Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 a, it is unlikely you will ruin anyone's hope, so I wouldn't worry about that. In regards to your last sentence, " Hum, maybe we should do that for lyme disease, " I think and have said before that those of us pursuing this avenue either 1) tried antibiotics and antimalarials and they failed or 2) could not tolerate them in the doses and time frame required (i.e. multiple antibiotics and antimalarials for months and years) to overcome an entrenched and multiple-pathogen infection, some of it probably from ticks in many cases. For those people, who are willing and able to pursue this approach--which means applying a lot of time studying it, and spending $ on testing and supplements, it seems to me that if you just remain as an interested side observer, in a year or two you'll know exactly how well it works. We are conducting our own informal evidence-based medicine experiment. Why don't you just see how it pans out? > Please, I am not trying to ruin anyone's hope. I just want all of us > to get our heads together and THINK and TALK. Am I missing something? > I am sure I am. > > There are people infected with syphilis who do not develop the severe > tertiary disease with infection in the CNS. Perhaps they have the > genetic system to fight it off. I wonder what she would find in those > who cannot? Of course, since Tucaseegee we tend to give folks with > syphilis high doses of antibiotics. Hum, maybe we should do that for > Lyme disease. > > a Carnes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Okay, gang, give me a good swift kick if this offends. I keep trying to get some discussion going, but just keep getting kicked. What do you think? a with tertiary borrelia Dr. Andy has found that 95% of his cfs patients have borrelia. A doctor in Lousisanna said he has been treating cfs since 1991 and now is finding 90% of his cfs patients have borrelia. This leads me to wonder if Yasko has done genetic studies on folks with tertiary syphilis. It seems that those who develop this stage of syphilis should have a common DNA problem that makes them likely to not clear the spirochete for syphilis. I have been told that borrelia causing Lyme is much more difficult to treat than the spirochete causing syphilis. I wish I could hope that Yasko's list of supplements and herbs would treat Lyme, or that the DNA found in cfs is like autism. What cfs patients did she test? I mean we cannot even group the cfs population as to causes. Please, I am not trying to ruin anyone's hope. I just want all of us to get our heads together and THINK and TALK. Am I missing something? I am sure I am. There are people infected with syphilis who do not develop the severe tertiary disease with infection in the CNS. Perhaps they have the genetic system to fight it off. I wonder what she would find in those who cannot? Of course, since Tucaseegee we tend to give folks with syphilis high doses of antibiotics. Hum, maybe we should do that for Lyme disease. a Carnes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 >>>>Dr. Andy has found that 95% of his cfs patients have borrelia. A doctor in Lousisanna said he has been treating cfs since 1991 and now is finding 90% of his cfs patients have borrelia<<<<<<<< a Most doctors find they themselves and there families are infected with these same tests, yet non of them, nor there families are sick? Dr. made all sorts of claims 2 years ago and we should have a million internet pages with people's blood swimming with spirochetes according to where he was going- WHY HASN'T THIS EVENTUATED?The problem with having a test that a commoner also tests positive for, doesn't improve anything IMO.. Testing for something that can influence an antimicrobial treatment is the only place to put your money and hopes IMO.Your 11 years of antimicrobial therapy may have produced a super outcome if you added say penicillin to your already succesfull regime?You obviously are a good responder to zithromax yet needed to take the next step up the ladder of improvment .. tony > > Okay, gang, give me a good swift kick if this offends. I keep trying > to get some discussion going, but just keep getting kicked. What do > you think? > a with tertiary borrelia > > > > Dr. Andy has found that 95% of his cfs patients have borrelia. > A doctor in Lousisanna said he has been treating cfs since 1991 and > now is finding 90% of his cfs patients have borrelia. > > This leads me to wonder if Yasko has done genetic studies on folks > with tertiary syphilis. It seems that those who develop this stage of > syphilis should have a common DNA problem that makes them likely to > not clear the spirochete for syphilis. > > I have been told that borrelia causing Lyme is much more difficult to > treat than the spirochete causing syphilis. I wish I could hope that > Yasko's list of supplements and herbs would treat Lyme, or that the > DNA found in cfs is like autism. What cfs patients did she test? I > mean we cannot even group the cfs population as to causes. > > Please, I am not trying to ruin anyone's hope. I just want all of us > to get our heads together and THINK and TALK. Am I missing something? > I am sure I am. > > There are people infected with syphilis who do not develop the severe > tertiary disease with infection in the CNS. Perhaps they have the > genetic system to fight it off. I wonder what she would find in those > who cannot? Of course, since Tucaseegee we tend to give folks with > syphilis high doses of antibiotics. Hum, maybe we should do that for > Lyme disease. > > a Carnes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 I think it's a worthwhile discussion- because it adresses the group that's still ill that's already had abx therapy, called every Dr. that would see them, tried alternative therapies- etc. If you research syphilis ( and that's not a pleasant task and you probably did and as I have) you find that in untreated syphilis, a third of that population never went into the final stage (tertiary syphilis)... This is probably only because their immune system held it in check- but I don't know what illnesses they died of- so it's hard to say if it's un releated. I *do* think the immune status of the host is imperative. And the immune systems abilityies may have alot to do with tissue type. Personally- I think some of these bacteria - once resident within us- are there for life. Almost of the people on these lists are the non-responders. I think everyone with Lyme on Lyme.net has been thru Lyme therapies- conventional and unconventional... and most feel like they're just going in circles. ALmost all the Responders drop off the lists and go back to NOT having their health as the main issue determining the course of their daily lives-- so we never hear from them. Barb > > Okay, gang, give me a good swift kick if this offends. I keep trying > to get some discussion going, but just keep getting kicked. What do > you think? > a with tertiary borrelia > > > > Dr. Andy has found that 95% of his cfs patients have borrelia. > A doctor in Lousisanna said he has been treating cfs since 1991 and > now is finding 90% of his cfs patients have borrelia. > > This leads me to wonder if Yasko has done genetic studies on folks > with tertiary syphilis. It seems that those who develop this stage of > syphilis should have a common DNA problem that makes them likely to > not clear the spirochete for syphilis. > > I have been told that borrelia causing Lyme is much more difficult to > treat than the spirochete causing syphilis. I wish I could hope that > Yasko's list of supplements and herbs would treat Lyme, or that the > DNA found in cfs is like autism. What cfs patients did she test? I > mean we cannot even group the cfs population as to causes. > > Please, I am not trying to ruin anyone's hope. I just want all of us > to get our heads together and THINK and TALK. Am I missing something? > I am sure I am. > > There are people infected with syphilis who do not develop the severe > tertiary disease with infection in the CNS. Perhaps they have the > genetic system to fight it off. I wonder what she would find in those > who cannot? Of course, since Tucaseegee we tend to give folks with > syphilis high doses of antibiotics. Hum, maybe we should do that for > Lyme disease. > > a Carnes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Barb' A true recoverer of these ilnesses ... would be screaming with joy from the rafters. These diseases are that big and the problem is that multifaceted- that simple explanation/discussion isn't an answer. You basically want to know what YOUR trying to achieve in your own 40 or 50 year old body to get the best course of therapy/supplements/minerals/exercise going...You also don't want to sit around and ignore the obvious damages- I think that inflammation of the spine ain't pretty when you have to have steel plates installed in the lower and upper spine to give you support.This is a common finding in cfs autopsies, INFLAMMATION OF THE SPINE. Also Barb, PAula is constantly pointing to her mycoplasma diagnosis and she doesn't take the antibiotics recommended for it? tony > > > > Okay, gang, give me a good swift kick if this offends. I keep > trying > > to get some discussion going, but just keep getting kicked. What do > > you think? > > a with tertiary borrelia > > > > > > > > Dr. Andy has found that 95% of his cfs patients have > borrelia. > > A doctor in Lousisanna said he has been treating cfs since 1991 and > > now is finding 90% of his cfs patients have borrelia. > > > > This leads me to wonder if Yasko has done genetic studies on folks > > with tertiary syphilis. It seems that those who develop this stage > of > > syphilis should have a common DNA problem that makes them likely to > > not clear the spirochete for syphilis. > > > > I have been told that borrelia causing Lyme is much more difficult > to > > treat than the spirochete causing syphilis. I wish I could hope that > > Yasko's list of supplements and herbs would treat Lyme, or that the > > DNA found in cfs is like autism. What cfs patients did she test? I > > mean we cannot even group the cfs population as to causes. > > > > Please, I am not trying to ruin anyone's hope. I just want all of us > > to get our heads together and THINK and TALK. Am I missing > something? > > I am sure I am. > > > > There are people infected with syphilis who do not develop the > severe > > tertiary disease with infection in the CNS. Perhaps they have the > > genetic system to fight it off. I wonder what she would find in > those > > who cannot? Of course, since Tucaseegee we tend to give folks with > > syphilis high doses of antibiotics. Hum, maybe we should do that for > > Lyme disease. > > > > a Carnes > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Tony and Barb, Thanks for your comments on the DNA issues. One thing that is showing up in my family of 3 with borrelia is that we each have our own set of symptoms or had. Tony, I can't think of an antibiotic I have not taken. It has been years since I took a penicillin. Is that what you think I should take again? I got my month follow-up evaluation on my physical therapy for vertigo - to retrain the brain after nerve damage. I have improved a lot!!! The PT says he doesn't think my inner ear nerve will ever recover, but the brain will learn to work around it. I am so much better. This makes me hopeful that whatever bacteria was combining with the candidiasis or thrush, it is no longer active. We shall see. I am still taking Zithromax and garlic. a > Barb' > A true recoverer of these ilnesses ... would be screaming with joy > from the rafters. These diseases are that big and the problem is that > multifaceted- that simple explanation/discussion isn't an answer. You > basically want to know what YOUR trying to achieve in your own 40 or > 50 year old body to get the best course of > therapy/supplements/minerals/exercise going...You also don't want to > sit around and ignore the obvious damages- I think that inflammation > of the spine ain't pretty when you have to have steel plates > installed in the lower and upper spine to give you support.This is a > common finding in cfs autopsies, INFLAMMATION OF THE SPINE. > Also Barb, PAula is constantly pointing to her mycoplasma diagnosis > and she doesn't take the antibiotics recommended for it? > tony > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Your 11 years of antimicrobial therapy may have > produced a super outcome if you added say penicillin to your already > succesfull regime?You obviously are a good responder to zithromax yet > needed to take the next step up the ladder of improvment .. > tony Tony, you may be correct. I will have to see what my doctor is willing to do about this. a Quote Link to comment Share on other sites More sharing options...
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