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Re: Re: asks for help

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Tony,

Is there anything besides Vancomycin (with penicillin) that doesn't

create more gram-positive infection then? It seems like we are just

doomed to lose....

, I am so sorry to hear about your condition, and especially that

you don't know for sure what's going on.

- Kate

On May 8, 2006, at 8:25 PM, dumbaussie2000 wrote:

> My gut feeling

> tells me I would want to try VAncomycin looking for a major relief-

> yet not expecting this drug to win out on it's own.The problem when

> doing drugs is that you can create a bigger infection if your not

> doing them right.Antibiotics are capable of switching bacteria on

> and off as far as there toxin factories go.Doing ceftriaxone would

> see relief in high dosage area's hence the easing encephalitis- but

> is not the drug to attack gram positives- the job is never going to

> be done IMO.

> So again try the vancomycin and if you start having a turn around

> improvement support it with high dose penicillin 20 plus grams a day

> to help clear the heart muscle not the easy dosing bicillin shots

> once a week or whatever they did.

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No Tony, I don't think I misunderstood exactly. I was a little down

(feeling negative) and also still trying to figure out a best-guess

treatment scenario when I can't figure out how to get anything

cultured. I have the Lyme diagnosis you don't like. I have access to

things like Biaxin, Ketek, the cyclines, and Tinidizole or Flagyl.

Nobody is going to give me Vancomycin, although I know one person who

got it out of a Lyme doc and I know which doc it is . I can maybe

talk my way into a penicillin or cephalosporin, although I'm guessing

my current prescribing doc may not like them since he is into the

cyst theory. Some of those latter drugs can be otherwise obtained....

You told agent scha that all the many drugs he's taken wouldn't have

killed off a serious bacterial infection. So what you said here about

Rocephin is the kind of helpful explanatory comment I am looking for

from you in trying to avoid mistakes :

> The docs that treat serious bone infection NEVER EVER

> use this drug.I actually told people on NUMEROUS OCCASIONS TRY A

> FIRST GENERATION (10 times cheaper) cephalasporin for a couple of

> days CEFAZOLIN- CEFAZOLIN- CEFAZOLIN...

But I do understand that there may be reasons that Rocephin helps

chronic neuro-lyme symptoms that may not have to do with its

antibiotic properties.

I just checked Burrascano's Lyme guidlines and he says first

generation cephalasporins aren't effective in Lyme and third

generation are the best because of the low MBCs. So who knows? He

also says amoxicillan is more effective than oral pen V for gram

negatives like Lyme. I guess you are talking about gram positives all

the time though.

- Kate

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