Jump to content
RemedySpot.com

Need some help please

Rate this topic


Guest guest

Recommended Posts

> Hello! I have a three year old boy with ASD. Kienan (my son) has

> been on the GF/ CF diet for over a year and has been doing well on

> it. I've done a little reading on enzymes and I'm cofused about if

it

> would be o.k. to take him off the diet once he starts the enzymes or

> should I leave him on the diet .

Some kids do fine with enzymes and not on the diet, it depends on the

child and the type of enzyme you choose. My son can have casein again

with HNI enzymes, but not gluten. This is getting better with

chelation.

I want to get the best results

> possible. I have ordered enzymes from kirkman labs.

Kirkman sells several different types of enzymes. If you purchased

enzymes which are designed to work on gluten/casein, you can consider

trying diet infractions and see if your child has any problems.

I'd like to know

> if these are a good product or if I could find something better.

They work for many children, if they work for your child, then that is

good. I use HNI, they work for my kids.

http://www.houstonni.com/

Dana

Link to comment
Share on other sites

>>> Kienan (my son) has been on the GF/ CF diet for over a year and

has been doing well on it. I've done a little reading on enzymes and

I'm cofused about if it would be o.k. to take him off the diet once

he starts the enzymes or should I leave him on the diet . I want to

get the best results possible. I have ordered enzymes from kirkman

labs. I'd like to know if these are a good product or if I could find

something better. Any advise would be helpful. Thank you very much!!

Rebekah :)

Many people do not have to be on a restrictive diet with certain

enzymes. We have used Peptizyde with casein/gluten for 10 months

without problem. But if you want to be on a restrictive diet than

this is fine too. Many benefits of enzymes do not depend on diet

type. There is a certain advantage of getting nutrition from food,

though. It is known that supplemental vitamins and minerals are more

effective when taken in food when possible (sometimes it is not

possible). It food, the substances are balanced with all the other

components that help them to work. Some synthetic vitamins and such

just aren't as effective as the form that comes in nature.

I would suggest staring enzymes with your child on whatever diet he

is used to. Just change one thing at a time and let him get used to

the enzymes first for about 1 week or 2. Then if you want to, re-

introduce one food at a time. As far as " best results go " most people

find that their child improves most when they are on enzymes with

regular food. This is from people who had been on a restrictive diet

for over a year or more too. However, you may find there is still a

few foods that your child can't have even with enzymes. This is the

point of re-introducing just one food at a time, so you can find out

if there is a food the enzymes don't help with. Hint: hardly anyone

has been able to re-introduce peanuts with enzymes if their child is

intolerant of peanuts.

As far as the products go, we did best with Peptizyde. But the

Complete from Kirkmans is good too. You said you ordered something,

but didn't say what. The Companion is good and comparable to the Zyme

Prime. The DPP IV Forte is just DPP IV in a capsule. The DPP IV is

the same as in Peptizyde however the Peptizyde also contains

proteases for gluten breakdown whereas the Forte does not. The other

proteases also help get the DPP IV started. DPP IV only breaks down

bonds internal to the peptide. Some other protease is needed to break

down the initial bonds, otherwise DPP IV just sits there.

How effective a product is also depends on your goals. I wanted to re-

introduce casein so that is why I stick with Peptizyde. But if you

want to stay GFCF, or if your child has other sensitivities, you may

be happy with another product. Some people need to avoid the

bromelain and papain that is in many products and they are quite

happy with the Enzymedica line. Please post how it goes for you.

.

Link to comment
Share on other sites

  • 3 years later...
  • 2 months later...
Guest guest

Hi all

Haven't posted in quite a while, was do quite well with

mitochondrial support as per Sanatra and Dr M until early February

when I caught a horrible cold and then a severe GI bug. Haven't

been able to get well since and caught another GI bug which was so

bad I pasded out from the loss of fluid and my weak adrenals.

Now have another infection in my ear/throat and feeling pretty

hopeless. Wonder if there is now any consensus on the best way to

get at these bugs (daignosed with borrelia 3 years ago). I don't

feel I can attempt the unnamed protocol because I just couldn't live

in a cave I love the sun too much and we have had so little of it

here in the UK for the past 5 months the last thing I want to do is

to avoid it when I does appear! However I am sure it is going in

the right direction to take one drug to modulate the immune system

plus an effective abx.

I know the latest research from Dr Gow and Kerr have shown the

immune system in people with CFS isn't working propertly some genes

are turned on and some turned off so presumably our immune systems

just aren't recognising the bugs.

Thanks for any thoughts

Pam

Link to comment
Share on other sites

Guest guest

Pam wrote, " ...so presumably our immune systems

just aren't recognising the bugs.

I just had a thought to a question I thought I knew the answer, but I

am not sure. If your antibody titers to a particular pathogen are up,

does that necessarily mean they are working to kill the bugs. Can

they be produced, and not work correctly due to dna turned off, etc,

or whatever? Thanks.

>

> Hi all

>

> Haven't posted in quite a while, was do quite well with

> mitochondrial support as per Sanatra and Dr M until early February

> when I caught a horrible cold and then a severe GI bug. Haven't

> been able to get well since and caught another GI bug which was so

> bad I pasded out from the loss of fluid and my weak adrenals.

>

> Now have another infection in my ear/throat and feeling pretty

> hopeless. Wonder if there is now any consensus on the best way to

> get at these bugs (daignosed with borrelia 3 years ago). I don't

> feel I can attempt the unnamed protocol because I just couldn't

live

> in a cave I love the sun too much and we have had so little of it

> here in the UK for the past 5 months the last thing I want to do is

> to avoid it when I does appear! However I am sure it is going in

> the right direction to take one drug to modulate the immune system

> plus an effective abx.

>

> I know the latest research from Dr Gow and Kerr have shown the

> immune system in people with CFS isn't working propertly some genes

> are turned on and some turned off so presumably our immune systems

> just aren't recognising the bugs.

>

> Thanks for any thoughts

>

> Pam

>

Link to comment
Share on other sites

  • 3 years later...

Have you thought about seeing a chiropractor? That would be my first

suggestion.

Tammy

[ ] Need some help please

I am totally confused as to what is happening in our family. I have an

older daughter who was severely low on b12...lost lots and lots of

weight....she is grown up and on her own... Another daughter and I are having

some really weird issues and the dr doesn't have a clue as to what is goin on.

We have major pain in arm and shoulder muscles...sometimes ribs or spine. It

goes down the arm to the fingers. Now it is goin up the neck and hurts in ears

and mouth. We are gf/cf/nut and most legum free. I am wondering if it could be a

thiamin issue...but if it is how do I balance riboflavin....one other daughter

is showing these same signs...but she is also low in b6. Any ideas to help

here???? The dr has no clue at all.

Thanks

Ronni

Link to comment
Share on other sites

I would see a chiropractor and a massage therapist to see if adjusting the bones

or releasing locked up muscles/fascia can release anything pressing on any

nerves. Does arnica (homeopathic) help?

>

> I am totally confused as to what is happening in our family. I have an

> older daughter who was severely low on b12...lost lots and lots of

weight....she is grown up and on her own... Another daughter and I are having

some really weird issues and the dr doesn't have a clue as to what is goin on.

>

> We have major pain in arm and shoulder muscles...sometimes ribs or spine. It

goes down the arm to the fingers. Now it is goin up the neck and hurts in ears

and mouth. We are gf/cf/nut and most legum free. I am wondering if it could

be a thiamin issue...but if it is how do I balance riboflavin....one other

daughter is showing these same signs...but she is also low in b6. Any ideas to

help here???? The dr has no clue at all.

>

> Thanks

> Ronni

>

Link to comment
Share on other sites

Can you describe the type of pain you are having? I mean, is it more like sore

muscles after working too hard? Or is it more like tingling and stabbing

needles, as if the limb was asleep? Or....?

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

> I am totally confused as to what is happening in our family. I have an

> older daughter who was severely low on b12...lost lots and lots of

weight....she is grown up and on her own... Another daughter and I are having

some really weird issues and the dr doesn't have a clue as to what is goin on.

>

> We have major pain in arm and shoulder muscles...sometimes ribs or spine. It

goes down the arm to the fingers. Now it is goin up the neck and hurts in ears

and mouth. We are gf/cf/nut and most legum free. I am wondering if it could

be a thiamin issue...but if it is how do I balance riboflavin....one other

daughter is showing these same signs...but she is also low in b6. Any ideas to

help here???? The dr has no clue at all.

>

> Thanks

> Ronni

>

Link to comment
Share on other sites

Definitely see a chiropractor who practices applied kinesiology. They can tell

you through muscle testing what supplements you need in your body. We have

witnessed some amazing things with my son through a chiropractor. What area do

you live in?

Sandy

>

> Have you thought about seeing a chiropractor? That would be my first

suggestion.

>

> Tammy

>

> [ ] Need some help please

>

>

>

> I am totally confused as to what is happening in our family. I have an

> older daughter who was severely low on b12...lost lots and lots of

weight....she is grown up and on her own... Another daughter and I are having

some really weird issues and the dr doesn't have a clue as to what is goin on.

>

> We have major pain in arm and shoulder muscles...sometimes ribs or spine. It

goes down the arm to the fingers. Now it is goin up the neck and hurts in ears

and mouth. We are gf/cf/nut and most legum free. I am wondering if it could be a

thiamin issue...but if it is how do I balance riboflavin....one other daughter

is showing these same signs...but she is also low in b6. Any ideas to help

here???? The dr has no clue at all.

>

> Thanks

> Ronni

>

>

>

>

>

>

Link to comment
Share on other sites

I frequently wake up with my one arm " asleep " , only not the normal " asleep " .

More like numb and stiff it hurts. Changing position helps. I believe this is

due to something in my body changing. I go through periods where it is better

and periods where it is worse. It seems to have generally improved with

gradually killing off infection. As I mentioned recently, I took vitamin A,

vitamin E and OLE daily for about 2 years to reduce the load of infection on my

system. I am no longer on those but I continue to see gains.

I also have to get enough b complex, iron, and calcium to deal with restless leg

syndrome (RLS). My tendency to get RLS is much decreased. I used to have to take

a lot of b complex and iron every day and now I take it intermittently. My need

for both of those went down when anesthesia from an operation I had decades ago

finally began coming out of my system. I and at least a couple of relatives do

poorly with novocaine, lidocaine and related drugs. For dental work, they have

to dope the hell out of us. I have been so doped, my nose and ear were numb but

when they did the root canal, I felt it when they hit the tooth pulp. I had an

operation on my foot when I was about 14. I had stepped on a needles barefoot,

it had broken in two and half of it lodged in the bottom of my foot. The doctor

on staff didn't order an x-ray when we first went. I ended up with blood

poisoning and they operated about 3 days after the fact, after the mom of the

friend I had been visiting found the other half of the needle and called my

mother to tell her. They injected me with one of these drugs I am resistant to

(lidocaine, I think) and figured it would be quick. They dug around in my foot

for two hours trying to find the needle and injected me with 3 or 4 new shots

every 15 minutes or so as the drug wore off. I later threw up on the way home,

which I have recently concluded was likely due to being so abusely overdosed

with this anesthetic.

Some months ago, I had an incident where my speech was impacted and there was

clearly something going on neurologically and with my feet. My son told me he

could smell a drug coming out of me but he couldn't identify it (probably in

part because he wasn't alive when I was 14 -- he often can tell me roughly how

old he was when he first smelled some drug coming out of my system and I can

tell him what medication I was on around that time). He told me it was a drug

that impacted the nervous system. We talked some more and I concluded it was an

anesthetic and ultimately concluded it was the anesthetic used on my foot when I

was 14. After that, my need for b complex dropped dramatically and my foot

problems are generally better.

I'm not sure I have a point. Maybe something in my story will click for you.

Good luck with this.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

> Sometimes it feels like it is stabbing, other times like a burn. I wish it

would take a nap!!! Also depends on the position...the longer it is in

it...like sleeping..the worse it is when we get up.

>

Link to comment
Share on other sites

This has happened to me, too. Tends to be the same shoulder/arm. I'm not sure

what it is, but mine also can have the 'asleep' sensation you commonly think

about (tingling). I thought it was just how I slept on the shoulder; nerve

pinching and such. It hasn't happened in quite a while so maybe it is something

more?

I have no idea how lidocaine can still be in your system decades after it was

used. You are saying your son smells drugs coming out of you and can also say

what type of drug it is?

Pam

> >

> > Sometimes it feels like it is stabbing, other times like a burn. I wish it

would take a nap!!! Also depends on the position...the longer it is in

it...like sleeping..the worse it is when we get up.

> >

>

Link to comment
Share on other sites

My son has a very keen sense of smell. He usually cannot initially name the

drug but gives information about how they are effecting me and when he remembers

similar smells and effects. We pool our information and observations and draw

conclusions. Some drugs I can identify by the side effects they cause. I was

on quite a lot of medication for many years and as I gradually got off them, my

experience was that the drug residues gradually had to come out. We have

observed that they tend to came out in reverse order, like a geographical dig:

Going back in time over the course of my life the further down you " dig " .

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

> This has happened to me, too. Tends to be the same shoulder/arm. I'm not

sure what it is, but mine also can have the 'asleep' sensation you commonly

think about (tingling). I thought it was just how I slept on the shoulder;

nerve pinching and such. It hasn't happened in quite a while so maybe it is

something more?

>

> I have no idea how lidocaine can still be in your system decades after it was

used. You are saying your son smells drugs coming out of you and can also say

what type of drug it is?

>

> Pam

>

Link to comment
Share on other sites

This might be a vitamin/mineral, etc. issue, neurological issue, or your family

may be developing sensitivity to electromagnetic fields.

This is a complex issue, unknown to almost everyone, especially Americans, as we

are constantly lied to about most everything (Vaccines, mercury, Swine Flu, etc.

etc.) In Europe, this is known, and scientists have for about 30 years been

trying to get people and governments to acknowledge certain truths.

Our bodies are meant to be in harmony with earth's natural energy fields, earth

sounds, sun & moon light. We have created a hell of electro-magnetic energies

that we are constantly being bombarded with that absolutely disrupt every

function in our bodies. It also makes cells leaky. Leaky cells are another

factor in letting out necessary minerals and letting in stuff you don't want

inside the cells. One particular mineral that is being leaked out is calcium.

One of my sisters and I have both become so sensitive, it interferes with many

things. We both have tingling, buzzing, numbness, pain. I have the sensation

of feeling electricity in my body as if I were plugged into an outlet.....

This EM Sensitivity reaction often happens if there has been some body trauma -

like surgery, reaction to anesthesia, an accident, or some electrical shock. It

also happens to a lot of people who work with computers, especially if their

workplace has changed the monitors, computers, etc. and the computers weren't

outgassed before being shipped. The epoxy used in computers is really toxic

when heated.

It also happens to people who've recently had new cell phone towers installed

nearby. I have no doubt, whatsoever, that ASD kids are much more sensitive than

the rest of us. It harms animals. It even harms trees. See how many cell phone

towers are in your area!!

I can hardly be on the computer for any length of time now, and I used to be on

it all day. Even talking on the telephone bothers me. Sometimes appliances

like the fridge or stove bother me. The worst place is any building with lots of

electrical equipment and fluorescent lights (like doctors' offices)!

Metals factor in because they conduct electricity. Those with amalgams are more

sensitive, of course....

Or, this may have nothing whatsoever to do with your situation!!

http://www.emfsensitivity.com/

http://bemri.org/archive/hese-uk/en/niemr/ehs.php

If you read the Swedish study, it's pretty astounding.

Best book: " Cross Currents " by Dr. Becker He also wrote " The Body

Electric " years ago.

judy

>

> I am totally confused as to what is happening in our family. I have an older

daughter who was severely low on b12...lost lots and lots of weight....she is

grown up and on her own... Another daughter and I are having some really weird

issues and the dr doesn't have a clue as to what is goin on.

>

> We have major pain in arm and shoulder muscles...sometimes ribs or spine. It

goes down the arm to the fingers. Now it is goin up the neck and hurts in ears

and mouth. We are gf/cf/nut and most legum free. I am wondering if it could

be a thiamin issue...but if it is how do I balance riboflavin....one other

daughter is showing these same signs...but she is also low in b6. Any ideas to

help here???? The dr has no clue at all.

>

> Thanks

> Ronni

>

Link to comment
Share on other sites

Our health deteriorated noticably after a cel tower a block away was

heightened, twice within a few months. Now it's a monster tower, and using

a computer makes me insane. It was worse when I had amalgams. When my 3rd

amalgam came out (last on the top, with 2 more still on bottom), the

numbness in my hands dropped by 75% within 3 days. I still can't stand to

be in fluorescent lights. If I'm not mistaken, this is something that can

be helped by taking healing clay internally. I was doing it for a while,

but fell off the wagon, so no firsthand knowledge. Others do claim to have

been helped.

I've been looking at emf balancing products, thinking about buying a larger

model that is supposed to clear the whole house. Getting Q-links for 4

people and 2 dogs would cost as much or more, and I get a lot of resistance

trying to get clay into everybody.

Darla

--- Original Message -----

From: " judyl_nev " <juude@...>

< >

Sent: Saturday, November 14, 2009 10:15 PM

Subject: [ ] Re: Need some help please

> This might be a vitamin/mineral, etc. issue, neurological issue, or your

> family may be developing sensitivity to electromagnetic fields.

>

> This is a complex issue, unknown to almost everyone, especially Americans,

> as we are constantly lied to about most everything (Vaccines, mercury,

> Swine Flu, etc. etc.) In Europe, this is known, and scientists have for

> about 30 years been trying to get people and governments to acknowledge

> certain truths.

>

> Our bodies are meant to be in harmony with earth's natural energy fields,

> earth sounds, sun & moon light. We have created a hell of

> electro-magnetic energies that we are constantly being bombarded with that

> absolutely disrupt every function in our bodies. It also makes cells

> leaky. Leaky cells are another factor in letting out necessary minerals

> and letting in stuff you don't want inside the cells. One particular

> mineral that is being leaked out is calcium.

>

> One of my sisters and I have both become so sensitive, it interferes with

> many things. We both have tingling, buzzing, numbness, pain. I have the

> sensation of feeling electricity in my body as if I were plugged into an

> outlet.....

>

> This EM Sensitivity reaction often happens if there has been some body

> trauma - like surgery, reaction to anesthesia, an accident, or some

> electrical shock. It also happens to a lot of people who work with

> computers, especially if their workplace has changed the monitors,

> computers, etc. and the computers weren't outgassed before being shipped.

> The epoxy used in computers is really toxic when heated.

>

> It also happens to people who've recently had new cell phone towers

> installed nearby. I have no doubt, whatsoever, that ASD kids are much

> more sensitive than the rest of us. It harms animals. It even harms

> trees. See how many cell phone towers are in your area!!

>

> I can hardly be on the computer for any length of time now, and I used to

> be on it all day. Even talking on the telephone bothers me. Sometimes

> appliances like the fridge or stove bother me. The worst place is any

> building with lots of electrical equipment and fluorescent lights (like

> doctors' offices)!

>

> Metals factor in because they conduct electricity. Those with amalgams

> are more sensitive, of course....

>

> Or, this may have nothing whatsoever to do with your situation!!

>

>

> http://www.emfsensitivity.com/

>

> http://bemri.org/archive/hese-uk/en/niemr/ehs.php

> If you read the Swedish study, it's pretty astounding.

>

> Best book: " Cross Currents " by Dr. Becker He also wrote " The Body

> Electric " years ago.

>

> judy

>

>

>

>>

>> I am totally confused as to what is happening in our family. I have an

>> older daughter who was severely low on b12...lost lots and lots of

>> weight....she is grown up and on her own... Another daughter and I are

>> having some really weird issues and the dr doesn't have a clue as to what

>> is goin on.

>>

>> We have major pain in arm and shoulder muscles...sometimes ribs or spine.

>> It goes down the arm to the fingers. Now it is goin up the neck and

>> hurts in ears and mouth. We are gf/cf/nut and most legum free. I am

>> wondering if it could be a thiamin issue...but if it is how do I balance

>> riboflavin....one other daughter is showing these same signs...but she is

>> also low in b6. Any ideas to help here???? The dr has no clue at all.

>>

>> Thanks

>> Ronni

>>

>

>

>

>

> ------------------------------------

>

> =======================================================

>

Link to comment
Share on other sites

>

>

> I have no idea how lidocaine can still be in your system decades after it was

used.

----

Another thought that might help make sense of this:

I have a form of cystic fibrosis. CF causes the body to purge some things at

high rates, like salt and baking soda, but also causes the body to hang on to

other things. It is well established that people with CF typically have too

little glutathione on the cell surface and too much inside the cell. We also

tend to horde calcium inside the cell. I strongly suspect we horde drug

residues (at least from some drugs) and hang on to metals more strongly than

normal. Getting myself well has involved pulling quite a lot of stuff out of my

system, including metals, infections I've had for decades, and other toxins.

Anecdotally, I appear to have corrected some of these imbalances. For example,

I no longer dehydrate as easily as I used to and glutathione appears to be

gradually coming out. Presumably this is accompanied by more being on the cell

surface and less being inside the cell. I suspect that people with CF horde

calcium and glutathione as a desperate attempt to buffer the body from the toxic

processes that gradually kill us. I think toxic stuff steadily builds up in the

system until it is simply unsurvivable. Drawing all that stuff out and putting

in the good stuff I was lacking has been a basic principle of getting myself

well when doctor's claim it cannot be done.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

Link to comment
Share on other sites

RE the EMF comments:

I have heard that one test for cystic fibrosis is something that measures

something electrical about the body. I was told this when I asked if my tendency

to get badly shocked from static electricity was a CF thing. I suffered it

horribly as a child and it came back for a time a few years ago. It is better

now. This is likely related at least in part to our tendency to purge salt at

high rates (salt is, of course, an electrolyte and does impact the body's

electrical and neurological stuff).

Getting sufficient quantities of good quality sea salt has helped my issues

generally. I think getting the right oils and carbs (glyconutrients) somehow

plays a role here too. I think it helps the body hold the electrolytes

properly. I no longer dehydrate as badly as I used to. This seems to be

largely related to addressing the salt/mineral issue and getting the right oils.

Something I happened to write earlier tonight on a different list:

-----

" A general principal of hydration for the skin is that in very moist, mild

climates (like Ireland), moisturizers help. But in very hot, dry climates (like

a desert), moisturizers make things worse and actually dehydrate the skin

because they work by helping move water from a moist area to a dry area. If

your skin is wetter than the air, it sucks moisture out of you. So, in such

climates, oiling the skin works better to keep it hydrated.

I used to have big problems with hot weather. I was very prone to dehydration

and would just wilt in the heat. I think getting enough of the right oils in my

diet has helped with this. I think people with CF are sort of " spongier " than

other people, who seem more 'solid' or " wax-like " to me (for lack of a better

word). Getting enough sea salt and enough healthy oils has made me generally

stay hydrated better and I don't wilt in the heat like I used to. It took time

to get where I am now. But that doesn't mean you wouldn't see short-term

improvements. It just means sticking with it consistently will pay dividends in

the long run.

For me, organic coconut oil and organic butter have been the two most important

oils/fats for building a healthier body. I consume a great deal more butter

than I do coconut oil, though taking coconut oil daily as a supplement was very

important to me at one time for several months. "

----

So that makes sense to me as part of what is going on. Correctly my mineral

issues has been a huge part of what I have done to get myself well and this has

impacted my neurological and electrical stuff. I have been noticing I get

shocked by metal at work here lately and my teeth are showing signs of me not

getting enough calcium here lately. That may well be related.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

>

> This might be a vitamin/mineral, etc. issue, neurological issue, or your

family may be developing sensitivity to electromagnetic fields.

>

Link to comment
Share on other sites

One more thought about the EMF stuff:

We dismantled our washer and dryer over a year ago and dragged them down to the

dumpster in pieces. We live in an apartment so we still have a dishwasher but

no longer ever use it. So it never gets turned on. We are doing better since

we made these changes. I believe part of that improvement is due to cleanliness

but I believe part of it is due to reducing the EMF fields we were constantly

exposed to at home.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

Link to comment
Share on other sites

Interesting thaought....and I am curious...what do you do for major

appliances....what do you do for light.....I live under my florescent lights in

the winter...can't stand to be too far from them. I think it has to do with

SADD and yeah I do take vit D....4000 mgs a day. I live in a valley in North

Central Washinton...and it is gray for months at a time.

Ronni

> >>

> >> I am totally confused as to what is happening in our family. I have an

> >> older daughter who was severely low on b12...lost lots and lots of

> >> weight....she is grown up and on her own... Another daughter and I are

> >> having some really weird issues and the dr doesn't have a clue as to what

> >> is goin on.

> >>

> >> We have major pain in arm and shoulder muscles...sometimes ribs or spine.

> >> It goes down the arm to the fingers. Now it is goin up the neck and

> >> hurts in ears and mouth. We are gf/cf/nut and most legum free. I am

> >> wondering if it could be a thiamin issue...but if it is how do I balance

> >> riboflavin....one other daughter is showing these same signs...but she is

> >> also low in b6. Any ideas to help here???? The dr has no clue at all.

> >>

> >> Thanks

> >> Ronni

> >>

> >

> >

> >

> >

> > ------------------------------------

> >

> > =======================================================

> >

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...