Re: asks for help

[Guest guest]

((((((((((((((Hugs))))))))))))). So good to hear from you. I couldn't find your post in the files section. Marie Schaafsma <compucruz@...> wrote: Hi,I wrote a post asking for help, but it had to cover a lot of difficult ground and I didn't want to burden the list with it. So I put it in the files section, a text file with my name and asks4help in the title.Will welcome any replies, and take offense at none.Am especially hoping to hear from Tony, actually.Best to all of you,

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[Guest guest]

Hello , I’m sorry you are so ill, I can tell you I and I suspect many

here very much admire your fighting spirit, It comes across so strong .

Looking at your treatment protocols it seems there’s not much else but

Antifungals

…Well testing first Take a look at Gliotoxin it’s a metabolite of a

number of fungi and is a good place to start in testing…. look at pub med

9304400 for a quick intro.

More on Gliotoxin

http://www.altcorp.com/AffinityLaboratory/SlideShows/Gliotoxin/sld011.htm

And how to test for Gliotoxin

http://www.aspergillus.man.ac.uk/indexhome.htm?secure/laboratory_protocols/.

/gliotoxin1.html~main

Just a thought , have you tested for how efficient you are in metabolising

drugs?

I wouldn’t contemplate any immune dampening drug , I would suggest you try

cimetidine ,[Tagamet trade name in the US] its an histamine blocker , if

your immune system is reacting allergically this drug will control that. I

find it very effective on that account.

Read the interview

That’s all for now , hope this has helped , if I think of more I’ll post

...If I can help in any way just shout…

Case report: successful treatment with cimetidine and zinc

> sulphate in chronic mucocutaneous candidiasis.

>

> Polizzi B, Origgi L, Zuccaro G, Matti P, Scorza R.

>

> Institute of Internal Medicine, Infectious Disease and

> Immunopathology, Univerity of Milan, Italy.

>

> The authors evaluated the clinical efficacy of a treatment

> with cimetidine and zinc sulphate in a patient with

> chronic mucocutaneous candidiasis. Cimetidine was given at

> a dose of 400 mg three times daily; zinc sulphate at a

> dose of 200 mg daily, then adjusted to maintain blood zinc

> levels at the upper normal range. This treatment lasted 16

> months. An impressive and significant reduction of the

> infectious events and an increased CD4 (helper/inducer)

> cell counts were observed. The authors conclude that this

> combined immunopotentiating treatment is safe and

> inexpensive to treat immunodeficiency disorders.

Here is a section from my old web site

Tests & Treatment

There are a variety of tests available , the problem is that as candida is

present as part of our normal flora it’s difficult to determine when

Candida has increased to the point of being pathogenic! [Harm causing] It

adds up to being difficult to test for.

The IgA, IgG, and IgM are three tests which are somewhat reliable

separately, and together have a good degree of reliability. The candida

immune complexes test is even more reliable.

http://www.aal.xohost.com/candidacontent.htm

Immunoglobulins Test Overview

http://aolsvc.health.webmd.aol.com/hw/health_guide_atoz/hw41342.asp

Other tests notably organic acid testing or metabolic profiling As detailed

by Great plains laboratorys These tests have a

proven record ,as with all the tests getting the doctors to accept the

significance of the result is the problem here.

http://www.greatplainslaboratory.com/yeast.html

Med Dosw Mikrobiol. 2002;54(3):273-9. [Presence of fungi in stool of

children]

Pawlik B, Macura AB, Bialek-Kaleta J.

Zaklad Mykologii Katedry Mikrobiologii Collegium Medicum U.J. w Krakowie.

A total of 258 children were tested for the presence of fungi in stool. One

group consisted of 148 children with non-specific gastrointestinal tract

disorders while the other was a group of 110 asthmatics. A quantitative

method of enzymatic and mechanical homogenisation was used. The findings

were divided into three ranges as follows: < 10(3), 10(3)-10(5), > 10(5)

fungal cells in one gram of stool. The number of > 10(5) fungal cells in one

gram of stool was considered as pathogenic and requiring treatment. Such a

number of fungi in stool was found in 48.1% of children in the first group

and in 35.9% in the second one. However, the percentage of fungal presence

was higher in the group of asthmatics (83.6% vs. 70.3%). Candida albicans

considerably outnumbered the remaining fungal species in the isolates. It

was found out that other than C. albicans Candida species were more

resistant to the antifungals.

PMID: 12632663 [PubMed - indexed for MEDLINE]

The tests listed are fine if they are conducted within a short time of

contracting the infection, over time it’s now known that we produce a

lessening response to Candida antigen. This is called an Anergy . There is a

test called Hypersensitivity allergy test It’s a medical fact that a

healthy person will react allegically to Candida albicans,. Using a clinical

test for normal immunity, the doctor injects a small amount of Candida yeast

extract under the skin and observes for a raised, red allergic reaction. If

that reaction does not occur, the patient is diagnosed as " anergic, " meaning

that the immune system is not functioning. In other words, the body will

always react allergically to Candida yeast unless immunity has become

paralysed or stressed-out. That fact proves that the presence of yeast in

the body creates stress to immunity.

If therefore we take a Hypersensitivity allergy test we would have a better

overall picture. The outcome should help in assessing serology tests.

see also http://www.emedicine.com/derm/topic569.htm

[infections] asks for help

Hi,

I wrote a post asking for help, but it had to cover a lot of difficult

ground and I didn't want to burden the list with it. So I put it in

the files section, a text file with my name and asks4help in the title.

Will welcome any replies, and take offense at none.

Am especially hoping to hear from Tony, actually.

Best to all of you,

[Guest guest]

Sorry to hear the news it not being so hot for you. My gut feeling

tells me I would want to try VAncomycin looking for a major relief-

yet not expecting this drug to win out on it's own.The problem when

doing drugs is that you can create a bigger infection if your not

doing them right.Antibiotics are capable of switching bacteria on

and off as far as there toxin factories go.Doing ceftriaxone would

see relief in high dosage area's hence the easing encephalitis- but

is not the drug to attack gram positives- the job is never going to

be done IMO.

So again try the vancomycin and if you start having a turn around

improvement support it with high dose penicillin 20 plus grams a day

to help clear the heart muscle not the easy dosing bicillin shots

once a week or whatever they did.

I believe your viruses are going to fester due to ilness yet these

viral particles they are looking at could be bacterial toxins(same

size) or whatever because your bloodstream would be a mess.I would

also be very keen on doing blood thinners to help the drugs work

better because your blood would be a coagulation mess if you are so

ill.

The fact that your mother had you when she was older would have

meant that you where possably exposed to UNDIAGNOSABLE INFLAMMATION

that many older people get egs. arthritic complaints.

If they want to look for real pathogens they could locate

pseudonomads aeuriganosa/ candida / and possably a few too many

species of staph epidermis producing some damaging/chanelling toxins

the bowel could be full of these toxins hence looser stools.

tony

>

> Hi,

>

> I wrote a post asking for help, but it had to cover a lot of

difficult

> ground and I didn't want to burden the list with it. So I put it

in

> the files section, a text file with my name and asks4help in the

title.

>

> Will welcome any replies, and take offense at none.

>

> Am especially hoping to hear from Tony, actually.

>

> Best to all of you,

>

>

>

[Guest guest]

, it's not a burden. That's what the list is here for, to try to

help each other figure this stuff out. And the more we share, the

more we might be able to help someone else as well.

Don't give up hope.

Not to minimize your situation, but it's kind of a positive trait of

our chronically ill ( & undiagnosed), community to keep hanging on

long after it seems we should have succumbed to something.

Maybe we're just too stubborn to give in?

So keep hanging in there. And believe that something's going to work.

That optimism alone creates some good chemicals in the brain. And

who here would pass up good brain chemicals? :-)

penny

<compucruz@...> wrote:

>

> Hi,

>

> I wrote a post asking for help, but it had to cover a lot of

difficult ground and I didn't want to burden the list with it.

[Guest guest]

,

I think Tony makes a great point about the gram positive bugs.

Docs & labs just ignore them.

Here's a trick I learned from a well respected I.D. doc and a senior

microbiologist he works with at UCSD. It might help when ordering

your lab tests.

You would ask the doc to mark your lab request with " deep wound " .

The lab is less likely to throw away the " normal " bugs that grow.

Also, I think it's very possible that fungal issues are being

missed, and the therapeutic probe with some of the better anti-

fungals would make a lot of sense.

I truly think the problem we're dealing with is docs looking but not

seeing. They've been trained to have blind spots, and unfortunately,

we're suffering as a result.

penny

>

> Amen, Penny, that is excellent advice. Thank you so much.

>

>

>

[Guest guest]

KAte

You misunderstood what I was trying to tell paul. I spent six months

trying to convince people that rocephin(ceftriaxone) is a crock of

crap drug and the whole of the autoimmune community on the internet

that's used this drug for autoimmune conditions has come up-

FAILED.MAny told me they know people that have done really well on

it-<<<<<<<<<<I JUST GO ON WHAT I HAVE READ, I REALLY PAY CLOSE

ATTENTION TO HOW TREATMENTS GO, I ALSO SPENT 100's of dollars on

phone calls to get it from the horses mouth how the treatments

going>>>>>>>>> The docs that treat serious bone infection NEVER EVER

use this drug.I actually told people on NUMEROUS OCCASIONS TRY A

FIRST GENERATION (10 times cheaper) cephalasporin for a couple of

days CEFAZOLIN- CEFAZOLIN- CEFAZOLIN...but the CONSPIRACY THEORY AND

THE well written crap keeps them in the wrong ball park..

I had a nasty, nasty, experience recently with a member whom lives

in the wrong ball park- I spent a little time doing cultures

checking out what grew and showing what the science was- but after

trying to establish if a drug I sent(gout arthritis) had aided them

in any way I got accused of everything just short of

paedophillia.This person possably had no intention of trying this

drug and I could've get me into trouble for my effort..

Also KAte doing antibiotics is all about the SCIENCE.You can pump

drugs all day and you end up with a bigger INFECTION than You

started out with unless your targeting things.Also most medicines

arte targetted at giving doctora a lazy ass aproach once a week

dosing of bicillin is sooooo laughable?When people end up in ER with

pneumonia/emningitis they do 12 to 80 grams a day of penicillin

where does 1 or 2 grams of penicillin that supposedly circulate long

term fit in?

> > My gut feeling

> > tells me I would want to try VAncomycin looking for a major

relief-

> > yet not expecting this drug to win out on it's own.The problem

when

> > doing drugs is that you can create a bigger infection if your not

> > doing them right.Antibiotics are capable of switching bacteria on

> > and off as far as there toxin factories go.Doing ceftriaxone

would

> > see relief in high dosage area's hence the easing encephalitis-

but

> > is not the drug to attack gram positives- the job is never going

to

> > be done IMO.

> > So again try the vancomycin and if you start having a turn around

> > improvement support it with high dose penicillin 20 plus grams a

day

> > to help clear the heart muscle not the easy dosing bicillin shots

> > once a week or whatever they did.

>