Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Tony, So what is the treatment for a sinus infection? different ABX? How easy are sinus infections to diagnose? It would seem easy. But it isn't, even when you have green snot literally running out your nose for months. My husband got a sinus infection that eventually spread into 3 sinus cavities from 1. They cultrued 3 times, and came back with NADA. He was on months of ABX for sinus infections and NADA. They shoved needles into his face 2 times to try to flush out the infection, NADA. Eventually he had to have yet another sinus surgery. What were the doctors not testing for? Doing what Penny suggested and stop going after the obscure illness and go after what is known, doesn't always work. He spent 9 months with several docs on a sinus infection with no relief what so ever, until surgery. I would think they would have been looking for staph along with whatever else? > > > > But what has to be in your sinus for it to be considered a > pathogen, > > assuming you dont have sinus or upper respiratory symptoms? > > > > Isnt there a flora up there thats supposed to be there? What > finding > > would we be after? > > > > With bone I guess its much simpler as theres not believed to be a > > commensal flora there. > > > > > What would be simpler for everyone is if people would attempt to > > get dx'd > > > for infectious diseases that are acknowledged by medicine and > paid > > for by > > > insurance. Instead of focusing all our efforts on controversial > > infectious > > > diseases that are hard to test for (like lyme and mycoplasma), > why > > not go > > > after dx's that are pretty uncontestable? For example, the sinus > > and bone > > > infections that so many of us have (among others). Insurance > > companies will > > > pay to treat these diseases indefinitely, once you can get the > dx. > > One, > > > because they can't argue the existence of sinus infections, and > > two, because > > > osteomyelitis (bone infection) is considered life threatening. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 I have had sinus infections for nearly 20 years. Yes, literally. Not a day that I don't have the green, yellow, sometimes bloody gook running down the back of my throat. Having my 5th surgery in 2 weeks. I swore that I would not have another surgery as surgery has never cured me. The reason I am consenting is because he told me he is going to do a lot of cultures. I wonder what I should ask for. Already know I have psuedomonas. I basically don't have any sinuses left so function is not the reason for surgery. My understanding is that he is going to clean, clean , clean. Marie --- jellybelly92008 <herranenb@...> wrote: > Tony, So what is the treatment for a sinus > infection? different ABX? > How easy are sinus infections to diagnose? It would > seem easy. > > But it isn't, even when you have green snot > literally running out > your nose for months. My husband got a sinus > infection that > eventually spread into 3 sinus cavities from 1. They > cultrued 3 > times, and came back with NADA. He was on months of > ABX for sinus > infections and NADA. They shoved needles into his > face 2 times to > try to flush out the infection, NADA. Eventually he > had to have yet > another sinus surgery. > > What were the doctors not testing for? Doing what > Penny suggested > and stop going after the obscure illness and go > after what is known, > doesn't always work. He spent 9 months with several > docs on a sinus > infection with no relief what so ever, until > surgery. I would think > they would have been looking for staph along with > whatever else? > > > > > > > > But what has to be in your sinus for it to be > considered a > > pathogen, > > > assuming you dont have sinus or upper > respiratory symptoms? > > > > > > Isnt there a flora up there thats supposed to be > there? What > > finding > > > would we be after? > > > > > > With bone I guess its much simpler as theres not > believed to be > a > > > commensal flora there. > > > > > > > What would be simpler for everyone is if > people would attempt > to > > > get dx'd > > > > for infectious diseases that are acknowledged > by medicine and > > paid > > > for by > > > > insurance. Instead of focusing all our efforts > on > controversial > > > infectious > > > > diseases that are hard to test for (like lyme > and mycoplasma), > > why > > > not go > > > > after dx's that are pretty uncontestable? For > example, the > sinus > > > and bone > > > > infections that so many of us have (among > others). Insurance > > > companies will > > > > pay to treat these diseases indefinitely, once > you can get the > > dx. > > > One, > > > > because they can't argue the existence of > sinus infections, > and > > > two, because > > > > osteomyelitis (bone infection) is considered > life threatening. > > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 That's the point. Not only does it not "always" work, it almost never works and THAT's because we're not complaining loudly enough for proper testing. People ARE complaining about lyme, and some docs listen. We need to keep complaining loudly enough about all the infections that are actually easy to dx to finally start getting proper attention. Insurance companies cannot deny the existence of these organisms nor their treatments. But we, and our doctors, have to stop ignoring them first. Insurance companies are happy that everybody's ignoring them for now, because it saves them boat loads of money. Until we start banding together and yelling about the poor treatment we're receiving, we'll be stuck here in auto-immune land, or being told it's "all in your heads". My whole point is, it's NOT easy but it SHOULD be easy. But it never will be until we start demanding better care. That means whatever it takes. If one doc ignores you, you keep looking until you find one that will help. They are out there, and you'll recognize them when you see them because they're so reasonable. But they are not easy to find. penny jellybelly92008 <herranenb@...> wrote: Tony, So what is the treatment for a sinus infection? different ABX? How easy are sinus infections to diagnose? It would seem easy.But it isn't, even when you have green snot literally running out your nose for months. My husband got a sinus infection that eventually spread into 3 sinus cavities from 1. They cultrued 3 times, and came back with NADA. He was on months of ABX for sinus infections and NADA. They shoved needles into his face 2 times to try to flush out the infection, NADA. Eventually he had to have yet another sinus surgery.What were the doctors not testing for? Doing what Penny suggested and stop going after the obscure illness and go after what is known, doesn't always work. He spent 9 months with several docs on a sinus infection with no relief what so ever, until surgery. I would think they would have been looking for staph along with whatever else? > >> > But what has to be in your sinus for it to be considered a > pathogen, > > assuming you dont have sinus or upper respiratory symptoms? > > > > Isnt there a flora up there thats supposed to be there? What > finding > > would we be after? > > > > With bone I guess its much simpler as theres not believed to be a > > commensal flora there. > > > > > What would be simpler for everyone is if people would attempt to > > get dx'd> > > for infectious diseases that are acknowledged by medicine and > paid > > for by> > > insurance. Instead of focusing all our efforts on controversial > > infectious> > > diseases that are hard to test for (like lyme and mycoplasma), > why > > not go> > > after dx's that are pretty uncontestable? For example, the sinus > > and bone> > > infections that so many of us have (among others). Insurance > > companies will> > > pay to treat these diseases indefinitely, once you can get the > dx. > > One,> > > because they can't argue the existence of sinus infections, and > > two, because> > > osteomyelitis (bone infection) is considered life threatening.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 Thanks Penny, I hope he is as good as I think he is. At least he listens. It has only taken me twenty years to find a good ENT doc. I think it is my turn. Marie --- Penny Houle <pennyhoule@...> wrote: > That's a relief. Suctioning sounds good. Best of > luck, > Marie. He sounds like a very decent ENT. > > penny > > --- Marie Mayberry <msmabrry@...> wrote: > > > I am sure I have very little cilia left and I do > > regular irrigation. > > > > I am not sure of his technique. He said he wanted > to > > suction and really clean and take cultures. I > guess > > I > > need to talk to him again. I am about to call his > > office as don't have any more office visits > > scheduled > > before the surgery. He knows there is not much > left > > of > > my sinuses as he has taken two catscans since last > > Sept. The passages are clear but there is disease > in > > the maxilarry and ethmoid sinuses that won't > clear. > > Occasionally I irrigate thick rubbery brown gunk. > I > > immagine that is what is sitting there. Too old > and > > thick to come out. > > > > He is using an advance imaging technique so he > knows > > exactly where he is and an endoscope.I expressed > to > > him that I didn't want cutting just cleaning. He > > seems > > very cautious about doing more damage and is > viewing > > surgery as a last resort so I am cautiously > > optimistic > > that he knows what he is doing. I read your report > > about the balloon technique. I don't think opening > > is > > the issue. The CAT shows that the sinuses are huge > > and > > open from previous surgeries. > > > > Marie > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.