Re: Irlen Syndrome. ?

[Guest guest]

, this is a fascinating "syndrome". And doesn't it sound familiar to all of us PWC who have another name for it? Brainfog. I was an avid reader my whole life until the brainfog got so bad I could barely make out a sentence. This was greatly relieved with antibiotics and especially with Benicar (olmesartan) and is one reason I'm still taking it over a year after I started. I KNOW without a doubt that the Benicar was responsible for relieving a great deal of pressure on my brain, and it's the reason I can now think more clearly and read with more comprehension. It must also have relieved pressure on the large trigemenal nerve, because my teeth no longer clench or chatter. If I go too long without it though, the chattering gradually begins to return. Inflammation of the trigeminal nerve can likely impact brain function, since it's the largest nerve in

the body and connects directly to the brain. The opthamalic nerves are also sitting right on the sphenoid sinuses and next to the brain. I know from my recent sinus surgery that the sphenoids can impact vision. So it seems reasonable that inflammation of the spheonid and/or opthamalic nerve could cause vision problems. This is why I look forward to more research being done with Olmesartan and inflammation. I don't think it works for everyone, and would like to know more. Perhaps it's because those people who don't respond don't have the same kind of brain/nerve inflammation that others do? It would be really interesting to see how autistic children or people with Irlen Syndrome respond to it as well as to other anti-inflammatories. So I'm curious why you know about this syndrome? And do you know why the color overlay therapy is used and how successful it is? Also, do

people suffering from either of these disorders have any history of sinus disease or upper respiratory problems? I notice headaches are common. I wonder if any have been tested for ICP (intracranial pressure - intracranial hypertension - pseudotumor cerebri)? penny Windsor <rwindsor@...> wrote: Dear RichI have just downloaded 4 papers on Irlen Syndrome by the Newcastle group,links at the bottom of this page. Irlen Syndrome clearly fits in withAutistic Spectrum disorders and CFSRegards Windsor [infections] Re: Web

radio program on CFS,glutathione depletion and autism> Hi, Tony.>> As always, I'm honored and gratified that you have taken the time to> share some of your thoughts and benevolent remarks in response to my> post!>> Yes, I was happy to see that Barry Marshall and his colleague won> the Nobel prize. I have to take my hat off to someone who will> infect himself to produce ulcers in order to prove his point. I> understand the impact of their discovery on ulcer surgeries. As far> as I know, though, there haven't been too many surgeries done on> autistic children or adults with CFS. There were a few Chiari> surgeries done in CFS a few years ago, I understand, but I don't> think it caught on.>> As far as the Newcastle University group is concerned, I have a file> containing their work in CFS (some of which, disappointingly,

has> been discredited by a group in the U.K., by the way), but I wasn't> aware that they had worked in autism. I'll try to dig that up, and> thank you for the tip.>> Rich>>> -- In infections , "dumbaussie2000"> <dumbaussie2000@...> wrote:> >> > Rich> > FANTASTICS , I'm so happy your new friend has come around to> > understanding that autism is so close to cfs. If she would like to> > bother understanding the TOXIC MECAHANISMS BEHIND BOTH ILNESSES> she> > may go and check out the newcastle university site that came to> this> > same conclusion around 88- 90 when they first started there> > research.Unfortuantely there research fell on deaf ears because it> > follows in the same vein as the MARSHALL GROUP and the Ulcer> > causing bacteria- it

goes down like a lead balloon when it stops> > surgeons performing surgeries.Just in case you didn't notice,> being> > high on glutathione yourself the marshall people one the noble> prize> > in medicine for there discovery.> >> >> >> >> > > > >> > > Hi, all.> > >> > > I want to let you know that next Tuesday, May 30, at 10 a.m.> U.S.> > > Eastern time (7 a.m. U.S. Pacific time) there will be a program> > > aired on Autism One radio (http://www.autismone.org/radio) on> > > chronic fatigue syndrome (CFS), glutathione depletion and> autism.> > > Laurette Janak (who is an autism researcher from upstate New>

York> > > and mother of an adopted niece who has both Down syndrome and> > > autism) and myself will be interviewed by Teri Small. It's> quite> > a> > > long interview, so if that time is not convenient for you, you> can> > > catch the program later, whenever you want to, after it has been> > put> > > into the archives, probably the following week.> > >> > > There will also be a second interview with the same cast of> > > characters aired in early June that will develop the parallels> > > between CFS, autism and magnesium depletion in more detail. I> > timed> > > that one, and it's three hours long! So I recommend that people> > > take these interviews in manageable chunks, rather than all at> > > once. There is a fast-forward feature, so you can stop

and come> > > back to the same place later.> > >> > > I think this topic is really going to draw some interest. I was> > > surprised at how many parallels we (actually mostly Laurette)> > found> > > between CFS and autism. It looks as though the genetic> > > predisposition and a lot of the biochemistry (with the exception> > of> > > aspects involved with early brain development) are very similar> > > between CFS and autism.> > >> > > Rich Van Konynenburg> > >> >>>>>>>>>>>

[Guest guest]

Dear Penny

Circular story here.I was originally diagnosed with CFS in 1989 ( I think it was), shortly after I found out about ADHD and subsequently I was diagnosed with that. On looking at all my CFS friends and acquaintances I could see strong ADHD traits in them. I came to the conclusion there was a linkage, even perhaps that ADHD was a necessary precondition for developing CFS.

At that stage it was recognised that immune dysfunction resulting in chronic upper respiratory disease was a marker for ADHD in kids. Around that time, the first SPECT studies were coming out, there was a marked similarity in global deficits mirrored by a marked similarity in SPECT scan results between ADHD cohorts and CFS cohorts.

I subsequently became involved in ADHD support and followed the ins and outs of the debate in autism where I became aware of Goldberg, Theresa Binstock and others.

The use of coloured overlays has had a mystical past and ( pardon the pun) colourful one too. There are many reports supporting their use but claims of commercial bias have long dogged much of the work. There is a recent paper clearly showing benefit from yellow as opposed to blue but a friend of mine has a family of 5, all wear coloured lenses, pink through yellow and also blue. Damned if I know. There is a physiological explanation for red filters but not others.

I don't know of investigation into ICP but if you approach Tim at Newcastle Uni he may be able to help. He doesn't bite . I was one of the people who pushed the Newcastle group to look at Autistic Spectrum with their initial work because of the similarities, so he is open to suggestion.

Regards

Windsor

..

So I'm curious why you know about this syndrome? And do you know why the color overlay therapy is used and how successful it is?

Also, do people suffering from either of these disorders have any history of sinus disease or upper respiratory problems? I notice headaches are common. I wonder if any have been tested for ICP (intracranial pressure - intracranial hypertension - pseudotumor cerebri)?

penny

Windsor <rwindsor@...> wrote:

Dear RichI have just downloaded 4 papers on Irlen Syndrome by the Newcastle group,links at the bottom of this page. Irlen Syndrome clearly fits in withAutistic Spectrum disorders and CFSRegards Windsor

[Guest guest]

Thank you . That's an amazing story and I'm glad you shared it. penny Windsor <rwindsor@...> wrote: Dear Penny Circular story here.I was originally diagnosed with CFS in 1989 ( I think it was), shortly after I found out about ADHD and subsequently I was diagnosed with that. On looking at all my CFS friends and acquaintances I could see strong ADHD traits in them. I came to the conclusion there was a linkage, even perhaps that ADHD was a necessary precondition for developing CFS. At that stage it was recognised that immune dysfunction resulting in chronic upper respiratory disease was a marker for ADHD in kids. Around that time, the first SPECT studies were

coming out, there was a marked similarity in global deficits mirrored by a marked similarity in SPECT scan results between ADHD cohorts and CFS cohorts. I subsequently became involved in ADHD support and followed the ins and outs of the debate in autism where I became aware of Goldberg, Theresa Binstock and others. The use of coloured overlays has had a mystical past and ( pardon the pun) colourful one too. There are many reports supporting their use but claims of commercial bias have long dogged much of the work. There is a recent paper clearly showing benefit from yellow as opposed to blue but a friend of mine has a family of 5, all wear coloured lenses, pink through yellow and also blue. Damned if I know. There is a physiological explanation for red filters but not others. I don't know of investigation into ICP but if you approach Tim at Newcastle Uni he may be able to help. He doesn't bite . I was

one of the people who pushed the Newcastle group to look at Autistic Spectrum with their initial work because of the similarities, so he is open to suggestion. Regards Windsor . So I'm curious why you know about this syndrome? And do you know why the color overlay therapy is used and how successful it is? Also, do people suffering from either of these disorders have any history of sinus disease or upper respiratory problems? I notice headaches are common. I wonder if any have been tested for ICP (intracranial pressure - intracranial hypertension - pseudotumor cerebri)? penny Windsor <rwindsor@...> wrote: Dear RichI have just downloaded 4 papers on Irlen Syndrome by the Newcastle group,links at the bottom of this page. Irlen Syndrome clearly fits in withAutistic Spectrum disorders and CFSRegards Windsor