Re: Fast Track (Amphotericin B) -- What we really need?

[Guest guest]

<Jaep@...> wrote:

>...I don't think the new treatment will work , fungi " root "

treating topically is like mowing the grass ,it just grows again .I

do believe a systemic is required.

Okay, this suggestion is a complete 180 from a friend of mine who

got no relief from pills, but when our doc had a compounding

pharmacy make her an ampho b spray, her chronic condition improved

almost instantly and she has remained well ever since.

OTH, I've been on high dose anti-fungal pills for a year, and I

can't say they've accomplished much. I recently stopped them after

my sinus surgery, and haven't noticed anything at all. In addition,

my doc saw and grew no fungus in my recent lab work.

This is all so frustrating. And I'm getting pretty frustrated by

the interpretations we are forced to make based on our personal

reactions to treatments.

I mean our own experience is important but we could be completely

misreading our reactions because we don't have all the information

we need and are focusing on the wrong things.

The more I watch the show " House " , the more nervous I am about our

propensity for self treatment because of how life threatening

drug/disease interactions can be (many of the same abx/blood

thinners, etc. that we use). Especially when we are as sick as we

are yet unaware of underlying conditions. The problem is, we can't

find docs willing to make the effort to find the causes or the

treatments we need so we don't have much of a choice.

As says, docs are not motivated to venture out past the status

quo, or attempt to understand what's wrong wtih us let alone treat

us, so we're forced to be our own guinea pigs.

Then we get the flip side wannabe doctors (like you-know-who) with

the God complexes who believe they've found the answer and freak out

if you ask questions or suggest alternative theories. Their egoism

results in their entire hypotheses getting trashed due to suspicion

of their personal motives.

It's a real pendulum. I don't think we should discount anyone's

experience, but I also don't think we should be so certain of our

interprestions.

We need to somehow force the medical establishment to give us

testing that will help us determine what we've got and what we need.

How can we accomplish this?

If I had the energy, I would establish a research facility that

focuses on testing for diagnostic purposes. That's what almost all

of us are missing, isn't it?...decent lab work to determine what our

bugs/illnesses are and what treatment they respond to.

Maybe we should start thinking about this and join forces, create a

non-profit organization that focuses on diagnosis. Is there any such

place? I don't think so.

penny

[Guest guest]

Way to go, . Also great news about . Please ask him to share

what he's doing with the group.

If I win the lottery, either the health lottery or plain cash, :-),

I will start doing what I can to establish some kind of non-profit

diagnostic organization to help those who can't get help (which is

most of us).

We need a lab that will not throw away samples and researchers who

will focus on these organisms. There's so much money in so many

areas of research, and yet they're overlooking these very

fundamental problems. If science doesn't start paying attention to

the impact these organisms are having on all of our health

conditions, it's just a lot of money down the health care sewer

(which then makes it way back into corporate pockets

for " processing " ).

I highly recommend the show House. Every week, the bizarre, a

patient's life threatening illness is at first misdiagnosed but

eventually always comes down to some kind of infection. Usually

bacterial and sometimes fungal and viral as well. It's a bit eye

opening how I usually recognize all the antimicrobials and tests

they discuss on the show. What freaks me out a bit, is learning how

these treatments can seriously backfire under certain conditions.

We need better testing. Can you imagine how much money in wasted

medical treatments would be saved? That's what it comes down to, is

money. Unfortunatley, the pharmaceuticals are scared to death of

microbes, because they're always being outsmarted by their

adaptability. That's why they emphasize more superficial conditions

that can be treated and may extend life or relieve symptoms for a

short time. But they're not really doing much in the way of actual

healing. :-(

penny

> >...I don't think the new treatment will work , fungi " root "

> treating topically is like mowing the grass ,it just grows again .I

> do believe a systemic is required.

>

>

> Okay, this suggestion is a complete 180 from a friend of mine who

> got no relief from pills, but when our doc had a compounding

> pharmacy make her an ampho b spray, her chronic condition improved

> almost instantly and she has remained well ever since.

>

> OTH, I've been on high dose anti-fungal pills for a year, and I

> can't say they've accomplished much. I recently stopped them after

> my sinus surgery, and haven't noticed anything at all. In addition,

> my doc saw and grew no fungus in my recent lab work.

>

> This is all so frustrating. And I'm getting pretty frustrated by

> the interpretations we are forced to make based on our personal

> reactions to treatments.

>

> I mean our own experience is important but we could be completely

> misreading our reactions because we don't have all the information

> we need and are focusing on the wrong things.

>

> The more I watch the show " House " , the more nervous I am about our

> propensity for self treatment because of how life threatening

> drug/disease interactions can be (many of the same abx/blood

> thinners, etc. that we use). Especially when we are as sick as we

> are yet unaware of underlying conditions. The problem is, we can't

> find docs willing to make the effort to find the causes or the

> treatments we need so we don't have much of a choice.

>

> As says, docs are not motivated to venture out past the status

> quo, or attempt to understand what's wrong wtih us let alone treat

> us, so we're forced to be our own guinea pigs.

>

> Then we get the flip side wannabe doctors (like you-know-who) with

> the God complexes who believe they've found the answer and freak

out

> if you ask questions or suggest alternative theories. Their egoism

> results in their entire hypotheses getting trashed due to suspicion

> of their personal motives.

>

> It's a real pendulum. I don't think we should discount anyone's

> experience, but I also don't think we should be so certain of our

> interprestions.

>

> We need to somehow force the medical establishment to give us

> testing that will help us determine what we've got and what we

need.

>

> How can we accomplish this?

>

> If I had the energy, I would establish a research facility that

> focuses on testing for diagnostic purposes. That's what almost all

> of us are missing, isn't it?...decent lab work to determine what

our

> bugs/illnesses are and what treatment they respond to.

>

> Maybe we should start thinking about this and join forces, create a

> non-profit organization that focuses on diagnosis. Is there any

such

> place? I don't think so.

>

> penny

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

You misunderstand. I'm not saying they like cures at all. They like

whatever makes money. Trying to find underlying causes and cures

when the cause is microbial is not very profitable because the bugs

are smarter than the meds. The meds don't last long and the research

costs are terrific. That's why I think they focus on superficial

treatments which remove/reduce some symptoms and at best sometimes

prolong life, but they are rarely getting to the causes of our

illnesses.

Unfortunately, most research is being supported by corporations who

want to increase profits, so I think we're seeing less and less

research into a bigger and bigger problem. Infectious disease.

> > >...I don't think the new treatment will work , fungi " root "

> > treating topically is like mowing the grass ,it just grows

again .I

> > do believe a systemic is required.

> >

> >

> > Okay, this suggestion is a complete 180 from a friend of mine who

> > got no relief from pills, but when our doc had a compounding

> > pharmacy make her an ampho b spray, her chronic condition

improved

> > almost instantly and she has remained well ever since.

> >

> > OTH, I've been on high dose anti-fungal pills for a year, and I

> > can't say they've accomplished much. I recently stopped them

after

> > my sinus surgery, and haven't noticed anything at all. In

addition,

> > my doc saw and grew no fungus in my recent lab work.

> >

> > This is all so frustrating. And I'm getting pretty frustrated by

> > the interpretations we are forced to make based on our personal

> > reactions to treatments.

> >

> > I mean our own experience is important but we could be completely

> > misreading our reactions because we don't have all the

information

> > we need and are focusing on the wrong things.

> >

> > The more I watch the show " House " , the more nervous I am about

our

> > propensity for self treatment because of how life threatening

> > drug/disease interactions can be (many of the same abx/blood

> > thinners, etc. that we use). Especially when we are as sick as we

> > are yet unaware of underlying conditions. The problem is, we

can't

> > find docs willing to make the effort to find the causes or the

> > treatments we need so we don't have much of a choice.

> >

> > As says, docs are not motivated to venture out past the

status

> > quo, or attempt to understand what's wrong wtih us let alone

treat

> > us, so we're forced to be our own guinea pigs.

> >

> > Then we get the flip side wannabe doctors (like you-know-who)

with

> > the God complexes who believe they've found the answer and freak

> out

> > if you ask questions or suggest alternative theories. Their

egoism

> > results in their entire hypotheses getting trashed due to

suspicion

> > of their personal motives.

> >

> > It's a real pendulum. I don't think we should discount anyone's

> > experience, but I also don't think we should be so certain of our

> > interprestions.

> >

> > We need to somehow force the medical establishment to give us

> > testing that will help us determine what we've got and what we

> need.

> >

> > How can we accomplish this?

> >

> > If I had the energy, I would establish a research facility that

> > focuses on testing for diagnostic purposes. That's what almost

all

> > of us are missing, isn't it?...decent lab work to determine what

> our

> > bugs/illnesses are and what treatment they respond to.

> >

> > Maybe we should start thinking about this and join forces,

create a

> > non-profit organization that focuses on diagnosis. Is there any

> such

> > place? I don't think so.

> >

> > penny

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >