Re: Anaphylactic shock, Electrolytes, Salt/C, Ampehotericine B, Benicar etc.

[Guest guest]

I have had anaphylactic reactions to penicillin

and sulfa since I was a teen (both requiring tubes down my throat due to

reaction) . In recent years , I began reacting to many more meds and later supps

and having allergic reactions of severe asthma, severe hives, short of breath

and in some cases “just” severe diarrhea or medication induced

anorexia.

My electrolyte studies last month and even

my hair test show that I am very low in both potassium and magnesium and yet I

was supplementing both and still do and eat foods very high in both. Something

isn’t working right. Some changes made in the past few weeks under

direction of my natural minded neuro and natural minded ENT working together

were first to try mag sulfate injections which worsened symptoms dramatically

and now am supplementing potassium as well as taking magnesium malate tablets

and transdermal mag citrate. My walking and EDSS numbers have improved

dramatically in the past 10 days (score used to define degree of disability

related to MS) after continued progression since 2003 and being in and out of a

wheelchair or walker since 2004. They are also tinkering to get my thyroid

under control. Been on synthroid for 13 years but still not testing right and

am currently on both levoxyl and armour and see Neuro Tues to continue his plan

to either migrate to armour entirely or some combo of both. He believes my thyroid

issues started all my health problems.

My asthma and breathing issues are

improving dramatically since starting doxycline and administration of bactroban

in my nostrils (gave up on the idea of putting the bactroban in my nebulizer)

and doing albuterol treatments every 4 hour around the clock. My ENT had

previously had me using bactroban nasal irrigation but I was swallowing and

choking on the stuff and PCP thinks may have aspirated some causing my initial

breathing problems. I am very interested in what I’ve read about the

Welden protocol although my MRSA is resistant to some of the things suggested

in the protocol. I will discuss with my PCP, ENT, and Neuro (all of whom I see

next week) regarding staying longer on the antibiotic and/or adding another and

adding antifungal. Also waiting for results of sputum analysis from Friday

(although we know how those go but they were going to use the infectious

disease lab to analyze)……

Thanks for the reminder re liver issues as

I like some others have elevated liver enzymes and amino acid test and organic

acid test done in last 3 weeks reflects the same issues. Waiting to discuss

results with my docs but I have copies and have reviewed both reports and

understand the implications.

From: infections [mailto:infections ] On Behalf Of Colourbleu

Sent: Sunday, May 14, 2006 4:51 AM

infections

Subject:

[infections] Anaphylactic shock, Electrolytes, Salt/C,

Ampehotericine B, Benicar etc.

Anaphylactic shock,

Electrolytes, Salt/C, Ampehotericine B, Benicar etc.

got me thinking, as she has been having so many problems with

anaphylactic shock reactions and breathing crises. Im wondering what is

going on?

I have personally had what I think were anaphylactic shocks (2), after

administering b12 shots. This is a rare possible side effect of B12

shots. This is one frightening symptom.

I came to the conclusion that actually what caused this was a low blood

potassium level. I could not handle the shots and continued with b12

tablets and added potassium. This seemed to help allot.

The bodies electrolyte system works on a fine balance and when out of

sync the symptoms can be sudden and drastic. Many of the drugs that we

take, work by robing the body of potassium in one way or another. Or by

another mechanism disrupting the electrolyte system.

Many of us that are close to the edge and have seriously hampered

bodies which can be tilted over the edge very easily when taking these

drugs.

It does not make 100% sense that is allergic to lots of different

drugs and I suspect that maybe another problem is lurking in the

background (potassium loss?) that is the underlying problem.

It would seem that this problem (if there) and discovered would open

the flood gates for treatments that seem to be so badly needed (abx/

a/f).

If I were you I think I would consider having a basic electrolyte

test, and keeping an eye on these in the future. These electrolytes can

cause havoc if out of whack and make us very ill very quickly. Hence

the administration of electrolytes when you go into emergency in

hospital (very often).

Penny as your on Benicar and had problems with the kidneys in the past,

I think you should be especially careful when taking amp b, and over

time watch your electrolytes as I think the oral form does enter the

system and does rob the body of potassium.

Salt / C

I have spoken to some of the main advocates of the salt/c treatment,

and while clearly it has benefits, they seemed totally ignorant of the

possible of side effects from taking too much salt thus lowering the

potassium levels. If anyone is doing the Salt/C I would also suggest

potassium is monitored and possible added into the regime too.

If anyone comes over very iffy, very quickly, the electrolytes should

be considered as a potential cause of this sudden attack.

Bleu

[Guest guest]

bleu, I think this is a very intriguing idea. And it's making me wonder if this is the reason so many people are reporting success with Blasi's electrolyte mixture. It's the number one successful protocol, according to Ken Lassesen's poll. I've had trouble understanding how 3 minerals could be so effective, especially when I've taken both magnesium and sodium seperately w/o the kind of improvement that's being reported. Perhaps this particular balancing of minerals is not a cure so much as a catalyst for creating an environment for things to work better and resulting in symptom relief. Barb also made electrolyte balancing an important part of her recovery, didn't she? Based on her horses responses to them? pennyColourbleu <colourbleu@...>

wrote: Anaphylactic shock, Electrolytes, Salt/C, Ampehotericine B, Benicar etc. got me thinking, as she has been having so many problems with anaphylactic shock reactions and breathing crises. Im wondering what is going on?I have personally had what I think were anaphylactic shocks (2), after administering b12 shots. This is a rare possible side effect of B12 shots. This is one frightening symptom.I came to the conclusion that actually what caused this was a low blood potassium level. I could not handle the shots and continued with b12 tablets and added potassium. This seemed to help allot.The bodies electrolyte system works on a fine balance and when out of sync the symptoms can be sudden and drastic. Many of the drugs that we take, work by robing the body of potassium in one way or another. Or by

another mechanism disrupting the electrolyte system.Many of us that are close to the edge and have seriously hampered bodies which can be tilted over the edge very easily when taking these drugs.It does not make 100% sense that is allergic to lots of different drugs and I suspect that maybe another problem is lurking in the background (potassium loss?) that is the underlying problem.It would seem that this problem (if there) and discovered would open the flood gates for treatments that seem to be so badly needed (abx/ a/f).If I were you I think I would consider having a basic electrolyte test, and keeping an eye on these in the future. These electrolytes can cause havoc if out of whack and make us very ill very quickly. Hence the administration of electrolytes when you go into emergency in hospital (very often).Penny as your on Benicar and had problems with the kidneys in the

past, I think you should be especially careful when taking amp b, and over time watch your electrolytes as I think the oral form does enter the system and does rob the body of potassium.Salt / CI have spoken to some of the main advocates of the salt/c treatment, and while clearly it has benefits, they seemed totally ignorant of the possible of side effects from taking too much salt thus lowering the potassium levels. If anyone is doing the Salt/C I would also suggest potassium is monitored and possible added into the regime too.If anyone comes over very iffy, very quickly, the electrolytes should be considered as a potential cause of this sudden attack.Bleu

[Guest guest]

, Have you investigated your heavy metals burden? I have similar symptoms to yours and after a DMSA challenge test was determined to have a slowly accummulated toxic body burden of mercury and lead along with a significant arsenic level. Once lead accumulates, the natural detox body system becomes impaired and mercury and other metals accumulate. Lead and mercury impair mineral transport in the body even with supplimentation. Joan julie levitt <knightshotter@...> wrote: I have had anaphylactic reactions to penicillin and sulfa since I was a teen (both requiring tubes down my throat due to reaction) . In recent years , I began reacting to many more meds and later supps and having allergic reactions of

severe asthma, severe hives, short of breath and in some cases “just” severe diarrhea or medication induced anorexia. My electrolyte studies last month and even my hair test show that I am very low in both potassium and magnesium and yet I was supplementing both and still do and eat foods very high in both. Something isn’t working right. Some changes made in the past few weeks under direction of my natural minded neuro and natural minded ENT working together were first to try mag sulfate injections which worsened symptoms dramatically and now am supplementing potassium as well as taking magnesium malate tablets and transdermal mag citrate. My walking and EDSS numbers

have improved dramatically in the past 10 days (score used to define degree of disability related to MS) after continued progression since 2003 and being in and out of a wheelchair or walker since 2004. They are also tinkering to get my thyroid under control. Been on synthroid for 13 years but still not testing right and am currently on both levoxyl and armour and see Neuro Tues to continue his plan to either migrate to armour entirely or some combo of both. He believes my thyroid issues started all my health problems. My asthma and breathing issues are improving dramatically since starting doxycline and administration of bactroban in my nostrils (gave up on the idea

of putting the bactroban in my nebulizer) and doing albuterol treatments every 4 hour around the clock. My ENT had previously had me using bactroban nasal irrigation but I was swallowing and choking on the stuff and PCP thinks may have aspirated some causing my initial breathing problems. I am very interested in what I’ve read about the Welden protocol although my MRSA is resistant to some of the things suggested in the protocol. I will discuss with my PCP, ENT, and Neuro (all of whom I see next week) regarding staying longer on the antibiotic and/or adding another and adding antifungal. Also waiting for results of sputum analysis from Friday (although we know how those go but they were going to use the infectious disease lab to analyze)…… Thanks for the reminder re liver issues as I like some others have elevated liver enzymes and amino acid test and organic acid test done in last 3 weeks reflects the same issues. Waiting to discuss results with my docs but I have copies and have reviewed both reports and understand the implications.

[Guest guest]

Don't back off the doxy if it is really having a major impact. Try

add a antifungal since most abx don't agree, I believe you'll have

less problems with all drugs when your pathogens are being

quietened.There's nothing dangerous about doing doxy for a year.

tony

>

> I have had anaphylactic reactions to penicillin

> and sulfa since I was a teen (both requiring tubes

> down my throat due to reaction) . In recent years

> , I began reacting to many more meds and later

> supps and having allergic reactions of severe

> asthma, severe hives, short of breath and in some

> cases " just " severe diarrhea or medication induced

> anorexia.

>

>

>

> My electrolyte studies last month and even my hair

> test show that I am very low in both potassium and

> magnesium and yet I was supplementing both and

> still do and eat foods very high in both.

> Something isn't working right. Some changes made

> in the past few weeks under direction of my

> natural minded neuro and natural minded ENT

> working together were first to try mag sulfate

> injections which worsened symptoms dramatically

> and now am supplementing potassium as well as

> taking magnesium malate tablets and transdermal

> mag citrate. My walking and EDSS numbers have

> improved dramatically in the past 10 days (score

> used to define degree of disability related to MS)

> after continued progression since 2003 and being

> in and out of a wheelchair or walker since 2004.

> They are also tinkering to get my thyroid under

> control. Been on synthroid for 13 years but still

> not testing right and am currently on both levoxyl

> and armour and see Neuro Tues to continue his plan

> to either migrate to armour entirely or some combo

> of both. He believes my thyroid issues started all

> my health problems.

>

>

>

> My asthma and breathing issues are improving

> dramatically since starting doxycline and

> administration of bactroban in my nostrils (gave

> up on the idea of putting the bactroban in my

> nebulizer) and doing albuterol treatments every 4

> hour around the clock. My ENT had previously had

> me using bactroban nasal irrigation but I was

> swallowing and choking on the stuff and PCP thinks

> may have aspirated some causing my initial

> breathing problems. I am very interested in what

> I've read about the Welden protocol although my

> MRSA is resistant to some of the things suggested

> in the protocol. I will discuss with my PCP, ENT,

> and Neuro (all of whom I see next week) regarding

> staying longer on the antibiotic and/or adding

> another and adding antifungal. Also waiting for

> results of sputum analysis from Friday (although

> we know how those go but they were going to use

> the infectious disease lab to analyze)..

>

>

>

> Thanks for the reminder re liver issues as I like

> some others have elevated liver enzymes and amino

> acid test and organic acid test done in last 3

> weeks reflects the same issues. Waiting to discuss

> results with my docs but I have copies and have

> reviewed both reports and understand the

> implications.

>

>

>

> _____

>

> From: infections

> [mailto:infections ]

> On Behalf Of Colourbleu

> Sent: Sunday, May 14, 2006 4:51 AM

> infections

> Subject: [infections] Anaphylactic

> shock, Electrolytes, Salt/C, Ampehotericine B,

> Benicar etc.

>

>

>

> Anaphylactic shock, Electrolytes, Salt/C,

> Ampehotericine B, Benicar etc.

>

> got me thinking, as she has been having so

> many problems with

> anaphylactic shock reactions and breathing crises.

> Im wondering what is

> going on?

>

> I have personally had what I think were

> anaphylactic shocks (2), after

> administering b12 shots. This is a rare possible

> side effect of B12

> shots. This is one frightening symptom.

>

> I came to the conclusion that actually what caused

> this was a low blood

> potassium level. I could not handle the shots and

> continued with b12

> tablets and added potassium. This seemed to help

> allot.

>

> The bodies electrolyte system works on a fine

> balance and when out of

> sync the symptoms can be sudden and drastic. Many

> of the drugs that we

> take, work by robing the body of potassium in one

> way or another. Or by

> another mechanism disrupting the electrolyte

> system.

>

> Many of us that are close to the edge and have

> seriously hampered

> bodies which can be tilted over the edge very

> easily when taking these

> drugs.

>

> It does not make 100% sense that is allergic

> to lots of different

> drugs and I suspect that maybe another problem is

> lurking in the

> background (potassium loss?) that is the

> underlying problem.

>

> It would seem that this problem (if there) and

> discovered would open

> the flood gates for treatments that seem to be so

> badly needed (abx/

> a/f).

>

> If I were you I think I would consider

> having a basic electrolyte

> test, and keeping an eye on these in the future.

> These electrolytes can

> cause havoc if out of whack and make us very ill

> very quickly. Hence

> the administration of electrolytes when you go

> into emergency in

> hospital (very often).

>

> Penny as your on Benicar and had problems with the

> kidneys in the past,

> I think you should be especially careful when

> taking amp b, and over

> time watch your electrolytes as I think the oral

> form does enter the

> system and does rob the body of potassium.

>

> Salt / C

> I have spoken to some of the main advocates of the

> salt/c treatment,

> and while clearly it has benefits, they seemed

> totally ignorant of the

> possible of side effects from taking too much salt

> thus lowering the

> potassium levels. If anyone is doing the Salt/C I

> would also suggest

> potassium is monitored and possible added into the

> regime too.

>

> If anyone comes over very iffy, very quickly, the

> electrolytes should

> be considered as a potential cause of this sudden

> attack.

>

> Bleu

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

There’s nothing dangerous about doxy

for a year but there is or may be difficulty in getting a doc to RX it for a

year……(see my other email)

From: infections [mailto:infections ] On Behalf Of dumbaussie2000

Sent: Sunday, May 14, 2006 6:02 PM

infections

Subject:

[infections] Re: Anaphylactic shock, Electrolytes, Salt/C,

Ampehotericine B, Benicar etc.

Don't back off the doxy if it is really having a major impact. Try

add a antifungal since most abx don't agree, I believe you'll have

less problems with all drugs when your pathogens are being

quietened.There's nothing dangerous about doing doxy for a year.

tony

Visit your group

" infections "

on the web.

To unsubscribe

from this group, send an email to:

infections-unsubscribe

Your use of

is subject to the

Terms of Service.

[Guest guest]

You owe it to yourself to start feeling better. in and out of a

wheelchair and some serious crappy treatnments including

chaemotherapy given to MS patients -doesn't sound to me like your

asking too much ...I stronmgly feel that if you've got good

cardiovascular health and combine a few positive drug treatments you

should only move upwards. your possably a lot younger than most

on these forums so your possably a better candidiate for succeeding

with some approaches trialed here IMO.

tony

>

> There's nothing dangerous about doxy for a year

> but there is or may be difficulty in getting a doc

> to RX it for a year..(see my other email)

>

>

>

> _____

>

> From: infections

> [mailto:infections ]

> On Behalf Of dumbaussie2000

> Sent: Sunday, May 14, 2006 6:02 PM

> infections

> Subject: [infections] Re:

> Anaphylactic shock, Electrolytes, Salt/C,

> Ampehotericine B, Benicar etc.

>

>

>

>

> Don't back off the doxy if it is really having a

> major impact. Try

> add a antifungal since most abx don't agree, I

> believe you'll have

> less problems with all drugs when your pathogens

> are being

> quietened.There's nothing dangerous about doing

> doxy for a year.

> tony

>

>

>

> * Visit your group

> " infections

> <InfectionAndInflamm

> ation2> " on the web.

>

> *

[Guest guest]

I did the Blasi protocol for a few months and noticed nothing. I

think it only helps people who have low blood volume or possibly some

electrolyte balance. I also notice no help from any detox agents. My

own problem seems to be uncomplicated by these issues.

- Kate

On May 14, 2006, at 11:58 AM, Penny Houle wrote:

> it's making me wonder if this is the reason so many people are

> reporting success with Blasi's electrolyte mixture. It's the number

> one successful protocol, according to Ken Lassesen's poll.

>

> I've had trouble understanding how 3 minerals could be so

> effective, especially when I've taken both magnesium and sodium

> seperately w/o the kind of improvement that's being reported.

> Perhaps this particular balancing of minerals is not a cure so much

> as a catalyst for creating an environment for things to work better

> and resulting in symptom relief.

[Guest guest]

just another thought. Why wouldn't any doctor want your MRSA

infection to be going down.Also why wouldn't you want to be on an

upward merri go round instead of the old downward spiralling one

where you go see specialist after specialist with a whole gammit of

CRAP treatments that just don't do anything IMO.I mean you get an

improvement only to stop and start receeding again. I would want to

see you add and add and wouldn't except anything short of full co-

operation from your doctor due to your CLEAR MEDICAL HISTORY..

>

> There's nothing dangerous about doxy for a year

> but there is or may be difficulty in getting a doc

> to RX it for a year..(see my other email)

>

>

>

> _____

>

> From: infections

> [mailto:infections ]

> On Behalf Of dumbaussie2000

> Sent: Sunday, May 14, 2006 6:02 PM

> infections

> Subject: [infections] Re:

> Anaphylactic shock, Electrolytes, Salt/C,

> Ampehotericine B, Benicar etc.

>

>

>

>

> Don't back off the doxy if it is really having a

> major impact. Try

> add a antifungal since most abx don't agree, I

> believe you'll have

> less problems with all drugs when your pathogens

> are being

> quietened.There's nothing dangerous about doing

> doxy for a year.

> tony

>

>

>

> * Visit your group

> " infections

> <InfectionAndInflamm

> ation2> " on the web.

>

> *

[Guest guest]

KAte

ARE you well hydrated? Are you problem fee with dental issues?Are

you very flexable not stiff? Do you have sore joints?

Cardiovascular issues, hearat stuff?

>

> > it's making me wonder if this is the reason so many people are

> > reporting success with Blasi's electrolyte mixture. It's the

number

> > one successful protocol, according to Ken Lassesen's poll.

> >

> > I've had trouble understanding how 3 minerals could be so

> > effective, especially when I've taken both magnesium and sodium

> > seperately w/o the kind of improvement that's being reported.

> > Perhaps this particular balancing of minerals is not a cure so

much

> > as a catalyst for creating an environment for things to work

better

> > and resulting in symptom relief.

>

[Guest guest]

On May 14, 2006, at 9:58 PM, dumbaussie2000 wrote:

> KAte

> ARE you well hydrated?

I think I drink enough...

> Are you problem fee with dental issues?

Don't know of any...

> Are

> you very flexable not stiff?

I was a dancer and gymnast, and am flexible still. (I do not have

tight muscles. When my back pain was so bad I wanted to die, the doc

tried telling me my back muscles were tight. But the chiropractor

knew they weren't. It was actually inflammation in my spine.)

> Do you have sore joints?

Yes, sore joints.

> Cardiovascular issues, hearat stuff?

Seems okay.

- Kate

[Guest guest]

I agree. I think the low blood volume is probably a factor. Salt all by itself helps a lot of people feel better, because of its effect on blood pressure. pennyKate <KateDunlay@...> wrote: I did the Blasi protocol for a few months and noticed nothing. I think it only helps people who have low blood volume or possibly some electrolyte balance. I also notice no help from any detox agents. My own problem seems to be uncomplicated by these issues.- KateOn May 14, 2006, at 11:58 AM, Penny Houle wrote:> it's making me wonder if this is the reason so many people are > reporting success with Blasi's electrolyte mixture. It's the number > one successful protocol, according to Ken Lassesen's poll.>> I've had

trouble understanding how 3 minerals could be so > effective, especially when I've taken both magnesium and sodium > seperately w/o the kind of improvement that's being reported. > Perhaps this particular balancing of minerals is not a cure so much > as a catalyst for creating an environment for things to work better > and resulting in symptom relief.

[Guest guest]

Kate

I feel that anyone that is suffering some serious inflammation

issues can't avoid the tissue damage and hydration that results as a

byproduct of suffering long term.IMO

tony

>

> > KAte

> > ARE you well hydrated?

>

> I think I drink enough...

>

> > Are you problem fee with dental issues?

>

> Don't know of any...

>

> > Are

> > you very flexable not stiff?

>

> I was a dancer and gymnast, and am flexible still. (I do not have

> tight muscles. When my back pain was so bad I wanted to die, the

doc

> tried telling me my back muscles were tight. But the chiropractor

> knew they weren't. It was actually inflammation in my spine.)

>

> > Do you have sore joints?

>

> Yes, sore joints.

>

> > Cardiovascular issues, hearat stuff?

>

> Seems okay.

>

> - Kate

>

[Guest guest]

Research shows that people with FMS actually have a tendency to at least some hyperflexibility. I am hyperflexible in my hips, yet very tight in my hamstrings & shoulders. pennyKate <KateDunlay@...> wrote: On May 14, 2006, at 9:58 PM, dumbaussie2000 wrote:> KAte> ARE you well hydrated?I think I drink enough...> Are you problem fee with dental issues?Don't know of any...> Are> you very flexable not stiff?I was a dancer and gymnast, and am flexible still. (I do not have tight muscles. When my back pain was so bad I wanted to die, the doc tried telling me my back muscles were tight. But the chiropractor knew they weren't. It was actually inflammation in my spine.)> Do you

have sore joints?Yes, sore joints.> Cardiovascular issues, hearat stuff?Seems okay.- Kate

[Guest guest]

Yes, actually I had read that before. I'm not sure if I am

hyperflexible at all. Most of my flex was hard won! My son's Lyme doc

said he is hyperflexible somewhere, I forget where, which is strange

because it's not something you would notice -- obviously, since I

can't even remember where it was! But when you start getting into

areas like that, people can get carried away with analysis. Your

average alternative doc will grasp onto things like that as being

meaningful so that they can tell you something. I mean I know people

who are way more naturally flexible than I am who are really really

healthy. What I'm saying is that I'm about normal for someone who

danced a lot in their youth. I'm neither hyperflexible nor stiff. I

am in pain, but not stiff.

Likewise, although Tony thinks that hydration is always an issue, I

just can't see any evidence of it in my case. It makes no difference

to how I feel when I make myself drink a lot rather than a normal

amount. Drinking salty water doesn't seem to help or hurt me. I don't

think I have the blood volume issue, although my blood pressure

supposedly doesn't behave entirely correctly upon changing levels

(lying to standing). I don't have dizziness or fog though. That being

said, it is probably still important that I try to drink more than

average because of toxins.

I spent a long time trying to make CFS and FMS criteria fit me (since

I knew SOMETHING was wrong and nobody could find anything), which it

doesn't really. That's why my Lyme diagnosis makes more sense to me.

People say the illnesses are related and I agree, but PWCs can vary a

lot.

- Kate

On May 15, 2006, at 12:53 AM, Penny Houle wrote:

> Research shows that people with FMS actually have a tendency to at

> least some hyperflexibility. I am hyperflexible in my hips, yet

> very tight in my hamstrings & shoulders.

>

> penny

>

[Guest guest]

I don't think anyone should try to make CFS or FMS fit them. It equals 'no treatment' and doesn't mean much, except that people share symptoms. I wanted Tony to know that hyperflexibility is one of these common factors, although not frequently discussed or even listed. I don't know what it means. Are people who have greater flexibility more susceptible? More prone to injury and infection? I don't know. As we age, that hyperflexibility becomes less noticeable, or as you say, it may not be noticed at all in a person who didn't dance or do gymnastics or yoga. My two daughters are both serious dancers. I danced a little. We all have unbelievable turnout (flexible hips). It's genetic. My oldest got sick and got better with minocycline, although I don't know if she's cured. I'm watching my youngest closely, as she's the most flexible of all of us. She has loose achilles, loose ankles, crazy turnout.

Conversely, we all share tighter than normal shoulders and hamstrings. My youngest sometimes experiences very slight tics, or ocd tendencies. Nothing noticeable to non family members, but we and she notice it, and this worries me that she may also have some kind of latent bug. penny Kate <KateDunlay@...> wrote: Yes, actually I had read that before. I'm not sure if I am hyperflexible at all. Most of my flex was hard won! My son's Lyme doc said he is hyperflexible somewhere, I forget where, which is strange because it's not something you would notice -- obviously, since I can't even remember where it was! But when you start getting into areas like that, people can get carried away with analysis. Your average alternative doc

will grasp onto things like that as being meaningful so that they can tell you something. I mean I know people who are way more naturally flexible than I am who are really really healthy. What I'm saying is that I'm about normal for someone who danced a lot in their youth. I'm neither hyperflexible nor stiff. I am in pain, but not stiff.Likewise, although Tony thinks that hydration is always an issue, I just can't see any evidence of it in my case. It makes no difference to how I feel when I make myself drink a lot rather than a normal amount. Drinking salty water doesn't seem to help or hurt me. I don't think I have the blood volume issue, although my blood pressure supposedly doesn't behave entirely correctly upon changing levels (lying to standing). I don't have dizziness or fog though. That being said, it is probably still important that I try

to drink more than average because of toxins.I spent a long time trying to make CFS and FMS criteria fit me (since I knew SOMETHING was wrong and nobody could find anything), which it doesn't really. That's why my Lyme diagnosis makes more sense to me. People say the illnesses are related and I agree, but PWCs can vary a lot.- KateOn May 15, 2006, at 12:53 AM, Penny Houle wrote:> Research shows that people with FMS actually have a tendency to at > least some hyperflexibility. I am hyperflexible in my hips, yet > very tight in my hamstrings & shoulders.>> penny>

[Guest guest]

Biaxin got right into the back for me.

bleu

On 15 May 2006, at 05:02, Kate wrote:

>

> On May 14, 2006, at 9:58 PM, dumbaussie2000 wrote:

>

> > KAte

> > ARE you well hydrated?

>

> I think I drink enough...

>

> > Are you problem fee with dental issues?

>

> Don't know of any...

>

> > Are

> > you very flexable not stiff?

>

> I was a dancer and gymnast, and am flexible still. (I do not have 

> tight muscles. When my back pain was so bad I wanted to die, the doc 

> tried telling me my back muscles were tight. But the chiropractor 

> knew they weren't. It was actually inflammation in my spine.)

>

> > Do you have sore joints?

>

> Yes, sore joints.

>

> > Cardiovascular issues, hearat stuff?

>

> Seems okay.

>

> - Kate

>

>

>

[Guest guest]

Biaxin is very fickle, you gotta be lucky to have very susceptable

organisms for this drug to do any good.

tony

>

> > Biaxin got right into the back for me.

> >

> > bleu

>

> I've had two months of it and should be getting more, but I haven't

> noticed a difference since the Biaxin. I had Ketek before that.

> Really, it was the minocycline way back in the beginning that

helped

> the most.

>

> - Kate

>