Re: Tip Toes and sitting comfortably NCc

[Guest guest]

This is the exact opposite of what everyone is talking about, although I, too,

sit up on my toes and sleep with my knees bent. Has anyone felt an overwhelming

urge to stretch themselves out as far as they can?

Sometimes I feel like I've been curled in a ball too long, and I have to

stretch. Anyone else, or am I just the odd one? I have a dx of TC.

in Baltimore

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[Guest guest]

Yes at times all I went to do is just stretch out as far as I can go. Even then

it is not far enought.

Christel

Re: Tip Toes and sitting comfortably

NCc

This is the exact opposite of what everyone is talking about, although I, too,

sit up on my toes and sleep with my knees bent. Has anyone felt an overwhelming

urge to stretch themselves out as far as they can?

Sometimes I feel like I've been curled in a ball too long, and I have to

stretch. Anyone else, or am I just the odd one? I have a dx of TC.

in Baltimore

__________________________________________________________

Luggage? GPS? Comic books?

Check out fitting gifts for grads at Yahoo! Search

http://search.yahoo.com/search?fr=oni_on_mail & p=graduation+gifts & cs=bz

[Guest guest]

I have had nocturnal spasms since maybe 2002 in a mild form, then it

got worse and worse. Certain medications worsen this night time hell.

Starting in 2002 while on antidepressants, trial of many, but the

arm jerking started in 2002. That is when I noticed I couldn't lay

on my back to do visualization tapes. Very uncomfortable feeling in

throat, and pulling down my spine that I could feel in my chest &

abdomen. I also got weird muscle twitches just under the rib cage at

that time.

Since then I am at the point where I sleep on my sides with legs

drawn up and I awaken with my neck down on the pillow, also bent

forward. I have many sx's of pain at base of skull/neck with

cracking/popping sound that I feel into the head sometimes with

horrible pain.

Now, and last night the latest time I get full body spasm in that my

full abdominal muscles, my back muscles, my neck muscles spasm into

my head that feel electric charges. I got rigid in limbs like an

uncontrolled stretch.

Sometime back it started that following the contracting spasms my

body, specifically legs go straight and rigid with toes pointing. I

always felt the contracting spasms were cause I slept curled up and

needed to move. The rigidity, going straight in spasticity started

about a yr ago +. Like a spasm in reverse. I can't move. Stuck in

that position for maybe 30 secs, hard to say how long. It will

repeat unless I get up and get out of bed, which is sometimes hard

to do when you are so tired and in that electric charged mental

state where you can't will yourself to do things.

For about 7 mos at least, since I had to move I have had spasticity

standing up in the early AMs. It will continue for a minute or so

mostly in the trunk, but I go into this brain freeze that it is hard

to scan my body and fully know what is happening.

I don't know if this is SM related, that I have been dx with. I just

know things have gotten worse. Sometimes I think I have MS, but the

LP last yr supposedly ruled that out.

Those with spasms and rigidity, can you relate? I wonder if it is

not SM, CM. But what?

>

> This is the exact opposite of what everyone is talking about,

although I, too, sit up on my toes and sleep with my knees bent.

Has anyone felt an overwhelming urge to stretch themselves out as

far as they can?

> Sometimes I feel like I've been curled in a ball too long, and I

have to stretch. Anyone else, or am I just the odd one? I have a

dx of TC.

> in Baltimore

>

>

>

>

_____________________________________________________________________

_______________

> Luggage? GPS? Comic books?

> Check out fitting gifts for grads at Yahoo! Search

> http://search.yahoo.com/search?

fr=oni_on_mail & p=graduation+gifts & cs=bz

>

>