Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Barb, that is thrilling news! And it seems to support the idea that the underlying infection needs to be dealt with for the body to start performing normally, penny Barb Peck <egroups1bp@...> wrote: Group:Well- I have some more good news.Over the years, my bone density was slowly dropping - and I was in the osteopenia range (not as bad as full fledged osteoporosis).The range scale for the ultrsound test is0 to 1.0 or above = suggests healthy bone-0.1 to - 1.5 = suggests osteopenia-1.6 to 2.5 = suggests osteoporosisI knew constant systemic inflammation interfers with bone turn over- and many women (and men) younger than I am have measurements lower than mine.In any case- since my Lyme treatment (and I supposed a dramatic drop in my inflammation level) I have climed on the measurement chart a few tenths for a couple of years- then between last May and this May I have risen into the plus (+) range .. which the Doc said is amazing.My best guess at what is happening is that my absorption of my Mag/Cal powdered supplement is being absorbed better. I have been taking the pharmaceutical powders (see my post above this one) for several years, and slowly dropping on the density scale... now that's reversing!!Between last May and this May- my density has gone up + 0.9 tenths - that's all most a whole number!! I am just over into the + range of the scale.I was thrilled.Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Hi Barb, Along these lines (reducing chronic inflammation) there was a news blurb this morning on breast cancer and obesity. It said that some new study shows that those who gain at least 60 lbs as adult women are at greater risk for breast cancer – their hunch is that is because obesity increases estrogen levels. But then they said that IL 6 is elevated in these women – obese and with breast cancer. AND THEN they get chronic fatigue syndrome AFTER they are treated for the breast cancer. How about this theory? chronic intracellular infection elevated cytokines and inflammation leads to obesity leads to breast cancer leads to chronic fatigue symptoms I still don’t think those of us who rapidly gained a lot of weight at some point just eat a lot more donuts that the rest of the world and that leads to breast cancer. a Carnes Group: Well- I have some more good news. Over the years, my bone density was slowly dropping - and I was in the osteopenia range (not as bad as full fledged osteoporosis). The range scale for the ultrsound test is 0 to 1.0 or above = suggests healthy bone -0.1 to - 1.5 = suggests osteopenia -1.6 to 2.5 = suggests osteoporosis I knew constant systemic inflammation interfers with bone turn over- and many women (and men) younger than I am have measurements lower than mine. In any case- since my Lyme treatment (and I supposed a dramatic drop in my inflammation level) I have climed on the measurement chart a few tenths for a couple of years- then between last May and this May I have risen into the plus (+) range .. which the Doc said is amazing. My best guess at what is happening is that my absorption of my Mag/Cal powdered supplement is being absorbed better. I have been taking the pharmaceutical powders (see my post above this one) for several years, and slowly dropping on the density scale... now that's reversing!! Between last May and this May- my density has gone up + 0.9 tenths - that's all most a whole number!! I am just over into the + range of the scale. I was thrilled. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Yeah, I hear that. I was 110-115 lbs. for years, then the sicker I got, the more pounds I packed on. And I hardly eat anything. So frustrating. I've read that fat is the body's way to handle toxins, surrounding them so they can't do as much damage. penny > > Hi Barb, > > > > Along these lines (reducing chronic inflammation) there was a news blurb > this morning on breast cancer and obesity. It said that some new study shows > that those who gain at least 60 lbs as adult women are at greater risk for > breast cancer - their hunch is that is because obesity increases estrogen > levels. But then they said that IL 6 is elevated in these women - obese and > with breast cancer. AND THEN they get chronic fatigue syndrome AFTER they > are treated for the breast cancer. > > > > How about this theory? > > 1. chronic intracellular infection > 2. elevated cytokines and inflammation > 3. leads to obesity > 4. leads to breast cancer > 5. leads to chronic fatigue symptoms > > > > I still don't think those of us who rapidly gained a lot of weight at some > point just eat a lot more donuts that the rest of the world and that leads > to breast cancer. > > > > a Carnes > > > > Group: > > Well- I have some more good news. > Over the years, my bone density was slowly dropping - and I was in > the osteopenia range (not as bad as full fledged osteoporosis). > The range scale for the ultrsound test is > 0 to 1.0 or above = suggests healthy bone > -0.1 to - 1.5 = suggests osteopenia > -1.6 to 2.5 = suggests osteoporosis > > I knew constant systemic inflammation interfers with bone turn over- > and many women (and men) younger than I am have measurements lower > than mine. > > In any case- since my Lyme treatment (and I supposed a dramatic drop > in my inflammation level) I have climed on the measurement chart a > few tenths for a couple of years- then between last May and this May > I have risen into the plus (+) range .. which the Doc said is amazing. > > My best guess at what is happening is that my absorption of my > Mag/Cal powdered supplement is being absorbed better. I have been > taking the pharmaceutical powders (see my post above this one) for > several years, > and slowly dropping on the density scale... now that's reversing!! > > Between last May and this May- my density has gone up + 0.9 tenths - > that's all most a whole number!! I am just over into the + range of > the scale. > > I was thrilled. > Barb > > > > > _____ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 a can you elaborate any on people getting CFS after cancer treatment? Is it fatigue only, or the whole enchilada? > > Hi Barb, > > > > Along these lines (reducing chronic inflammation) there was a news blurb > this morning on breast cancer and obesity. It said that some new study shows > that those who gain at least 60 lbs as adult women are at greater risk for > breast cancer - their hunch is that is because obesity increases estrogen > levels. But then they said that IL 6 is elevated in these women - obese and > with breast cancer. AND THEN they get chronic fatigue syndrome AFTER they > are treated for the breast cancer. > > > > How about this theory? > > 1. chronic intracellular infection > 2. elevated cytokines and inflammation > 3. leads to obesity > 4. leads to breast cancer > 5. leads to chronic fatigue symptoms > > > > I still don't think those of us who rapidly gained a lot of weight at some > point just eat a lot more donuts that the rest of the world and that leads > to breast cancer. > > > > a Carnes > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 This was not clear. The doctor called it “chronic fatigue syndrome” and generally seemed to indicate it was longterm, not just a few months of recovery from the chemo etc. It was like a certain group, rather large group, did not recover after the treatment. a a can you elaborate any on people getting CFS after cancer treatment? Is it fatigue only, or the whole enchilada? > > Hi Barb, > > > > Along these lines (reducing chronic inflammation) there was a news blurb > this morning on breast cancer and obesity. It said that some new study shows > that those who gain at least 60 lbs as adult women are at greater risk for > breast cancer - their hunch is that is because obesity increases estrogen > levels. But then they said that IL 6 is elevated in these women - obese and > with breast cancer. AND THEN they get chronic fatigue syndrome AFTER they > are treated for the breast cancer. > > > > How about this theory? > > 1. chronic intracellular infection > 2. elevated cytokines and inflammation > 3. leads to obesity > 4. leads to breast cancer > 5. leads to chronic fatigue symptoms > > > > I still don't think those of us who rapidly gained a lot of weight at some > point just eat a lot more donuts that the rest of the world and that leads > to breast cancer. > > > > a Carnes > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Very good news Barb, you are a star...you should make the headlines **Spleen-less Women beats Lyme** can you be persuaded to place you story on a site .. I'll host it if you like, Barb Park section ...Yes? .. [infections] Inflammation/osteoporosis/Mag:Cal absorption Group: Well- I have some more good news. Over the years, my bone density was slowly dropping - and I was in the osteopenia range (not as bad as full fledged osteoporosis). The range scale for the ultrsound test is 0 to 1.0 or above = suggests healthy bone -0.1 to - 1.5 = suggests osteopenia -1.6 to 2.5 = suggests osteoporosis I knew constant systemic inflammation interfers with bone turn over- and many women (and men) younger than I am have measurements lower than mine. In any case- since my Lyme treatment (and I supposed a dramatic drop in my inflammation level) I have climed on the measurement chart a few tenths for a couple of years- then between last May and this May I have risen into the plus (+) range .. which the Doc said is amazing. My best guess at what is happening is that my absorption of my Mag/Cal powdered supplement is being absorbed better. I have been taking the pharmaceutical powders (see my post above this one) for several years, and slowly dropping on the density scale... now that's reversing!! Between last May and this May- my density has gone up + 0.9 tenths - that's all most a whole number!! I am just over into the + range of the scale. I was thrilled. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Wow Barb, that's great! I wish I could say I am winning my war with inflammation, but I feel it all the time. My knees are okay at this time but spine is bothering me a lot. I suppose this is because I am exercising and doing a lot of digging in the garden. My spine doesn't feel nearly as fragile as last year but I feel the use of it way too much. - Kate > > In any case- since my Lyme treatment (and I supposed a dramatic drop > > in my inflammation level) I have climed on the measurement chart a > > few tenths for a couple of years- then between last May and this May > > I have risen into the plus (+) range .. which the Doc said is > amazing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Is there any chance that being spleen-less could be an advantage against Lyme? Also, is is possible that somebody who gets Lyme through a blood transfusion, might have a better immune system to start with than the people who succumb after tick bites? Sorry, just musing about what could be different between successful treatments and unsuccessful treatments -- other than the treatment! - Kate On May 22, 2006, at 2:52 PM, Jaep wrote: > Very good news Barb, you are a star...you should make the headlines > **Spleen-less Women beats Lyme** can you be persuaded to place you > story on > a site .. I'll host it if you like, Barb Park section ...Yes? .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 It's quite remarkable isn't it? People without spleens are supposed to be more prone to infection, and Barb's one of the few who's really beat it, after decades of being seriously ill. penny Kate <KateDunlay@...> wrote: Is there any chance that being spleen-less could be an advantage against Lyme? Also, is is possible that somebody who gets Lyme through a blood transfusion, might have a better immune system to start with than the people who succumb after tick bites? Sorry, just musing about what could be different between successful treatments and unsuccessful treatments -- other than the treatment!- KateOn May 22, 2006, at 2:52 PM, Jaep wrote:> Very good news Barb, you are a star...you should make the headlines> **Spleen-less Women beats Lyme** can you be persuaded to place you > story on> a site .. I'll host it if you like, Barb Park section ...Yes? .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 I might write my Life's story at some point. I already have a title (which I can't reveal). I think it's hard for some to beleive (even me sometimes) that there can be a reversal of all the symptoms I had... if they weren't documented- I think most Drs. really wouldn't beleive it. After the first and only herx that almost killed me- even though my abx therapy was a rollercoaster ride around hell..I think I'm one of the best reposnders to treatment on these lists. Which agin just re- inforces my theory that if you can get at the ROOT of the problem that starts the slow domino effect downward- that even a relatively " old spleenless body " can turn the corner and actually work correctly. Gives me more faith in the innate knowledge the body has- and less faith in the practicing diagnosticians. Barb > > Very good news Barb, you are a star...you should make the headlines > **Spleen-less Women beats Lyme** can you be persuaded to place you story on > a site .. I'll host it if you like, Barb Park section ...Yes? .. > > [infections] Inflammation/osteoporosis/Mag:Cal > absorption > > > Group: > > Well- I have some more good news. > Over the years, my bone density was slowly dropping - and I was in > the osteopenia range (not as bad as full fledged osteoporosis). > The range scale for the ultrsound test is > 0 to 1.0 or above = suggests healthy bone > -0.1 to - 1.5 = suggests osteopenia > -1.6 to 2.5 = suggests osteoporosis > > I knew constant systemic inflammation interfers with bone turn over- > and many women (and men) younger than I am have measurements lower > than mine. > > In any case- since my Lyme treatment (and I supposed a dramatic drop > in my inflammation level) I have climed on the measurement chart a > few tenths for a couple of years- then between last May and this May > I have risen into the plus (+) range .. which the Doc said is amazing. > > My best guess at what is happening is that my absorption of my > Mag/Cal powdered supplement is being absorbed better. I have been > taking the pharmaceutical powders (see my post above this one) for > several years, > and slowly dropping on the density scale... now that's reversing!! > > Between last May and this May- my density has gone up + 0.9 tenths - > that's all most a whole number!! I am just over into the + range of > the scale. > > I was thrilled. > Barb > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Well no actually it works in the reverse for the spleen less - as the spleen is extremely important organ for the immune system (and red blood cells). Your question about my immune system though is one the Drs. have pondered about me. They think I either have an auxillary spleen attached to my pancreas (as it has a long tail on it from what they see via CTSCAN) .. or I have spleenic tissue functioning at various sites in my body cavity. I can only have their theory verified by nuclear scintogrophy- and I've said no to that procedure. And yes- I think I got Lyme and Babesia from a blood transfusion many years ago. Barb > > > Very good news Barb, you are a star...you should make the headlines > > **Spleen-less Women beats Lyme** can you be persuaded to place you > > story on > > a site .. I'll host it if you like, Barb Park section ...Yes? .. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Barb' The important thing that rings strong for me is the 'spleen'.Often many of us run intermediate red blood counts, and I have noticed on those TV medical shows a young healthy girl running mild anemia's and feeling fatigued, the answer for her woe's was keyhole spleen removal.The patient was fine afterwards the spleen was removing too mny red cells.Often meningococcal meningitis leads to limb amputation and spleen removal. tony > > > > Very good news Barb, you are a star...you should make the headlines > > **Spleen-less Women beats Lyme** can you be persuaded to place you > story on > > a site .. I'll host it if you like, Barb Park section ...Yes? .. > > > > [infections] > Inflammation/osteoporosis/Mag:Cal > > absorption > > > > > > Group: > > > > Well- I have some more good news. > > Over the years, my bone density was slowly dropping - and I was in > > the osteopenia range (not as bad as full fledged osteoporosis). > > The range scale for the ultrsound test is > > 0 to 1.0 or above = suggests healthy bone > > -0.1 to - 1.5 = suggests osteopenia > > -1.6 to 2.5 = suggests osteoporosis > > > > I knew constant systemic inflammation interfers with bone turn over- > > and many women (and men) younger than I am have measurements lower > > than mine. > > > > In any case- since my Lyme treatment (and I supposed a dramatic drop > > in my inflammation level) I have climed on the measurement chart a > > few tenths for a couple of years- then between last May and this May > > I have risen into the plus (+) range .. which the Doc said is > amazing. > > > > My best guess at what is happening is that my absorption of my > > Mag/Cal powdered supplement is being absorbed better. I have been > > taking the pharmaceutical powders (see my post above this one) for > > several years, > > and slowly dropping on the density scale... now that's reversing!! > > > > Between last May and this May- my density has gone up + 0.9 tenths - > > that's all most a whole number!! I am just over into the + range of > > the scale. > > > > I was thrilled. > > Barb > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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