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Little Edvard

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We are a Swedish family with a three years old boy; a real wonderboy and

Edvard, 10 weeks old and recently diagnosed with ILS or PGM or both. We are

waiting for MRI later this spring to know for sure. No real outward signs yet,

Edvard is a wonderful and extremely sweet little baby. Mothers intuition told

her something was wrong though....and mothers are always right as the CT scan

showed.

We worry about the future and what our lives will be like, and are heppy to have

found this forum for information and support!

Regards Anders and andra Granquist

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