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One issue we are just now encountering is that even if the patient has Medicare

at the time of transplant with a grp policy paying prime, Medicare is indicating

that if they did not PAY for the transplant they will not cover the

immunosuppressive drugs.

It was my understanding that the only requirement for drug coverage for Medicare

was that you have it at the time of transplant not that they would pay for the

organ transplant.

Medicare is also resistent to sending information in writing when requested.

They indicate it will be approved at the time the service is rendered. This is

not acceptable for patients to blindly have to undergo expensive procedures with

no information regarding coverage by Medicare.

Thanks for your help. Bev Larson, Norfolk, VA .

>>> LAguiar@... 04/26/02 09:56AM >>>

Hi everyone,

As some of you probably know, the NKF, AST, ASTS, & DOT sponsored a

meeting in May in Philadelphia to " Analyze the Wait List for Kidney

Transplantation " & in their Executive Report from this conference Access to

the Waitlist (or lack thereof would probably be a better wait to put it) was

discussed. Among the specifics mentioned was the issue of COE's & insurers

who mandate their members utilize these centers, even if there are non-COE

ctrs more local to the pt & more easily accessible. It was felt that these

mandates can actually be a deterrant to some pts who would otherwise proceed

with transplantation. Plans are in the works for a follow-up conference in

NY in June focusing on Access issues & I've been asked to provide a list of

additional issues, similar to the one I just mentioned, that might impact or

deter a pt from proceeding with tx as a sort of jumping off point for the

conference. I'd like some input from this group as I know there may be

regional issues which you deal with regularly that I'm unaware of, but that

should also be included. A couple of other issues that I came up with off

the top of my head include the VERY limited Rx coverage most of the Medicare

HMO's now offer, unrealistic caps on organ acquisition charges, lengthy

review process' by insurers & lack of tx knowledge by some of the reviewers.

Thanks everyone,

J. Aguiar

Beth Israel Deaconess, Boston

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Wonder who she's talking to.

Re: Access to Tx

One issue we are just now encountering is that even if the patient has

Medicare at the time of transplant with a grp policy paying prime, Medicare

is indicating that if they did not PAY for the transplant they will not

cover the immunosuppressive drugs.

It was my understanding that the only requirement for drug coverage for

Medicare was that you have it at the time of transplant not that they would

pay for the organ transplant.

Medicare is also resistent to sending information in writing when requested.

They indicate it will be approved at the time the service is rendered. This

is not acceptable for patients to blindly have to undergo expensive

procedures with no information regarding coverage by Medicare.

Thanks for your help. Bev Larson, Norfolk, VA .

>>> LAguiar@... 04/26/02 09:56AM >>>

Hi everyone,

As some of you probably know, the NKF, AST, ASTS, & DOT sponsored a

meeting in May in Philadelphia to " Analyze the Wait List for Kidney

Transplantation " & in their Executive Report from this conference Access to

the Waitlist (or lack thereof would probably be a better wait to put it) was

discussed. Among the specifics mentioned was the issue of COE's & insurers

who mandate their members utilize these centers, even if there are non-COE

ctrs more local to the pt & more easily accessible. It was felt that these

mandates can actually be a deterrant to some pts who would otherwise proceed

with transplantation. Plans are in the works for a follow-up conference in

NY in June focusing on Access issues & I've been asked to provide a list of

additional issues, similar to the one I just mentioned, that might impact or

deter a pt from proceeding with tx as a sort of jumping off point for the

conference. I'd like some input from this group as I know there may be

regional issues which you deal with regularly that I'm unaware of, but that

should also be included. A couple of other issues that I came up with off

the top of my head include the VERY limited Rx coverage most of the Medicare

HMO's now offer, unrealistic caps on organ acquisition charges, lengthy

review process' by insurers & lack of tx knowledge by some of the reviewers.

Thanks everyone,

J. Aguiar

Beth Israel Deaconess, Boston

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I don't believe we have ever come across this issue of Mcare not paying for

immunos if EGHP prime at time of transplant.

When we were researching Therapeutic Apheresis coverage for high PRA

patients I had some contact with Medicare B. They had told me to fax my

question to a Tully, Educational Outreach . I was

suprised to hear back from her within a few days. I guess it's worth a

shot.

Sherri Sbalbi

Transplant Division

Baystate Medical Center

Springfield, MA

----------

From: BEVERLY A. LARSON

To: TxFinancialCoordinators

Subject: Re: Access to Tx

Date: Monday, April 29, 2002 1:53PM

One issue we are just now encountering is that even if the patient has

Medicare at the time of transplant with a grp policy paying prime, Medicare

is indicating that if they did not PAY for the transplant they will not

cover the immunosuppressive drugs.

It was my understanding that the only requirement for drug coverage for

Medicare was that you have it at the time of transplant not that they would

pay for the organ transplant.

Medicare is also resistent to sending information in writing when requested.

They indicate it will be approved at the time the service is rendered. This

is not acceptable for patients to blindly have to undergo expensive

procedures with no information regarding coverage by Medicare.

Thanks for your help. Bev Larson, Norfolk, VA .

>>> LAguiar@... 04/26/02 09:56AM >>>

Hi everyone,

As some of you probably know, the NKF, AST, ASTS, & DOT sponsored a

meeting in May in Philadelphia to " Analyze the Wait List for Kidney

Transplantation " & in their Executive Report from this conference Access to

the Waitlist (or lack thereof would probably be a better wait to put it) was

discussed. Among the specifics mentioned was the issue of COE's & insurers

who mandate their members utilize these centers, even if there are non-COE

ctrs more local to the pt & more easily accessible. It was felt that these

mandates can actually be a deterrant to some pts who would otherwise proceed

with transplantation. Plans are in the works for a follow-up conference in

NY in June focusing on Access issues & I've been asked to provide a list of

additional issues, similar to the one I just mentioned, that might impact or

deter a pt from proceeding with tx as a sort of jumping off point for the

conference. I'd like some input from this group as I know there may be

regional issues which you deal with regularly that I'm unaware of, but that

should also be included. A couple of other issues that I came up with off

the top of my head include the VERY limited Rx coverage most of the Medicare

HMO's now offer, unrealistic caps on organ acquisition charges, lengthy

review process' by insurers & lack of tx knowledge by some of the reviewers.

Thanks everyone,

J. Aguiar

Beth Israel Deaconess, Boston

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What about the HIPAA ruling that states no patient should be sent

outside a 75 mile radius for services that is available within a 75 mile

radius of their residence?

We have had problems with most HMO's & contacted the Department of

Insurance in our state (TX). We were told at that time that because the

way in which the HMO's contract for transplants only, the patients could

be sent outside the 75 mile radius. However, for all other plans, the

ruling stands.

Patients seem to be their own best advocate so I would always recommend

patients involvement in this as they are better able to persuade the

insurance company, usually with the help of the employer.

n,

Austin, Tx

>>> McIlvaineJ@... 04/26/02 11:54AM >>>

Hi all -

We just submitted an RFP to Aetna. Apparently they now contract with

170

transplant centers across the country and want to reduce this number

substantially. We have been told that they will direct all transplant

business (HMO, PPO, etc) to Centers of Excellence with no coverage for

patients who want to go elsewhere.

Our Managed Care Dept. believes that BC is going to follow this same

model.

This would have major implications for centers not included in these

networks.

Has anybody heard more?

Jan

Re: Access to Tx

,

With regards to Cigna and your facility as not being part of the

LifeSource

Network, " negotiations " is an option. My advise is to have the patient

or

insured go to Human Resources and to make a statement or a threat that

insured will sue if transplant is not approved. In most cases and with

my

personal experience, I believe that the case managers makes the final

determination without consulting with the medical director. With the

medical director involved,

chances are the transplant will be approved. Will just have to come

to

terms as far as negotiations.

I just finalized a case this AM, negotiations were NOT an option

because

Cigna's case manager was adamant about the patient's strict HMO with

no

o-o-n benefits. To make the long story short, recipient and donor

(Living-related) contacted medical director and TXP was approved at an

Out-of-Network facility.

, specially with your situation, no LifeSource network w/in

your

area, you have a good chance getting txp approved. It's worth a try.

Good Luck !

Sioson

NY Presbyterian Hospital

Renal TFC

wrote:

>

> This is a subject which I deal with on a daily basis. I have been

dealing

with

> CiGNA and they now have the Life Source network for transplant.

There is

not

> a facility in this part of the PA which is in this network. A

patient

from the Pittsburgh area would need to go to Philadelphia area for a

network

transplant facility. They do not even offer lodging or transportation

, how

ever if pt does not go to facility they would have a $2250. out of

pocket.

Our contracting department is looking into this issue since we

participate

with Cigna and also InterCore, but are not in the LifeSource network

for

transplants.

> Another issue we have is one Medicare HMO from this area does not

have a

facility in Penna which a patient can go for a heart transplant, they

must

> be referred to Ohio, this seems unfair to pts when there are two

facility's in this area that do heart transplants but patients must be

referred to Ohio,

>

> There is also one HMO in this area Health Plan of the Upper Ohio

Valley

> which can have a $3000 per year cap on prescriptions. Case managers

will

> assist patients with pharmacy assistance programs. Many patients are

not

> aware of the limited coverage they have until we tell them on the

eval

day.

>

> There is also a problem with getting verification of coverage that

is

reliable.

> Many insurance companies will not put in writing what benefits they

quote

> you, I have had occasions where incorrect information was given by

the

> insurance company, in one case they authorized pt to be transplanted

her

because they had on tape me asking the ins company if we were in

network

for a transplant and told yes, when a center of excellence applied

which we

were not part of.

>

> Another issue we have with the state of PA they will only issue PER

numbers of two month, so you are constantly calling the state to renew

an

> PER number.

>

> These are some of the daily issue's that are faced here in the

Pittsburgh

area.

> Good luck with this issue, let me know if I can help.

>

> M1@...

>

>

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