RE: Re: What to do politically

[Guest guest]

It seems to me from what has been reported that this Dr. has been

accused of over treating some people, yet what I observe on mass is

under-treatment. Penny and tony, I know your frustration but you seem

to be hell bent on DEMANDING more tests and better tests. Yet in all

the years I have been observing this nightmare, I have found the tests

to be very wanting. As seems to be a VERY common case. I know of no

real test that proves an evidence of fungi overgrowth net alone all the

other clandestine buggers.

Would Penny and Tony, please tell me exactly how you see the perfect

testing scenario I.e, what tests that you know of that are considered

(respected) as being accurate and would give you and everyone else the

answers that were after.

b

On 16 Jun 2006, at 16:38, Barb Peck wrote:

> Agreed.

> It's the message that just got sent..

>

> It's, see what we can do to you if you don't get in

> line with the rest of us?

>

> Barb

>

>

> >

> > > I think the most powerful way to respond to the

> > > current status quo is

> > > to collectively PRODUCE A DOCUMENTARY coving these

> > > issues.

> > >

> > > There is much to talk about. I.e. inadequate

> > > treatment, poor testing,

> > > (and quiet death to the victims), defensive medicine

> > > by mainstream Dr.

> > > who don't take any chances, and those very few Dr.

> > > who do step outside

> > > the box and do the best they can, end up the targets

> > > of which hunts by

> > > some very iffy agendas (these agendas cannot claim

> > > ignorance in such

> > > cases.)

> > >

> > > Our winges on online bulletin boards are very easily

> > > ignored (if ever

> > > heard).

> > >

> > > This latest case could act well as the protagonist.

> > > bleu

> > >

> > >

> >

>

>

>

[Guest guest]

Are we being too nice and too safe?

People going to Dr. ’ hearing

were told to be quiet and polite and walk in like sheep. Why not stand outside

the courthouse and scream? No one is hearing us!!!

a

Agreed.

It's the message that just got sent..

It's, see what we can do to you if you don't get in

line with the rest of us?

Barb

>

> > I think the most powerful way to respond to the

> > current status quo is

> > to collectively PRODUCE A DOCUMENTARY coving these

> > issues.

> >

> > There is much to talk about. I.e. inadequate

> > treatment, poor testing,

> > (and quiet death to the victims), defensive medicine

> > by mainstream Dr.

> > who don't take any chances, and those very few Dr.

> > who do step outside

> > the box and do the best they can, end up the targets

> > of which hunts by

> > some very iffy agendas (these agendas cannot claim

> > ignorance in such

> > cases.)

> >

> > Our winges on online bulletin boards are very easily

> > ignored (if ever

> > heard).

> >

> > This latest case could act well as the protagonist.

> > bleu

> >

> >

>

[Guest guest]

Tony, the hearing room was packed with

people turned away because there wasn’t room for them all. Same with the

hearing going on up north for Dr. . One thing that factors in when you

talk about southern US is the culture. People there tend to accept authority.

They don’t generally have public protests. Jemsek’s patients were

southerners with Lyme – a reality no one wants to admit, at least no one

in power.

a

Bleu

Where are all the wonderfull patients that are jumping with joy for

getting a treatment program that worked???My experience with

something resembling what this guy tries is 3 days of feeling great,

then 3 days of feeling near death and just after recovering a little

the same attempt at therapy still made me feel DEATHLY ILL.

The stupidity that keeps the ball rolling with these types of

thinkers is the 3 day wonder period that I experienced - BUT IT

AIN'T COMING BACK- WHEN YOUR USING A DRUG THAT'S DESIGNED TO KNOCK

OUT GRAM NEGATIVES, THE GRACE PERIOD WITH THE KNOCKING DOWN OF THE

GRAM POSITIVES GOES AND THEY COME BACK AT YOU ANGRY.

This is just my opinions of course. I would hate to stop anyone

attempting a lyme IV therapy based on those poor choice group of

drugs, I have seen hundreds (zero) people on forums yelling there

success with those therapies.

But the truth is we do see many people getting a major leg up and

feeling almost normal with general antibiotic combinations not to

forget the antifungals which is what alway's gives me a pointer as

to why we should never ever discount the staphs,

pseudonomas,candida's of these ilnesses.

>

> I think the most powerful way to respond to the current status quo

is

> to collectively PRODUCE A DOCUMENTARY coving these issues.

>

> There is much to talk about. I.e. inadequate treatment, poor

testing,

> (and quiet death to the victims), defensive medicine by mainstream

Dr.

> who don't take any chances, and those very few Dr. who do step

outside

> the box and do the best they can, end up the targets of which

hunts by

> some very iffy agendas (these agendas cannot claim ignorance in

such

> cases.)

>

> Our winges on online bulletin boards are very easily ignored (if

ever

> heard).

>

> This latest case could act well as the protagonist.

> bleu

>

[Guest guest]

I just want to cry now.

Seriously, I can't take this anymore.

Let's just keep championing for tests that are highly

controversial and easily disputed, and forget about

forcing docs to start with the basics, like streps and

staphs. Tests which used to be done in every doc's

office on a daily basis until the pharmaceutical's

marketing machine and insurance companies'

brainwashing took over telling us that A. these

organisms are not harmful, and B. they are easily

treated with the latest antibiotic, and C. that WE

(not them) are to blame for the failure of said

antibiotics because we " overuse " them.

But since these easily identified bugs are not a

problem in the first place, why they create

antibiotics and tell us we're overusing them is beyond

me.

penny

--- Colourbleu <colourbleu@...> wrote:

> It seems to me from what has been reported that this

> Dr. has been

> accused of over treating some people, yet what I

> observe on mass is

> under-treatment. Penny and tony, I know your

> frustration but you seem

> to be hell bent on DEMANDING more tests and better

> tests. Yet in all

> the years I have been observing this nightmare, I

> have found the tests

> to be very wanting. As seems to be a VERY common

> case. I know of no

> real test that proves an evidence of fungi

> overgrowth net alone all the

> other clandestine buggers.

>

> Would Penny and Tony, please tell me exactly how you

> see the perfect

> testing scenario I.e, what tests that you know of

> that are considered

> (respected) as being accurate and would give you and

> everyone else the

> answers that were after.

>

> b

>

>

>

>

> On 16 Jun 2006, at 16:38, Barb Peck wrote:

>

> > Agreed.

> > It's the message that just got sent..

> >

> > It's, see what we can do to you if you don't get

> in

> > line with the rest of us?

> >

> > Barb

> >

> >

> > >

> > > > I think the most powerful way to respond to

> the

> > > > current status quo is

> > > > to collectively PRODUCE A DOCUMENTARY coving

> these

> > > > issues.

> > > >

> > > > There is much to talk about. I.e. inadequate

> > > > treatment, poor testing,

> > > > (and quiet death to the victims), defensive

> medicine

> > > > by mainstream Dr.

> > > > who don't take any chances, and those very

> few Dr.

> > > > who do step outside

> > > > the box and do the best they can, end up the

> targets

> > > > of which hunts by

> > > > some very iffy agendas (these agendas cannot

> claim

> > > > ignorance in such

> > > > cases.)

> > > >

> > > > Our winges on online bulletin boards are very

> easily

> > > > ignored (if ever

> > > > heard).

> > > >

> > > > This latest case could act well as the

> protagonist.

> > > > bleu

> > > >

> > > >

> > >

> >

> >

> >

[Guest guest]

Yeah, sometimes you gotta scream til you're blue in

the face.

penny

--- a Carnes <pj7@...> wrote:

> Are we being too nice and too safe?

>

>

>

> People going to Dr. ' hearing were told to be

> quiet and polite and walk

> in like sheep. Why not stand outside the courthouse

> and scream? No one is

> hearing us!!!

>

>

>

> a

>

> Agreed.

> It's the message that just got sent..

>

> It's, see what we can do to you if you don't get in

> line with the rest of us?

>

> Barb

>

>

> >

> > > I think the most powerful way to respond to the

> > > current status quo is

> > > to collectively PRODUCE A DOCUMENTARY coving

> these

> > > issues.

> > >

> > > There is much to talk about. I.e. inadequate

> > > treatment, poor testing,

> > > (and quiet death to the victims), defensive

> medicine

> > > by mainstream Dr.

> > > who don't take any chances, and those very few

> Dr.

> > > who do step outside

> > > the box and do the best they can, end up the

> targets

> > > of which hunts by

> > > some very iffy agendas (these agendas cannot

> claim

> > > ignorance in such

> > > cases.)

> > >

> > > Our winges on online bulletin boards are very

> easily

> > > ignored (if ever

> > > heard).

> > >

> > > This latest case could act well as the

> protagonist.

> > > bleu

> > >

> > >

> >

>

>

>

>

[Guest guest]

Yeah, you see, after all these years of infected

sinuses (without symptoms), I finally find an ENT who

tells me that my sphenoid sinuses, which sit very

close to my brain, are also infected! What a shock! No

one picked it up before because sphenoid infections

are so " rare " why would you look? And guess what?

Turns out, not clearing a sphenoid sinus infection can

kill you.

Actually, they probably kill a lot of people who never

knew what hit them (or maybe I should say, " never knew

what ate them " ).

penny

--- dumbaussie2000 <dumbaussie2000@...>

wrote:

> Bleu

> If your genitals are bothering you (for egs).Get

> them cultured.

> There's no point telling me anything when this FIRST

> STEP in

> understanding MY ILNESS hasn't been taken.I'm also

> sure if you have

> an ulceration anywhere on your anatomy the same

> applies???? Get it

> cultured. If your sinuses are full of gunk and blood

> as MArie

> mentions TAKE THE CULTURE OF PSEUDONOMAS SERIOUSLY.I

> think the gunk

> on the front side of the sinus is also in the cavity

> side that

> houses the brain....

> tony

>

>

>

>

>

> > > >

> > > > > I think the most powerful way to respond to

> the

> > > > > current status quo is

> > > > > to collectively PRODUCE A DOCUMENTARY

> coving these

> > > > > issues.

> > > > >

> > > > > There is much to talk about. I.e.

> inadequate

> > > > > treatment, poor testing,

> > > > > (and quiet death to the victims), defensive

> medicine

> > > > > by mainstream Dr.

> > > > > who don't take any chances, and those very

> few Dr.

> > > > > who do step outside

> > > > > the box and do the best they can, end up

> the targets

> > > > > of which hunts by

> > > > > some very iffy agendas (these agendas

> cannot claim

> > > > > ignorance in such

> > > > > cases.)

> > > > >

> > > > > Our winges on online bulletin boards are

> very easily

> > > > > ignored (if ever

> > > > > heard).

> > > > >

> > > > > This latest case could act well as the

> protagonist.

> > > > > bleu

> > > > >

> > > > >

> > > >

> > >

> > >

> > >

> >

>

>

>

>

>

[Guest guest]

Actually, screaming doesn't work either. Scream,

people get annoyed and won't listen. Don't scream and,

definitely, no one listens. Speak reasonably, no one

listens.

Maybe the truth is simple, money talks.

Oh well. I can probably do more good by living in cave

and meditating. It will be better for my own health,

at least that much I know.

penny

--- Penny Houle <pennyhoule@...> wrote:

> Yeah, sometimes you gotta scream til you're blue in

> the face.

>

> penny

>

> --- a Carnes <pj7@...> wrote:

>

> > Are we being too nice and too safe?

> >

>

[Guest guest]

Yeah , scream in the right way , as I pointed out to consultants I am either extensively infected or I have a considerable mental illness that compels me to purchase and consume large amounts of antibiotics ...Not one accused me of being mentally ill, but not one offered to treat on clinical symptoms. One actually blocked tests I had arranged with a private lab...

We need a sympathetic newspaper /politician ...I'm halfway there with one paper I have the promise of an article based on my site ..We need to unite , who knows how many are using the lyme sites ..perhaps a new group dedicated to the political cause ,invites to other groups should net a fair number ...Yes? collective representation is the principle ...

-----Original Message-----From: infections [mailto:infections ]On Behalf Of Penny HouleSent: 16 June 2006 18:25infections Subject: RE: [infections] Re: What to do politically

Yeah, sometimes you gotta scream til you're blue inthe face. penny--- a Carnes <pj7@...> wrote:> Are we being too nice and too safe?> > > > People going to Dr. ' hearing were told to be> quiet and polite and walk> in like sheep. Why not stand outside the courthouse> and scream? No one is> hearing us!!!> > > > a> > Agreed.> It's the message that just got sent..> > It's, see what we can do to you if you don't get in> line with the rest of us? > > Barb> > > > > > > I think the most powerful way to respond to the> > > current status quo is > > > to collectively PRODUCE A DOCUMENTARY coving> these> > > issues.> > > > > > There is much to talk about. I.e. inadequate> > > treatment, poor testing, > > > (and quiet death to the victims), defensive> medicine> > > by mainstream Dr. > > > who don't take any chances, and those very few> Dr.> > > who do step outside > > > the box and do the best they can, end up the> targets> > > of which hunts by > > > some very iffy agendas (these agendas cannot> claim> > > ignorance in such > > > cases.)> > > > > > Our winges on online bulletin boards are very> easily> > > ignored (if ever > > > heard).> > > > > > This latest case could act well as the> protagonist.> > > bleu> > > > > >> >> > > >

[Guest guest]

Amy Tann is a patient of Dr. Jemsek. I

think she is included in the documentary I mentioned. Any of us who can should

donate to that documentary. But also I think the documentary may need to

feature political decisions such as the CDC saying there is no Lyme in the

south and the North Carolina

medical board decision – this could follow Amy Tann talking about her

doctor and her Lyme disease plus a few other southerners with Lyme – for instance

my family.

a

Yeah , scream in the right way , as

I pointed out to consultants I am either extensively infected

or I have a considerable mental illness that compels me to purchase and consume

large amounts of antibiotics ...Not one accused me of being mentally ill, but

not one offered to treat on clinical symptoms. One actually blocked tests

I had arranged with a private lab...

We need a sympathetic newspaper

/politician ...I'm halfway there with one paper I have the promise of an

article based on my site ..We need to unite , who knows how many are using

the lyme sites ..perhaps a new group dedicated to the political cause ,invites

to other groups should net a fair number ...Yes? collective

representation is the principle ...

..