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  • 9 years later...
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Hi everyone,

We just had Allie's first MRI today and her ortho just called and there is

something there. He said the radiologist has never seen it before but there is a

abnormality in the spinal cord where her curve is. He said it did not look like

a tumor or cist but it looked like a thickening tissue. Has any one else had

this. Or any theroies on what this could be. HELP!!!!

Thanks

Amy

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Hi Amy,

Please request the diagnostic reports from

the surgeon/radiologist. Did the surgeon concur with the radiologists findings

and what is his diagnosis and plan?

Try not to start worrying until you have

all the info. Easier said than done, I know.

HRH

From: infantile_scoliosis [mailto:infantile_scoliosis ] On Behalf Of my3girls06@...

Sent: Thursday, May 14, 2009 11:41

AM

To: infantile_scoliosis

Subject:

HELP

Hi everyone,

We just had Allie's first MRI today and her ortho just called and there is

something there. He said the radiologist has never seen it before but there is

a abnormality in the spinal cord where her curve is. He said it did not look

like a tumor or cist but it looked like a thickening tissue. Has any one else

had this. Or any theroies on what this could be. HELP!!!!

Thanks

Amy

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Hi,

Thanks for the email. Her ortho has read the MRI. He called me back last night after he was able to read it himself. He is getting us into the Ped. Neurologist next week. He said that he is very surprised Allie has no symptoms from what ever this is( besides her little crooked spine). I hope that is a good sign. We also have a second opinion already scheduled at University of Va. June 3. All the waiting is driving me crazy. I guess that is something we all deal with, it just stinks. I want answers on my time not the Dr's time. Is that to much to ask for!!!

Amy~

To: infantile_scoliosis Sent: Thursday, May 14, 2009 10:52:39 PMSubject: Re: HELP

Hi Amy,

I am so sorry, first of all.... Please try to breathe.... I know it's hard. Which doc is reading this MRI? I would take it to the most reputable hospital you can find and have them re-read it....... If you don't find answers the first time, seek second, third and fourth opinions until you get what you need. Hang in.... Praying for you, Steph

From: my3girls06verizon (DOT) net <my3girls06verizon (DOT) net>Subject: [infantile_scoliosi s] HELPTo: infantile_scoliosis @yahoogroups. comDate: Thursday, May 14, 2009, 5:40 PM

Hi everyone,We just had Allie's first MRI today and her ortho just called and there is something there. He said the radiologist has never seen it before but there is a abnormality in the spinal cord where her curve is. He said it did not look like a tumor or cist but it looked like a thickening tissue. Has any one else had this. Or any theroies on what this could be. HELP!!!!ThanksAmy

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