Re: update post doc visit; 2 RX for anti-fungal, no refill yet on doxycline

[Guest guest]

Greetings again from NC. I

went to my primary care doc today. She said my lungs sound much clearer and was

glad the doxycline is working. My asthma is much better under control. All

weekend, I coughed up wonderful brown long strings and some yellow but the

mucous is lessening and what is there is clear.

She will see me again later in the week. I

am developing symptoms of kidney pain and possible infection there so she is

culturing urine and will see me again then. She said I would need to see an Inf

disease doc or otherwise to get doxy beyond 10 days. (I swear I felt like the

old days when they would write pain med seeker “ on people’s

charts. She did prescribe me fluconazone + 3 refills and oral nystatin + 3

refills.

I will see my natural minded neuro tomorrow

and plan to discuss re long term doxy as he saw me lasts month and proposed

long term treatment with antibiotic at my visit last month.

Thanks for everyone’s support

From: infections

[mailto:infections ]

On Behalf Of dumbaussie2000

Sent: Sunday, May 14, 2006 6:02 PM

infections

Subject:

[infections] Re: Anaphylactic shock, Electrolytes, Salt/C,

Ampehotericine B, Benicar etc.

Don't back off the doxy if it is really having a major impact. Try

add a antifungal since most abx don't agree, I believe you'll have

less problems with all drugs when your pathogens are being

quietened.There's nothing dangerous about doing doxy for a year.

tony

>

> I have had anaphylactic reactions to penicillin

> and sulfa since I was a teen (both requiring tubes

> down my throat due to reaction) . In recent years

> , I began reacting to many more meds and later

> supps and having allergic reactions of severe

> asthma, severe hives, short of breath and in some

> cases " just " severe diarrhea or medication induced

> anorexia.

>

>

>

> My electrolyte studies last month and even my hair

> test show that I am very low in both potassium and

> magnesium and yet I was supplementing both and

> still do and eat foods very high in both.

> Something isn't working right. Some changes made

> in the past few weeks under direction of my

> natural minded neuro and natural minded ENT

> working together were first to try mag sulfate

> injections which worsened symptoms dramatically

> and now am supplementing potassium as well as

> taking magnesium malate tablets and transdermal

> mag citrate. My walking and EDSS numbers have

> improved dramatically in the past 10 days (score

> used to define degree of disability related to MS)

> after continued progression since 2003 and being

> in and out of a wheelchair or walker since 2004.

> They are also tinkering to get my thyroid under

> control. Been on synthroid for 13 years but still

> not testing right and am currently on both levoxyl

> and armour and see Neuro Tues to continue his plan

> to either migrate to armour entirely or some combo

> of both. He believes my thyroid issues started all

> my health problems.

>

>

>

> My asthma and breathing issues are improving

> dramatically since starting doxycline and

> administration of bactroban in my nostrils (gave

> up on the idea of putting the bactroban in my

> nebulizer) and doing albuterol treatments every 4

> hour around the clock. My ENT had previously had

> me using bactroban nasal irrigation but I was

> swallowing and choking on the stuff and PCP thinks

> may have aspirated some causing my initial

> breathing problems. I am very interested in what

> I've read about the Welden protocol although my

> MRSA is resistant to some of the things suggested

> in the protocol. I will discuss with my PCP, ENT,

> and Neuro (all of whom I see next week) regarding

> staying longer on the antibiotic and/or adding

> another and adding antifungal. Also waiting for

> results of sputum analysis from Friday (although

> we know how those go but they were going to use

> the infectious disease lab to analyze)..

>

>

>

> Thanks for the reminder re liver issues as I like

> some others have elevated liver enzymes and amino

> acid test and organic acid test done in last 3

> weeks reflects the same issues. Waiting to discuss

> results with my docs but I have copies and have

> reviewed both reports and understand the

> implications.

>

>

>

> _____

>

> From: infections

> [mailto:infections ]

> On Behalf Of Colourbleu

> Sent: Sunday, May 14, 2006 4:51 AM

> infections

> Subject: [infections] Anaphylactic

> shock, Electrolytes, Salt/C, Ampehotericine B,

> Benicar etc.

>

>

>

> Anaphylactic shock, Electrolytes, Salt/C,

> Ampehotericine B, Benicar etc.

>

> got me thinking, as she has been having so

> many problems with

> anaphylactic shock reactions and breathing crises.

> Im wondering what is

> going on?

>

> I have personally had what I think were

> anaphylactic shocks (2), after

> administering b12 shots. This is a rare possible

> side effect of B12

> shots. This is one frightening symptom.

>

> I came to the conclusion that actually what caused

> this was a low blood

> potassium level. I could not handle the shots and

> continued with b12

> tablets and added potassium. This seemed to help

> allot.

>

> The bodies electrolyte system works on a fine

> balance and when out of

> sync the symptoms can be sudden and drastic. Many

> of the drugs that we

> take, work by robing the body of potassium in one

> way or another. Or by

> another mechanism disrupting the electrolyte

> system.

>

> Many of us that are close to the edge and have

> seriously hampered

> bodies which can be tilted over the edge very

> easily when taking these

> drugs.

>

> It does not make 100% sense that is allergic

> to lots of different

> drugs and I suspect that maybe another problem is

> lurking in the

> background (potassium loss?) that is the

> underlying problem.

>

> It would seem that this problem (if there) and

> discovered would open

> the flood gates for treatments that seem to be so

> badly needed (abx/

> a/f).

>

> If I were you I think I would consider

> having a basic electrolyte

> test, and keeping an eye on these in the future.

> These electrolytes can

> cause havoc if out of whack and make us very ill

> very quickly. Hence

> the administration of electrolytes when you go

> into emergency in

> hospital (very often).

>

> Penny as your on Benicar and had problems with the

> kidneys in the past,

> I think you should be especially careful when

> taking amp b, and over

> time watch your electrolytes as I think the oral

> form does enter the

> system and does rob the body of potassium.

>

> Salt / C

> I have spoken to some of the main advocates of the

> salt/c treatment,

> and while clearly it has benefits, they seemed

> totally ignorant of the

> possible of side effects from taking too much salt

> thus lowering the

> potassium levels. If anyone is doing the Salt/C I

> would also suggest

> potassium is monitored and possible added into the

> regime too.

>

> If anyone comes over very iffy, very quickly, the

> electrolytes should

> be considered as a potential cause of this sudden

> attack.

>

> Bleu

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

That's positive-I hope your antifungals help your combo therapy. The

key now is to not be scared to change up if your not getting bang

for the buck from your antifungals. Nystatin is very good in about

50% of people in my tests, hopefully you'll be in the right side of

the 50%.

-- In infections , " julie levitt "

<knightshotter@...> wrote:

>

> Greetings again from NC. I went to my primary

> care doc today. She said my lungs sound much

> clearer and was glad the doxycline is working. My

> asthma is much better under control. All weekend,

> I coughed up wonderful brown long strings and some

> yellow but the mucous is lessening and what is

> there is clear.

>

>

>

> She will see me again later in the week. I am

> developing symptoms of kidney pain and possible

> infection there so she is culturing urine and will

> see me again then. She said I would need to see an

> Inf disease doc or otherwise to get doxy beyond 10

> days. (I swear I felt like the old days when they

> would write pain med seeker " on people's charts.

> She did prescribe me fluconazone + 3 refills and

> oral nystatin + 3 refills.

>

>

>

> I will see my natural minded neuro tomorrow and

> plan to discuss re long term doxy as he saw me

> lasts month and proposed long term treatment with

> antibiotic at my visit last month.

>

>

>

> Thanks for everyone's support

>

>

> _____

>

>

> From: infections

> [mailto:infections ]

> On Behalf Of dumbaussie2000

> Sent: Sunday, May 14, 2006 6:02 PM

> infections

> Subject: [infections] Re:

> Anaphylactic shock, Electrolytes, Salt/C,

> Ampehotericine B, Benicar etc.

>

>

>

>

> Don't back off the doxy if it is really having a

> major impact. Try

> add a antifungal since most abx don't agree, I

> believe you'll have

> less problems with all drugs when your pathogens

> are being

> quietened.There's nothing dangerous about doing

> doxy for a year.

> tony

>

>

>

>

>

>

> >

> > I have had anaphylactic reactions to penicillin

> > and sulfa since I was a teen (both requiring

> tubes

> > down my throat due to reaction) . In recent

> years

> > , I began reacting to many more meds and later

> > supps and having allergic reactions of severe

> > asthma, severe hives, short of breath and in

> some

> > cases " just " severe diarrhea or medication

> induced

> > anorexia.

> >

> >

> >

> > My electrolyte studies last month and even my

> hair

> > test show that I am very low in both potassium

> and

> > magnesium and yet I was supplementing both and

> > still do and eat foods very high in both.

> > Something isn't working right. Some changes made

> > in the past few weeks under direction of my

> > natural minded neuro and natural minded ENT

> > working together were first to try mag sulfate

> > injections which worsened symptoms dramatically

> > and now am supplementing potassium as well as

> > taking magnesium malate tablets and transdermal

> > mag citrate. My walking and EDSS numbers have

> > improved dramatically in the past 10 days (score

> > used to define degree of disability related to

> MS)

> > after continued progression since 2003 and being

> > in and out of a wheelchair or walker since 2004.

> > They are also tinkering to get my thyroid under

> > control. Been on synthroid for 13 years but

> still

> > not testing right and am currently on both

> levoxyl

> > and armour and see Neuro Tues to continue his

> plan

> > to either migrate to armour entirely or some

> combo

> > of both. He believes my thyroid issues started

> all

> > my health problems.

> >

> >

> >

> > My asthma and breathing issues are improving

> > dramatically since starting doxycline and

> > administration of bactroban in my nostrils (gave

> > up on the idea of putting the bactroban in my

> > nebulizer) and doing albuterol treatments every

> 4

> > hour around the clock. My ENT had previously had

> > me using bactroban nasal irrigation but I was

> > swallowing and choking on the stuff and PCP

> thinks

> > may have aspirated some causing my initial

> > breathing problems. I am very interested in what

> > I've read about the Welden protocol although my

> > MRSA is resistant to some of the things

> suggested

> > in the protocol. I will discuss with my PCP,

> ENT,

> > and Neuro (all of whom I see next week)

> regarding

> > staying longer on the antibiotic and/or adding

> > another and adding antifungal. Also waiting for

> > results of sputum analysis from Friday (although

> > we know how those go but they were going to use

> > the infectious disease lab to analyze)..

> >

> >

> >

> > Thanks for the reminder re liver issues as I

> like

> > some others have elevated liver enzymes and

> amino

> > acid test and organic acid test done in last 3

> > weeks reflects the same issues. Waiting to

> discuss

> > results with my docs but I have copies and have

> > reviewed both reports and understand the

> > implications.

> >

> >

> >

> > _____

> >

> > From: infections

> >

> [mailto:infections ]

> > On Behalf Of Colourbleu

> > Sent: Sunday, May 14, 2006 4:51 AM

> > infections

> > Subject: [infections]

> Anaphylactic

> > shock, Electrolytes, Salt/C, Ampehotericine B,

> > Benicar etc.

> >

> >

> >

> > Anaphylactic shock, Electrolytes, Salt/C,

> > Ampehotericine B, Benicar etc.

> >

> > got me thinking, as she has been having so

> > many problems with

> > anaphylactic shock reactions and breathing

> crises.

> > Im wondering what is

> > going on?

> >

> > I have personally had what I think were

> > anaphylactic shocks (2), after

> > administering b12 shots. This is a rare possible

> > side effect of B12

> > shots. This is one frightening symptom.

> >

> > I came to the conclusion that actually what

> caused

> > this was a low blood

> > potassium level. I could not handle the shots

> and

> > continued with b12

> > tablets and added potassium. This seemed to help

> > allot.

> >

> > The bodies electrolyte system works on a fine

> > balance and when out of

> > sync the symptoms can be sudden and drastic.

> Many

> > of the drugs that we

> > take, work by robing the body of potassium in

> one

> > way or another. Or by

> > another mechanism disrupting the electrolyte

> > system.

> >

> > Many of us that are close to the edge and have

> > seriously hampered

> > bodies which can be tilted over the edge very

> > easily when taking these

> > drugs.

> >

> > It does not make 100% sense that is

> allergic

> > to lots of different

> > drugs and I suspect that maybe another problem

> is

> > lurking in the

> > background (potassium loss?) that is the

> > underlying problem.

> >

> > It would seem that this problem (if there) and

> > discovered would open

> > the flood gates for treatments that seem to be

> so

> > badly needed (abx/

> > a/f).

> >

> > If I were you I think I would consider

> > having a basic electrolyte

> > test, and keeping an eye on these in the future.

> > These electrolytes can

> > cause havoc if out of whack and make us very ill

> > very quickly. Hence

> > the administration of electrolytes when you go

> > into emergency in

> > hospital (very often).

> >

> > Penny as your on Benicar and had problems with

> the

> > kidneys in the past,

> > I think you should be especially careful when

> > taking amp b, and over

> > time watch your electrolytes as I think the oral

> > form does enter the

> > system and does rob the body of potassium.

> >

> > Salt / C

> > I have spoken to some of the main advocates of

> the

> > salt/c treatment,

> > and while clearly it has benefits, they seemed

> > totally ignorant of the

> > possible of side effects from taking too much

> salt

> > thus lowering the

> > potassium levels. If anyone is doing the Salt/C

> I

> > would also suggest

> > potassium is monitored and possible added into

> the

> > regime too.

> >

> > If anyone comes over very iffy, very quickly,

> the

> > electrolytes should

> > be considered as a potential cause of this

> sudden

> > attack.

> >

> > Bleu

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Tony, I'm bummed about this pseudomonas. I don't think the iodine's cutting it at all. I feel a very short term relief after using it, but in general I'm getting worse. My ear's hurting more and more, my neck is stiff, my throat's getting sorer and I have headaches. I just feel overall crappy. Right after the surgery, when they sucked all that infection out of my sinuses, my neck and shoulder pain vanished, but it's back now and getting worse as the infection grows. What should I do? With all the drainage I'm now experiencing, I'm sure the pseudomonas is probably in my gut now too, if it wasn't already. I see my ENT and my regular gp this week. I'm thinking if I continue to decline, I'm going to ask her to put me in the hospital to treat it i.v. However, I don't feel confident that she will treat aggressively enough, or find the other organisms. As you know, my gp

will prescribe pretty much what I ask for. Problem is, I don't know what to ask for. I also don't know if the pseudomonas is causing all this havoc or if there's another bug she can't find. Because I've had this pseudomonas for a while but never this kind of sinus problem. It wasn't nearly this bad while I was on abx before the sinus surgery. Even though the pseudomonas is resistant to all abx it must have been killing something because at least I didn't have the ear ache, the headache, the stiff neck, etc. Any ideas on what I should take right now and what to ask my gp for? Zithromax is only mildly helpful, not really cutting it. Ketek has very bad warnings out about it now. Ceftin worked for a while but stopped. I have no idea what to try. I've got a drawer full of abx, but none of them ever worked like pennicillin and cipro. The penicillin I

know stopped working because my fatigue returned after 6 months. I could try cipro again, but I really feel it was bad for my tendons and again, not getting to the source. Doxy was just mildly effective. So many others did nothing, like tretracycline, clindamycin, or made me really sick, like mino, imepenim, bactrim. Any ideas? In general, my gut feels fine, but after the iodine rinses, I often get a mild diarrhea attack, which indicates it might be getting into my gut and killing something. But I'm at a loss here, without any good lab results to work from except an impervious pseudomonas, which I've had all along anyway. penny

[Guest guest]

shes a spinless one, you need much more, like months of the stuff.

bleu

On 15 May 2006, at 16:30, julie levitt wrote:

> d will see me again then. She said I would need to see an Inf disease

> doc or otherwise to get doxy beyond 10 days. (I swear I felt like the

> old days when they would write pain med seeker “ on people’s charts.

> She did prescribe me fluconazone + 3 refills and oral nystatin + 3

> refills.

>  

[Guest guest]

I think cipro might be in order?

On 15 May 2006, at 17:59, Penny Houle wrote:

> I could try cipro again, but I really feel it was bad for my tendons

> and again, not getting to the source. Doxy was just mildly effective.

> So many others did nothing, like tretracycline, clindamycin, or made

> me really sick, like mino, imepenim, bactrim. Any ideas?

>  

> In general, my gut feels fine, but after the iodine rinses, I often

> get a mild diarrhea attack, which indicates it might be getting int

[Guest guest]

Bleu

I think she may need months of the right stuff so the fact that she's

getting a chance to improve her symptoms and trial a few things is

important.Hopefully she can end up with a doctor that can see the

forrest for the tree's and works with the patient and her improving

symptoms.

tony

>

> > d will see me again then. She said I would need to see an Inf

disease

> > doc or otherwise to get doxy beyond 10 days. (I swear I felt like

the

> > old days when they would write pain med seeker " on people's

charts.

> > She did prescribe me fluconazone + 3 refills and oral nystatin + 3

> > refills.

> >  

>

[Guest guest]

Appt with infectious disease doc

specializing in MSRA at UNC is now July. Neuro appt is tomorrow. Will have him

get me to July and I understand re Nystatin swish and diflucan….This is so much

fun. Shall I see if how many more docs will fire me for being “noncompliant”

when I simply demand to be treated for my illness properly…..

From: infections

[mailto:infections ] On Behalf Of Colourbleu

Sent: Monday, May 15, 2006 3:11 PM

To:

infections

Subject: Re:

[infections] update post doc visit; 2 RX for anti-fungal, no

refill yet on doxycline

shes a spinless one, you

need much more, like months of the stuff.

bleu

On 15 May 2006, at 16:30, julie levitt wrote:

d

will see me again then. She said I would need to see an Inf disease doc or

otherwise to get doxy beyond 10 days. (I swear I felt like the old days when

they would write pain med seeker “ on people’s charts. She did prescribe me

fluconazone + 3 refills and oral nystatin + 3 refills.

[Guest guest]

, I have a friend in the states who developed a style with her

doctors and the ones that may have FIRED HER, were'nt worth visiting

in the first place.

>

> d will see me again then. She said I would need to

> see an Inf disease doc or otherwise to get doxy

> beyond 10 days. (I swear I felt like the old days

> when they would write pain med seeker " on

> people's charts. She did prescribe me fluconazone

> + 3 refills and oral nystatin + 3 refills.

>

[Guest guest]

Now I research and get referrals from

local people about who is cool and who isn’t….I’ve had trouble

finding a decent

primary care doc though and most don’t

want to deal with someone with complicated medical issues……

I’ve seen some samples of letters

people write to their docs but I haven’t seen downright good scripts on

how the ultimate phone conversation

Should go so we can get what we really

need . And each doc that isn’t worth their time is another $25 copay and

lots of wasted time….so frustrating.

Okay off to bed soon

From:

infections

[mailto:infections ] On Behalf Of dumbaussie2000

Sent: Monday, May 15, 2006 9:01 PM

To:

infections

Subject:

[infections] Re: update post doc visit; 2 RX for anti-fungal, no

refill yet on doxycline

, I have a friend in the states who developed a style with her

doctors and the ones that may have FIRED HER, were'nt worth visiting

in the first place.

>

> d will see me again then. She said I would need to

> see an Inf disease doc or otherwise to get doxy

> beyond 10 days. (I swear I felt like the old days

> when they would write pain med seeker " on

> people's charts. She did prescribe me fluconazone

> + 3 refills and oral nystatin + 3 refills.

>

[Guest guest]

On May 15, 2006, at 12:59 PM, Penny Houle wrote:

> Right after the surgery, when they sucked all that infection out

> of my sinuses, my neck and shoulder pain vanished, but it's back

> now and getting worse as the infection grows.

>

> Any ideas on what I should take right now and what to ask my gp

> for? Zithromax is only mildly helpful, not really cutting it.

> Ketek has very bad warnings out about it now. Ceftin worked for a

> while but stopped.

Wow Penny, I really thought you were winning your battle. This is

discouraging. About Ketek -- is there new data since the initial

warning? I haven't heard anything. I did switch over to Biaxin

myself, although my doctor didn't seem all that concerned. I was

thinking maybe I should try Ketek again, since I did have an obvious

reaction to it at first. It seems like if it was working for you, you

should stick with it, unless the Ketek warnings have become more

specific.

- Kate

[Guest guest]

Penny

Your just scrapping the surface with your iodine swish.Cipro is your

best pseudonomads drug but I dislike it on it's own you get this

horrific rebound. Also definately swish with the silver as well but

seperate from your iodine as they may attract and neutralise each

other.

I still like the lamisil as it possably has the deep penetration

required for these types of problems. Also your environmenmt is

driving the infection so you have to find a room in your house that

ain't going to start the bugs firing.

tony

>

> Tony, I'm bummed about this pseudomonas. I don't think the

iodine's cutting it at all. I feel a very short term relief after

using it, but in general I'm getting worse. My ear's hurting more

and more, my neck is stiff, my throat's getting sorer and I have

headaches. I just feel overall crappy. Right after the surgery, when

they sucked all that infection out of my sinuses, my neck and

shoulder pain vanished, but it's back now and getting worse as the

infection grows.

>

> What should I do? With all the drainage I'm now experiencing,

I'm sure the pseudomonas is probably in my gut now too, if it wasn't

already.

>

> I see my ENT and my regular gp this week. I'm thinking if I

continue to decline, I'm going to ask her to put me in the hospital

to treat it i.v. However, I don't feel confident that she will treat

aggressively enough, or find the other organisms. As you know, my gp

will prescribe pretty much what I ask for. Problem is, I don't know

what to ask for.

>

> I also don't know if the pseudomonas is causing all this havoc

or if there's another bug she can't find. Because I've had this

pseudomonas for a while but never this kind of sinus problem.

>

> It wasn't nearly this bad while I was on abx before the sinus

surgery. Even though the pseudomonas is resistant to all abx it must

have been killing something because at least I didn't have the ear

ache, the headache, the stiff neck, etc.

>

> Any ideas on what I should take right now and what to ask my gp

for? Zithromax is only mildly helpful, not really cutting it. Ketek

has very bad warnings out about it now. Ceftin worked for a while

but stopped. I have no idea what to try. I've got a drawer full of

abx, but none of them ever worked like pennicillin and cipro. The

penicillin I know stopped working because my fatigue returned after

6 months. I could try cipro again, but I really feel it was bad for

my tendons and again, not getting to the source. Doxy was just

mildly effective. So many others did nothing, like tretracycline,

clindamycin, or made me really sick, like mino, imepenim, bactrim.

Any ideas?

>

> In general, my gut feels fine, but after the iodine rinses, I

often get a mild diarrhea attack, which indicates it might be

getting into my gut and killing something. But I'm at a loss here,

without any good lab results to work from except an impervious

pseudomonas, which I've had all along anyway.

>

> penny

>

[Guest guest]

Dear , Good luck with your appointment. I don't know what has happened to the medical field in the last five years--everyone seems afraid to proscribe antibiotics for anything anymore. I know, I had MRSA for two years but got over it[?] via IV Vancomycin. Anyway, I wish you luck! Sincerely, nukemaidjulie levitt <knightshotter@...> wrote: Appt with infectious disease doc specializing in MSRA at UNC is now July. Neuro appt is tomorrow. Will have him get me to July and I understand re Nystatin swish and diflucan….This is so much fun. Shall I see if how many more docs will fire me for being “noncompliant” when I simply demand to be treated for my illness properly….. From: infections [mailto:infections ] On Behalf Of ColourbleuSent: Monday, May 15, 2006 3:11 PMinfections Subject: Re: [infections] update post doc visit; 2 RX for anti-fungal, no refill yet on doxycline shes a spinless one, you need much more, like months of the stuff.bleuOn 15 May 2006, at 16:30, julie levitt wrote: d will see me again then. She said I would need to see an Inf disease doc or otherwise to get doxy beyond 10 days. (I swear I felt like the old days when they would write pain med seeker “ on people’s charts. She did prescribe me

fluconazone + 3 refills and oral nystatin + 3 refills.

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[Guest guest]

tony, the cipro stopped working a long time ago. I suppose I could retry it but the pseudomonas tested resistant to it anyway. If I retried it I'd probably be going after some unidentified bug not the pseudomonas. I'm not sure what you mean about my house? I generally stay in the sunniest room, as I feel the best in sunlight. Until I cleared up a mold problem, I avoided certain rooms, but those are no longer contaminated. I can completely feel the difference since cleaning up the problem. Just walking into those rooms used to make me woozy but no more. Anyway, any other suggestions on what to take? I'll get some lamisil from my doc, see if it does anything, but I truly don't think this is a fungal problem. I used to do silver in my nasal rinses. And it helped prevent colds, etc. But I don't think it's ever been able to take on this pseudomonas. I could try it again for a longer time

period...maybe that would make a difference... but anything else? Oh, plus my right nipple feels slightly infected now. Warm and a bit painful. Zith seems to help that, so it's either the pseudomonas suddenly out of control due to the opened up sinuse (whereas it was better walled off before) OR, I've got a bug going on that's not being i.d.'d. But whatever it is, I think the worst problem is coming from my right sinus now, because everything that's bothering me is on the right side. Right ear, sore roof of mouth & throat (new), pain in right side of neck and shoulder and now right nipple. And even before this I was having right side symptoms, like my upper right arm, elbow and knee. It's like a right sided illness and maybe no coincidence that my right sphenoid was the worst infected. Of course I have

left side jaw problems but it seems it has walled itself off better. Not so with the infection on the right and I'm actually afraid that opening up and letting that sphenoid drain, is making things worse by giving the pseudomonas a lot more room to roam than it used to have. Either that, or I've got an unidentified bug. Seriously, what should I ask for when I see my gp? penny dumbaussie2000 <dumbaussie2000@...> wrote: PennyYour just scrapping the surface with your iodine swish.Cipro is your best pseudonomads drug but I dislike it on it's own you get this horrific rebound. Also definately swish with the silver as well but seperate from your iodine as they may

attract and neutralise each other.I still like the lamisil as it possably has the deep penetration required for these types of problems. Also your environmenmt is driving the infection so you have to find a room in your house that ain't going to start the bugs firing.tony>> Tony, I'm bummed about this pseudomonas. I don't think the iodine's cutting it at all. I feel a very short term relief after using it, but in general I'm getting worse. My ear's hurting more and more, my neck is stiff, my throat's getting sorer and I have headaches. I just feel overall crappy. Right after the surgery, when they sucked all that infection out of my sinuses, my neck and shoulder pain vanished, but it's back now and getting worse as the infection grows.> > What

should I do? With all the drainage I'm now experiencing, I'm sure the pseudomonas is probably in my gut now too, if it wasn't already. > > I see my ENT and my regular gp this week. I'm thinking if I continue to decline, I'm going to ask her to put me in the hospital to treat it i.v. However, I don't feel confident that she will treat aggressively enough, or find the other organisms. As you know, my gp will prescribe pretty much what I ask for. Problem is, I don't know what to ask for.> > I also don't know if the pseudomonas is causing all this havoc or if there's another bug she can't find. Because I've had this pseudomonas for a while but never this kind of sinus problem.> > It wasn't nearly this bad while I was on abx before the sinus surgery. Even though the pseudomonas is resistant to all abx it must

have been killing something because at least I didn't have the ear ache, the headache, the stiff neck, etc. > > Any ideas on what I should take right now and what to ask my gp for? Zithromax is only mildly helpful, not really cutting it. Ketek has very bad warnings out about it now. Ceftin worked for a while but stopped. I have no idea what to try. I've got a drawer full of abx, but none of them ever worked like pennicillin and cipro. The penicillin I know stopped working because my fatigue returned after 6 months. I could try cipro again, but I really feel it was bad for my tendons and again, not getting to the source. Doxy was just mildly effective. So many others did nothing, like tretracycline, clindamycin, or made me really sick, like mino, imepenim, bactrim. Any ideas?> > In general, my gut feels fine, but after the iodine

rinses, I often get a mild diarrhea attack, which indicates it might be getting into my gut and killing something. But I'm at a loss here, without any good lab results to work from except an impervious pseudomonas, which I've had all along anyway. > > penny>

[Guest guest]

Yeah, I was doing really well for a while, but suddenly the bug started getting the upper hand over the drugs. I didn't stop Ketek because of the warnings. I stopped because something else worked better. The penicillin VK, I think. Problem is, since then my doc gave me some dire warning about Ketek, and I said it wasn't a problem because I wasn't taking it anymore. Unfortunatley, I don't know the specifics of his warning, whether it was new or old info. Can't remember and wasn't that motivated to find out. What were the warnings you heard? I can't even remember those anymore. pennyKate <KateDunlay@...> wrote: On May 15, 2006, at 12:59 PM, Penny Houle wrote:> Right after the surgery,

when they sucked all that infection out > of my sinuses, my neck and shoulder pain vanished, but it's back > now and getting worse as the infection grows.>> Any ideas on what I should take right now and what to ask my gp > for? Zithromax is only mildly helpful, not really cutting it. > Ketek has very bad warnings out about it now. Ceftin worked for a > while but stopped.Wow Penny, I really thought you were winning your battle. This is discouraging. About Ketek -- is there new data since the initial warning? I haven't heard anything. I did switch over to Biaxin myself, although my doctor didn't seem all that concerned. I was thinking maybe I should try Ketek again, since I did have an obvious reaction to it at first. It seems like if it was working for you, you should stick with it, unless the Ketek warnings have become

more specific.- Kate

[Guest guest]

Dear Tony

Silver iodide is fairly strongly dissociated, worst that could happen is

that some silver could be precipitated in the surface tissues and stain

black. In therapeutic terms this may well be a plus but cosmetically it

might not go down well. The inverse Al Jolson version of a blue tongue

lizard

LOL

Regards

Windsor

[infections] Re: update post doc visit; 2 RX for

anti-fungal, no refill yet on doxycline

> Penny

> Your just scrapping the surface with your iodine swish.Cipro is your

> best pseudonomads drug but I dislike it on it's own you get this

> horrific rebound. Also definately swish with the silver as well but

> seperate from your iodine as they may attract and neutralise each

> other.

> I still like the lamisil as it possably has the deep penetration

> required for these types of problems. Also your environmenmt is

> driving the infection so you have to find a room in your house that

> ain't going to start the bugs firing.

> tony

>

>

[Guest guest]

I think that alot of what happens with skin discolouration occurs to

the ill patient. Whenever out on the weekend I drink watermelon

breezers and the red stain from the watermelon really penetrates my

toxic skin/lips as opposed to all my buddies who show no sign of

this short term discolouration. The virtues of dealing with membrane

damaging toxins that make my skin like microsized swiss cheese.I'm

the one with the lips that have really soaked in the red colour as

opposed to there NO SIGNS of any problems.

>

> Dear Tony

> Silver iodide is fairly strongly dissociated, worst that could

happen is

> that some silver could be precipitated in the surface tissues and

stain

> black. In therapeutic terms this may well be a plus but

cosmetically it

> might not go down well. The inverse Al Jolson version of a blue

tongue

> lizard

> LOL

> Regards

> Windsor

>

> [infections] Re: update post doc visit; 2

RX for

> anti-fungal, no refill yet on doxycline

>

>

> > Penny

> > Your just scrapping the surface with your iodine swish.Cipro is

your

> > best pseudonomads drug but I dislike it on it's own you get this

> > horrific rebound. Also definately swish with the silver as well

but

> > seperate from your iodine as they may attract and neutralise each

> > other.

> > I still like the lamisil as it possably has the deep penetration

> > required for these types of problems. Also your environmenmt is

> > driving the infection so you have to find a room in your house

that

> > ain't going to start the bugs firing.

> > tony

> >

> >

>

[Guest guest]

Dear Tony

Bloody good point and perhaps a useful diagnostic ( as if you need another)

Regards

R

-- Original Message -----

From: " dumbaussie2000 " <dumbaussie2000@...>

<infections >

Sent: Wednesday, May 17, 2006 12:53 PM

Subject: [infections] Re: update post doc visit; 2 RX for

anti-fungal, no refill yet on doxycline

>

> I think that alot of what happens with skin discolouration occurs to

> the ill patient. Whenever out on the weekend I drink watermelon

> breezers and the red stain from the watermelon really penetrates my

> toxic skin/lips as opposed to all my buddies who show no sign of

> this short term discolouration. The virtues of dealing with membrane

> damaging toxins that make my skin like microsized swiss cheese.I'm

> the one with the lips that have really soaked in the red colour as

> opposed to there NO SIGNS of any problems.

>

>

>

>

>

>

> >

> > Dear Tony

> > Silver iodide is fairly strongly dissociated, worst that could

> happen is

> > that some silver could be precipitated in the surface tissues and

> stain

> > black. In therapeutic terms this may well be a plus but

> cosmetically it

> > might not go down well. The inverse Al Jolson version of a blue

> tongue

> > lizard

> > LOL

> > Regards

> > Windsor

> >

> > [infections] Re: update post doc visit; 2

> RX for

> > anti-fungal, no refill yet on doxycline

> >

> >

> > > Penny

> > > Your just scrapping the surface with your iodine swish.Cipro is

> your

> > > best pseudonomads drug but I dislike it on it's own you get this

> > > horrific rebound. Also definately swish with the silver as well

> but

> > > seperate from your iodine as they may attract and neutralise each

> > > other.

> > > I still like the lamisil as it possably has the deep penetration

> > > required for these types of problems. Also your environmenmt is

> > > driving the infection so you have to find a room in your house

> that

> > > ain't going to start the bugs firing.

> > > tony

> > >

> > >

> >

>

>

>

>

>

>

>

>

>

[Guest guest]

There's so much to be alert about in this ilness it's amazing.

tony

> > >

> > > Dear Tony

> > > Silver iodide is fairly strongly dissociated, worst that could

> > happen is

> > > that some silver could be precipitated in the surface tissues

and

> > stain

> > > black. In therapeutic terms this may well be a plus but

> > cosmetically it

> > > might not go down well. The inverse Al Jolson version of a blue

> > tongue

> > > lizard

> > > LOL

> > > Regards

> > > Windsor

> > >

> > > [infections] Re: update post doc

visit; 2

> > RX for

> > > anti-fungal, no refill yet on doxycline

> > >

> > >

> > > > Penny

> > > > Your just scrapping the surface with your iodine swish.Cipro

is

> > your

> > > > best pseudonomads drug but I dislike it on it's own you get

this

> > > > horrific rebound. Also definately swish with the silver as

well

> > but

> > > > seperate from your iodine as they may attract and neutralise

each

> > > > other.

> > > > I still like the lamisil as it possably has the deep

penetration

> > > > required for these types of problems. Also your environmenmt

is

> > > > driving the infection so you have to find a room in your

house

> > that

> > > > ain't going to start the bugs firing.

> > > > tony

> > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >