11 weeks Post Op CCF-Injured Neck!!!Ideas???

June 9, 2007

Happy Saturday everyone...anyone else go through this?

Yesterday I was sitting on the couch and leaned back to place a pillow under

my head when I injured my neck.

I had leaned into the back of the couch and it felt like my plate, and rods

came off of my skull. It's hard to explain. I have been in pain since then.

I have a feeling of throat tightness, pain in my left side of my neck

radiating into my face and left ear. I also have pain in my collarbones on

each side.

When I move I hear a cracking type sound in my neck. I am also getting some

arterial spasms again in my neck. My legs were feeling very weak before my

injury yesterday, but after I hurt myself, my legs seemed to feel better.

It feels as if the screws holding the plate in are " backing out " . This

" backing out " feeling has been going on for several weeks.

Immediately after surgery, I was happy to feel that my lower jaw/teeth were

not pushing out and into my upper jaw/teeth, but at about 3 weeks post op I

could feel this same lower teeth pushing against my upper teeth. Now I look

as if I have " buck teeth " . My lower back ( where the TC surgery was done) is

also " popping " a lot.

My primary concern though is my injury yesterday. I have been able to sleep

1 1/2 hours last night. I was finally off my dilaudid and only taking 7.5mg

of methadone/day. After I hurt my neck I started taking 4mg of dilaudid

again...I am in a lot of pain.

I did call my PCP last night, she recommended that I go to the ER for an

x-ray. I will be doing that this morning. I also emailed Dr. B but always

hate to bother him especially on the weekends...

Is this something you have seen before? I do have a possible EDS diagnosis

as well...would this possibly make the fusion not work?

Thank you all for any responses. I may not be able to answer as I am going

to the ER. I will let you know my outcome though.

Darcie in the Sierra Foothills, California.·:*¨¨*:·.

Lyme Disease 2002-18mo Antibiotic Therapy

Chiari l, Decompressed TCI 11/03/04 TCI-No Cranioplasty

Cord Detethered 11/13/06

Cranioplasty, ICT, & CranioCervical Fusion 03/26/07

Craniocervical Instability

Klippel Feil Syndrome

EDS

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