Re: could Bactroban be put in a nebulizer

[Guest guest]

Which antibiotics are you allergic to? What are your allergy

symptoms? Respiratory or something else?

The hospital might be your best bet at beating this thing. They

should be able to find an abx that you're not allergic to you and

administer it i.v. in much more effective (larger) amounts. Plus,

you'll be closely monitored, have a lab on the premises, get i.v.

fluids, etc.

I've heard of people who were really sick with CFS & FMS who went

into the hospital for some procedure, contracted a serious staph

infection while there, got treated with high dose abx, and walked

out completely recovered from CFS & FMS.

If you've already got MRSA or other resistant bugs then it shouldn't

be that risky to go into the hospital. Seriously, it might be the

smart thing to do, under the circumstances.

If it were me, I'd go.

penny

p.s. I don't know what's safe to nebulize. The company that I got my

nebulizer from claimed that their drugs were designed with special

additives to prevent breathing into the lungs. I know people who

nebulize all kinds of stuff, but if you've already got a lung

infection, you'd better be darned sure you're getting the right drug

before breathing it. Inhaling the wrong drug could make your

situation much worse.

>

> I just left the docs a few hours ago and they

> demanded I go in the hospital (I refused) stating

> I have a lung infection and am allergic to any

> oral antibiotics etc etc. I am currently on

> bactroban irrigation and she thinks I may have

> aspirated this into my lungs. My peak flows are

> bad, about 100 way worse than red zone. Can I put

> bactroban in the nebulizer versus this albuterol

> or on top of?

>

>

[Guest guest]

I spent most of the summer last year in and out of the hospital on central line IVs. I ended up worse than ever. if if were you, you'd go. I am a single mom with a 5 year old child. I get worse every time I've ever been in a hospital. The only antibiotic that I am NOT allergic to and not MRSA resistant to is vancomycin and even that one is now questionable due to what they are saying are allergic reactions in last hospital visit. I've never left a hospital cured of my FMS and MY MS only has gotten worse and I'm left with a huge copay on a hospital bill every time I go.

Every central line they've installed (I have no peripheral iV access) has gotten super infected ,ever y time I've been in the hospital. Be on my deathbed before I'd go back. I am severely reactive to chemicals. Get very scared in the hospital, sometimes almost psychotic depending on the meds they start playing with and the bills are just amazing.....$50K in each of the last 6 admissions since last June.....totaling $250K, course I was only responsible for a few grand in copay but this is getting ridiculous

[Guest guest]

Hey, I'm no fan of hospitals, and of course I understand your

reluctance if your son has no family to care for him.

I was just saying that we usually can't get the care we need through

outpatient visits. At least in the hospital you've got a shot at big

enough doses and constant monitering and on-the-spot lab work. But

if they're not really finding your problem or treating it properly,

then I totally understand your reservations. In general, a

hospital's the last place I want to be unless I've run out of

options and they're going to get serious about my care.

I just got concerned when your doctor said you should go into the

hospital immediately. Sounds like he's incapable of helping you on

his own.

Didn't mean to offend.

penny

> >

> > I just left the docs a few hours ago and they

> > demanded I go in the hospital (I refused)

> stating

> > I have a lung infection and am allergic to any

> > oral antibiotics etc etc. I am currently on

> > bactroban irrigation and she thinks I may have

> > aspirated this into my lungs. My peak flows are

> > bad, about 100 way worse than red zone. Can I

> put

> > bactroban in the nebulizer versus this albuterol

> > or on top of?

> >

> >

>

>

>

>

>

>

>

[Guest guest]

You did not offend. I am merely frustrated

as heck…I have an appt with the doc Friday at 1:30 and will make the

decision then. If not better, I understand I will go in……

From:

infections

[mailto:infections ] On Behalf Of penny

Sent: Wednesday, May 10, 2006

11:29 PM

infections

Subject:

[infections] Re: could Bactroban be put in a nebulizer

Hey, I'm no fan of

hospitals, and of course I understand your

reluctance if your son has no family to care for him.

I was just saying that we usually can't get the care we need through

outpatient visits. At least in the hospital you've got a shot at big

enough doses and constant monitering and on-the-spot lab work. But

if they're not really finding your problem or treating it properly,

then I totally understand your reservations. In general, a

hospital's the last place I want to be unless I've run out of

options and they're going to get serious about my care.

I just got concerned when your doctor said you should go into the

hospital immediately. Sounds like he's incapable of helping you on

his own.

Didn't mean to offend.

penny

> >

> > I just left the docs a few hours ago and they

> > demanded I go in the hospital (I refused)

> stating

> > I have a lung infection and am allergic to any

> > oral antibiotics etc etc. I am currently on

> > bactroban irrigation and she thinks I may have

> > aspirated this into my lungs. My peak flows are

> > bad, about 100 way worse than red zone. Can I

> put

> > bactroban in the nebulizer versus this albuterol

> > or on top of?

> >

> >

>

>

>

>

>

>

>

[Guest guest]

Believe me, I feel your frustration. I understand your frustration.

Our situation and lack of meaningful care truly boggles the mind.

My thoughts are with you. keep us posted.

penny

> > >

> > > I just left the docs a few hours ago and they

> > > demanded I go in the hospital (I refused)

> > stating

> > > I have a lung infection and am allergic to any

> > > oral antibiotics etc etc. I am currently on

> > > bactroban irrigation and she thinks I may have

> > > aspirated this into my lungs. My peak flows

> are

> > > bad, about 100 way worse than red zone. Can I

> > put

> > > bactroban in the nebulizer versus this

> albuterol

> > > or on top of?

> > >

> > >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Oh dear,

what we are reduced too.

I hope Juile you find a solution, I know how much we all hate hospitals.

Hopefully someone here can give you some ideas. But if you get worse,

you had better keep your options open.

I though I was allergic to abx too, in the begining. ARE YOU 100% sure

of this????

bleu

On 10 May 2006, at 22:48, julie levitt wrote:

>

> I just left the docs a few hours ago and they demanded I go in the

> hospital (I refused) stating  I have a lung infection and am allergic

> to any oral antibiotics etc etc. I am currently on bactroban

> irrigation and she thinks I may have aspirated this into my lungs. My

> peak flows are bad, about 100 way worse than red zone. Can I put

> bactroban in the nebulizer versus this albuterol or on top of?

>  

>  

>

> From: infections

> [mailto:infections ] On Behalf Of julie

> levitt

> Sent: Wednesday, May 10, 2006 4:02 PM

> jkemail2004-opps@...;

> infections

> Subject: RE: [infections] MSRA positive,

> opportunitistic pathogens,

>  

>  

> I am MSRA positive consistently in every culture taken for past 4

> years including c-sec incision, numerous central lines and other

> incisions for example to repair a pneumothorax and in nasal, eye, and

> respiratory cultures. I am resistant to most every antibiotic now. At

> this moment, I am now starting my 7th week on Bactrobahn nasal

> irrigation to clear some of this.

>  

> At my last hospitalization due to gram negative staph and other

> infection of my inborne catheter removed during my hospital stay, I

> was given vancomycin for 5  days. I still test gram negative and

> doctors simply don’t care. I will spike a fever of 102-103 every 2

> weeks or so, start coughing up putrid color stuff and then fever dies

> down and I at least on the surface appear to be better. Infectious

> disease docs seem unconcerned except to label my room when I am

> hospitalized due to exacerbations of diagnosed multiple sclerosis and

> so forth.

>  

> I saw your post and I am allergic to penicillin not to mention my

> staph cultures demonstrate being resistant to penicillin, methicillin

> and others. I am also diagnosed with fibromyalgia and an unusual

> autoimmune disorder known as Behcet’s which is believed to have turned

> into Neuro-Behcet’s along with the progressive relapsing form of

> Multiple Sclerosis. I believe this all stems from viral and

> inflammatory problems which began in my childhood.

>  

> I assume I acquired the MRSA during my c-section in 2001 but I do not

> known exactly. It was not mentioned until that time.

>  

>

> From: infections

> [mailto:infections ] On Behalf Of

> dumbaussie2000

> Sent: Wednesday, May 10, 2006 2:45 AM

> infections

> Subject: [infections] Re: asks for help

>  

> â–ª KAte

> Pseudonomads is a gram negative that's highly resistant and almost

> alway's culturable in the autoimmune groups.I like the idea of

> getting into darkfioeld and looking at your blood if you wanna go

> the serious route of lyme diagnosis and treatment, BUT don't be

> surprised that if your blood is no longer swirming you still maybe

> sick to the OPPURTUNISTIC PATHOGENS that bought there time to get

> there pound of your flesh.

>

> rest snipped to cut length

>  

>

>

>  

>

>

>

>

[Guest guest]

have you ever tried Cipro?

bleu

On 10 May 2006, at 22:48, julie levitt wrote:

>

> I just left the docs a few hours ago and they demanded I go in the

> hospital (I refused) stating  I have a lung infection and am allergic

> to any oral antibiotics etc etc. I am currently on bactroban

> irrigation and she thinks I may have aspirated this into my lungs. My

> peak flows are bad, about 100 way worse than red zone. Can I put

> bactroban in the nebulizer versus this albuterol or on top of?

>  

>  

>

> From: infections

> [mailto:infections ] On Behalf Of julie

> levitt

> Sent: Wednesday, May 10, 2006 4:02 PM

> jkemail2004-opps@...;

> infections

> Subject: RE: [infections] MSRA positive,

> opportunitistic pathogens,

>  

>  

> I am MSRA positive consistently in every culture taken for past 4

> years including c-sec incision, numerous central lines and other

> incisions for example to repair a pneumothorax and in nasal, eye, and

> respiratory cultures. I am resistant to most every antibiotic now. At

> this moment, I am now starting my 7th week on Bactrobahn nasal

> irrigation to clear some of this.

>  

> At my last hospitalization due to gram negative staph and other

> infection of my inborne catheter removed during my hospital stay, I

> was given vancomycin for 5  days. I still test gram negative and

> doctors simply don’t care. I will spike a fever of 102-103 every 2

> weeks or so, start coughing up putrid color stuff and then fever dies

> down and I at least on the surface appear to be better. Infectious

> disease docs seem unconcerned except to label my room when I am

> hospitalized due to exacerbations of diagnosed multiple sclerosis and

> so forth.

>  

> I saw your post and I am allergic to penicillin not to mention my

> staph cultures demonstrate being resistant to penicillin, methicillin

> and others. I am also diagnosed with fibromyalgia and an unusual

> autoimmune disorder known as Behcet’s which is believed to have turned

> into Neuro-Behcet’s along with the progressive relapsing form of

> Multiple Sclerosis. I believe this all stems from viral and

> inflammatory problems which began in my childhood.

>  

> I assume I acquired the MRSA during my c-section in 2001 but I do not

> known exactly. It was not mentioned until that time.

>  

>

> From: infections

> [mailto:infections ] On Behalf Of

> dumbaussie2000

> Sent: Wednesday, May 10, 2006 2:45 AM

> infections

> Subject: [infections] Re: asks for help

>  

> â–ª KAte

> Pseudonomads is a gram negative that's highly resistant and almost

> alway's culturable in the autoimmune groups.I like the idea of

> getting into darkfioeld and looking at your blood if you wanna go

> the serious route of lyme diagnosis and treatment, BUT don't be

> surprised that if your blood is no longer swirming you still maybe

> sick to the OPPURTUNISTIC PATHOGENS that bought there time to get

> there pound of your flesh.

>

> rest snipped to cut length

>  

>

>

>  

>

>

>

>

[Guest guest]

Cipro and levaquin used to be my

mainstays. I am now very allergic to them…..You can see why I am having trouble.

A concern I have is that some of the antibiotics labeled as allergic may not

be so but may have been taken and discarded at times of extreme inflammation

and MCS stuff going on and may not be true allergies but certainly I have been

on cipro many times. For years, it was the only thing I could take….

From:

infections

[mailto:infections ] On Behalf Of Colourbleu

Sent: Thursday, May 11, 2006 2:35

AM

To:

infections

Subject: Re:

[infections] could Bactroban be put in a nebulizer

have you ever tried

Cipro?

bleu

On 10 May 2006, at 22:48, julie levitt wrote:

I just

left the docs a few hours ago and they demanded I go in the hospital (I

refused) stating I have a lung infection and am allergic to any oral

antibiotics etc etc. I am currently on bactroban irrigation and she thinks I

may have aspirated this into my lungs. My peak flows are bad, about 100 way

worse than red zone. Can I put bactroban in the nebulizer versus this albuterol

or on top of?

From:

infections

[mailto:infections ] On Behalf Of julie

levitt

Sent:

Wednesday, May 10, 2006 4:02 PM

To:

jkemail2004-opps@...; infections

Subject:

RE: [infections] MSRA positive, opportunitistic pathogens,

I

am MSRA positive consistently in every culture taken for past 4 years including

c-sec incision, numerous central lines and other incisions for example to

repair a pneumothorax and in nasal, eye, and respiratory cultures. I am

resistant to most every antibiotic now. At this moment, I am now starting my 7

th

week on Bactrobahn nasal

irrigation to clear some of this.

At

my last hospitalization due to gram negative staph and other infection of my

inborne catheter removed during my hospital stay, I was given vancomycin for

5 days. I still test gram negative and doctors simply don’t care. I will

spike a fever of 102-103 every 2 weeks or so, start coughing up putrid color stuff

and then fever dies down and I at least on the surface appear to be better.

Infectious disease docs seem unconcerned except to label my room when I am

hospitalized due to exacerbations of diagnosed multiple sclerosis and so forth.

I

saw your post and I am allergic to penicillin not to mention my staph cultures

demonstrate being resistant to penicillin, methicillin and others. I am also

diagnosed with fibromyalgia and an unusual autoimmune disorder known as

Behcet’s which is believed to have turned into Neuro-Behcet’s along with the

progressive relapsing form of Multiple Sclerosis. I believe this all stems from

viral and inflammatory problems which began in my childhood.

I

assume I acquired the MRSA during my c-section in 2001 but I do not known exactly.

It was not mentioned until that time.

From:

infections

[mailto:infections ] On Behalf Of dumbaussie2000

Sent:

Wednesday, May 10, 2006 2:45 AM

To:

infections

Subject:

[infections] Re: asks for help

?

KAte

Pseudonomads

is a gram negative that's highly resistant and almost

alway's

culturable in the autoimmune groups.I like the idea of

getting

into darkfioeld and looking at your blood if you wanna go

the

serious route of lyme diagnosis and treatment, BUT don't be

surprised

that if your blood is no longer swirming you still maybe

sick

to the OPPURTUNISTIC PATHOGENS that bought there time to get

there

pound of your flesh.

rest

snipped to cut length