Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 thanks Helena for your response. a lot to take in. I was just in the hospital for a couple days. they started me on zoloft, trazadone for sleep and finally doxy for erlichia/lyme. complex situation as I was crying and breaking down so much--at my end--winter SAD no doubt, been on ativan, trying to reduce, but insomnia built up.I will absorb your info and share with my llmd.thanks,TomFrom: Helena K To: Lyme_and_Rife Sent: Fri, February 5, 2010 8:40:45 PMSubject: Re: Re: OT: Brain mapping The normal e.e.g. only finds things like tumors the size of a golf ball (almost too late) and if your delta waves shoot to about 200 microvolts and you're seizing on the floor they say: looks irregular! Normal is about 10 microvolts for an adult. 8 even. The spread between normal and abnormal in neurology is huge! In between there is a lot going on, from learning disabilities, autism, encephalopathies and epileptiform behavior that is ramping up but may not be high enough to throw you down on the floor just yet. As the new brain tests showed up, and the reimbursements went down, good readers went with them. The data from your eeg would work for a qeeg, or quantitative analysis. I use that to tell how far the Lyme is and if there are any special considerations for your brain to take into account. For example, if you had a concussion, it will be harder for your brain to fight off the Lyme. Or if you had repetitive ear infections and STREP. Or if you had toxicity for post traumatic stress which also shows up in the qeeg I use. Some people played soccer and the top of their brain is shot from the headers. Those things should be illegal. It's like guaranteeing epilepsy. Wherever your brain trauma is, if you address that, in addition to your Lyme, you will free up the reserves to fight off the Lyme better. I have one late Lymer who jumped off a diving board and hit the top of his head on the bottom. Another who feel on the parallel bars. Those concussions can get easily repaired with a good neurofeedback technician and jumpstart your healing. My fear though, is that the Lyme population has lesions and epileptiform activity which most neurofeedback practitioners are not trained to work with. So they use a once size fits all protocol, like Z score neurofeedback, and try to train a lesion to be normal... you can imagine what happens. You can aggravate them, or increase seizures or if you use a magnetic or light therapy, perhaps trigger a new one. I know what seizures are like. My father and sister had/have them. Perhaps that drives my passion to work wtih them carefully. But there are only about a handful of neurofeedback providers who can work with seizures and epilepsy. I'm one of them. Though I've certified over 200 neurofeedback practitioners, no one has jumped in yet with me. Hence my hesitation to recommend it for you all to try neurofeedback. Not without the right brainmap or QEEG done very carefully to eliminate confounding epileptiform activity. The good news is that, unlike with epilepsy which has a poor prognosis, if you beat the Lyme, the seizures do abate. But even most epileptologists don't realize this yet. I had to refer someone to NYU's Epilepsy Institute for some seizures meds. They went well-armed. The two year old had started antibiotics for Lyme. The doctors at the Epilepsy Institute were upset the child was on antibiotics! They said see, some doctor is overprescribing antibiotics and we will get blamed for the superbugs. They have no idea about Lyme. Everyone is a specialist. And they don't explain or trace what might be driving the seizures. SO I tell my Lymers what to do and just work them through the process. Get what you need and get out. It's just the way things are now. So many health professionals are asleep at the wheel in a broken healthcare system. But you suffer now, and I'm paying attention. Any way I can help, I will. We can't wait for them. They can't even correlate the vaccines to the autism. Which I know is caused by Lyme infected infants in utero undetected until the vaccines are the last straw... From: lymecure123 <tmmedia2000@ yahoo.com>To: Lyme_and_Rife@ yahoogroups. comSent: Wed, January 20, 2010 5:18:44 PMSubject: Re: Re: OT: Brain mapping Hi Helena and welcome Is your brain mapping like Dr. Amen's. He loves Minnesota, but hasn't opened anything here. I had an eeg 2 years ago. "normal" how do you use that, briefly to map? thanks, Tom From: Helena <helenaeegbio@ yahoo.com>To: Lyme_and_Rife@ yahoogroups. comSent: Tue, January 19, 2010 4:55:48 PMSubject: Re: OT: Brain mapping Hi Thane,Lyme disease needs a very accurate brainmap done. I've found that my team out of No. California does absolutely the most thorough job. They are very data driven out there and they are scientific researchers that I've been using to build awareness of the Lyme patterns. It's most of my practice because of where I am at this point so if they process the data, I have the experience working with it here. They've only just started to get it in No. California. We're really saturated in the Northeast here hence my experience.Depending on where you are, you could have your doctor or neurologist order an e.e.g to have a data collection done with regular (not ancient) e.e.g. equipment. You ask specifically for twenty minutes of eyes closed and ten minutes of eyes open data. If they process it on their own, it's fine and your insurances will pay for the regular e.e.g.What I need is the raw data collected from the e.e.g. on a disk mailed to me and I will send it out to the research team to look at.It can be on a CD and you can mail it to me:Biocare875 Mamaroneck Ave., Ste. 303Mamaroneck NY 10543If you already have had an e.e.g. done, ask them for the raw data on a CD and mail it to me. It should have been done in the last six months though.I can let you know when I've received it and order the analysis and go over it with you over the phone when it comes back. Usually takes about two hours on the phone to go over it with you tops.I can then further customize your protocol plan to be specific to your needs in rehabbing and retraining the brain.This is not a substitute for eliminating the spirochetes at all.It often leads to specific nutritional neurotransmitters for your specific issues. Neurofeedback training guided by these results can help to accelerate your healing process by helping to jumpstart the immune system. The training can help restore a lot of lost function like memory or focus or even movement, balance, depending on what's going on. A lot of Lyme clients have obsessive compulsive behaviors or thoughts. Many have had medication mismatches to their brain issues.What I can tell you is that if you are having Lyme lesion induced seizures, do not take Ritalin or stimulants of any kind. These will exacerbate the seizures.A natural stimulant is acetyl carnitine, and it's in many brain formulas now. If you have seizures, this needs to be completely avoided. Here are some other neuroexcitatory supplements:B 6 also has a neuroexcitatory effect, and needs to be kept to a minimum. Glutathione is excitatory and often used for detox purposes. Much safer is milk thistle. NAC or N acetyl cysteine is a precursor to glutathione and thus can also potentiate seizures if you've started to have them.Neuronhibitory supplements: Also good for anxiety with LymeInositol or GABA are your best sources for a natural anticonvulsant. Lyme clients do well on this. Once in awhile it's not, so always start conservatively and go by what you feel. If you need it, it's amazing. This is why I do a brainmap and other testing. Everyone is different but these are far and away the most helpful to my Lyme clients. Usually more is taken at night, to help with going to sleep which is often an issue for Lyme clients. Smaller dose in the morning.Castor oil packs on your abdominal area will help with creating seratonin and falling asleep and also with the gut issues that arise. Saturate a wool cloth with organic castor oil and cover with a towel or plastic to keep it from making a mess and put a heating pad on it to activate the castor oil for about half an hour before sleep. B 12 is your friend. You can take this throughout the day when you feel jittery. It's calming and helps with focus. My epilepsy clients swear by this one.Theanine is great for the obsessive thinking and behavior.Magnesium is great for calming seizures. But if you have gut issues, it might not get absorbed and this has to be addressed.I think this is enough to start the discussion and to be of help to many of you.I have watched many people do many things for Lyme.From working with this population in my area I can tell you:Antibiotics work best as the first line of treatment.You must treat the coinfections too at the same time.Afterwards for maintenance, Dr. Zhang's Chinese herbs work well.You can get back function and boost your recovery with neurofeedback but please only go to the most experienced people in your area. Most people even in neurofeedback are not Lyme literate. I can consult with you about those protocols.Every brain is different. It has had different experiences. These have to be addressed. That's why one protocol doesn't fit everyone. It has to have the brainmap or imaging to be specific enough to the situation that person has.But prior head injuries, concussion, infections, high fevers, traumas of all kinds, all get magnified by Lyme. So these all have to be addressed too. Again, specific to the person. The volume just goes up on everything from the past.The good news is, we can tone it down and the brain is much more plastic and capable of repair than we ever realized.And I'm part of that movement...Cheers,Helena KerekhaziPS Please be patient as I figure out how to use this. I am just learning Yahoo.groups. Feel free to advise if I need it about how best to use this wonderful medium for information!> >> > WOW is right- How do you get brain mapping done????> >  > > Steel> > h > > c > >  > > > > > > > > > > ____________ _________ _________ __> > From: Thane Fredrickson <thane17@ >> > To: Lyme_and_Rife@ yahoogroups. com> > Sent: Sun, January 17, 2010 3:30:02 PM> > Subject: Re: OT: Brain mapping> > > >  > > WOW!!!! I have been wanting to get this done for a while but can't seem to find someone in my area that can do it!! This is amazing to me. I'm sure mine looks like swiss cheese! This is awesome Cheryl! Thanks! > > > > Thane> > > > > > > > > > ____________ _________ _________ __> > From: Cheryl Young <qcyounggmail (DOT) com>> > To: Lyme_and_Rife@ yahoogroups. com> > Sent: Sun, January 17, 2010 2:25:49 PM> > Subject: OT: Brain mapping> > > >  > > Hi, All:> >  > > I just got off the phone from one of the most interesting conversations regarding Lyme I have had yet! Her name is Helena Kerekhazi; her website is: biocare-inc. com> >  > > I will try to distill the info:> >  > > Basically she does brain mapping using EEG bio-feedback. She can actually tell the severity of your Lyme by the brain map that appears; she can tell doctors what meds/supplements will be the best for you based on the brain map. She can also see the neuro toxic load. And talk about someone who knows their nutrition/supplemen t info! I was blown away! And that takes a little bit of blowing at this point! ;-)> >  > > She has a resource to find brain mapping people across the country. Once you have a brain map, you can send it to her and she will do a phone consult regarding what she sees and what nutrition/supplemen ts will be best for you.> >  > > Now even more to the point: When you have been chronically ill (think Lyme) and/or have a nuero toxic load, your brain tends to work around the areas of your brain that are affected. We usually think of that as making new paths. However, with  the brain lesions that come with the Lyme, you can actually have organic damage. Remember, Dr. Zhang talked about that. With the nuero feedback they can actually do the equivalent of physical therapy for your brain. She can tell where the blood is flowing freely and where it isn't. With a series of pings she can somehow get your brain to respond positively. Each time it hears a certain ping, or sound, it begins to open up the clogged/cut off area and allow the blood flow to resume. Think Pavlov meets sci-fi! ;-)> >  > > So, not only can she determine the extent of the Lyme and  the  damage but can then,  through a series of treatments help reduce, and hopefully remove, all of the nuero-lyme symptoms and damage! > >  > > Of course we got off on seizures and I was writing as fast as I could - my notes probably look like my brain map - all over the place! ;-) > >  > > I got two referrals for Washington state -Seattle and Poulsbo. AND SHE IS THE FEBRUARY LYMEHOPE SPEAKER!!   We talked for a couple of hours - wish I had thought to record it all. It was amazing! I want to get my brain map done, then send it to her and she will do a phone consult.> >  > > She works with hospitals and universities helping doctors with autism, lyme and other nuero brain illnesses.> >  > > I asked her to join our forum which she was glad to do. She is very  anxious to get the word out on this new tool for healing. > >  > > Let the fun begin! ;-)> >  > > Cheryl> > > > > > > > l Young> > > > NO MEDICAL ADVICE IS GIVEN HERE.  I am sharing ideas.  Each person is responsible for their own health and should be under the care of health care provider.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Tom, Sorry to hear you were in the hospital.... Hope you are getting better... Jim > > > > > > WOW is right- How do you get brain mapping done???? > > >  > > > Steel > > > h > > > c > > >  > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: Thane Fredrickson <thane17@ > > > > To: Lyme_and_Rife@ yahoogroups. com > > > Sent: Sun, January 17, 2010 3:30:02 PM > > > Subject: Re: OT: Brain mapping > > > > > >  > > > WOW!!!! I have been wanting to get this done for a while but can't seem to find someone in my area that can do it!! This is amazing to me. I'm sure mine looks like swiss cheese! This is awesome Cheryl! Thanks! > > > > > > Thane > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: Cheryl Young <qcyounggmail (DOT) com> > > > To: Lyme_and_Rife@ yahoogroups. com > > > Sent: Sun, January 17, 2010 2:25:49 PM > > > Subject: OT: Brain mapping > > > > > >  > > > Hi, All: > > >  > > > I just got off the phone from one of the most interesting conversations regarding Lyme I have had yet! Her name is Helena Kerekhazi; her website is: biocare-inc. com > > >  > > > I will try to distill the info: > > >  > > > Basically she does brain mapping using EEG bio-feedback. She can actually tell the severity of your Lyme by the brain map that appears; she can tell doctors what meds/supplements will be the best for you based on the brain map. She can also see the neuro toxic load. And talk about someone who knows their nutrition/supplemen t info! I was blown away! And that takes a little bit of blowing at this point! ;-) > > >  > > > She has a resource to find brain mapping people across the country. Once you have a brain map, you can send it to her and she will do a phone consult regarding what she sees and what nutrition/supplemen ts will be best for you. > > >  > > > Now even more to the point: When you have been chronically ill (think Lyme) and/or have a nuero toxic load, your brain tends to work around the areas of your brain that are affected. We usually think of that as making new paths. However, with  the brain lesions that come with the Lyme, you can actually have organic damage. Remember, Dr. Zhang talked about that. With the nuero feedback they can actually do the equivalent of physical therapy for your brain. She can tell where the blood is flowing freely and where it isn't. With a series of pings she can somehow get your brain to respond positively. Each time it hears a certain ping, or sound, it begins to open up the clogged/cut off area and allow the blood flow to resume. Think Pavlov meets sci-fi! ;-) > > >  > > > So, not only can she determine the extent of the Lyme and  the  damage but can then,  through a series of treatments help reduce, and hopefully remove, all of the nuero-lyme symptoms and damage! > > >  > > > Of course we got off on seizures and I was writing as fast as I could - my notes probably look like my brain map - all over the place! ;-) > > >  > > > I got two referrals for Washington state -Seattle and Poulsbo. AND SHE IS THE FEBRUARY LYMEHOPE SPEAKER!!   We talked for a couple of hours - wish I had thought to record it all. It was amazing! I want to get my brain map done, then send it to her and she will do a phone consult. > > >  > > > She works with hospitals and universities helping doctors with autism, lyme and other nuero brain illnesses. > > >  > > > I asked her to join our forum which she was glad to do. She is very  anxious to get the word out on this new tool for healing. > > >  > > > Let the fun begin! ;-) > > >  > > > Cheryl > > > > > > > > > > > > l Young > > > > > > NO MEDICAL ADVICE IS GIVEN HERE.  I am sharing ideas.  Each person is responsible for their own health and should be under the care of health care provider. > > > > > > Quote Link to comment Share on other sites More sharing options...
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