Re: Digest Number 510-Penny

[Guest guest]

Hi Penny,

I don't know how your sinuses ended up in such bad

shape. My thoughts + prayers are with you for a speedy

recovery. I have some good news on my end. Today, is

the first day since last AUGUST I woke up and both of

my ears unclogged and have remained unclogged so far

all day. I'm being treated for a fungal infection in

my sinuses that I believe is due to inhaling mold for

7 years in an office building where I work.

Moni

--- infections wrote:

> There are 5 messages in this issue.

>

> Topics in this digest:

>

> 1. Pretty good Merck overview of osteomyelitis

> From: " penny " <pennyhoule@...>

> 2. Re: no pain meds and finally ID doc

> From: " penny " <pennyhoule@...>

> 3. Bone Biopsy Results

> From: Tolson

> <etolson@...>

> 4. Re: no pain meds and finally ID doc

> From: " Barb Peck " <egroups1bp@...>

> 5. Re: Bone Biopsy Results

> From: " penny " <pennyhoule@...>

>

>

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> Message: 1

> Date: Mon, 24 Apr 2006 16:02:41 -0000

> From: " penny " <pennyhoule@...>

> Subject: Pretty good Merck overview of osteomyelitis

>

> Article doesn't discuss dental implants, root canals

> or sinus disease

> as known causes, but this is a pretty good

> explanation of bone

> infection: I think a lot more of us are suffering

> from this than we

> know. Especially since symptoms can fly under the

> radar.

>

> http://www.merck.com/mmhe/sec05/ch065/ch065b.html

>

> penny

>

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> Message: 2

> Date: Mon, 24 Apr 2006 16:33:29 -0000

> From: " penny " <pennyhoule@...>

> Subject: Re: no pain meds and finally ID doc

>

> Yes, Barb. Had it last tuesday.

>

> So far I'm very hopeful, also a bit alarmed and

> amazed.

>

> My sphenoids were badly infected, and according to

> my research,

> sphenoid infections are fatal and need to be caught

> quickly. Doc

> said the goo in my head looked " years old " . Very

> thick stuff. Lots

> of pus.

>

> I'm seeing doc for follow up today. Should get

> culture results and

> switch up antibiotics. I've been on Omnicef but I

> don't think it's

> strong enough.

>

> The side effects to this baloon sinuplasty have been

> fairly minimal

> compared to reported side effects of regular

> endoscopic surgery.

> (Also, it appears that the need for follow up

> surgery is much less

> with this procedure.) Only minimal bleeding, no

> stints or packing

> required. Still have clots coming out which I think

> are causing most

> of my allergic type symptoms. Woke up feeling

> semi-decent today. I'm

> sure I wouldn't have fared as well if I'd had the

> other surgery.

>

> My worst reactions post surgery have been severe

> allergy type

> symptoms, itchy eyes, sneezing, overall allergy type

> malaise and

> extreme fatigue. Some headaches (severe to mild).

> Some fever. I've

> also got blurred vision. It turns out the sphenoid

> sinuses are much

> riskier for surgery because they are far back in the

> head and very

> close to the opthamolic nerve, the pituitatry, the

> brain etc. But

> also a very bad place for an infection to turn into

> osteomyelitis so

> I'm thankful she found it. I'm hoping the sphenoid

> bone and sinus

> walls are still intact and not damaged by

> osteomyelitis.

>

> Oddly, the medication that has helped the allergy

> symptoms the most

> are the pain med, Ultracet. Seems to dampen the

> allergic reaction

> down better than anything else.

>

> The most remarkable thing is that right after the

> surgery, my neck

> and shoulder pain vanished. And it was severe. The

> neck pain has

> been around forever, the shoulder pain has been

> getting

> progressively worse for over a year. I get my

> sphenoids cleared out

> and the pain magically disappears and my arm

> rotation is vastly

> improved. My jaw also felt better, until I started

> feeling like I

> might be developing a new sinus infection.

>

> So we'll see what the doc says today. I know 2 of

> her patients, who

> she worked with for over a year each to get well.

> I'm praying I'm

> another one she can help.

>

> penny

>

> p.s. I think a person less ill than myself would

> have a much easier

> go of the surgery. They say many are back on their

> feet in a day.

> But I went into this sick to begin with. I also

> think my body did

> not handle the anesthesia well at all. They wouldn't

> let me leave

> recovery for a long time. My heart rate was too

> high, my bladder

> wouldn't empty (indicative of kidney problems).

> Going in, they

> couldn't get a bp on me and I almost couldn't get

> admitted because

> my bp was so low (which is typical of me that early

> in the morning).

> They also had difficulty finding a vein for the i.v.

>

>

> After surgery I woke up with an extremely sore

> throat, and I'm still

> very hoarse. I think they shoved something down it.

> My body temp was

> 96 the rest of the day (I felt very cold internally)

> and I also have

> scratches on my upper arms. I don't think surgery

> was especially

> smooth. I'm going to ask for the surgical notes, see

> if they're

> telling me everything.

>

>

>

>

> >

> > Penny:

> >

> > Did you just have that new sinus surgery?

> > It's sort of like angioplasy- only in the sinus

> right?

> >

> > Are you draining infections now?

> >

> > Barb

> >

>

>

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> Message: 3

> Date: Mon, 24 Apr 2006 13:07:05 -0400 (GMT-04:00)

> From: Tolson <etolson@...>

> Subject: Bone Biopsy Results

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[Guest guest]

Yeah, I wonder too. I had numerous upper respiratory infections,

bronchitis and pneumonia as a child. This could have caused the

narrowing of the sinus openings, trapping all that mucous, creating

chronic infection and inflammation of the sinuses, eventually

creating a lot of other ailments (see pub med on sphenoid sinus's

involvement in endocrine and other ailments).

I also know that a lot of my health problems really accelerated 20

years ago after undergoing poor dental treatment (probably

unecessary). The dentist I had was a hack and couldn't get 3 crowns

right. Took him two years before I could bite down without pain. And

coincidentally, when I had my wisdom teeth removed a few years ago,

the area where the surgeon had to remove the largest chunk of bone

from my jaw due to necrosis and infection was the exact area where

the old dentist had given me numerous shots. During my two years

with that dentist, my jaw hurt so badly I could barely open my mouth

for treatment. And now I have a big hole where my jaw bone should be.

The only organism showing up on my recent lab work is p. acnes.

Despite all the abx I've been on for the last year, it's doing fine.

I'm guessing I've cleared a good portion of the staph and strep, but

that I've I've also got actinomyces, a bug that wormholes through

your sinuses and jaws but is very difficult to culture. My ENT was

surprised yesterday when she said my left side is where the CT scans

show the least infection, and yet, when she went in for her follow

up, it's where I had the most new gunk needing to be cleaned out

post surgery. The left side has always been the most difficult to

clean up, even though the right side looks like the more affected

area. I think this is because I have problem teeth on that side, and

the infection has wormholed its way back and forth between jaw and

sinuses. I doubt my sinuses will be truly okay until I identify all

the teeth and have them removed and can somehow get the infection

out of there entirely.

I truly believe that dentists are a big factor contributing to

chronic illness. If you've got any root canals, or old wisdom teeth

sockets, or any indication of any kind of dental infection, you

should be aware that this can cause mega health problems, because

your dentist is oblivious and will deny it, and no one else wants to

deal with that part of the body. Total medical stupidity and

malpractice.

thanks for your good wishes. Congrats on the unplugging of your

ears. I hope you continue to improve.

penny

> > >

> > > Penny:

> > >

> > > Did you just have that new sinus surgery?

> > > It's sort of like angioplasy- only in the sinus

> > right?

> > >

> > > Are you draining infections now?

> > >

> > > Barb

> > >

> >

> >

> >

> >

> >

> >

> >

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> > Message: 3

> > Date: Mon, 24 Apr 2006 13:07:05 -0400 (GMT-04:00)

> > From: Tolson <etolson@...>

> > Subject: Bone Biopsy Results

> >

> >

> >

> > [This message is not in displayable format]

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