RE: MRSA lab work results are below

[Guest guest]

I went back and pulled the medical records

from past 3 months:

Blood culture from the infected in borne

port a cat (now removed) showed:

staphylococcus

SP coagulase negative

Stenotrophomonas

Maltophilia

Susceptible to Vancomycin and

Tetracycline. Resistant to all others tested including cipro and levaquin. I

have a previous allergy history for tetracycline.

And a month later on a upper respiratory

culture showed again coagulase negative staphyloccocuus susceptible to

vancomycin and tetracycline.

Separately last month, I have elevated

varicella-zoster IgG and IgM levels of 2.89

Both of these are from LabCorp.

My ENT has his own lab at his facility and

attempted to grow a culture done at the same time and did not grow out any

other virus or fungus from it after 6 weeks……..

It is now 5 weeks later and it is in my

lungs and peak flows are very poor and only on nebulizer every 4 hours but peak

flows dropping within an hour -90 min…long before

Time to do next peak flow.

From: infections [mailto:infections ] On Behalf Of dumbaussie2000

Sent: Thursday, May 11, 2006 7:11

PM

infections

Subject:

[infections] Re: what do you mean by use an independent lab?

The problem with labs is they do basic simple tests and don't look

closely enough at the danger a simple organism that's highly

abtibiotic resistant can cause.-Your so called simple staph the gram

negative you refer to is actually knows as coagulase negative staph-

it's all over your body inside and out and everytime you challenge

it it in anyway it responds, ITS BASICALLY BECOME HIGHLY ANTIBIOTIC

RESISTANT AND JUMPS AT EVERYTHING IT FEELS IS CHALLENGING IT- HENCE

ALL YOUR PROBLEMS. The MRSA has encoded all it's tricks and traits

to this other staph and you can't even take a breath without it

firing up.

-- In infections ,

" julie levitt "

<knightshotter@...> wrote:

>

> When you suggest getting certain lab work or

> fungal testing or whatever done at an independent

> lab vs say LabCorp, what are you talking about. Is

> this something in

>

> Europe but not in US. My doctors

typically use the

> big labs to do cultures, blood work, whatever.

> Please let us know what you are talking about.

>

>

>

> Thanks

>

[Guest guest]

A little mistake made by path labs is they use a plate pour method

of antibiotic sensistivity and you actually get a sensitive on your

coagulase negative staph report. I beleieve this is a mistake

because the plate pour method of studying antibiotic resistance

doesn't allow the bacteria's slime production to influence the

results. I alway's found many people's bacteria that were supposedly

vancomycin sensitive were actually resistant and the drug held no

benefit to the patient.

Also the fact that you have such high antibiotic rtesistance in your

coagulase negative staph screams out THIS BACTERIA HAS MANY MANY

TRAITS THAT WILL GIVE THIS PERSON PROBLEMS.

> >

> > When you suggest getting certain lab work or

> > fungal testing or whatever done at an

> independent

> > lab vs say LabCorp, what are you talking about.

> Is

> > this something in

> >

> > Europe but not in US. My doctors typically use

> the

> > big labs to do cultures, blood work, whatever.

> > Please let us know what you are talking about.

> >

> >

> >

> > Thanks

> >

>

>

>

>

>

>

>

>

[Guest guest]

Just another tip with such a nasty coagulase negative staph that

will throw up drama everytime it's challenged, all your dormant

virusus will take advantage of the new hazardous environment being

created. Treat the viruses and your missing the core of the problem

imo- NOT THAT YOU CAN ACTUIALLY TREAT VIRUSES - THE COMMON COLD

WOULD HAVE BEEN CURED IF THIS WHERE THE CASE ...

> >

> > When you suggest getting certain lab work or

> > fungal testing or whatever done at an

> independent

> > lab vs say LabCorp, what are you talking about.

> Is

> > this something in

> >

> > Europe but not in US. My doctors typically use

> the

> > big labs to do cultures, blood work, whatever.

> > Please let us know what you are talking about.

> >

> >

> >

> > Thanks

> >

>

>

>

>

>

>

>

>

[Guest guest]

Amazing. You're the first person I've ever heard of getting a postive coag neg staph from LabCorp. I'd stick with whoever did that lab work. Did your doc give them special culturing orders? And where do you live? I know you don't like the idea, but I really don't see how you're going to deal with this lung infection successfully unless you're in a situation where you can get constant supervision and attention. Other than a hospital or some kind of amazingly attentive and determined doctor, I don't know how that's going to happen. It's a fantastic advantage that your doc will culture and your lab will grow these bugs for you, but if you're afraid of taking the antibiotics, how are you going to kill them? At least in the hospital, they may be able to try drugs and respond rapidly if you react badly. And if you respond well, they can give you much higher doses and that's a chance to really get this infection. Do you have any possible focal infections in some place besides your lungs? Do you have root canals? A problematic gall bladder? Some kind of gynecological infection? Endometriosis? Infected sinuses? The source of your infection (focus/focal) may be a pipeline to other places in your body causing flare ups, like in your lungs. pennyjulie levitt <knightshotter@...> wrote: I went back and pulled the medical records from past 3 months: Blood culture from the infected in borne port a cat (now removed) showed: staphylococcus SP coagulase negative Stenotrophomonas Maltophilia Susceptible to Vancomycin and Tetracycline. Resistant to all others tested including cipro and levaquin. I have a previous allergy history for tetracycline. And a month later on a upper respiratory

culture showed again coagulase negative staphyloccocuus susceptible to vancomycin and tetracycline. Separately last month, I have elevated varicella-zoster IgG and IgM levels of 2.89 Both of these are from LabCorp. My

ENT has his own lab at his facility and attempted to grow a culture done at the same time and did not grow out any other virus or fungus from it after 6 weeks…….. It is now 5 weeks later and it is in my lungs and peak flows are very poor and only on nebulizer every 4 hours but peak flows dropping within an hour -90 min…long before Time to do next peak flow. From: infections [mailto:infections ] On Behalf Of dumbaussie2000Sent: Thursday, May 11, 2006 7:11 PMinfections Subject: [infections] Re: what do you mean by use an independent lab? The problem with labs is they do basic simple tests and don't look closely enough at the danger a simple organism that's highly abtibiotic resistant can cause.-Your so called simple staph the gram negative you refer to is actually knows as coagulase negative staph- it's all over your body inside and out and everytime you challenge it it in anyway it responds, ITS BASICALLY BECOME HIGHLY ANTIBIOTIC RESISTANT AND JUMPS AT EVERYTHING IT FEELS IS CHALLENGING IT- HENCE

ALL YOUR PROBLEMS. The MRSA has encoded all it's tricks and traits to this other staph and you can't even take a breath without it firing up.-- In infections , "julie levitt" <knightshotter@...> wrote:>> When you suggest getting certain lab work or> fungal testing or whatever done at an independent> lab vs say LabCorp, what are you talking about. Is> this something in > > Europe but not in US. My doctors typically use the> big labs to do cultures, blood work, whatever.> Please let us know what you are talking about.> > > > Thanks>

[Guest guest]

Penny

Remember those where blood cultures. Bacteria growing in bottles-

with samples of your blood.Again even these are fraught with

interpretation problems as THEY RELY ON THE BOTTLES CLOUDING UP with

high levels of bacteria, this isn't alway's going to happen.

> >

> > When you suggest getting certain lab work or

> > fungal testing or whatever done at an independent

> > lab vs say LabCorp, what are you talking about. Is

> > this something in

> >

> > Europe but not in US. My doctors typically use the

> > big labs to do cultures, blood work, whatever.

> > Please let us know what you are talking about.

> >

> >

> >

> > Thanks

> >

>

>

>

>

>

>

>

>

>

[Guest guest]

The big question is what is causing the lung problem and is this the

same as what was

Blood culture from the infected in borne port a cat  (now removed)

showed:

 

Zitromax might be a good one to consider too, especially good for the

lungs.

Is the lung problem fungal?

bleu

On 12 May 2006, at 03:10, julie levitt wrote:

> It is now 5 weeks later and it is in my lungs and peak flows are very

> poor and only on nebulizer every 4 hours but peak flows dropping

> within an hour -90 min…long before

> Time to do next peak flow.

[Guest guest]

We don’t know what is causing the lung

problem although it is so soon since the positive MSRA culture in throat and

just a few months before that in the catheter. They put me on vibramycin today

as it was the only thing other than vancomycin that showed susceptible on the

culture. While there, I coughed up some beautiful green/yellow mush and they

are culturing that for fungus/bacteria at the hospital lab at UNC…..I have to

see her again on Monday…..

From: infections [mailto:infections ] On Behalf Of Colourbleu

Sent: Friday, May 12, 2006 2:15 AM

infections

Subject: Re:

[infections] MRSA lab work results are below

The big question is what

is causing the lung problem and is this the same as what was

Blood

culture from the infected in borne port a cat (now removed) showed:

Zitromax might be a good one to consider too, especially good for the lungs.

Is the lung problem fungal?

bleu

On 12 May 2006, at 03:10, julie levitt

wrote:

It

is now 5 weeks later and it is in my lungs and peak flows are very poor and

only on nebulizer every 4 hours but peak flows dropping within an hour -90

min…long before

Time

to do next peak flow.

[Guest guest]

I was in the hospital at Wake Med for the

first culture and the second was my ENT there in NC sent to Labcorp…I don’t

know what culturing orders were given. The one done from the catheter was blood

culture and the other was respiratory swab. They are now going to culture the

putrid sputum I coughed up today at UNC lab.

I reviewed my records after reading your

emails yesterday and agreed to take vibramycin (tetracycline family) which

showed up as susceptible on all the MSRA cultures. She will check me again on

Monday. Also gave me RX expectorant cough tablet to help bring up and out some

of the crap and it has been coming out since and is brown and red and green…..can

one have all those colors in ones lungs?

At this exact moment, I have no obvious

location for focal infection except lungs and sinus and possibly ears….or

brain ( I have progressive MS or so they call it) which I think is toxin

mediated to begin with…..In past year, they have cultured MRSA cultures

from other incision areas that were opened and quickly got infected….right

now all seems to be stuck mostly in left lung…..otherwise I have no way

to know where else it is coming from at the moment. In the past, no matter what

they sliced, it got infected quickly culturing positive for MRSA……

Am I first person with positive coag neg

staph from lab corp or just first to report it here????

Again I am in Chapel Hill, NC

area.

From: infections [mailto:infections ] On Behalf Of Penny Houle

Sent: Thursday, May 11, 2006 11:46

PM

infections

Subject: RE:

[infections] MRSA lab work results are below

Amazing. You're the first person I've ever heard of getting a postive

coag neg staph from LabCorp. I'd stick with whoever did that lab work. Did your doc give

them special culturing orders? And where do you live?

I know you don't like the idea, but I really don't see how you're going

to deal with this lung infection successfully unless you're in a situation

where you can get constant supervision and attention. Other than a hospital or

some kind of amazingly attentive and determined doctor, I don't know how

that's going to happen. It's a fantastic advantage that your doc will culture

and your lab will grow these bugs for you, but if you're afraid of taking

the antibiotics, how are you going to kill them? At least in the hospital, they

may be able to try drugs and respond rapidly if you react badly. And if you

respond well, they can give you much higher doses and that's a chance to really

get this infection.

Do you have any possible focal infections in some place besides your

lungs? Do you have root canals? A problematic gall bladder? Some kind of

gynecological infection? Endometriosis? Infected sinuses? The source of

your infection (focus/focal) may be a pipeline to other places in your

body causing flare ups, like in your lungs.

penny

julie levitt

<knightshotter@...> wrote:

I went back and pulled the medical records

from past 3 months:

Blood culture from the infected in borne

port a cat (now removed) showed:

staphylococcus

SP coagulase negative

Stenotrophomonas

Maltophilia

Susceptible to Vancomycin and

Tetracycline. Resistant to all others tested including cipro and levaquin. I

have a previous allergy history for tetracycline.

And a month later on a upper respiratory

culture showed again coagulase negative staphyloccocuus susceptible to

vancomycin and tetracycline.

Separately last month, I have elevated

varicella-zoster IgG and IgM levels of 2.89

Both of these are from LabCorp.

My ENT has his own lab at his facility and

attempted to grow a culture done at the same time and did not grow out any

other virus or fungus from it after 6 weeks……..

It is now 5 weeks later and it is in my

lungs and peak flows are very poor and only on nebulizer every 4 hours but peak

flows dropping within an hour -90 min…long before

Time to do next peak flow.

From: infections

[mailto:infections ]

On Behalf Of dumbaussie2000

Sent: Thursday, May 11, 2006 7:11

PM

infections

Subject:

[infections] Re: what do you mean by use an independent lab?

The problem with labs is they do basic simple tests and don't look

closely enough at the danger a simple organism that's highly

abtibiotic resistant can cause.-Your so called simple staph the gram

negative you refer to is actually knows as coagulase negative staph-

it's all over your body inside and out and everytime you challenge

it it in anyway it responds, ITS BASICALLY BECOME HIGHLY ANTIBIOTIC

RESISTANT AND JUMPS AT EVERYTHING IT FEELS IS CHALLENGING IT- HENCE

ALL YOUR PROBLEMS. The MRSA has encoded all it's tricks and traits

to this other staph and you can't even take a breath without it

firing up.

-- In infections ,

" julie levitt "

<knightshotter@...> wrote:

>

> When you suggest getting certain lab work or

> fungal testing or whatever done at an independent

> lab vs say LabCorp, what are you talking about. Is

> this something in

>

> Europe

but not in US. My doctors typically use the

> big labs to do cultures, blood work, whatever.

> Please let us know what you are talking about.

>

>

>

> Thanks

>

[Guest guest]

What is MSRA ?julie levitt <knightshotter@...> wrote: We don’t know what is causing the lung problem although it is so soon since the positive MSRA culture in throat and just a few months before that in the catheter. They put me on vibramycin today as it was the only thing other than vancomycin that showed susceptible on the culture. While there, I coughed up some beautiful green/yellow mush and they are culturing that for fungus/bacteria at the hospital lab at UNC…..I have to see her again on

Monday….. From: infections [mailto:infections ] On Behalf Of ColourbleuSent: Friday, May 12, 2006 2:15 AMinfections Subject: Re: [infections] MRSA lab work results are below The big question is what is causing the lung problem and is this the same as what was Blood culture from the infected in borne port a cat (now removed) showed: Zitromax might

be a good one to consider too, especially good for the lungs.Is the lung problem fungal?bleuOn 12 May 2006, at 03:10, julie levitt wrote: It is now 5 weeks later and it is in my lungs and peak flows are very poor and only on nebulizer every 4 hours but peak flows dropping within an hour -90 min…long beforeTime to do next peak flow.

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

Methicillian Resistant Staph Aureaus

MRSA - Methicillin Resistant Staphylococcus

Aureus

Fact sheets for

patients and healthcare personnel about MRSA.

Also general information on laboratory detection as well as non-hospital

healthcare settings.

www.cdc.gov/ncidod/hip/ARESIST/mrsa.htm - 3k - Cached

- Similar pages

From: infections [mailto:infections ] On Behalf Of Marie Mayberry

Sent: Saturday, May 13, 2006 2:43

AM

infections

Subject: RE:

[infections] MRSA lab work results are below

What is MSRA ?

julie levitt

<knightshotter@...> wrote:

We don’t know what is causing the

lung problem although it is so soon since the positive MSRA culture in throat

and just a few months before that in the catheter. They put me on vibramycin

today as it was the only thing other than vancomycin that showed susceptible on

the culture. While there, I coughed up some beautiful green/yellow mush and

they are culturing that for fungus/bacteria at the hospital lab at

UNC…..I have to see her again on Monday…..

From: infections

[mailto:infections ]

On Behalf Of Colourbleu

Sent: Friday, May 12, 2006 2:15 AM

infections

Subject: Re:

[infections] MRSA lab work results are below

The big question is what is causing the lung problem and is this the

same as what was

Blood

culture from the infected in borne port a cat (now removed) showed:

Zitromax might be a good one to consider too, especially good for the lungs.

Is the lung problem fungal?

bleu

On 12 May 2006, at 03:10, julie levitt

wrote:

It

is now 5 weeks later and it is in my lungs and peak flows are very poor and

only on nebulizer every 4 hours but peak flows dropping within an hour -90

min…long before

Time

to do next peak flow.

How low will we go? Check out Messenger’s low PC-to-Phone

call rates.

[Guest guest]

I know you're not the first to have coag neg staph by far. It's just amazing that they reported it as a bad one...most labs toss it as "normal" when it's really not. Have you read any of Wheldon's work on c.pneumonia and MS? He believes MS has a bacterial basis and has developed a protocol (along with Stratton) to treat it. Check out the files and links section at the home page. You might find it interesting/helpful. I've tested negative for c.pneumonia, but still believe that they've got the right over all idea. These guys are smart and thorough researchers. They also say they believe the general idea of their protocol will work on many organisms, so it's worth looking over. Of course, you've got to customize your abx treatment according to your organisms. But they've got a lot of adjunctive therapies for toxin removal etc., that make sense. penny julie levitt <knightshotter@...> wrote: I was in the hospital at Wake Med for the first culture and the second was my ENT there in NC sent to Labcorp…I don’t know what culturing orders were given. The one done from the catheter was blood culture and the other was respiratory swab. They are now going to culture the putrid sputum I coughed up today at UNC lab. I reviewed my records after reading your emails yesterday and agreed to take vibramycin (tetracycline family) which showed up as susceptible on all the MSRA cultures. She will check me again on Monday. Also gave me RX expectorant cough tablet to help bring up and out some of the crap and it has been coming out since and is brown

and red and green…..can one have all those colors in ones lungs? At this exact moment, I have no obvious location for focal infection except lungs and sinus and possibly ears….or brain ( I have progressive MS or so they call it) which I think is toxin mediated to begin with…..In past year, they have cultured MRSA cultures from other incision areas that were opened and quickly got infected….right now all seems to be stuck mostly in left lung…..otherwise I have no way to know where else it is coming from at the moment. In the past, no matter what they sliced, it got infected quickly culturing positive for MRSA…… Am I first person with positive coag neg staph from lab corp or just first to report it here???? Again I am in Chapel Hill, NC area. From: infections [mailto:infections ] On Behalf Of Penny HouleSent: Thursday, May 11, 2006 11:46 PMinfections Subject: RE: [infections] MRSA lab work results are below Amazing. You're the first person I've ever heard of getting a postive coag neg staph from LabCorp. I'd stick with whoever did that lab work. Did your doc give them special culturing orders? And where do you live? I know you don't like the idea, but I really don't see how you're going to

deal with this lung infection successfully unless you're in a situation where you can get constant supervision and attention. Other than a hospital or some kind of amazingly attentive and determined doctor, I don't know how that's going to happen. It's a fantastic advantage that your doc will culture and your lab will grow these bugs for you, but if you're afraid of taking the antibiotics, how are you going to kill them? At least in the hospital, they may be able to try drugs and respond rapidly if you react badly. And if you respond well, they can give you much higher doses and that's a chance to really get this infection. Do you have any possible focal infections in some place besides your

lungs? Do you have root canals? A problematic gall bladder? Some kind of gynecological infection? Endometriosis? Infected sinuses? The source of your infection (focus/focal) may be a pipeline to other places in your body causing flare ups, like in your lungs. pennyjulie levitt <knightshotter@...> wrote: I went back and pulled the medical records from past 3 months: Blood culture from the infected in borne port a cat (now removed) showed: staphylococcus SP coagulase negative Stenotrophomonas Maltophilia Susceptible to Vancomycin and Tetracycline. Resistant to all others tested including cipro and levaquin. I have a previous allergy history for tetracycline. And a month later on a upper respiratory culture showed again coagulase negative staphyloccocuus susceptible to vancomycin and tetracycline. Separately last month, I have elevated varicella-zoster IgG and IgM levels of 2.89 Both of these are from LabCorp. My ENT has his own lab at his facility and attempted to grow a culture done at the same time and did not grow out any other virus or fungus from it after 6 weeks…….. It is now 5 weeks later and it is in my lungs and peak flows are very poor and only on nebulizer every 4 hours but peak flows dropping within an hour -90 min…long before Time to do next peak flow. From: infections [mailto:infections ] On Behalf Of dumbaussie2000Sent: Thursday, May 11, 2006 7:11 PMinfections Subject: [infections] Re: what do you mean by use an independent lab? The problem with labs is they do basic simple tests and don't look closely enough

at the danger a simple organism that's highly abtibiotic resistant can cause.-Your so called simple staph the gram negative you refer to is actually knows as coagulase negative staph- it's all over your body inside and out and everytime you challenge it it in anyway it responds, ITS BASICALLY BECOME HIGHLY ANTIBIOTIC RESISTANT AND JUMPS AT EVERYTHING IT FEELS IS CHALLENGING IT- HENCE ALL YOUR PROBLEMS. The MRSA has encoded all it's tricks and traits to this other staph and you can't even take a breath without it firing up.-- In infections , "julie levitt" <knightshotter@...> wrote:>> When you suggest getting certain lab work or> fungal testing or whatever done at an independent> lab vs say LabCorp, what are you talking about. Is> this something in >

> Europe but not in US. My doctors typically use the> big labs to do cultures, blood work, whatever.> Please let us know what you are talking about.> > > > Thanks>

[Guest guest]

I have read about the viral and bacterial

causes that trigger MS. I am not familiar with the protocol but will check out

the files on this later today. Thanks for pointing me to them. Okay so

the protocol matches what I am on in terms of doxycycline

I tried CSM based on Dr. Shoemaker

protocol and so far, did poorly on it. For me, my central nervous system stuff

worsened dramatically while I was on the CSM which is not a reaction I’ve

heard from others and for now, docs said to not continue it and see if can

address the coag neg staph or get it back down.

Currently started doxycline and I

also have bactroban ointment applied internasal which I started again yesterday

for 10 days. I can’t get anyone to prescribe me Short

courses of metronidazole will later be added to this regimen. Although I could

probably get an RX for it based on being on the antibiotic. My MRSA is resistant

to the azithrymycin and I am anaphlyatic allergic to it…..

I had coag neg staph reported in both the

blood culture and also the respiratory throat culture. Then I read Shoemaker’s

biotoxin.ppt and he talks about you have to address the staph before you can

detox everything else….but so far, haven’t been able to get rid of

the staph….

Re adjunctive therapies for

toxin removal etc, are you talking CSM. I have been taking various supplements

etc for a while that also do mild detox. I got very sick with any of the IV

attempts to detox and could not tolerate….Is it true that I must address

MRSA first ?

From: infections [mailto:infections ] On Behalf Of Penny Houle

Sent: Saturday, May 13, 2006 12:22

PM

infections

Subject: RE:

[infections] MRSA lab work results are below

I know you're not the first to have coag neg staph by far. It's just

amazing that they reported it as a bad one...most labs toss it as

" normal " when it's really not.

Have you read any of Wheldon's work on c.pneumonia and MS? He believes

MS has a bacterial basis and has developed a protocol (along with

Stratton) to treat it. Check out the files and links section at the home page.

You might find it interesting/helpful.

I've tested negative for c.pneumonia, but still believe that they've got the

right over all idea. These guys are smart and thorough researchers. They also

say they believe the general idea of their protocol will work on many

organisms, so it's worth looking over. Of course, you've got to customize your

abx treatment according to your organisms.

But they've got a lot of adjunctive therapies for toxin removal etc.,

that make sense.

penny

julie levitt

<knightshotter@...> wrote:

I was in the hospital at Wake Med for the

first culture and the second was my ENT there in NC sent to Labcorp…I

don’t know what culturing orders were given. The one done from the

catheter was blood culture and the other was respiratory swab. They are now going

to culture the putrid sputum I coughed up today at UNC lab.

I reviewed my records after reading your

emails yesterday and agreed to take vibramycin (tetracycline family) which

showed up as susceptible on all the MSRA cultures. She will check me again on

Monday. Also gave me RX expectorant cough tablet to help bring up and out some

of the crap and it has been coming out since and is brown and red and

green…..can one have all those colors in ones lungs?

At this exact moment, I have no obvious

location for focal infection except lungs and sinus and possibly ears….or

brain ( I have progressive MS or so they call it) which I think is toxin

mediated to begin with…..In past year, they have cultured MRSA cultures

from other incision areas that were opened and quickly got

infected….right now all seems to be stuck mostly in left

lung…..otherwise I have no way to know where else it is coming from at

the moment. In the past, no matter what they sliced, it got infected quickly

culturing positive for MRSA……

Am I first person with positive coag neg

staph from lab corp or just first to report it here????

Again I am in Chapel Hill, NC area.

From: infections

[mailto:infections ]

On Behalf Of Penny Houle

Sent: Thursday, May 11, 2006 11:46

PM

infections

Subject: RE:

[infections] MRSA lab work results are below

Amazing. You're the first person I've ever heard of getting a postive

coag neg staph from LabCorp. I'd stick with whoever did that lab work. Did your doc give

them special culturing orders? And where do you live?

I know you don't like the idea, but I really don't see how you're going

to deal with this lung infection successfully unless you're in a situation

where you can get constant supervision and attention. Other than a hospital or

some kind of amazingly attentive and determined doctor, I don't know how

that's going to happen. It's a fantastic advantage that your doc will culture

and your lab will grow these bugs for you, but if you're afraid of taking

the antibiotics, how are you going to kill them? At least in the hospital, they

may be able to try drugs and respond rapidly if you react badly. And if you

respond well, they can give you much higher doses and that's a chance to really

get this infection.

Do you have any possible focal infections in some place besides your

lungs? Do you have root canals? A problematic gall bladder? Some kind of

gynecological infection? Endometriosis? Infected sinuses? The source of

your infection (focus/focal) may be a pipeline to other places in your

body causing flare ups, like in your lungs.

penny

julie levitt <knightshotter@...>

wrote:

I went back and pulled the medical records

from past 3 months:

Blood culture from the infected in borne

port a cat (now removed) showed:

staphylococcus

SP coagulase negative

Stenotrophomonas

Maltophilia

Susceptible to Vancomycin and

Tetracycline. Resistant to all others tested including cipro and levaquin. I

have a previous allergy history for tetracycline.

And a month later on a upper respiratory

culture showed again coagulase negative staphyloccocuus susceptible to vancomycin

and tetracycline.

Separately last month, I have elevated

varicella-zoster IgG and IgM levels of 2.89

Both of these are from LabCorp.

My ENT has his own lab at his facility and

attempted to grow a culture done at the same time and did not grow out any

other virus or fungus from it after 6 weeks……..

It is now 5 weeks later and it is in my

lungs and peak flows are very poor and only on nebulizer every 4 hours but peak

flows dropping within an hour -90 min…long before

Time to do next peak flow.

From: infections

[mailto:infections ]

On Behalf Of dumbaussie2000

Sent: Thursday, May 11, 2006 7:11

PM

infections

Subject:

[infections] Re: what do you mean by use an independent lab?

The problem with labs is they do basic simple tests and don't look

closely enough at the danger a simple organism that's highly

abtibiotic resistant can cause.-Your so called simple staph the gram

negative you refer to is actually knows as coagulase negative staph-

it's all over your body inside and out and everytime you challenge

it it in anyway it responds, ITS BASICALLY BECOME HIGHLY ANTIBIOTIC

RESISTANT AND JUMPS AT EVERYTHING IT FEELS IS CHALLENGING IT- HENCE

ALL YOUR PROBLEMS. The MRSA has encoded all it's tricks and traits

to this other staph and you can't even take a breath without it

firing up.

-- In infections ,

" julie levitt "

<knightshotter@...> wrote:

>

> When you suggest getting certain lab work or

> fungal testing or whatever done at an independent

> lab vs say LabCorp, what are you talking about. Is

> this something in

>

> Europe

but not in US. My doctors typically use the

> big labs to do cultures, blood work, whatever.

> Please let us know what you are talking about.

>

>

>

> Thanks

>

[Guest guest]

No, I didn't like CSM (cholestyramine) either. And to be honest, I'm a bit concerned about lowering cholesterol, simply because I think the eleveated cholesterol is a defense mechanism (not sure, but research supports the possibility). Anyway, Stratton recommends charcoal for toxin removal, which makes a lot more sense to me. It's benign. The only thing you have to be careful of is that it will bind with everything, so must be taken at least 4 hours away from food and meds. Shoemaker says that only CSM can bind with the tiny toxins, otherwise they keep recirculating through the blood and building up. This is possibly true, I don't know. But at least the charcoal will bind any new toxins that are being produced before they get into the blood stream. And Stratton thinks charcoal works, so I'd rather try that than stick with CSM. Also, good quality Chlorella is proven to

bind all kinds of toxins. I love the BioPure Chlorella Pyrenoidosa. It's 100% chlorella, it's not heated and the cell walls not broken, etc. I get if from my doc, but I"m sure you can find it on-line somewhere. Also, it tastes really good. You just munch on the little tablets throughout the day. My doc swears it will reduce cholesterol as well as detox you from all kinds of toxins, bio and metals, etc. penny julie levitt <knightshotter@...> wrote: I have read about the viral and bacterial causes that trigger MS. I am not familiar with the protocol but will check

out the files on this later today. Thanks for pointing me to them. Okay so the protocol matches what I am on in terms of doxycycline I tried CSM based on Dr. Shoemaker protocol and so far, did poorly on it. For me, my central nervous system stuff worsened dramatically while I was on the CSM which is not a reaction I’ve heard from others and for now, docs said to not continue it and see if can address the coag neg staph or get it back down. Currently started doxycline and I also have bactroban ointment applied internasal which I started again yesterday for 10 days. I can’t get anyone to prescribe me Short courses of metronidazole will later be added to this regimen. Although I could probably get an RX for it based on being on the antibiotic. My MRSA is resistant to the azithrymycin and I am anaphlyatic allergic to it….. I had coag neg staph reported in both the blood culture and also the respiratory throat culture. Then I read Shoemaker’s biotoxin.ppt and he talks about you have to address the staph before you can detox everything else….but so far, haven’t been able to get rid of the staph…. Re adjunctive therapies for toxin removal etc, are you talking CSM. I have been taking various supplements etc for a while that also do mild detox. I got very sick with any of the IV attempts to detox and could not tolerate….Is it true that I must address MRSA first ? From: infections [mailto:infections ] On Behalf Of Penny HouleSent: Saturday, May 13, 2006 12:22 PMinfections Subject: RE: [infections] MRSA lab work results are below I know you're not the first to have coag neg staph by far. It's just amazing that they reported it as a bad one...most labs toss it as "normal" when it's really not. Have you read any of Wheldon's work on c.pneumonia and MS? He believes MS has a bacterial basis and has developed a protocol (along with Stratton) to treat it. Check out the files and links section at the home page. You might find it interesting/helpful. I've tested negative for c.pneumonia, but still believe that they've got the right over all idea. These guys are smart and thorough researchers. They also say they believe the general idea of their protocol will work on many organisms, so it's worth looking over. Of course, you've got to customize your abx treatment according to your organisms. But they've got a lot of adjunctive therapies for toxin

removal etc., that make sense. penny julie levitt <knightshotter@...> wrote: I was in the hospital at Wake Med for the first culture and the second was my ENT there in NC sent to Labcorp…I don’t know what culturing orders were given. The one done from the catheter was blood culture and the other was respiratory swab. They are now going to culture the putrid sputum I coughed up today at UNC lab. I reviewed my records after reading your emails yesterday and agreed to take vibramycin (tetracycline family) which showed up as susceptible on all the MSRA cultures. She will

check me again on Monday. Also gave me RX expectorant cough tablet to help bring up and out some of the crap and it has been coming out since and is brown and red and green…..can one have all those colors in ones lungs? At this exact moment, I have no obvious location for focal infection except lungs and sinus and possibly ears….or brain ( I have progressive MS or so they call it) which I think is toxin mediated to begin with…..In past year, they have cultured MRSA cultures from other incision areas that were opened and quickly got infected….right now all seems to be stuck mostly in left lung…..otherwise I have no way to know where else

it is coming from at the moment. In the past, no matter what they sliced, it got infected quickly culturing positive for MRSA…… Am I first person with positive coag neg staph from lab corp or just first to report it here???? Again I am in Chapel Hill, NC area. From: infections [mailto:infections ] On Behalf Of Penny HouleSent: Thursday, May 11, 2006 11:46 PMinfections Subject: RE: [infections] MRSA lab work results are below Amazing. You're the first person I've ever heard of getting a postive coag neg staph from LabCorp. I'd stick with whoever did

that lab work. Did your doc give them special culturing orders? And where do you live? I know you don't like the idea, but I really don't see how you're going to deal with this lung infection successfully unless you're in a situation where you can get constant supervision and attention. Other than a hospital or some kind of amazingly attentive and determined doctor, I don't know how that's going to happen. It's a fantastic advantage that your doc will culture and your lab will grow these bugs for you, but if you're afraid of taking the antibiotics, how are you going to kill them? At least in the hospital, they may

be able to try drugs and respond rapidly if you react badly. And if you respond well, they can give you much higher doses and that's a chance to really get this infection. Do you have any possible focal infections in some place besides your lungs? Do you have root canals? A problematic gall bladder? Some kind of gynecological infection? Endometriosis? Infected sinuses? The source of your infection (focus/focal) may be a pipeline to other places in your body causing flare ups, like in your lungs. pennyjulie levitt <knightshotter@...> wrote: I went back and pulled the medical records from past 3 months: Blood culture from the infected in borne port a cat (now removed) showed: staphylococcus SP coagulase negative Stenotrophomonas Maltophilia Susceptible to Vancomycin and Tetracycline. Resistant to all others tested including cipro and levaquin. I have a previous allergy history for tetracycline. And a month later on a upper respiratory culture showed again coagulase negative staphyloccocuus susceptible to vancomycin and tetracycline.

Separately last month, I have elevated varicella-zoster IgG and IgM levels of 2.89 Both of these are from LabCorp. My ENT has his own lab at his facility and attempted to grow a culture done at the same time and did not grow out any other virus or fungus from it after 6 weeks…….. It is now 5 weeks later and it is in my lungs and peak flows are very poor and only on nebulizer every 4 hours but peak flows dropping within an hour -90 min…long before Time to do next peak flow. From: infections [mailto:infections ] On Behalf Of dumbaussie2000Sent: Thursday, May 11, 2006 7:11 PMinfections Subject: [infections] Re: what do you mean by use an independent lab? The problem with labs is they do basic simple tests and don't look closely enough at the danger a simple organism that's highly abtibiotic resistant can cause.-Your so called simple staph the gram negative you refer to is actually knows as coagulase negative staph- it's all over your body inside and out and everytime you challenge it it in anyway it responds, ITS BASICALLY BECOME HIGHLY ANTIBIOTIC RESISTANT AND JUMPS AT EVERYTHING IT FEELS IS CHALLENGING IT- HENCE ALL YOUR PROBLEMS. The MRSA has encoded all it's tricks and traits to this other staph and you can't even take a breath without it firing up.-- In infections , "julie levitt" <knightshotter@...> wrote:>> When you suggest getting certain lab

work or> fungal testing or whatever done at an independent> lab vs say LabCorp, what are you talking about. Is> this something in > > Europe but not in US. My doctors typically use the> big labs to do cultures, blood work, whatever.> Please let us know what you are talking about.> > > > Thanks>

[Guest guest]

I have a close relative with MS and I did a blood culture and he

also has coagulase negative staph in his blood. The MS part I

believe was due to an unusual toxin his blood sample expressed.

> >

> > When you suggest getting certain lab work or

> > fungal testing or whatever done at an

> independent

> > lab vs say LabCorp, what are you talking about.

> Is

> > this something in

> >

> > Europe but not in US. My doctors typically use

> the

> > big labs to do cultures, blood work, whatever.

> > Please let us know what you are talking about.

> >

> >

> >

> > Thanks

> >

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Misunderstood; you said The MS part I

believe was due to an unusual toxin his

blood sample expressed

Do you mean that this toxin which got into

the blood stream and /or crossed the blood brain barrier then led to the

symptoms that led to meeting the MS diagnosis criteria?

From: infections [mailto:infections ] On Behalf Of dumbaussie2000

Sent: Saturday, May 13, 2006 7:28

PM

infections

Subject:

[infections] Re: MRSA lab work results are below

I have a close relative with MS and I did a blood culture and he

also has coagulase negative staph in his blood. The MS part I

believe was due to an unusual toxin his blood sample expressed.

> >

> > When you suggest getting certain lab work or

> > fungal testing or whatever done at an

> independent

> > lab vs say LabCorp, what are you talking about.

> Is

> > this something in

> >

> > Europe but not in US. My doctors

typically use

> the

> > big labs to do cultures, blood work, whatever.

> > Please let us know what you are talking about.

> >

> >

> >

> > Thanks

> >

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

wow, . I think you can actually understand Tonyspeak! I'm impressed. Took me at least 6 months. :-) (But I was severely brain fogged back then.) penny julie levitt <knightshotter@...> wrote: Misunderstood; you said The MS part I believe was due to an unusual toxin

his blood sample expressed Do you mean that this toxin which got into the blood stream and /or crossed the blood brain barrier then led to the symptoms that led to meeting the MS diagnosis criteria? From: infections [mailto:infections ] On Behalf Of dumbaussie2000Sent: Saturday, May 13, 2006 7:28 PMinfections Subject: [infections] Re: MRSA lab work results are below I have a close relative with MS and I did a blood culture and he also has coagulase negative staph in his blood. The MS part I believe was due to an unusual toxin his blood sample expressed.> >> > When you suggest getting certain lab work or> > fungal testing or whatever done at an> independent> > lab vs say LabCorp, what are you talking about.> Is> > this something in > > > > Europe but not in US. My doctors typically

use> the> > big labs to do cultures, blood work, whatever.> > Please let us know what you are talking about.> > > > > > > > Thanks> >> > > > > > > > > > > >

[Guest guest]

I meant that when your ill you gotta look carefully at what is

possably causing it. I guesstimated that he has got some SERIOUS

STUFF going on in his bloodstream and they 'were my finding's'- I

grew a coagulase negative staph that expressed some UNUSUAL TOXINS-

possably something that can attack the nervous system. Most toxins

can attack your nervous system and give you variable problems- BUT

TRY FINDING A NEUROLOGIST THAT THINKS THIS IS POSSABLE?-

-- In infections , " julie levitt "

<knightshotter@...> wrote:

>

> Misunderstood; you said The MS part I

>

> believe was due to an unusual toxin his blood

> sample expressed

>

>

>

> Do you mean that this toxin which got into the

> blood stream and /or crossed the blood brain

> barrier then led to the symptoms that led to

> meeting the MS diagnosis criteria?

>

>

>

> _____

>

> From: infections

> [mailto:infections ]

> On Behalf Of dumbaussie2000

> Sent: Saturday, May 13, 2006 7:28 PM

> infections

> Subject: [infections] Re: MRSA lab

> work results are below

>

>

>

>

>

> I have a close relative with MS and I did a blood

> culture and he

> also has coagulase negative staph in his blood.

> The MS part I

> believe was due to an unusual toxin his blood

> sample expressed.

>

>

>

>

>

> > >

> > > When you suggest getting certain lab work or

> > > fungal testing or whatever done at an

> > independent

> > > lab vs say LabCorp, what are you talking

> about.

> > Is

> > > this something in

> > >

> > > Europe but not in US. My doctors typically use

> > the

> > > big labs to do cultures, blood work, whatever.

> > > Please let us know what you are talking about.

> > >

> > >

> > >

> > > Thanks

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I am currently seeing both a conventional

neuro and more recently a neuro who take an alternative look at things and who

believes that a toxin mediated issue can start the damage that becomes MS i.e.

meets the diagnostic criteria for MS because after all that is all having MS

means. I am not convinced he knows all the ways to treat it however or the best

way but “HE GETS IT”

….It means for me I met the criteria

for clinically definite MS based on repeated MRIs , + spinal tap, + diagnostic

symptoms, + evoked potentials, neuropsych test reflecting significant cognitive

impairment, +EMG but the cause and the reason it happened to your relative and

likely to me in my opinion and in your opinion is an infectious,inflammatory,

or for me my docs think also viral reason….but they still call it MS for

me, still want me to stay on MS shots which just made me much worse, and I have

the stupid welcome to “You have MS” book that they handed me upon clinically

definite diagnosis.

From: infections [mailto:infections ] On Behalf Of dumbaussie2000

Sent: Saturday, May 13, 2006 8:09

PM

infections

Subject:

[infections] Re: MRSA lab work results are below

I meant that when your ill you gotta look carefully at what is

possably causing it. I guesstimated that he has got some SERIOUS

STUFF going on in his bloodstream and they 'were my finding's'- I

grew a coagulase negative staph that expressed some UNUSUAL TOXINS-

possably something that can attack the nervous system. Most toxins

can attack your nervous system and give you variable problems- BUT

TRY FINDING A NEUROLOGIST THAT THINKS THIS IS POSSABLE?-

-- In infections ,

" julie levitt "

<knightshotter@...> wrote:

>

> Misunderstood; you said The MS part I

>

> believe was due to an unusual toxin his blood

> sample expressed

>

>

>

> Do you mean that this toxin which got into the

> blood stream and /or crossed the blood brain

> barrier then led to the symptoms that led to

> meeting the MS diagnosis criteria?

>

>

>

> _____

>

> From: infections

> [mailto:infections ]

> On Behalf Of dumbaussie2000

> Sent: Saturday, May 13, 2006 7:28 PM

> infections

> Subject: [infections] Re: MRSA lab

> work results are below

>

>

>

>

>

> I have a close relative with MS and I did a blood

> culture and he

> also has coagulase negative staph in his blood.

> The MS part I

> believe was due to an unusual toxin his blood

> sample expressed.

>

>

>

>

>

> > >

> > > When you suggest getting certain lab work or

> > > fungal testing or whatever done at an

> > independent

> > > lab vs say LabCorp, what are you talking

> about.

> > Is

> > > this something in

> > >

> > > Europe but not in US. My

doctors typically use

> > the

> > > big labs to do cultures, blood work, whatever.

> > > Please let us know what you are talking about.

> > >

> > >

> > >

> > > Thanks

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

jULIE

When you got positive blood cultures you've got a positive source of

serious toxicity(blood poisoning, sepsis etc.). You don't get

acidophillis or bifidus bacteria doing backstroke in your

bloodstream because these bacteria don't have the acid like toxins

to push thru your defences.

Whatever your doctor thinks is all pointless because neurologists

never ever treat infection in the nervous system they hand you

brochures, label you, tag you and just blow hot air up your rear

IMO.Having MS and having a neurologist coaching you is not my ideal

situation.

Just another thought virus particles and bacterial toxins are

similar in size and react the same way. So whatever anyone thinks-

you gotta treat what you have both hands around and keep chasing the

treatment till your better IMO.I would also alway's specify I want

my CSF fluid CULTURED CULTURED CULTURED and report what is found, I

wouldn't need them to do there protein synthesis or whatever other

crap they do on your tests that gets you nowhere. BAsically it's

just them having a bit of a look and they can hand this patient

another brochure. Actually- just a thought- you can become crippled

by MRSA infections.

> > > >

> > > > When you suggest getting certain lab work or

> > > > fungal testing or whatever done at an

> > > independent

> > > > lab vs say LabCorp, what are you talking

> > about.

> > > Is

> > > > this something in

> > > >

> > > > Europe but not in US. My doctors typically

> use

> > > the

> > > > big labs to do cultures, blood work,

> whatever.

> > > > Please let us know what you are talking

> about.

> > > >

> > > >

> > > >

> > > > Thanks

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I have a nabour who has MS, I spent ages telling them about abx and

this method, it was so distressing after he took abx, he went from

being a bit better, to being bed bound over the course of 3 months. I

said this was a good sign and should break for a bit then continue. He

never did, instead I got blamed for 'nearly killing him'. He continued

with the nonsense (IMO) treatments offered as standard and shortly

after his abx attack, he got a bit better, then his condition that had

been progressing very rapidly halted and remained stable for about a

year (the abx got no credit for this). He has been following the white

coats every word since, is now wheelchair bound and has been

progressively getting worse for the last few years. Its very

distressing to watch.

His case screams infection. He has all the classical symptoms and

history, (3 tick bites b4 symptoms started).

On 14 May 2006, at 09:32, dumbaussie2000 wrote:

> jULIE

> When you got positive blood cultures you've got a positive source of

> serious toxicity(blood poisoning, sepsis etc.). You don't get

> acidophillis or bifidus bacteria doing backstroke in your

> bloodstream because these bacteria don't have the acid like toxins

> to push thru your defences.

> Whatever your doctor thinks is all pointless because neurologists

> never ever treat infection in the nervous system they hand you

> brochures, label you, tag you and just blow hot air up your rear

> IMO.Having MS and having a neurologist coaching you is not my ideal

> situation.

> Just another thought virus particles and bacterial toxins are

> similar in size and react the same way. So whatever anyone thinks-

> you gotta treat what you have both hands around and keep chasing the

> treatment till  your better IMO.I would also alway's specify I want

> my CSF fluid CULTURED CULTURED CULTURED and report what is found, I

> wouldn't need them to do there protein synthesis or whatever other

> crap they do on your tests that gets you nowhere. BAsically it's

> just them having a bit of a look and they  can hand this patient

> another brochure. Actually- just a thought- you can become crippled

> by MRSA infections.

>

>

>

>

>

> > > > >

> > > > > When you suggest getting certain lab work or

> > > > > fungal testing or whatever done at an

> > > > independent

> > > > > lab vs say LabCorp, what are you talking

> > > about.

> > > > Is

> > > > > this something in

> > > > >

> > > > > Europe but not in US. My doctors typically

> > use

> > > > the

> > > > > big labs to do cultures, blood work,

> > whatever.

> > > > > Please let us know what you are talking

> > about.

> > > > >

> > > > > 

> > > > >

> > > > > Thanks

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > 

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Bleu

They didn't develop 100 plus antibiotics so that you can guess the

treatment, they are designed to be delivered at certain strength's,

combo's and durations to fix the person.Try 's blood bacteria

the manufacturer of vanco would expect her to be on 3 drugs to

attempt a succesfull treatment of her ailment.So I wouldn't hap

hazzard the treatment when you have an obvious starting point with

blood borne pathogens in your hand.

> > > > > >

> > > > > > When you suggest getting certain lab work or

> > > > > > fungal testing or whatever done at an

> > > > > independent

> > > > > > lab vs say LabCorp, what are you talking

> > > > about.

> > > > > Is

> > > > > > this something in

> > > > > >

> > > > > > Europe but not in US. My doctors typically

> > > use

> > > > > the

> > > > > > big labs to do cultures, blood work,

> > > whatever.

> > > > > > Please let us know what you are talking

> > > about.

> > > > > >

> > > > > > 

> > > > > >

> > > > > > Thanks

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > 

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

As you know, from 's recent testimony and from many of others, we

need to be careful to guide our own treatment plans as much as is

possible to ensure we are properly treated.

bleu

On 14 May 2006, at 13:15, dumbaussie2000 wrote:

> Bleu

> They didn't develop 100 plus antibiotics so that you can guess the

> treatment, they are designed to be delivered at certain strength's,

> combo's and durations to fix the person.Try 's blood bacteria

> the manufacturer of vanco would expect her to be on 3 drugs to

> attempt a succesfull treatment of her ailment.So I wouldn't hap

> hazzard the treatment when you have an obvious starting point with

> blood borne pathogens in your hand.

>

>

>

>

>

>

> > >  > > > >

> > >  > > > > When you suggest getting certain lab work or

> > >  > > > > fungal testing or whatever done at an

> > >  > > > independent

> > >  > > > > lab vs say LabCorp, what are you talking

> > >  > > about.

> > >  > > > Is

> > >  > > > > this something in

> > >  > > > >

> > >  > > > > Europe but not in US. My doctors typically

> > >  > use

> > >  > > > the

> > >  > > > > big labs to do cultures, blood work,

> > >  > whatever.

> > >  > > > > Please let us know what you are talking

> > >  > about.

> > >  > > > >

> > >  > > > > 

> > >  > > > >

> > >  > > > > Thanks

> > >  > > > >

> > >  > > >

> > >  > > >

> > >  > > >

> > >  > > >

> > >  > > >

> > >  > > > 

> > >  > > >

> > >  > > >

> > >  > > >

> > >  > > >

> > >  > > >

> > >  > > >

[Guest guest]

Comments back: When the in borne catheter

became infected and I was admitted in hospital, it was the infectious disease

docs who took lead in my care and not the neuros ….but I was only allowed

per insurance to be in the hospital 7 days and my catheter had failed and I

have no peripheral IV access. They used vanco and one other antibiotic but did

not continue antibx after dx. I have had no blood cultures for MRSA since

then ( that was November) but positive MRSA in throat and nose cultures and

bactroban nasal irrigation was suggested and begun about 9 weeks ago until the

bronchitis/lung infection stuff started….

At the moment though, only my PCP is

dealing with the infection and on a short term basis for the moment with appts

every other day to assess my progress. I can’t find a decent infect

disease doc yet but I know there is one here at UNC or at Duke….Last appt

at UNC ID clinic though was probably 12 months ago and he moved t another

hospital and the focus then was on the elevated herpes IgG and IgM levels and

the MRSA was not mentioned. The blood cultures occurred more recently since

that id clinic appt.

I have had multiple spinal taps but the

last one was in 2004. These showed high numbers of wbc but no one cultured them…I

would have to ask for another spinal tap (and I always need a spinal patch in

ER after and not to keen) and ask them to culture.

My MRSA status first appeared that I know

of after a c-sec incision with my son’s birth in 2001. I did not have MS

at that time…so what do you mean by you can become crippled

by MRSA infections.

How would I proceed and where to I find a “GOOD” ID doc in

my area? Both UNC and Duke have clinics bout the focus still seems to be AIDS

and research…..and keeping new people from getting MRSA…but what

about those who have it now….

From: infections [mailto:infections ] On Behalf Of dumbaussie2000

Sent: Sunday, May 14, 2006 3:32 AM

infections

Subject:

[infections] Re: MRSA lab work results are below

jULIE

When you got positive blood cultures you've got a positive source of

serious toxicity(blood poisoning, sepsis etc.). You don't get

acidophillis or bifidus bacteria doing backstroke in your

bloodstream because these bacteria don't have the acid like toxins

to push thru your defences.

Whatever your doctor thinks is all pointless because neurologists

never ever treat infection in the nervous system they hand you

brochures, label you, tag you and just blow hot air up your rear

IMO.Having MS and having a neurologist coaching you is not my ideal

situation.

Just another thought virus particles and bacterial toxins are

similar in size and react the same way. So whatever anyone thinks-

you gotta treat what you have both hands around and keep chasing the

treatment till your better IMO.I would also alway's specify I want

my CSF fluid CULTURED CULTURED CULTURED and report what is found, I

wouldn't need them to do there protein synthesis or whatever other

crap they do on your tests that gets you nowhere. BAsically it's

just them having a bit of a look and they can hand this patient

another brochure. Actually- just a thought- you can become crippled

by MRSA infections.

> > > >

> > > > When you suggest getting certain lab work or

> > > > fungal testing or whatever done at an

> > > independent

> > > > lab vs say LabCorp, what are you talking

> > about.

> > > Is

> > > > this something in

> > > >

> > > > Europe but not in US. My

doctors typically

> use

> > > the

> > > > big labs to do cultures, blood work,

> whatever.

> > > > Please let us know what you are talking

> about.

> > > >

> > > >

> > > >

> > > > Thanks

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I mean your MS or crippling symptoms are just as capable of coming

from MRSA in combo with other bugs than some UNKNOWN CAUSE that gets

thrown at you with an MS diagnosis.

> > > > >

> > > > > When you suggest getting certain lab work

> or

> > > > > fungal testing or whatever done at an

> > > > independent

> > > > > lab vs say LabCorp, what are you talking

> > > about.

> > > > Is

> > > > > this something in

> > > > >

> > > > > Europe but not in US. My doctors typically

> > use

> > > > the

> > > > > big labs to do cultures, blood work,

> > whatever.

> > > > > Please let us know what you are talking

> > about.

> > > > >

> > > > >

> > > > >

> > > > > Thanks

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

That is why I will not leave my neuro on Tuesday

without antibiotics long-term to address this. The CRAB drugs haven’t

worked. I am about to start week 4 on LDN as well but they can call it MS

diagnosis all day and they do but the cause is likely infectious in my opinion.

I understand……

From: infections [mailto:infections ] On Behalf Of dumbaussie2000

Sent: Sunday, May 14, 2006 6:09 PM

infections

Subject: [infections]

Re: MRSA lab work results are below

I mean your MS or crippling symptoms are just as capable of coming

from MRSA in combo with other bugs than some UNKNOWN CAUSE that gets

thrown at you with an MS diagnosis.

> > > > >

> > > > > When you suggest getting certain lab work

> or

> > > > > fungal testing or whatever done at an

> > > > independent

> > > > > lab vs say LabCorp, what are you talking

> > > about.

> > > > Is

> > > > > this something in

> > > > >

> > > > > Europe but not in US.

My doctors typically

> > use

> > > > the

> > > > > big labs to do cultures, blood work,

> > whatever.

> > > > > Please let us know what you are talking

> > about.

> > > > >

> > > > >

> > > > >

> > > > > Thanks

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >