Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 Hi all, We are new to this support group. Our daughter Alana, 5, was first diagnosed with Schizencephaly when she was just one. We recently sat down with her new neuro, and she explained to us that Alana has the clefts seen in Schizencephaly, but they were not deep enough to be called a " true " Schiz. case. The radiologist gave Alana the diagnoses of PMG with secondary Schiz. Makes no sence to us, but we are eager to learn about this " new " diagnoses. Alana is unable to sit alone, crawl, talk, or do anything that requires any physical strengths. Alana is able to, shake her head yes and no, point to everything she wants, and has the most contagious laugh you would ever want to hear. We adopted Alana from India. She came home to us believing she was a " normal " little girl. As soon as I saw her come off the plane I knew something wasn't quite right. As soon as Alana was put into my arms it was instant LOVE. Alana has five siblings who dote on her when daddy and mommy are busy. She is one of the greatest gifts our family has been given. She is our light in the darkness. Lori Mom to Alana 5 1/2 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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