Re: Digest Number 210

[Guest guest]

Hey can the caffeine possibly aggravate the system and cause changes

in the electrical impulses in the brain? We don't let Wes drink much

caffeine because of possible seizures.

Patty

>

>Reply-To: polymicrogyriaonelist

>To: <polymicrogyriaonelist>

>Subject: Re: Digest Number 210

>Date: Sun, 2 Apr 2000 10:36:17 -0500

>

>Kim,

>

>The Hgb is fine at 11.9 g/dL. The range for his age is 10-15 g/dL.

>Does Teddy have a history of anemia, or is he on drugs that can decrease

>Hgb?

>

>As far as the ritalin goes, your son would need bloodwork IF he has

>diabetes because eating will decrease while on ritalin and blood sugar has

>to be carefully monitored.

>The other things that the nurse asseses for are: height, growth rate every

>3 months in kids because growth rate may be decreased while on ritalin. It

>can also affect sleep and speech patterns, cause agressiveness and affect

>mood. You should avoid caffeine (chocolate, tea, cola) because it can

>increase irritability and stimulation.

>

>Hope this helps a little

> Re: [PMG] File - rollcall- Damian

>

> Hi everyone,

> My son Damian is 20 months old. He is also our first son. Damian is

> diagnosed with PMG. He began having his first seizure at about one

>month

> old. Then didn't have any until he was 3 months old. The neuro quickly

>put

> him on phenobarbital. It didn't help and it just made Damian very

>drowsy and

> out of it. He has tried 8 meds. to help but none worked. Some of the

>meds

> gave him dyskenisia and hives. (NOT A PRETTY SIGHT)

> Finally when we moved from California to New Jersey, Damian got the

>best

> care he could possibly have. He was seen by a specialist neurologist

>who

> only works with special needs children with brain migrational problems.

> Right now he is on lamictal 2 tablets twice a day. In january he also

>got

> the VNS implant put in. It has really helped a lot with his seizures.

>He

> used to have at least 10 a day and now probably has at least 3 or less

>and

> lasts a minute or less. He has myoclonic jerks. This is the best

>decision

> we ever made to help Damian. He has become more aware and alert and

> interacts a lot with us.

> He is globally delayed. Doesn't sit unsupported, crawl (hates being on

>his

> belly), have full head control, or grabs anything. He recently got a

> stander this week and we are very excited. He also got a special kind

>of

> stroller which helps alot with his sitting support.

> He recieves therapy Tues - Fri Speech and O.T on Tues, P.T on Wed &

>Thurs,

> and has a special ed teacher on Fri. He also goes to a daycare which he

> loves very much. At that daycare it is mixed w/ special needs and non

> special needs children. There is only 6 children in his class and 3

> teachers. They take good care of him and they all love Damian very

>much.

> He also takes propulsid, zantac for acid reflux and lactilose for

> constipation. Damian is doing very good and we couldn't ask for

>anything

> better as long as he is happy.

>

> -Sharon and (Parents of

>Damian)

>

>

> ________________________________________________________________________

> ________________________________________________________________________

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