: Re: Re: New to Group!/

[Guest guest]

Hi !! I was breifing through the posts and couldnt believe what

I was reading in yours about you mentioning the constipation and

seizures!!! Our son who had a lot of gi damage from vaccine reaction

has many of the the problems with movements. His stool has to be so

so loose to even go now!! I believe he has muscle/nerve damage(this

could be some, not all, of the withholding thoughts/issues).

Anyways, I have been telling his docs that I KNOW his gi is

triggering his seizures, this would even be gas triggering them

lately. Most of the docs just kinda look at me and or say OH, they

just dont say much about. My son usually only had about 4-6 grands

per year, usually virally induced from illness, he was outgrowing

them actually(I believe he was actually healing from the viral/vac

issue). Then his last round of shots did it for him. Anyways it took

several months to get anywhere with him being able to have some sort

of somewhat regular movements(with miralax). The odd thing is, is

that once his bowels started working better, any big movement(his

stool tends to sit in the intestines to long and therefor trys to

move a lot at once) would trigger seizures and now gas is doing

this. We went to nuero, thinking he would do the same as all the

other docs and not see the connection. I was happy to find that he

agreed(guess Im not loco!. His said, it is not quote, in the books

(seizures/gi triggered), but he has had other families say that

there childrens seizures are being triggered by the gi. He said we

need to try and get his bowels running more smoothly(this has been

very difficult to do) that it is to stressfull on him and this could

be triggering the seizures. There is also a nerve called the vagus

nerve that runs from the base of the brain down to the end of the

intestinal track, I have wondered if this nerve is being affected

and triggering the seizures! There are those from what I have read

that get some sort of vagus nerve stimulator/block(not sure what??)

to help control the seizures. Anyways, sorry this turned out so

long, but you do have something there in suspecting that your childs

gi might have been triggering the seizures. If you get any info on

this, let me know!! Although the nuero said it isnt quote in the

books, there is plenty of info on the net about this connection. It

is mentioned also that it used to be more commen thought of this

connection a long time ago and just kinda got forgot about! And now

the mainstream medical is starting to look at it again. I hope your

son is doing well! Jennie<><

>

> >

> > I am so glad to have found this group...my son Owen is 14 months

> old

> > and has had pooping problems his entire life. Right now he is on

> > Lactulose twice per day and suppositories once a day. Doctors

> don't

> > seem to think it's a big deal that he screams when he poops

(which

> is

> > about every three days). We're convinced he holds it in since we

> see

> > him clenching for a couple of days before the poop.

> > Anyway, we're thinking of trying the Miralax but wondered what

> the

> > adverse reactions were?? Also, are there any signs that will let

> us

> > know if there is something drastically wrong. I'm paranoid that

> he is

> > doing severe damage to his system and I won't know when to take

> > serious action (as my requests to see a specialist seem to be

> > outrageous to doctors). Any help would be great. Thanks so much

> and

> > I've already learned a lot from your posts!

> >

> >

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