Re: More infection questions Tony: Thanks Barb

[Guest guest]

-Barb,

Thanks so much for your reply.

It is so good to hear from another horse lover.

The earliest memories I have are loving horses and they told me if

you kiss at a red bird and make a wish it would come true.

I would follow that red bird kissing until out of site wanting a

pony.

The love for them has been so deep but I have also felt so bad that

I could not feel anthing and this was not depression.

I did not show any coinfections. I was positive on the western blot

with 10 band both IGG and IGM but only cdc positive with the IGG.

I did do a roatation of two combined antibiotics I can't remember

the names but quinine with clindamycin I think and it was for 10

days then placqunil with biaxin xl.

Both were 10days then back to the first combination then back to the

second combo.

That was a total of 40days.

The first couple of days on the biaxin was a very strange experience.

It made me feel like I was seeing stars but it almost stimulated me.

I stopped it after about three days.

During that time I had to make a trip to town. I needed to go to a

feed store that I had been to often.

I drove around town three times and could not think how to get there.

This was not a bad spacey feeling like it sounds.

Normaly when I am spacey I am sleepy with it.

I had good energy that day. I would see things I reconized but

could not think how to get where I need to be.

I was only a block from the feed store when I could not find it.

Anyway after staying off the biaxin for a couple of weeks I went

back to try and didn't feel like that.

It was the best I felt. I was not sure if that was a side effect.

Later I tried that combination again and didn't feel as good.

Then I went to ramfin and after the third week felt less pain.

Not sure if that was why.

I am currently taking it for 30 days again.

So none of that makes any sense but if anyone else travels along and

reads my experience and something sounds familiar then they are not

alone.

I learn more from other people feeling bad than any medical info

source.

If I can ever help someone else with what I might have learned I

would like to reach out.

Sorry for being so long.

Sandy

-- In infections , " Barb Peck "

<egroups1bp@...> wrote:

>

> Sandy:

> I knew you were a fellow horse owner by your email handle.

>

> I also have horses, and went through periods were I couldn't walk-

> much less ride - so I know the feeling of not being able to do

> something you live to do.

>

> You are probably infected with multiple pathogens, *maybe*

stemming

> from the immune supression that Lyme can induce in some people.

>

> I had alot of neurological problems I won't get into right now,

> but I also had measurable blood anomolies:

> Low body temp, low Lymphocytes, periodic fevers, abnormal RBCs

(RBC

> fragments, many young RBCs- not too many older ones) and anemia.

>

> What lab did your Lyme tests-? Did you have PCR or western blot?

> And how long were you on abx.... where you tested for Babesia?

>

> Barb

>

>

>

>

>

> >

> > Tony,

> > Thanks for all the helpful information on infections.

> ..................

> >

> > I have to take a stimulant to stay awake. I don't have

narcoplsey

> > but do feel brain dead and so sleepy without it.

> > If I am awake this late it is because I took something to late.

> > Sometimes these stimulants do not help.

> >

> > Pain is much worse than in the beginning of this.

> > The neck and should pain was dx at first bursitis then

tendonitis.

> > Way back when it started I didn't feel bad all over or tired.

> > I use to show horses and could not get enough of the barn or

them.

> > Now I just don't know if there is any hope that things will ever

be

> > better.

> > After being treated for the lyme and talking several of those

> > different antibiotics didn't help much. I feel like any hope is

> > leaving.

> > Do you think mercury plays any part in this? I only have three

> > amalgams. I don't know if you remember a post last week but I

was

> a

> > dental assistant for two years. Do you feel that vaccinations

make

> > people sick?

> > Do these pathogens make our body temperature go down? Tests for

> > thyroid low normal and cytomel didn't help.

> > I sure hope you don't mind questions.

> >

> > Thanks,

> > sandy

> >

>

[Guest guest]

Oh Sandy I know just what you're talking about -

I more than once was driving along my own road, and didn't know where

I was... or I'd forget the way to somewhere familiar.

I'd lost the ability to see bright red gradually over a long period,

and didn't even realize it.

My bisual field was a mess, my Opthalmolgist said I'd be going blind

soon becuase I had inflamation and opticneuritis pretty bad. I had

headaches of varying insensity for 27 days out of every month.

I was taking over 400 grams of ibuprophen a year for pain.

I thought my mind was shot, and that my next dx would be Alzhiemers.

I was already carrying a few autoimmune disorder dx's and had an

operating tolerance so narrow, I hardly ate anything.

I had been surviving by alternative therapies- and kept refusing

the (immunosupressant) drugs.

I figure if I can get better - others can too.

Hang in there- see your LLMD again-

I think it's Lyme lingering.

Barb

> > >

> > > Tony,

> > > Thanks for all the helpful information on infections.

> > ..................

> > >

> > > I have to take a stimulant to stay awake. I don't have

> narcoplsey

> > > but do feel brain dead and so sleepy without it.

> > > If I am awake this late it is because I took something to late.

> > > Sometimes these stimulants do not help.

> > >

> > > Pain is much worse than in the beginning of this.

> > > The neck and should pain was dx at first bursitis then

> tendonitis.

> > > Way back when it started I didn't feel bad all over or tired.

> > > I use to show horses and could not get enough of the barn or

> them.

> > > Now I just don't know if there is any hope that things will

ever

> be

> > > better.

> > > After being treated for the lyme and talking several of those

> > > different antibiotics didn't help much. I feel like any hope

is

> > > leaving.

> > > Do you think mercury plays any part in this? I only have

three

> > > amalgams. I don't know if you remember a post last week but I

> was

> > a

> > > dental assistant for two years. Do you feel that vaccinations

> make

> > > people sick?

> > > Do these pathogens make our body temperature go down? Tests

for

> > > thyroid low normal and cytomel didn't help.

> > > I sure hope you don't mind questions.

> > >

> > > Thanks,

> > > sandy

> > >

> >

>