurs in such cases, I don't know - haven't been able to find any info. (It's amazing how little information is out there, isn't it?) By the way, everyone, the best source of info that I've found is Medscape: www.medscape.com It's meant for doctors, but you don't have to be a doctor to sign up. There's a neurology section. If you sign up (which is required) and then go to the neurology section and enter "tethered cord syndrome", you'll be amazed at the number of serious medical articles on the subject of adult-oriented TCS. -- Heidi Sue wrote: Hi Heidi, My name is Sue. The confusion comes in because Jodi is my daughter and her name is on the account (she pays for the internet service, and I pay for a seperate phone line for the computer). SBO is Spina Bifida Occulta. Occulta means hidden or under the skin. I think that another name that is used for the same condition is Lipomylomenigocele (sp?). Correct me if I'm wrong guys. Heidi, forgive me if you already told us, but where do you live? Sue Quote Link to comment Share on other sites More sharing options...
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