Re: Holter Monitor?... Damaged Cerebellum?..POTS?

[Guest guest]

Dear Regina,

Pressing the button marks the tape where you FELT an issue. Other issues

going on which you DON'T feel are recorded - It records for a full 24 hr period

(at least mine did).

You may want to find a Chiari specialist - one who ONLY deals with Chiari and

related conditions. The specialist may be interested in all the issues going on

and be capable of tying them all together.

May today bring you much love, kindness, relief, compassion, and

understanding!

With kindest remembrances ~ Namaste,

(appt w/ Dr. Bolognese July 9! – 43 years of wondering will be over)

4 family members diagnosed with Chiari

12 yrs old - Chiari I, Tethered Cord Syndrome<TCS>, Pseudotumor-LIKE

Cerebri, Syringomyelia, and Basilar Invagination - Surgery for TCS coming up on

July 10!

www.caringbridge.org/visit/laurenh

Dan 15 yrs old - Chiari I malformation, decompressed in '98, continued

herniation on the right side, Basilar Invagination, and most likely Tethered

Cord Syndrome, appt w/ Dr. Bolognese July 10!

www.pressenter.com/~chip/danny.htm

Mike 21 yrs old - Chiari I malformation, Basilar Invagination, and most likely

Tethered Cord Syndrome, appt w/ Dr. Bolognese July 9!

Regina Burton wrote:

Hello To Everyone,

I have a 24 HR Holter monitor on and I was wondering something. Does it record

your heart continuously? I always thought it did. If that is true why do you

have to push the event button when you feel something going on with your heart?

I saw a Cardiologist this week. I picked one that also has an Internal Medicine

background and has had a few CM patients in the past. When I told about my legs

collapsing, going numb and the weakness. I was told that the Cerebellum can be

permanently damaged. True or false? If so how?

The Cardiologist understood about POTS and said that the problem originates in

the hind brain where the signals get mixed and that's why falling/passing out

occurs.

I was told there was nothing that can be done about POTS. The thought that went

through my mind was; Isn't that what Merrisa Irwin (Sorry if I miss spelled your

name) have? Didn't that problem resolve after she had surgery?

Anyone know the answers to these questions? I hope so.

Thank you for all your help. I'm so glad you all are here.

Take Care,

Regina,

ACM1 11mm SM C6-T1

Decompressed Oct. 15, 2001

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