Re: Re: Thanks!

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More questions? Have you ever known any children to be not candidates for ET? Lillyanna was turned down by Chicago as "too medically involved". I did get them to agree to at least evaluate her in person. My problem is my Mother has end stage lung cancer. So I am afraid to ask for an appointment that I cannot keep.

To: infantile_scoliosis Sent: Thursday, May 14, 2009 12:35:24 PMSubject: RE: Re: Thanks!

Thanks Heidi, Krista, Jill, Connie, Shell, and everyone….

She will be fine. Its just hard always having to wait. I have been waiting and watching her spine get worse (which effects every aspect of her life, physical & emotional) for 11 years and Im sick and tired of it. Its never ending…. Im tired of watching my child suffer with this progressive condition, when it could have prevented…..I am completely and totally disturbed by this and that’s why I will never stop raising ET awareness.

Grateful to have you all on the ET side!!!

NO MORE WAIT & WATCH!!!

HRH

From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of NIck GutheSent: Tuesday, May 12, 2009 10:48 PMTo: infantile_scoliosis @yahoogroups. comSubject: RE: [infantile_scoliosi s] Re: Happy Mother's Day

,

I agree with Krista, that inner gut feeling that Olivia will be okay is the truth...whether or not you believe in God or the universe, whatever name anyone wants to give that inner feeling of truth (some call it women's intuition).. .I believe that is the voice of God speaking to you. She will be okay, no matter what. And so will you. Trust in that feeling. I know it can come and go and be fleeting at times, but when it comes, you know, and you know in your cells it's the truth.

Love,

Heidi

From: Rochelle West /Devyn West <coolesttwinkie@ yahoo.com>Subject: [infantile_scoliosi s] Re: Happy Mother's DayTo: infantile_scoliosis @yahoogroups. comDate: Monday, May 11, 2009, 7:58 PM No need to apologize. I think that this is what you need. Talking andexpressing your feelings and what is frustrating you is great healing power. Ifyou continue to trudge through each day without sharing the anger, frustration,and sadness you are feeling for yourself and Liv I think it would just makesense that you woud feel worse.. That is why you designed the support group, forparents to share thoughts, ideas, and feelings. We all appreciate you so much,that I, and am sure many others are more than happy to listen. Love Ya Rochelle > > >> > > Being a mom is hard if you do it right. I agree. This isdefinitely the> > > most difficult job I have ever had. Rewarding yes, butextremely> > > challenging. > > > > > > This group teaches me something new everyday, too. Not aboutcasting, but> > > about life in general.. As you know, I have had a hard timeaccepting that> > > my daughter is one of the children that has fallen through thecracks.> > > Somehow I cant seem to separate acceptance, from giving up. Itshard to> > > make the differentiation because I know that by not acceptingthe diagnosis> > > and standard offered treatments (fusion, hardware at age 2) hassaved my> > > daughters life. I have been fighting to get the best treatmentsfor Liv to> > > ensure best quality of life for so long, that I am having a hardtime giving> > > up the fight. When I know that I must, for my own health. Itry to look at> > > this as a process, not a battle. But, that's hard when herdoc and I are> > > still trying

to figure out the best way to treat her scoliosis. It's a> > > never ending saga for children who have fallen through thecracks..> > > > > > This group (friends, experiences, challenges, etc.) has taughtme that> > > accepting Olivias reality is NOT giving up, its accepting thatwe will have> > > continual challenges and that living in a constant battle isgood for no> > > one. > > > > > > Tasha, you are such an asset to CAST. Have a wonderful day,tomorrow and> > > Sunday. You deserve it!> > > > > > Hugs,> > > > > > HRH> > > > > > > > > > > > _____ > > > > > > From: infantile_scoliosis @yahoogroups. com> > > [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of TashaFontenot> > > Sent: Friday, May 08, 2009 7:59 AM> > > To: infantile_scoliosis @yahoogroups. com> > > Subject: [infantile_scoliosi s] Happy Mother's Day> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I just wanted to say

Happy Mother's Day to all the Moms outthere. > > > Boy is being a Mom one of the hardest jobs I have ever had. Andat the same> > > time one of most rewarding.> > > I know over the past few years I would not have been able tomake it without> > > you guys.> > > Each and every one of you have helped me in some way. I maynever mentioned> > > it, but every post has taught me something. I learn so muchhere. And it> > > may not always be hard to stomach, but coming from another Momthat is going> > > through what I am,

seems to help and make it easy.> > > The support and love this group(of mainly Moms)gives brings meto tears> > > sometimes. > > > I can truly come here and pour out my heart and know I will getjust what I> > > need to make me feel better. That is because another Mother isfeeling

what> > > I am somewhere. Has been there, will be there and willing tohelp in> > > anyway.> > > I love you ladies and pray you have a blessed day. > > > Pamper yourself. Take a day off if you can. Do something FUN!> > > I am planning my 3rd annual Pre-Mother's Day day

offtomorrow. Breakfast,> > > pedi and shopping!!! What else could a Mom want?!> > > Anyway just wanted all you Moms to know I am so thankful andblessed to have> > > you in my life. Maybe one day we will have that slumber party.> > > God bless and have a GREAT Mother's Day!> > > Tasha> > > Mommy of 4 year old twin boys- and > > > Fort Worth, Texas> > > is currently in a brace at night.> > > Casting 14 months.> > >> >> ------------ --------- --------- ------