Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 just a thought about bed linen and allergies. You should clean all your sheets and bed very regularly as the mites etc can cause serious havoc. bleu On 15 May 2006, at 21:12, julie levitt wrote: > Off to neuro tomorrow and fairly sure he will get me at least a few > months of doxy since he was suggesting it at last appt. 6 week cycles > or for a year…..Not sure my GI tract will tolerate it so long. Busy > with these 2 antifungal prescriptions. One is oral liquid that you > swish in mouth (nystatin) and then swallow to get mouth and throat and > hopefully down somewhere into GI tract before diluted into > nothing….Anyway will accomplish what I can here or start shopping > doctors and creating mysterious chronic bladder infections to stay on > doxy…I swear this stuff is so ridiculous…….I can breathe…It feels good > to not have stuff coming out of my nose etc. >  > I’m also doing nasal bactroban which is another antibiotic. I have > weeks worth of this but of course won’t address systemic side of > things. >  > > From: infections > [mailto:infections ] On Behalf Of > Colourbleu > Sent: Monday, May 15, 2006 3:01 PM > infections > Subject: Re: [infections] doxycline long term; what > about developing resistency issues; Re: Anaphylactic shock, etc >  > > 6 week cycles are important. > > 4 weeks is too short, > > bleu > On 15 May 2006, at 03:11, julie levitt wrote: > > > This ignores the fact that I must find one of my docs to continue me > on the drug. Doxycline isn’t OTC here but I understand what you are > saying. The antifungal I can do tomorrow….The antibiotic ; goal is > getting her to refill cause want to be sure we are rid of infection > i.e. get me to 28 days and then get more refills from neuro or ent I > see in following days. > I don’t understand the answer to the question re resistency: about > becoming resistant to doxy as > > well if taken long term since for the moment it and vancomycin are > all that show susceptible on my mrsa culture. >  >  >  > > From:infections > [mailto:infections ] On Behalf Of > dumbaussie2000 > Sent:Sunday, May 14, 2006 7:22 PM > To:infections > Subject:[infections] doxycline long term; what about > developing resistency issues; Re: Anaphylactic shock, etc >  > > > You want to keep the doxy going and add a couple of other agents- > antifungals? The idea that you can keep using the drug everytime you > get floored is silly cause you lost resistance to another 12 > antimicrobials in a flash why you'd want your next antibiotioc > challenge to be more difficult is beyond commonsense. bascially it > just doesn't work that way.PLUS the big PLus in your case is your > heading towards total inability and all the positive treatments in a > row are the order of the day. > I also had elevated liver readings when on nothing and actually was > within range when feeling good.Toxins are obviously a huge part of > this problem not some unimagenable wippy doo thing your docs pull > out there rare. > tony > > > > > > > > > > > > I have had anaphylactic reactions to penicillin > > > and sulfa since I was a teen (both requiring > > tubes > > > down my throat due to reaction) . In recent > > years > > > , I began reacting to many more meds and later > > > supps and having allergic reactions of severe > > > asthma, severe hives, short of breath and in > > some > > > cases " just " severe diarrhea or medication > > induced > > > anorexia. > > > > > > > > > > > > My electrolyte studies last month and even my > > hair > > > test show that I am very low in both potassium > > and > > > magnesium and yet I was supplementing both and > > > still do and eat foods very high in both. > > > Something isn't working right. Some changes made > > > in the past few weeks under direction of my > > > natural minded neuro and natural minded ENT > > > working together were first to try mag sulfate > > > injections which worsened symptoms dramatically > > > and now am supplementing potassium as well as > > > taking magnesium malate tablets and transdermal > > > mag citrate. My walking and EDSS numbers have > > > improved dramatically in the past 10 days (score > > > used to define degree of disability related to > > MS) > > > after continued progression since 2003 and being > > > in and out of a wheelchair or walker since 2004. > > > They are also tinkering to get my thyroid under > > > control. Been on synthroid for 13 years but > > still > > > not testing right and am currently on both > > levoxyl > > > and armour and see Neuro Tues to continue his > > plan > > > to either migrate to armour entirely or some > > combo > > > of both. He believes my thyroid issues started > > all > > > my health problems. > > > > > > > > > > > > My asthma and breathing issues are improving > > > dramatically since starting doxycline and > > > administration of bactroban in my nostrils (gave > > > up on the idea of putting the bactroban in my > > > nebulizer) and doing albuterol treatments every > > 4 > > > hour around the clock. My ENT had previously had > > > me using bactroban nasal irrigation but I was > > > swallowing and choking on the stuff and PCP > > thinks > > > may have aspirated some causing my initial > > > breathing problems. I am very interested in what > > > I've read about the Welden protocol although my > > > MRSA is resistant to some of the things > > suggested > > > in the protocol. I will discuss with my PCP, > > ENT, > > > and Neuro (all of whom I see next week) > > regarding > > > staying longer on the antibiotic and/or adding > > > another and adding antifungal. Also waiting for > > > results of sputum analysis from Friday (although > > > we know how those go but they were going to use > > > the infectious disease lab to analyze).. > > > > > > > > > > > > Thanks for the reminder re liver issues as I > > like > > > some others have elevated liver enzymes and > > amino > > > acid test and organic acid test done in last 3 > > > weeks reflects the same issues. Waiting to > > discuss > > > results with my docs but I have copies and have > > > reviewed both reports and understand the > > > implications. > > > > > > > > > > > >  _____ > > > > > > From: infections > > > > > [mailto:infections ] > > > On Behalf Of Colourbleu > > > Sent: Sunday, May 14, 2006 4:51 AM > > > infections > > > Subject: [infections] > > Anaphylactic > > > shock, Electrolytes, Salt/C, Ampehotericine B, > > > Benicar etc. > > > > > > > > > > > > Anaphylactic shock, Electrolytes, Salt/C, > > > Ampehotericine B, Benicar etc. > > > > > > got me thinking, as she has been having so > > > many problems with > > > anaphylactic shock reactions and breathing > > crises. > > > Im wondering what is > > > going on? > > > > > > I have personally had what I think were > > > anaphylactic shocks (2), after > > > administering b12 shots. This is a rare possible > > > side effect of B12 > > > shots. This is one frightening symptom. > > > > > > I came to the conclusion that actually what > > caused > > > this was a low blood > > > potassium level. I could not handle the shots > > and > > > continued with b12 > > > tablets and added potassium. This seemed to help > > > allot. > > > > > > The bodies electrolyte system works on a fine > > > balance and when out of > > > sync the symptoms can be sudden and drastic. > > Many > > > of the drugs that we > > > take, work by robing the body of potassium in > > one > > > way or another. Or by > > > another mechanism disrupting the electrolyte > > > system. > > > > > > Many of us that are close to the edge and have > > > seriously hampered > > > bodies which can be tilted over the edge very > > > easily when taking these > > > drugs. > > > > > > It does not make 100% sense that is > > allergic > > > to lots of different > > > drugs and I suspect that maybe another problem > > is > > > lurking in the > > > background (potassium loss?) that is the > > > underlying problem. > > > > > > It would seem that this problem (if there) and > > > discovered would open > > > the flood gates for treatments that seem to be > > so > > > badly needed (abx/ > > > a/f). > > > > > > If I were you I think I would consider > > > having a basic electrolyte > > > test, and keeping an eye on these in the future. > > > These electrolytes can > > > cause havoc if out of whack and make us very ill > > > very quickly. Hence > > > the administration of electrolytes when you go > > > into emergency in > > > hospital (very often). > > > > > > Penny as your on Benicar and had problems with > > the > > > kidneys in the past, > > > I think you should be especially careful when > > > taking amp b, and over > > > time watch your electrolytes as I think the oral > > > form does enter the > > > system and does rob the body of potassium. > > > > > > Salt / C > > > I have spoken to some of the main advocates of > > the > > > salt/c treatment, > > > and while clearly it has benefits, they seemed > > > totally ignorant of the > > > possible of side effects from taking too much > > salt > > > thus lowering the > > > potassium levels. If anyone is doing the Salt/C > > I > > > would also suggest > > > potassium is monitored and possible added into > > the > > > regime too. > > > > > > If anyone comes over very iffy, very quickly, > > the > > > electrolytes should > > > be considered as a potential cause of this > > sudden > > > attack. > > > > > > Bleu > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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